October 2014 Surgery Sisters

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  • Fourminor
    Fourminor Member Posts: 354
    edited December 2014

    Well I did not want to do chemo and was ambivalent at best towards it but I let myself be talked into trying it. I said if there were any problems I would stop.

    I had the Methotrexate, but on the 5FU push I started feeling very strange, crazy, my head felt like I had a rock on top of it, started breathing really hard, crying and broke out in hives from head to toe.

    I cannot possibly say explain terrible I felt, it was worse than being induced prior to the epidural.

    So that's it. I am not doing chemo.

    PS...Happy Birthday Sandra

  • funnthesun68
    funnthesun68 Member Posts: 41
    edited December 2014

    Ladies,

    Sleep...what is that word! Better yet, will I be able to sleep again. Some of you like myself have been sleeping on a recliner. I graduated back to my bed a little over a week ago. I too am a side sleeper and finding it hard not to try and get back into normal sleep patters, but these darn TE hurt like crazy and make me rethink sleeping in bed. I find that when I wake up in the morning, even though I am healing, my chest hurts. Can I ask, is anyone wearing a sports bra to bed or any type of bra? Tonight I just couldn't take it and took off the sports bra only to find that it must of been a little too tight on the side where my lymph nodes were taking cause I am swelled near my shoulder and chest. I don't mean to complain, but seriously I just want to feel normal again. I was reading, and I apologize but cannot remember who said it, but doesn't sound like it gets any better after you have the implants? Please tell me they are more comfortable than the TE. I was told by plastics that I maybe done with injections by end of January, then we have to wait 3-4 mths for implant surgery, and then nipple surgery later. I am reading alot of you have gone through numerous plastic surgeries, may I ask why? Is this something that is ahead as well? Thank you all for listening! Have a great weekend!


  • Slavrich
    Slavrich Member Posts: 50
    edited December 2014

    Sandra: Happy Belated Birthday! Wishing you a year where a time comes that this is all behind you and you are feeling great again.

    Four:Wow! so sorry to hear about the chemo experience! Very scary. When I was getting my first Taxol infusion, they first gave me a huge dose of IV Benadryl, told me to report any funny feelings and to not panic if i couldn't breath and to not get scared when everyone arrived to help-they would get more benadryl in me and i would be breathing fine real soon. Other people would relax and sleep from the Benadryl, but I was paniced and worried would have a reaction-how could I sleep?

    Sleep....is the Tamoxofen causing me to not sleep? I've had crazy sleep hours for the past couple of weeks. Wide awake and can't fall asleep one night-then dead tired the next night and sleep from 6pm-2am then wide awake again....

    So ---never got clearance from the PS to wear a different bra- they prefer I keep te vest zipp up bra on 24/7. Feeling 'wild' tonight and decided to have a few hours with no bra and relax by the fire in my comfy clothes- Realize now the TE is more the discomfort than the bra... do hope its better when gummy arrives!


  • sandra4611
    sandra4611 Member Posts: 2,913
    edited December 2014

    Implants are much better than TE's but you are not going to feel "normal." That ship has sailed. You are going to have to find your new version of normal. In my opinion, finding a way to sleep is the key to finding your new normal. In the early weeks (aka The Recliner Weeks) you may find yourself yearning to sleep in your bed but finding it way too uncomfortable. You just HAVE to sleep propped up to avoid pain. I would go back and forth, upstairs to bed in a sea of pillows and then downstairs to my recliner, feeling defeated. Once I realized it didn't really matter where I slept as long as I could do it without pain, things got better. I realized that sooner or later I would sleep in bed without pain and there was no point stressing myself out trying to force it to happen. Sleeping on my side is still an issue. I can do it but MUST have a small soft pillow between the bed and the implant (or TE.) Then my top arm has to be supported so it doesn't fall forward, putting pressure on the other implant. Small pillows are my friends. Get some in lots of sizes and shapes. You'll figure it out.

    Women need to prepare themselves for implants. You are not going to look the way you did before. This is not "same couch, different stuffing." Implants are mounds, not cones like a real breast. Most of us no longer have the nipple/areola complex which fills out the ends of a bra, so finding one that fits our fake boobs (foobs) is a challenge. Implants are wide but don't project (stick out) much. I have Allergan 410 Style FF 740 cc's which is the largest silicone implant you can get in the US, with the most projection...but it's still less than 2 1/2 inches. At the beginning, implants look like the top half of a hamburger bun - even gummy bears look weird. Implants can have ridges and edges, not to mention ripples. This is completely normal and those things WILL go away. As we say, "Step away from the mirror." You can't really judge what your implants will look like for the first couple of months. As the muscles relax, they will allow regular silicone implants to move down into the pocket very gradually. (That's called "drop.") The silicone in a round implant will respond to gravity and fill out the bottom part of the implant. (That's called "fluff.")  Cohesive gel implants don't drop & fluff like rounds, but they do smooth out and look more natural within a few months.

    It's not unusual for women to have revision surgery. Sometimes the implants are too far apart or too close together. Sometimes women want larger implants, especially if they thought their implants would look like their TE's did. (Expect implants to look MUCH smaller, even if they are the same number of cc's as your TE.)

    Another reason for additional surgery is if you have healing problems or get an infection.

  • revup-65
    revup-65 Member Posts: 94
    edited December 2014

    sandra4611 Happy Birthday Sandra, so happy to hear that things have turned out well, what a journey!

    Akitagirl Have a great start back to work, I worked throughout my chemo so I know you well do just fine, it is a diversion from all this so it helps.

    Hopeful8201… Hope your roadmap is a good one on Monday, I am sure it will be.

    horsemom Sharpei Fourminor OceanSky funnthesun6… Slavrich I stay up to date with you everyday. You are all strong women so it gives me strength when my knees start to shake.

    I went through LYMPHEDEMA, it did resolve itself as it can so now very little issues. I went this week to Bone Scan, Breast MRI today. The MRI was not fun, the middle hit my breast bone and because of the radiation in 1995 it was painful but there is no choice but go forward so I spent an hour getting through it. The tec said machine was designed by a man so what did they know about how it would feel, I agreed as I pealed myself off the table after an hour. Maybe us ladies should do a MRI table for testacies LOL. Now comes the wait. The surgery date is Jan 6, almost cried when they gave me the date. The office gal called back saying she was sorry it was so far out but found an opening Friday, this was Tuesday. I sad YES, but when she passed it by the surgeon she said no because I was having the other breast removed she wanted to make sure nothing was going on, she didn't want to go back in and take lymp nodes. So breast MRI even though I am loosing them. Things have changed so much in the last 20 yrs, more one on one and faster response to test, now more treatment oppions and more waiting, that's good but cant help but wish  for both. I follow all of you and remember when I went through the same jouney in one way or another, radiation, chemo and work. So I know what your going through.It doesn't make it any easier the second time around. I also started new job on Tuesday so I will let them know need 2 weeks off in Jan, we will see how that goes, the job is with the hospital so maybe they will understand who knows. I know I will need chemo because of pathology report, oh what fun. So the adventure continues, many thanks for all of you allowing me to stick with you as I have said before I can't let go of your shirt tails.

    Revelle

  • Fourminor
    Fourminor Member Posts: 354
    edited December 2014

    I have to add to my story yesterday because the allergic reaction was the final touch on what was a horrible experience end to end.

    I am being treated at MSKCC. I love my breast surgeon, I also really like my plastic surgeon. I figured finding a MO in the center would keep things simple.

    The first available appointment i could get was with someone who was newer, and that was already almost a 3 week wait. Anyone whom my breast surgeon suggested was even longer, over a month.

    Initially she was very ambivalent herself about whether or not I needed chemo. It was such a gray area she told me that either way I could not make a wrong decision.

    This clearly is someone who has not had to sit with these kinds of decisions.

    When I called back with a bunch of questions, she told me that she had discussed my case with other oncologists who felt they would treat me as I am young and this is a second primary. (Was it caused by the RT I got??) Anyway I agreed that I would give it a try since she said the side effects of CMF were mild--I think she called it the "diet coke" of chemo, which I thought sounded stupid but not everyone is a writer.

    So I showed up yesterday for this experience. It did not help I guess that the wait for the parking garage was almost an hour and a half, but that was a minor point.

    I got my bloods drawn, went to see her. She asked me if I was still feeling committed to doing CMF. I said, To be honest I am ambivalent about it. I looked over the oncotype score and this has a 2-4% chance of benefitting me. She said I was right. So I said, well, how committed should I feel about a drug regimen that has a 2-4% chance of benefit? I said I'm going to take it, but if there are any problems, I am going to stop and move on to hormone therapy. She said that was totally reasonable.

    Then a nurse came in to give me my "chemo education." She was young, thin, blond, Russian. She started going over the side effects and all the other things I might need to take. When she got to the part about trying to urinate frequently so the Cyclophosphamde would not irritate my bladder, I stopped and asked her what the excretion pathways are for the three drugs.

    I can understand if she didn't know what they were. She is not the medical oncologist. But she looked at me with a total blank face and said, "I don't understand, what does that mean?" I looked at her ID, she was an RN. I said, most drugs are excreted through either the kidneys or the liver. I'm just wondering how my body will be processing these drugs, for instance, do they need to check my liver function tests? She said, Like what do you mean, like hepatitis?

    After that i asked her to just make it quick.

    I went back out to the waiting area. I have noticed that this waiting area is completely overrun ever time I go there, and now i know why. People are sprawled out, with family members, eating lunch on the tables like its a bus station, its a lot different from upstairs in surgery and radiology where there are a lot of empty chairs, and people are moving. Immediately I heard two patients talking about how they were three hours behind schedule. My infusion time was3:30. I had a babysitter watching my son. I went up to the front desk and the receptionist conformed that they were very behind schedule, more than usual, and that usually they are behind schedule.

    Now i'm starting to get really pissed off. I stand at the front desk and make someone go back to my doctor to tell her that i have a childcare issue and I can't sit here all night. I ask if I can be treated at the Brooklyn infusion center which is nearer to where I live. They inform me that because the lab at brooklyn has a one day delay, and there is no medical oncologist on site, I would have to be seen at Sloan and then have treatment the next day. This is a nightmare of scheduling. The girl calls to the back and says the backlog is easing, it might only be an hour to wait, so we sit back down.

    Then, I had the allergic reaction.

    And here is where I really got angry. I was informed, that my doctor, who was on the same floor, would not be coming to see me. They have someone on site to deal with these situations. (who apparently was one of the ten people who rushed in when I reacted.) I was like, are you kidding me? So I can't have chemo in Brooklyn because she needs to see me, when all she did was listen to my lungs, but If I have a reaction, she does not come and see me? Yes, they said, that's how its done. They said she was going to call my cell phone in an hour. She was finishing up and leaving.

    The phone must have rang when my husband was putting me in the car because I did not hear it. Her message was that she was sorry I had this reaction, she assumed that we would not be proceeding with chemo and would move on to Tamoxifen, and would be,"delighted" to discuss this with me on Monday.

    I think I need a new MO. Yes, I have insomnia now because i am so pissed off. I felt so horrible last night.

    BTW, the infusion nurse stopped to look it up and told me the excretion pathways of CMF are all hepatobiliary.

  • revup-65
    revup-65 Member Posts: 94
    edited December 2014

    Fourminor I did this same chemo in 1995, I want to tell you this, as you can see from what I said about my experience today (nothing like yours) I get it. I would be pissed tooooooo! sorry for the language. They get away with this because we are fragile and stressed. This is what I say for what its worth, call her and tell her what you think on Monday. I know its hard but you don't trust her anyway so go for it, Look for someone who is not looking for the bottom line, meaning income. I know how you feel, I am searching through the same feelings but they don't define us and there is a better fit. You are worth a greater effort so search for someone who fits, I will have to do the same thing. Let her know you will be happy to tell her she is not a good fit for you.

  • Fourminor
    Fourminor Member Posts: 354
    edited December 2014

    i almost wonder if the advancing feeling of frustration from the parking garage up could have been part of there reason I reacted to the drug like that. By the time they were setting up to infuse me, my husband noted that he had never seen me so anxious. Maybe,maybe not, but either way i felt the experience was far from what it should be. The idea that you make an appointment for chemotherapy, but that's really just a spot in line, not a firm commitment on their end, made me feel like I was just a nail they had to hammer on a conveyer belt, not a human with a job and a family.

    I want to reiterate though that my experience on the surgical side has been phenomenal and I have absolutely nothing but praise for them.

    But interestingly I did not do my radiation there either because i really got a bad vibe from the RO I met with. She was really young, and was sitting there with false eyelashes on, dressed like she was going on a date, and she actually said to me--after I had already stopped her to make sure she knew I am a board certified radiologist before she discussed how radiation works, that I would not "glow in the dark" .

    Some people test well, but it doesn't always translate to being a good doctor.

  • Akitagirl
    Akitagirl Member Posts: 142
    edited December 2014

    Fourminor - your last sentence made me laugh...as that is so incredibly true! I am so very sorry for that horrific experience. As we are both professionals in the science of medicine, as patients, I think we have a higher set of expectations - and WE SHOULD!!! In fact, everyone should have a higher set of expectations set upon those who are counseling, advising and directing us through these disease response pathways. I am very angry after reading your posts with the complete LACK of care that you have received and I encourage you to write directly to not only the MO office, but also to the entire cancer center. They must improve operations. How would they turn out on a random health audit/inspection???

    Again, I am so sorry you had to experience that. Now, the bottom line is that you need to address your cancer systemically and make an informed decision. What will you do next? Are you going to look for a second opinion? What are your thoughts?

    We are here for you!

    All my best,

    Akitagirl

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited December 2014

    Four, someone had to graduate at the bottom of the class. I think I know where at least one ended up. Yesterday I spoke with a woman whose radiologist missed her introduction papillary carcinoma last year, said the little bump she could feel was normal, and sent her home with the advice to come back next year. Of course, this year she learned the truth and has been through chemo, surgery, and just started radiation yesterday. She was given a formal apology by the chief of the department, but it's little consolation. 

  • Fourminor
    Fourminor Member Posts: 354
    edited December 2014

    sometimes top of the class is no better, trust me!

  • Slavrich
    Slavrich Member Posts: 50
    edited December 2014

    Four-

    That is ridiculous! I would not be able to contain myself. I have had the opposite experience in Boston-never make me wait and use relaxation tecniques with a foot massage or neck shoulder massage to relax you before or during the infusion. You have the same nurse every week, and she had signed me up.

    Sandra-I had almost the same problem. I had gone for mammogram (in NH) and ultrasound-told me nothing to worry about. A few months later I realize this lump is definitely growing on a daily basis! They put my appt. out a month and then cancelled due to an emergency which put it 2 weeks later. When I went back, the mammogram tech. was insisting my lump was on my left breast-and I must be confused. Then she finally took pics-disappeared for about 5 mins-then there was a sudden quiet and sense of urgency. The tumor had grown and was now spread to lymph node which was 4.1 cm. When everyone left ultrasound room, the tech told me the previous dr. I had months earlier had confused his righ with my right and was looking at the wrong breast for the lump. The reports were written backwards from my pics. So needless to say...I quickly moved to the big city of Boston MGH- They saw me immediately and escorted me through all testing and started chemo within a week. There was and is so much support- The make all of my appts to coordinate with each other and I have one person who I can call 24/7 with concerns or problems. Things are much better-but yes- the BS told me the orig. mammo indicated it was much smaller and not even near the lymph nodes and would have probably been a lumpectomy-no chemo or radiation.

    I can only be thankful I didn't wait any longer to go back. We really have to be on top of things and be educated. I have learned to not be so accepting or trusting.

  • Fourminor
    Fourminor Member Posts: 354
    edited December 2014

    Slavrich, that is AWFUL. I have right-left issues in normal life because for me what's across from my right is the left, and what's across from my left is the right because patients images are always displayed as if they are facing you. So when someone says, "hey turn right," I sometimes get confused. I also always think right field is left field and vice versa.

    i just started to notice about 7 years ago or so that younger generations of residents and doctors have a different work ethic than doctors who are older. But other friends have told me they noticed the same thing in other fields as well and it is a generational mindset.



  • Fourminor
    Fourminor Member Posts: 354
    edited December 2014

    i must say I felt really not right all day today. My cheeks were flushed from steroids, I couldn't get my rings on from all the fluids, I had a pounding headache all last night and half of today, i had virtually no appetite at all, and my bowels turned off entirely.

    Forgetting even the allergy, I really don't think I can do chemo. This is supposed to be the lightest side effects. And I only really had a full dose of Methotrexate. Before I had the reaction, nurse said most people have no trouble with this and feel like they aren't even doing chemo. I hope I never need it because I really can't imaging having to feel like this ever again. I do not like taking medication at all, not even vitamins or painkillers. I don't know how I am going to get through the Tamoxifen, but at least I feel that there is benefit in it.

  • sunandsnow
    sunandsnow Member Posts: 33
    edited December 2014

    Im not certain how toadd myself

  • sunandsnow
    sunandsnow Member Posts: 33
    edited December 2014

    Im a side/ stomach sleeper and Ive been on my bed the entire time (4 weeks) but in mu back. I bought a thick memory foam pillow From Kohls and it helps me stay put. At a hotel tonight and so glad i brought it! Best of luck!


  • Fourminor
    Fourminor Member Posts: 354
    edited December 2014

    Slavrich,

    I have seen that about melatonin and find it very interesting. I have been an insomniac all my adult life and due to my distrust of medication have tried to treat it with behavioral methods. But what do they tell you do to? Get out of bed and do something quiet in another room. What did I do? Turn on my computer and write or surf the internet.

    If I took anything it was Benadryl, but I won't take that past 3am due to the grogginess. Just prior to all this happening, my yoga teacher suggested trying melatonin. For the two months from diagnosis to post surgery, my insomnia was worse than it has ever been in my life--could not even fall asleep so i started taking a melatonin 3mg at bedtime and adding in a Benadryl. That worked. After the mastectomy when some of the emotional stress was past, I found I didn't need the Benadryl anymore and due to what I read about melatonin and tamoxifen, I have continued to take it and I am now sleeping better than I have in a long time.

    The only light in my bedroom now is from my humidifier. After reading that, I might put electrical tape over it, its pretty bright.

  • Slavrich
    Slavrich Member Posts: 50
    edited December 2014

    Four- I have always loved being awake late at night-quiet after everyone was in bed- but with having to be at work by 6:30am with my new job, they just don't mesh and I usually fall asleep in front of the TV-def. not good according to this article. I'm now going to try and change some bad habits. I may try some melatonin if relaxation tecniques don't work. I, like you, never take meds if possible.

  • Sharpei
    Sharpei Member Posts: 37
    edited December 2014

    I was preparing to fly to Florida this morning to wrap up details on our winter retirement nest and visit with friends there who were so kind and compassionate during my surgery. Then I asked my husband about TSA. Will I set off the scanner?

    I asked the first TSA woman I met and she was freaked, as if she was looking death in the face, and then very kind. I was taken for a PAT DOWN. That young woman was so nervous, explained everything she was going to do, and it was done efficiently. Sharpei is dead as a door nail. No sensitivity there.

    Fill # 2 is in. I felt only a slight twinge when the needle went in. I am starting to feel buxom again. Weird.

    I get two fills next week, Monday then Friday. I need to get out of the northeast, where the rest of my body is not happy, and into the warmth and light. So far so good.

    Sharpei

    I have welcomed my energy back! I didn't realize it was missing until it reappeared. Yeah!

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited December 2014

    Glad to hear your energy has returned, Sharpei! Enjoy the warmth and sunshine of Florida.

    I was rather concerned last week about traveling, since I'm still wearing the heavy-duty 'sports bra' post biopsies as well as at that point still pretty bandaged up (I don't do well with biopsies, apparently) and thought those might show on the scanners. But I got sent through the metal detectors rather than the scanners and had no problems at all anywhere, even with the metal zipper pull.

    The ultra-supportive bra really does make a difference on long flights; it's much more comfortable than my usual lingerie, so I guess these are earning their keep.

  • LiLi-RI
    LiLi-RI Member Posts: 291
    edited December 2014

    Hi Sharpei: It is so wonderful to read your post! I wish I was in warmer weather because the tamoxifen is triggering my arthritis especially today with the cold and damp weather! Yikes! Enjoy the warmth and sun on Your face!

    Four: No excuse for that type of treatment! I am sorry you had to endure it!

    Healing hugs for all.

    LiLi

  • Akitagirl
    Akitagirl Member Posts: 142
    edited December 2014

    Hey Sharpei,

    Where do you go for your annual exodus to Florida? My wonderful in-laws live there during the winter and are in North Ft. Myers. Are you anywhere close? I would love to put you in touch with these super outgoing and fun peeps.

    Akitagirl

  • Fourminor
    Fourminor Member Posts: 354
    edited December 2014

    So my situation continues to be problematic. Had been having an occasional left pelvic ache here and there the past few months. So much else going on, I gave it no real notice. Yesterday i left work early as I felt my stomach was bothering me, thought maybe it had to do with the chemo. Got on the subway and was surprised that it hurt in my perineum to sit down. Then pain started increasing such that I was grading it at 7/10 pain. Limped home from my stop and knew before I got to the front door that I needed to be seen and have a pelvic ultrasound. Pain was right over my uterus and towards the left. I should have stayed at work (I work on multidisciplinary medical practice.) Called my manager and had ultrasound tech stay and my husband bundled up our son and we drove back up there. I was kind of forced to read my own sonogram. I have moderate free fluid with debris. My left ovary has a funky looking area. There was fluid and debris in my cervix and I have cervical motion tenderness. Afebrile. OB/GYN was gone. Over the phone they thought it most likely is a ruptured cyst and since I'm not worried about fertility, the odd chance of torsion isn't as imperative to diagnosis immediately. I went home and got into bed, wondering what it means now that I have chemotherapy on board. I called the MO on call at MSKCC. Then I started so feel very cold and lo and behold I hd a low grade fever, 100.1. MO on call said there is no way to know if I am immunosuprressed yet since this is my first dose. He felt I should come in and be seen immediately. Trouble was we are not close and had just gotten back home and put our son to bed and had no one to watch him. I took some Advil and my husband took my temperature every 15 minutes. It peaked at 100.7 and came back down. By by midnight it was gone. I am still in mild pain and i know I need to be seen by a gynecologist today and probably have my ultrasound repeated. I wish to God I never took the chemo. The last thing I need right now is a suppressed immune system. I am also terrified that this could be cancer and my team as screwed up by not testing me for BRCA. Trying not to go there.

  • Akitagirl
    Akitagirl Member Posts: 142
    edited December 2014

    Hi Fourminor,

    As a OB/GYN former practitioner - that sounds exactly like a ruptured cyst. Sounds like you had a functional cyst that didn't dissolve on it's own - grew and then burst. That retro-peritoneal (feeling like you must have a BM) is a very classic sign of fluid in the lower pelvis and also hurts like the dickens!!! I would seriously doubt that this would have anything to do with your chemo - except perhaps the pain would be less tolerated. You are right to be concerned about ovarian torsion, but that pain would still be there this morning ( unless it unwrapped on it's own, which it is known to do).

    Please, take a deep breath and I hope the ultrasound today looks a little better. The fluid should be starting to get reabsorbed. You will probably have some in the posterior cul-de-sac, but otherwise should look better. Remember what we learned in school...if it looks like a bird, talks like a bird and flies like a bird, then it is probably a bird and not an elephant.

    Please let us know how your appointment went this morning and I hope you are feeling much better!

    All my best,

    Akitagirl

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited December 2014

    Fourminor - good luck. Based on my brush with ovarian cysts, it does sound a lot like a ruptured cyst to me, too, and I hope that's indeed what it is. Take care.

    Robyn - you're such a great resource!

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited December 2014

    Brief update - I finally met with my BS yesterday to review path. results from last month's re-biopsy and discuss next steps.

    She's VERY happy with my response. We'll do an US study in 2 months to look at the entire situation in both breasts closely, then schedule surgery for April, approximately. She's very hopeful we can clear the node entirely during that time and kill the turmor completely - she said it's definitely much smaller at this point, as is the node. If we clear the node, no ALND, no Oncotype, no possibility of chemo. Maybe a bit less rad. than anticipated.

    In the meantime, I have a repeat CT scan next week to verify stability of the two small nodes in my lung, as recommended by radiologist. And I am STILL waiting for appt. to review need for genetic testing.

    Hope everyone is doing better every day and, if nothing else, able to cross off one more day or round off treatment and see a bit of improvement every day.

    I need to get cracking on Christmas plans and it feels surreal - I can't believe it's so close and I'm SO unprepared! I wish the Christmas angels would drop by our home and do the tree and wrapping... Of course, I also find myself hoping my brother will volunteer to host this year but so far it hasn't happened. :)


  • Fourminor
    Fourminor Member Posts: 354
    edited December 2014

    Hopeful that's great news! Really interesting therapeutic approach.

    Me I'm waiting on SOFT trial results coming out tomorrow.

    Went to GYN today. Everyone's best guess is that it was a cyst. Interestingly there are four reports of ovarian cyst rupture after methotrexate treatment. If true, also outrageously rare.

    I have to take round the clock NSAISS to deal with the peritonitis. When did i start falling apart like this? In any event, I would imaging no one is going to give me anything right now, not even Tamoxifen until my ovaries calm down. Second MO opinion tomorrow.

  • LauraW68
    LauraW68 Member Posts: 100
    edited December 2014
    I got my last fill to my tissue expanders yesterday. Yay!


    I was scheduled to go next Tuesday which would be the day after my next chemo treatment and ... well... if it is to be anything like last Tuesday was, I didn't want to deal with that on top of the nausea I had if I had it again like last time.

    The Plastic Surgeon's nurse squeezed me in and I got my final fill of 50cc to completely fill my TE's to 550cc. The PS was very pleased how they looked and the scars looked too. So now I just have to get all chemo behind me as well as radiation then wait 3 - 6 months before I can do the exchange surgery for my gummy implants.

    I did ask him if radiation would or could harm the TE's and he said it's possible, but there are some things he can do to try to prevent that. I am being suggested radiation due to having lymph nodes involved. I'm still not 100% sold on the idea of having radiation after my chemo.

  • Fourminor
    Fourminor Member Posts: 354
    edited December 2014

    Meeting with new MO today. I think I am firing the prior one. The last straw was when her nurse (same one who was doing chemo education but had never heard of drug excretion pathways) called me to follow up my overnight call about fever and abdominal pain. I guess I hold MDs to a higher standard then this one meets. By now i feel she should have spoken to me herself.

    I told nurse I had an appointment for a second opinion with someone else today and I'd let the office know if I was going to change doctors. My husband thinks I should blast her for her own good. I may, but its not my priority at this moment.

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