Fall Rads 2014

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  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited November 2014

    KKay, I do try to be positive! Last few years have been challenging but life is better if you can find something good in each one.

    Discouraging that the machine broke. Very unlikely that you'll get the wrong amount of rads. They do monitor that and have backups. HUGS!

  • Susug
    Susug Member Posts: 193
    edited November 2014

    StongEnough- my skin looked like that in the beginning it felt like a rash and itched but it was only in the places that I have sunned for yrs. it was a little strangeit started out itching for about a week then the itching went away but the rash remained and didn't bother me as much. I'm red around my nipple area where they did the boost the rest looks like a tan. I'm 2 weeks out and still getting some reaction in the boost area My nipple is very tender and dark. I also used Tramcinolone it was great .Thinking of all who are going through this. Hugs Susu

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited November 2014

    KKay: add me to the group with minimal SE from the rads. I just got a teeny bit pink, occasionally would feel some unusual stinging or zinging sensations in that breast but nothing that ever needed even a Tylenol, Nipple got tender and remains so, nipple and areola got strange gray color that remains. Had no trouble with fatigue, used Vanicream twice a day.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited November 2014

    Puffin, my nipple was extremely sensitive from my lumpy. Wish that would go away. Also wish that I would get complete sensation back under my arm. Some has returned but it is not "normal" yet. My RO said it can take up to a year for everything to return to what will be your new normal for color. You may stay gray or it may go away. I thought everything would go back to like it was prior to rads.

  • Blownaway
    Blownaway Member Posts: 760
    edited November 2014

    Tomorrow I will have my last boost (24 regular and 12 boosts) and I will be finished! Two nights ago, I came home from work, shucked the bra and blood ran down my side.  I had ripped the skin off. My rad/onco has prescribed Silvadene cream 3 times daily. From now on I will be placing a pad/bandage between me and the bra!  I also have Herceptin tomorrow so am taking off work. So ready for a nice long restful holiday and I wish you all a Happy Thanksgiving!!!!

  • jeanelle
    jeanelle Member Posts: 179
    edited November 2014

    Blownaway - Congrats on finally finishing tomorrow! I am sure it will feel so good to be done. 3 more boosts for me!



  • willowreed84
    willowreed84 Member Posts: 47
    edited November 2014

    Strongenough: I look just like you, my polka dots are only on the rad boob.  And it itches like crazy,  but I don't care because tomorrow is my LAST treatment!!!!!


  • Generation3
    Generation3 Member Posts: 45
    edited November 2014

    Strongenough, My skin looked like yours as well. Boy did it itch! I also got the same rash in a square on my upper back from the rads going through. Hydrocortisone cream worked really well for the itch. I'm 3 weeks out and the itch was gone in about 7-10 days except for one spot that continues to itch but not too bad. Hugs and Happt Thanksgiving to you all!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited November 2014

    Blownaway, that must have been a shock to see that blood running down! Who'd have thought the bra would stick like that? Glad you're done tomorrow. We expect to hear lots of YESes!

  • StrongEnough13
    StrongEnough13 Member Posts: 108
    edited November 2014

    Jeanelle, Susug, Willowreed & Generation3, thanks! It's good to know I'm not the only one with this itchy rash. I also have a lot of new brown spots like big freckles under the rad boob, along with some lesser itchiness, and my armpit SNB incision is gettig sore. But my RO keeps assuring me that none of this is unexpected, my rad boob looks great, and everything will heal and go back to normal when this is done. I'm all for that, but the most important thing is to KILL THE CANCER

  • Hope50
    Hope50 Member Posts: 103
    edited November 2014

    Has anyone's back hurt on the side they are getting rads? Strongenough, my chest looks like yours.

    Blownaway, congrats on completing this tomorrow!

  • HomeMom
    HomeMom Member Posts: 1,198
    edited November 2014

    My breast and arm pit are a brownish red and feels warm. I'm on my last four appointments (all boosts, yesterday was the first). So much easier then the full breast - I don't have to do the breathing thing and it only takes 3 to 4 min and I'm outta there!

  • jeanelle
    jeanelle Member Posts: 179
    edited November 2014

    Am I the only one whose boosts take longer than the whole breast treatment? With the whole breast, they gave me a long burst on one side, swung the machine around and gave me a long burst from the other side. With the boost, I get a shorter burst from one side, one in the middle and then one on the other side. It also seems like it takes them longer to get me into the right position. Only 3 more to go now (counting today)! It is going to be amazing to get that certificate once this is all over. I feel like I've really earned it.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited November 2014

    Jeanelle my boost was less than 30 seconds and only in one spot.


  • Susug
    Susug Member Posts: 193
    edited November 2014

    jannelle my boost was in one position machine was on for 30 sec. It's amasing how many differnt ways they treat at different centers. Hope everyone has a wonderful Thankgiving 😊

    Blownaway. Congrats on finishing rads today.

  • skbrown
    skbrown Member Posts: 40
    edited November 2014

    kkay5525-  I have had 6 radiations so far and I have no side effects yet.  The breast is warm and pink, but that's it.  I will have 15 rads with 7 boosts.  Yes, I was nervous, but there is nothing to it.  It is just over whelming a little.

  • willowreed84
    willowreed84 Member Posts: 47
    edited November 2014

    Done!

    Happy Thanksgiving everyone and thanks to everyone for sharing here.  I couldn't have made it without this forum.

    God bless you all.

  • Susug
    Susug Member Posts: 193
    edited November 2014

    willowreed ,So happy for you what a great Thankgiving for you

  • Blownaway
    Blownaway Member Posts: 760
    edited November 2014

    Ding a ling a ling........rang the bell today - then went upstairs for a herceptin infusion. Seven weeks of rads every week day before work. They kept asking me about my fatigue level. It was not nearly as bad as during chemo and I'm thinking the tiredness is from getting up early to get to the center by 7 and work by 8. So glad to get back to normal.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited November 2014

    Yippee, Blownaway! That's wonderful! One less thing on your schedule. it IS hard to determine what's causing your exhaustion. Normal works! Happy Thanksgiving!

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited November 2014

    Congrats Blownaway, that will really help your schedule to not have to fit in a rads session every day


  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited November 2014

    Hooray to Blownaway!  Put a check in that box and move on.  We've traveled this road together for the last 5 months. Some of it has been pretty scary, and some of pretty miserable... but there is definitely a light at the end of this tunnel! I wish you well.  Have a great day.

  • jeanelle
    jeanelle Member Posts: 179
    edited November 2014

    Congrats BlownAway on finishing your rads!

  • KKay5525
    KKay5525 Member Posts: 65
    edited December 2014

    Headed in for my first Rad treatment…I know it's not going to "hurt" but am very stressed about it. Just having trouble with feelings about putting radiation in my body on purpose! …"killing" my own body cells - good and bad….part of your lung gets hit and will not return….red itchy skin…possible burns…etc, etc. etc. I am usually (or should I say was) a very positive person and am trying hard to get back there…..Maybe when its all finished I can return to my self.

    Noticed my own negativity when a young friend of mine said "WOW, I can't believe that came out of your mouth"…after I gave a boat in the flotilla parade a zero! Ha.

    Have a great day!


  • jeanelle
    jeanelle Member Posts: 179
    edited December 2014

    KKay, I was very nervous for my first treatment. It doesn't hurt and the side effects don't start for several weeks (if you get any at all). What helped get me through it was not thinking about the healthy cells I was killing but the cancer cells. Even when my skin was really bad, I just tried to concentrate on the fact that it would heal and the cancer cells wouldn't. It will be over before you know it. I think we all have moments of negativity now and then. I know that I threw myself a couple of pity parties along the way. Good luck! You can do this!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited December 2014

    KKay, guess I was lucky. I never stressed over having radiation, just very glad to have a treatment to kill those cancer cells. Had very few SEs. I was stressed over so many other things (not the BC), that I suspect I had no room in my mind to stress over this. DH was very bad and is now in a nursing home. So my rads were just another thing to do, while taking care of DH.

  • skbrown
    skbrown Member Posts: 40
    edited December 2014

    so sorry to hear about DH Pontiac.  My hubby has been sick also.  in the hospital the last 8 days out of 10.  thank goodness it was same hospital as my rads.  He is home now and doing much better. today is #8 for me.

    WTG blown away!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited December 2014

    SKBrown, I sure know about hubby and rads. DH was in the hospital for 3 weeks and I was having radiation all that time. On the same campus but a different building. so I'd run over for my rads and come back to DH. Glad your DH is home. What a huge relief. It was so hard putting DH in a nursing home (after 6 weeks in rehab), but I could no longer manage his care, too exhausting. You're doing good! HUGS!!!

  • lilyrose53
    lilyrose53 Member Posts: 216
    edited December 2014

    PontiacPeggy, I'm so sorry to hear about your DH. I know how difficult it is to make that decision. We had to put my Dad in a nursing home for a time. We felt terrible about it, but at the time none of us could care for him and it had become too much for my mom. The upside was that we knew there was round the clock care for him when he needed it. I hope you are doing well. Hugs, lilyros

  • skbrown
    skbrown Member Posts: 40
    edited December 2014

    Pontiac, how long do you have to take hormones?  any side effects yet?  I think I have to take them for 5 years.  Does that sound about right?

    Tough decision you had to make.  I am trying to talk mine into medically retiring and draw disability. (if he qualifies)  he should.  but he wants no part of it.  He is a stubborn old fart.  but he is my stubborn old fart.  42 years married this month.

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