I feel like I am lying

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Lillp07
Lillp07 Member Posts: 124
edited December 2014 in Just Diagnosed
I feel like I am lying

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  • Lillp07
    Lillp07 Member Posts: 124
    edited December 2014

    I have been diagnosed with IDC and will need chemo, radiation and hormone therapy. We haven't told our daughters 7 and 11 as yet because I have an appointment on Tuesday with surgon to find out my plan for treatments. They know I had the lumpectomy but thats all. A Bunch of mums at school have been asking me if anything is wrong with me and have been talking behind my back. I want to tell people but not ready.

  • Racy
    Racy Member Posts: 2,651
    edited December 2014

    Hi, and sorry about your diagnosis. It is a very personal decision when and whom to tell. Don't feel pressured. You will decide the best way for you to handle this.

    Wishing you success with your treatments. Keep in touch here as it is a great place to learn and share the situation in which we find ourselves :(.

    The ladies here are friendly, knowledgeable and caring.

  • Lillp07
    Lillp07 Member Posts: 124
    edited December 2014
  • twolumps
    twolumps Member Posts: 79
    edited December 2014

    I second what Racy said. It's really none of their business, is it? Besides, it's always been my experience that some women have tohave something to gossip about at all times. Ignore them and they'll move on to somebody else soon enough.

  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited December 2014

    it is your choice when to tell people. I totally understand not talking to your children or anyone else until you have a firm treatment plan.

    I was so sick everyone around me knew pretty soon, looking back I wished we would have been able to discreetly tell who we wanted. So many people are negative and have stories of family members who fought hard and died. You don't need that now. You need encouragement. You will figure out who you want to know. Give yourself a little time.

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2014

    Hi Lillp07. The section Talking to Your Family and Friends About Breast Cancer from the main BC.org site offers some tips for talking about breast cancer with your family and friends that you may find interesting. It's never easy, we know... but this may help a little.

    Best,

    The Mods

  • Bippy625
    Bippy625 Member Posts: 890
    edited December 2014

    lil, we have a similar dx and tx. You will see that being in tx and chemo is hard to hide. It takes much energy to even put on a cheery face. This is a huge health crisis you are in and it will be all consuming. Kids....I have none, but I am sure yours will know you are sick. I think it best to be honest with them, they are at an age to handle it. You have a good prognosis, right? So it will be a year or more of treatments, surgery, etc. and then moving on to a new normal. It may be more comforting for them if they know that and that they can help mom during. Kids really are amazing and resilient. Please do not put pressure onto yourself by having to maintain a false front with them. Maybe wait till after the holidays is all and when you have your full tx plan in place.

    Also, you will not give a flying fig about the gossipy ladies with no lives at your kids school soon. And they too will know or suspect, and are going to dither on anyways. Some may surprise you in a good way.People are going to amaze you with their reactions-good, bad and ugly! Just remember that you cannot control others and that your job is to take care of YOU.

    My first impulse was just like yours by the way....it is normal to want to keep your health private. You can keep it secret for only so long though to anyone that will be seeing you in person.

    I just finished chemo, feeling good, and do surgery soon. If you have any questions about chemo pm me or post, I am happy to share. Do you know what chemo you are getting?

    Hugs!

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited December 2014

    I know exactly how you feel. I didn't come out on Facebook or put my name in to prayed for at my church because it seems like such an impersonal way to tell people. I did identify myself as a survivor at our towns annual Walk Against Breast cancer, and I'm glad that I did. The people we know in our town have been really supportive. So many women I know shared their journeys through BC with me, women I did not even know had BC. We've gotten so much support from our friends, neighbors, and co-workers.

    Anyway, to make a long story short, tell people when you are ready, but I'll bet you'll get more support and caring than you can imagine when you do.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited December 2014

    You are not lying in the least. You have to be comfortable about if and when to tell people about your bc. If you do become comfortable telling people, you may find that two things happen. One being that many people will be supportive and very willing to help i.e. Child care and transportation, meals. I don't think I had to cook for months after my dx! The second thing is that when you divulge your condition, you control the information. I was very open about my situation, which pretty much put an end to any gossip and speculative rumors. Still, there may be some who talk behind your back. Ignore them. That is there problem and you can't control others. In the end you must do what you're comfortable with, in your own time. Take care.

  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited December 2014

    As far as your daughters, I just want to relate a story from my childhood. I was about your kids age, when I became aware that my parents looked worried. So, in my mind, I concocted this story that had all sorts of strange conclusions--that someone in our family was a criminal and had been executed or something and that we were all trying to keep it a secret. The truth was that my dad had an enlarged goiter and it was suspicious for lung cancer. That I found out only accidentally years later. Believe me, the real story would have been far less traumatic for me than my fantastic concoction. Kids know...that's my point.

    As far as other mothers, maybe they are picking up on the concern from their kids who are getting it from your kids.

  • Lillp07
    Lillp07 Member Posts: 124
    edited December 2014

    Thank you all so much for your advice. I even have a smile on my face reading through. "I won't give a flying fig about what the gossiping mothers say". Love that.

    Ive just decided we are going to tell the girls on Tuesday after the surgeons appointment when we know ourselves what's happening. Thanks again. You are all so amazing. :)

  • Kicks
    Kicks Member Posts: 4,131
    edited December 2014

    Lillp07 -

    Please find s way to talk to your kids in an age appropriate way. 'Kids' are a lot stronger than we often give them credit for when they are armed with the truth. You said there are 'gossip mongers and 'rumor creaters/spreaders' who are talking behind your back - their kids will be hearing what they are saying and will be passing it on to your kids rather or not you like it or not probably - they deserve the truth from you and be able to talk to you (or their Dad) openly about concerns but not ignorant rumors.

    Hubby was 9 when his Mom died from cervical cancer. He was never told anything by her or his Dad. The last time he saw her alive was when she was taken via ambulance on Christmas afternoon. His Dad never told him anything - the day after his Mom died, when he got to school, his Teacher told him she was so sorry to have learned his Mom had died. Christmas is still a REALLY bad time for him.

    Just my thoughts.






  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited December 2014

    My GS#1 was 7 when I lost my hair. He asked why. I told him I was sick, and had to take special medicine that made my hair fall out. But that Nana would have hair soon.

    That was enough for him.

  • Lillp07
    Lillp07 Member Posts: 124
    edited December 2014

    That's really sad Kicks. :(. I will tell them the truth but there's a good prognosis so that will help the situation.

    Spookiesmom that's great that your grandson was ok with that explanation and you are doing well.

  • bobogirl
    bobogirl Member Posts: 2,777
    edited December 2014

    Hi Lillp,

    I believe there are some good books for children, when you decide to tell them. Non-threatening and clear picture books. It may seem too elementary for your 11-year-old, but I think she might appreciate it too. I second the sister on here with the story of herself as a child worrying about what she did not know. It sounds like you have a good plan to tell the children.

    Just wanted to add my two cents to your situation with the gossipy mothers. Don't forget -- no matter what your treatment plan is -- you do not have to tell anyone anything. Are you British? I thought you might be, from the word 'mum' in your post. I think you Brits are great at deflecting nosy people with a quick word or two :)

    I didn't tell anyone at work anything. I just decided to start there, not knowing what I would do. I didn't have chemo, but I have had many obvious things. For example, I once had 34DDD breasts, and then I walked into work with no breasts, completely flat, no foobs, and did not say anything.

    It felt so good to keep it out of the workplace that I just stuck with it. I have never regretted it. I did not even tell colleagues to whom I feel close. I just did not want the drama. I felt I needed quiet space to keep going.

    Don't forget -- you are welcome to tell anyone you want, of course -- exbrnx girl is right. People will want to help, and that can be great -- AND you are also welcome to not talk about it with some other people. You are in charge!

  • Nel138281
    Nel138281 Member Posts: 2,124
    edited December 2014


    Ditto what everyone has said.  I did no tell my children, and they were older, until I had a firm plan in place. They did ask later why I did not tell them right away.  Because Mom needed time to be sure of what it was and how the doctors were going to treat it.  They accepted this explanation  I was dx stage 4 over a year ago, back in treatment - but not losing my hair- so most people do not know. This a  piece you get to have control over - there is so much that you will not be able to control.  YOu call the shots on this. 

  • momand2kids
    momand2kids Member Posts: 1,508
    edited December 2014

    Hi

    I am sorry you find yourself here-- but you will get lots of help. My kids were 12 and 7 when I was dx'ed so I can relate. We told them what they needed to know when they needed to know it. We told them I had a lump that was cancerous and I was going to have it removed. We then told them that we had to wait to hear from the dr. about treatment. They both had had classmates with cancer so they kind of knew what the possibilities might be. When we decided on chemo, we told them-- but truth be told, I worked throughout, got a great wig-- and generally did not talk about it outside the house (except for my close friends and bc network) The kids take their cues from you and from the very beginning they saw this as a problem that had a solution... never did they think I was going to die (nor did I ).... we kept them on their schedules of school, activities, etc.

    The harder part is other people who think it is their right to know. Everyone has to do what works for them-- but I can tell you that no parent at my kids schools knew anything..... one of the challenges of telling lots of people is that you have to talk about it alot or know that they are gossipping as you mentioned. The up side is that people can be really helpful. One of my book club buddies was having an mx around the same time--people brought her dinner, etc. People can be very kind... you have to decide what YOU need.

    I did not tell alot of people, only people who could be helpful to me..... many of my colleagues did not know until I was long out of treatment. That worked for me, may not for you. But it is important to know that no one has a "right" to know this other than you and your immediate family. People walk the earth with all sorts of medical issues that we don't know a thing about. You have that same right to keep it to yourself. Or share it with everyone you know or something in between..... But you get to decide and if you decide to say nothing, that is ok too....

    There were some people in my life who "knew" something was up and most decided that if I wanted them to know, I would tell them so they did not pry. There were a couple who were just way too nosy--- pissed me off.... so I never told them, ever......

    gotta do what works for you. Just remember, you cannot "untell" someone-so during this difficulty period when you are not sure what to do, perhaps doing nothing until you have your plan is a way to go.


    Once we had a plan, if we shared it was just " had a lumpectomy, going to have some treatment, and all will be fine".....

    good luck

  • Lillp07
    Lillp07 Member Posts: 124
    edited December 2014

    Thank you all for those reponses. Such good advice.

  • bevin
    bevin Member Posts: 1,902
    edited December 2014

    Hi Lillp - I have a similar diagnosis as you and my child was 8 when I was diagnosed. Believe it or not I never shared my diagnosis. I only shared I was having surgery to remove some bad tissue.  I was offered chemo, as I was young at diagnosis and with a T2, but with my Onco type, and no lymph node involvement,  I chose not to have it.

    I elected not to tell my child as I had surgery and radiation only. She had no idea about the daily radiation treatments as that has no tell tale signs. If I had elected chemo , then I would have told age appropriate information. Such as I am having treatment to make me better. I may look funny for awhile as I'll lose my hair, but that means the medicine is working well.  When my child is old enough, I will share my cancer history to ensure proper screening. I feel strongly children don't need adult worries and this approach worked for us.

    Good luck with how you elect to handle this. The advice shared is all good. It really comes down to personal decision. I recall my Oncologist shared that children take their queues from us as adults. So if we are strong and don't show worry, hopefully they wont take worry on themselves. I really wanted my child to keep her childhood and not take on my worries. This was just our approach. You'll chose what works for you and I wish you success with all  of your treatments . Let us know how you get on.

  • Lillp07
    Lillp07 Member Posts: 124
    edited December 2014

    Hi Bevan, if i didn't need chemo i don't think we would have told the children

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