October 2014 Surgery Sisters

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  • horsemom
    horsemom Member Posts: 96
    edited November 2014

    I had my thanksgiving celebration today (Friday). Decided to walk hubby through the process instead of buying pre-made. Everything was perfect.

    Pain meds (even over the counter) have been making me ill lately so I've been going cold turkey (haha) since my last fill on Tuesday. Prior fills were easy but this one kept me up most of the night.

    Everything went well, all the guests arrived, 30 minutes till chow time when my 13 yr old son tipped his birthday present dune buggy and broke his arm.

    A quick trip to the emergency room while everyone else ate...This will be one we won't forget!

    We did make it back in time for pie.

  • Sharpei
    Sharpei Member Posts: 37
    edited November 2014

    Sorry, Horsemom.

    Life happens while we are going through our cancer dramas. Dune buggies fall over and kids get hurt. People act out.

    You seem to have made the best of it. You got back in time for pie! Hope your son is feeling better.

    I hope everyone gets a bit of extra rest this weekend.

    Sharpei

  • LauraW68
    LauraW68 Member Posts: 100
    edited November 2014

    Hope your son heals quickly, horsemom.

  • Akitagirl
    Akitagirl Member Posts: 142
    edited November 2014

    Horsemom - I hope your son is doing okay and has a cool color cast.

    Kind of reminds me of one of my ultimate favorite holiday movies - "A Christmas Story".

    Maybe we should all watch that one this weekend with our families and then post our favorite quotes!

    Akitagirl

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited November 2014

    Confession: I have never seen "A Christmas Story." OK, your turn.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited November 2014
    I was thinking of Christmas Story, too, reading that.

    Sandra, you MUST see it. It's good for the soul in every way.

    I will confess that, while I thoroughly love the movie, I really get a kick out of playing it in French rather than English. It's a completely new experience.:)
  • horsemom
    horsemom Member Posts: 96
    edited November 2014

    is that the movie with the leg lamp and shooting your eye with a red Ryder bb gun? I've never seen it either but I guess it's time!!

    FYI- my son has broken this arm 3 times, once every 3 years, on some kind of a holiday. Sigh.


  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited November 2014

    Horsemom - Yes, that's the movie. It's really a fun, touching movie for any age.

    I would be tempted to tell son that he needs to start a new holiday tradition :)

  • hummingbirdlover
    hummingbirdlover Member Posts: 421
    edited November 2014

    It's funny but I have never liked that movie, but I'm so picky when it comes to comedy! I love Christmas vacation, it's my all time favorite. That a the old black and white a Christmas carol.

    Hi everyone! Broken arms don't sound fun, sorry Horsemom! You must live where the weather is nice - dune buggy style!

    Hopeful, that's such awesome news about how well the femara is working!! I hope this is the first of many happy news recounts from you. What's next for you? It's encouraging for all of us who are now popping those types of pills...they work!! Hooray!!

    I go back to work on Monday. Sigh..I sure have enjoyed my time at home but it will be good to get back to my normal life. I'm being fitted for prosthetics on Wednesday and plan to call the PS soon. More surgery doesn't sound fun, but ho

  • hummingbirdlover
    hummingbirdlover Member Posts: 421
    edited November 2014

    Stupid phone...part 2...hopefully TE and permanent implant surgeries will carry a quicker recovery time than BMX.

    My thoughts are with all of you. What a great support system we built here!

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited November 2014

    Hi, Hummingbird - Are you getting that cold, Arctic front that's moving in this weekend? My birds are really emptying the feeders as the temperature plummets. I'm sweating out yet another forecast of freezing rain, this time just before a business trip leaving Monday. Bah humbug!

    Yes, I'm really, really gratified by the demonstrated response to Femara. It's SO helpful to know exactly how my tumor's responding to it. I won't meet with my BS until the 8th, due to above mentioned travel. However, based on earlier discussion, it's likely that I'll be looking at another few months of neoad. treatment before surgery followed by radiation. I am hoping for path. complete response by the time we do surgery and, based on this preliminary info, that doesn't seem to be out of the question.

    And yes, I think anyone who's on AIs should be encouraged by the demonstrable response. Granted, I'm 100% and 88% ER/PR, so darn well should have responded, but I think it does speak to what the AIs can do for all of us who are ER+.

    I hope you're enjoying your holiday weekend and will be ready to face the workaday world again. Just DO NOT overdo it as you plunge back in. I'm sure there will be a bit of culture shock as well as the physical adjustments - but I'm sure it will also feel great to get that part of your normal life back again.

    Enjoy the weekend - thanks for your note. I'll be thinking of you on Wed. with your fitting.

  • Fourminor
    Fourminor Member Posts: 354
    edited November 2014

    Hopeful, It sure is good news. I'm looking forward to hearing what the SOFT trials show at San Antonio in one week. I've been wondering about ovarian suppression combined with Tamox or AI for us premenopausals.

    We've got a dozen birds on the branches around our feeder at all daylight hours and its empty in 2 days.

    A Christmas Story is a pretty priceless movie. But I'm most partial to the Grinch. The real one, not the Jim Carrey travesty. Mostly because I love the Seuss lyrics.

    Also, I've seen Its a Wonderful Life about 100 times. I love the concept of how much one life touches so many others.


  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited November 2014

    Fourminor I'm pretty partial to the Grinch as well, along with Charlie Brown's Christmas. Both of those still have the capacity to bring a mist to my eyes. Many years our family will watch one or the other together on Christmas Eve - and the youngest of us is 50!

    Are you going to San Antonio? That must be a very stimulating event, I would think. I'll look forward to hearing the latest, esp. on the SOFT trials.

    Here's to keeping the birds happy - a small but very gratifying gesture. I'm waiting right now for the hummingbird to vacate its perch on the feeder so I can refill it!

  • TJG2
    TJG2 Member Posts: 61
    edited November 2014

    Slavich-my hair was about 1 1/2 to 2 inches long. She cut off 1/2 inch just trying to even it all up. It does look better but Lordy be is it a mans cut. Mine was always a dark brown before gray started creeping in. It's been 5 months since taxotere so MO said it was ok to color. She did use a permanent all over color. When it gets to be 4 inches or so then we can frost it so it softens it up a bit. It is light brown now. Mine is a light reddish brown now. I am so glad to punt the wigs. They are such a pain in the ass!

    Hope everyone had a great Thanksgiving!

  • TJG2
    TJG2 Member Posts: 61
    edited November 2014

    Hummingbird, I don't like "A Christmas Story" either. The kid is cute. The restaurant scene is hideous.


  • revup-65
    revup-65 Member Posts: 94
    edited November 2014

    just wanted to say hi, been reading your posts everyday so keeping up with everyone.
    horsemom  sorry about your son, I have 3 grandsons so I know how easy these things can happen.

    Hopeful8201 it nice to hear good news, I know it must feel good for you

    I am still waiting for surgery date, now it is Monday, so hopefully they will get it scheduled, Wed-bone scan, Fri-Breast MRI, I am so nervous that when my daughter came by to take me to lunch I couldn't go. It helps to share it with all of you because you know how I feel, you have been through it. This feels like an eternity. Don't want to bring anyone down you all sound like your doing  good but had to get it out by talking about it. Thanks for listening as always.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited November 2014

    Dear Revelle - I think I know a little bit of how you feel. Frankly, I feel strongly that it's your turn for some good news but since you're still waiting on that, please come hang out and vent, express the anxiety and fear, and collect a hug or two or three.

    This stage of collecting the bits of data (the tea leaves) that will give us some idea of what we're facing (and waiting for the reports on the tea leaves) is so awful. And then when someone else gets good news you're so happy for them but wistful, too, because you're afraid your news won't be anywhere near as good, and you feel like you'll die of anxiety by the time you get the reports and make sense of them anyway, right? And then you sort of hate the weekends because you KNOW you won't get any answers over the weekend...

    You'll be in my heart this coming week. In the meantime, (((((Hugs)))))). PLEASE don't worry about bringing anyone down. We're here for the ups and the downs.

  • revup-65
    revup-65 Member Posts: 94
    edited November 2014

    Hopeful8201… you are right on with everything you said, it really helps. Your kind thoughts on it being my turn, I will focus on that, heartfelt thanks to you. Will check in next week.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited November 2014

    Revelle - ((((hugs)))) all week long. Consume as needed. No limit on refills.

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited November 2014

    Coming to San Antonio next week? That's where I live! Let's get together for coffee.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited November 2014

    That would be so much fun to do, Sandra. Do you think San Antonio can handle it?

  • Fourminor
    Fourminor Member Posts: 354
    edited November 2014

    Revup-- I find that ANY actual, factual information, even when difficult to swallow, is better than the total anxiety of no information. But of course good information is the best to hear and I hope you will be hearing it soon! Are you having breast MRI?


  • revup-65
    revup-65 Member Posts: 94
    edited November 2014

    Fourminor  yes Breast MRI, and Bone scan next week. I hope they give me a date Monday for surgery so it will be a big week for me. I'm scared to know were I am, scared to not know. It is an interesting place to be, I have done lots of research and have all my pathology reports. I have 2 unfavorable and 2 favorable and one in the middle on pathology so far but will see how that changes after surgery as sometimes it does. Because I have been with all of you while you were going through surgery I am not worried about that part. Just don't want them to find it outside the breast! Still need to determine if this is a local or distant reoccurrence or a secondary primary after 20 yrs.

  • Akitagirl
    Akitagirl Member Posts: 142
    edited November 2014

    Hey everyone!

    Resting this afternoon, watching the Steelers get their booties kicked... Did I tell everyone which arm of the research study I got randomized to?

    They confirmed that I am actually HER2+ at a 1+ level (so low). Thus, they randomized me and I am in the arm where they use 6 rounds of routine chemo (CT for me) along with trastuzumab. I will then continue the trastuzumab/herceptin for 1 full year (inclusive of the 6 rounds of standard treatment. I am satisfied with the group I am...just not looking forward to the weekly herceptin for one year. Oh well, I can work my life around it.

    I passed the 1 month mark two days ago - physically I am feeling good. Emotionally - I am really struggling... my neighbor just brought me over a huge bag full of wigs from a friend in our neighborhood who just died this past Valentine's day from breast cancer. They found her low grade, stage 2 cancer early, she did full double mastectomy...made it to the 5 year mark, and then the month after, found a lump on her chest...discovered metastasis to her bones and liver. She fought hard for 3 more years and then just died at the age of 50.

    So, my mortality is feeling fragile, as I am her age when she was first diagnosed and am treating this aggressively. How much longer will my Father allow me to inhabit this earth? I admit I have been negotiating... Please let me stay around for 8 more years to see both girls graduate from high school. Perhaps another 15 to possibly take part in at least 1 wedding. How about 20 more so that I can become a grandma???

    Are any of you going through these thoughts? Rather sobering. Although I am a very strong woman of faith, I have no idea when my last day will be, and my biggest question is:

    "I wanna leave a legacy. How will they remember me? Did I choose to love? Did I point to point to You, enough to leave on a mark on things, I want to leave an offering. A child of mercy and grace, who blessed Your name, unapologetically....I want to leave a legacy!" - Song of a good friend of mine, Nicole Nordeman.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited November 2014

    Dear Robyn:

    Yes, that's a pretty sobering story to hear and similar thoughts go through my head whenever I read of someone who was dx. at stage II (our stage) and then had a recurrence that took their life. Much as I try to avoid these stories, we've all, I expect, known someone whose story followed that arc. It's easy to get caught up in the decisions about treatment, then getting through treatment, getting on with life, etc., and I think that helps shield us, psychologically, from the realities of our situation. Every once in a while, reality breaks through and we realize just how scary all this is and that yes, it really does apply to ME.

    In your case, I think you have the advantage of being very, very familiar with the ins and outs of your case, of treatment protocols and trials. You are treating the cancer both intelligently and aggressively. You also have access to very fine care and, from the sound of it, a team who will guide you with great care and insight. You have a strong faith, loving family and community support and are otherwise (I am guessing) very fit and healthy. All of those factors are in your favor. I choose to believe that you will do well and I hope - and pray - that this is the case. It's o.k. to be realistic but don't forget to be realistic in a more optimistic way as well.

    I think that herceptin shows a lot of promise and I'm glad to know you're on it, even though the year-long infusions will certainly run your life for that year.

    Hang in there - I doubt God is ready to furlough you just yet! ((((Hugs)))))

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited November 2014

    Hope, hell yes...bring it on!! Party time in SA.

    image

  • LauraW68
    LauraW68 Member Posts: 100
    edited November 2014

    Akitagirl, I was 45 at dx and I have had the same thoughts. It's hard not too.

  • Sharpei
    Sharpei Member Posts: 37
    edited December 2014

    Good luck tomorrow, LauraW68. I note that your chemo starts then. I am looking forward to my first fill. I am curious and hopeful. Please, my irradiated chest, stretch gently and well, without pain.

    None of us have any idea when our last day will be. I lost a member of our little cancer club in this community this week, and I feel very sad.

    I try to live in the day, for the day, but I am also working hard to get all my affairs in order and love the people I share my life with. We are building memories each day. Let them be fun, happy, interesting.

    I have been purging stuff all weekend. It already feels good. I need a simpler life so I can focus on three exquisite grand daughters.

    Cancer clarifies things. It may get us or not, soon or not so soon. Something will, soon or not so soon.

    We are all doing our best. I was shocked at how my diagnosis rearranged things in my life, stole time, and reordered my focus and attention and energy. I wish to be better prepared for the next diagnosis and meanwhile to live in assurance that things are orderly and I can work andplay and enjoy life without anguish of things left undone.

    What does cancer clarify for you?

    I so appreciate the honesty of women on this forum. This is such a valuable resource to me, your voices. Thank you and good luck.

    Sharpei


  • TJG2
    TJG2 Member Posts: 61
    edited December 2014

    Akita Girl and everyone else, please do not hang on to stats of people who were diagnosed and treated, in the terms of medicine, generations ago. I am stage 4, HER2+ and there is no reason to believe I will not live 30 more years. Had I been diagnosed just 4 years ago, I would have been given 4 months. So if another lady only made it 5 years and 1 month, that may have been 4 1/2 years longer than a lady before her. They make advances all the time, because of the trials and studies.

    I went through, screw the 401K, it was planned for a 30 year retirement, now who knows 10 years, so what am I squirreling away for? It took a few weeks for me to get past that. But we have to choose to live and be happy and screw you, little bastard intruder, or we may as well not take any medicine at all.


  • TJG2
    TJG2 Member Posts: 61
    edited December 2014

    Herceptin has a GREAT track record on HER2+. It is not new, it's been around about 12 years, I believe. I am perplexed though they are talking about giving it weekly instead of every 3 weeks.

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