Why I chose conventional treatment
My purpose in writing this post is to provide a different view to counter-balance the 'alternative' positions posted on this site, to help newly diagnosed patients in their decision-making.
Firstly, I am not a doctor, nor do I have any qualifications in the field of health science or medicine. Thus, I have a great regard for the expertise of doctors, and particularly those whom I have trusted to care for me. They are very learned and caring individuals. I could not possibly know more than they do about treating cancer. I decided on my treatments after conferring with my doctors, researching a lot on BCO, getting a second opinion about chemo, and a lot of soul-searching.
The treatments available in my area are as good as you will find anywhere EXCEPT we do not have the oncotype test or cold caps as standard options (how I wish we did).Notwithstanding the above-mentioned limitations, my doctors' recomendations, I believe, have been in line with cutting edge best clinical practices (according to my research).
I augmented my treatment with extensive psychological counselling, naturopathy and other complementary treatments.
By the grace of God and the expert care of my doctors, I am doing well four years after diagnosis.
Cancer was the worst thing that ever happened to me but without the benefits of modern treatments and staying close to my medical team, I dread to think where I might be now or in the future.
Comments
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I, too, chose conventional treatment for many of the same reasons you list. I am fortunate that I have access to some of the best medical options in the area. I work in a non-medical capacity for a large university health system and have received excellent care for all medical conditions since joining this health system (22yrs). My treatments for this latest issue (cancer) is no exception. Each doctor spent more than a hour with me on the initial appointment. All available options were shared and considered. I felt like a person, not a number throughout all tx. My concerns and wishes were always considered and I had the last say on all decisions.I chose to be very aggressive with my approach. I watched my mother pass away from BC. Her reoccurrence was downplayed by her physician and she did not receive tx in time to slow the growth. I was not willing to 'watch and wait' and my drs supported this approach.
While not fun, chemo was manageable. I worked throughout; taking chemo days off (Friday) and resting each weekend. I worked while doings rads as well. I did not choose to use cold caps since they seemed like so much work. I wanted to focus on getting through each tx as relaxed as possible. My wigs were inexpensive and very nice. No one outside of my family knew I was actually bald. In fact, I went to a family picnic with my closest relatives and no one knew until one cousin outed me. I was trying to spare my elderly aunt the pain of knowing I was diagnosed with the same disease that killed her sister (my mom). Once it was know, off came the wig and life resumed.
Two and a half years later, I am doing well. My hair came back better than before. No long term side effects from any of the tx. I am currently on an AI which seems to be working since no cancer has been detected. I hope to stay this way
I do not regret any medical decision made so far!
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racy,
Thank you for your post. I too have chosen, primarily, conventional tx, though I do take supplements and eat a balanced healthy diet (as I did before bc). I am fortunate in that I too, have wonderful, caring and forward thinking medical practitioners on my team. They have always been honest with me about every aspect of my tx, and have patiently answered all my questions and concerns. My mo runs out of the exam room every time I mention something new or different and prints off articles/research about these things. She promptly answers all my inquiries outside of office visits and had never failed to get in touch with me within 24 hours of a scan. My medical facility offers a variety of classes on yoga, nutrition, meditation/visualization to all and even has a weekly farmer's market on their campus. I realize that not everyone has a situation like this and I am grateful. I have been stage IV since roughly 6 weeks after my bmx and lead a relatively normal life. I thank my medical team and plain old good luck for this. Conventional tx for bc is far from where I wish it was and cure is still just a dream but I'm happy to live (yes, live!) with it until better comes along.
Caryn
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ladies, thank you for your intelligent replies. I agree with so much of your experiences. We need to keep this conversation going for newbies.
Best wishes to y'all (wink).
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since the vast majority of this site f ocuses on conventional treatment I dont really know why this thread was thought to be necessary. BC.org makes its position very clear on alternative treatments. I wish everyone was as lucky as you Caryn, I wasn't and nor were many women in Europe.
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thank you for posting this topic. Before my dx, I had a vague idea that chemotherapy never worked, and just killed every person that did it. And I naively thought that I would never choose it. People do not understand cancer, I certainly did not until I begin my own research for my condition. I actually had a wonderful caring, natural lifestyle friend ask me, well since everything has shrunk down why do you have to have a mastectomy? I also now know of many people that have cancer that have led virtuously healthy lifestyles - if it did not protect them before, why would it start after dx? Science is my best ally in this fight, but I am doing things to support my immune system too.
I am doing my last round of chemo on Friday, with all tumors shrinking and so far as we know, stage 2. I am on Perjeta, just recently approved for early stage BC, and Herceptin, which I am very grateful to have. It is very difficult to allow the more toxic systemic drugs to be infused into one's own veins, but I have no doubt that it is giving me the best chances of living longer. So I will not lie and say I love chemo, it is worth the SE if it ups my chances.
It is so encouraging to hear about coming out the other side, with no lasting SE. I think the common good thing too is that all posters had a medical team that worked with them, not as if in a fast food drive thru. I am lucky there too, and we cannot forget how powerful a medical provider's words and actions are.
So...I would be thrilled if a juicing diet would have cured me, but I feel in my bones anything less than conventional tx would have been a terrible mistake. this site very much helped me to decide that and I am so glad to have found it.
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I'm in total support of this viewpoint and of the viewpoint that there really isn't any "alternative" about alternative treatment. Diet and exercise have long been part of conventional treatment. Eating a healthy, balanced died, getting enough exercise and taking care of yourself have ALWAYS been part of the medical establishment; why it has become "alternative" is beyond me!!!
I, like many others here, did my research and discovered that, while hard, conventional treatment is the best possible option for many, many women. Science and meticulous study has proven over- and over again that it has a higher survival rate than going without. Like exbrxgrl stated above, no conventional cancer treatment is not what I would like it to be, but - hopefully - it's getting there.I'm three years out. My hair has grown back. I feel great. I'm active and healthy, and hope to stay that way. With conventional treatment, the odds are in my favour, although not carved in stone, of course. But chemotherapy has given me a better chance of living NED for a long time.
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I come from a different place than many of you. Almost twenty years ago, the DH was diagnosed with a very, very rare metabolic muscular dystrophy. Fewer than 500 people in the world were diagnosed before him. When he was diagnosed, there was neither conventional nor alternative treatment. Twenty years hence, we have tried anything and everything suggested by our team of clinicians and researchers and luckily, and I do mean luckily, he is still alive. What I have learned from his journey is how magnificent the body is and how little we truly know how it works. That point was driven home when I was diagnosed with my rare breast cancer and having the pleasure of meeting an equally brilliant team of young cancer researchers who are devoting their lives to studying rare breast cancers. That said, I find it very naïve for people to think that they can manipulate their body's cells by choosing "alternatives.". From the DH's experience, working with world class genetic clinicians and endocrinologists and dieticians, we have made some accomplishments using " alternatives" because for orphan illnesses, there are NO conventional treatments. But make no mistake, it is very difficult to make cells do what it is you want them to do! So for me, when there is some conventional treatment.....I welcome it and thank the heavens that it exists!
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Why is this thread necessary? Because someone wished to express their point of view and they have the right to, just like anyone else who uses bco.
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I never liked or trusted conventional medicine before my diagnosis, and always imagined I would try some natural, alternative approach if I ever came down with anything serious.
But then I found my lump, and got my diagnosis, and I realized that I am not smart or informed enough to develop my own treatment plan. I need a team of people who do this for a living and who have studied for years to get there, and who base their care on science, rather than religion, anecdotal evidence, or new age philosophy.
I use complementary therapies, too: acupuncture helps me so much with pain, sleep problems, mood and energy. I've changed my diet, got black-out curtains for my room, added some vitamins and minerals, cut back on coffee and alcohol, added more exercise, and I've been reading about psychic healing. I will most likely keep looking for things to help my conventional treatment. And I will question the conventional tx offered to me, and make my own decisions about them (when the doc referred me to a surgeon to remove my ovaries, I read up on the statistics, which gave no advantage to surgery over chemical castration - and I said no to the surgery. For now.)
I have more confidence in my oncologist than I did in my GP. I think it has to do with the level of professionalism in the cancer center where I am treated.
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In my first week at BCO, I read my first alternative thread - a real eye opener and not read one like it since. It was from a stage IV woman, who choose alternative over conventional, since her first diagnosis at stage II. She was entirely remorseful that she had gone down the alternative route exclusively. The disappointment of her family was overwhelming, whom she then felt so awful about. She was guilt tripped in that they said she did not put them in the equation - for the battle of her life - the point of writing the post, she was near the end and warning other women who were perhaps on the fence. My heart went out to her and gave me pause.
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"Best wishes to y'all (wink)."
Nice touch.
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Thank you, Racy for starting a thoughtful thread outlining some very valid reasons for choosing conventional treatment. Your experience is a much needed boost for those who are just starting out and are overwhelmed by all the information coming at them.
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I chose the conventional route but I too am puzzled by this thread. To me it seems like someone going on Fox news to blare a headline that Obama is evil. When I was a newbie and logged into BCO I recognized it as a conventional site with the majority of posts being about conventional medicine. I can't imagine a newbie not picking up on that.
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Yes, but everyone has a rigto state their opinion or give voice to their thoughts and feelings.
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I agree exbrnxgrl. My point was that BCO is a conventional medicine website (which is apparent on first logging in as a newbie) so I was puzzled by the need for the thread. BUT I absolutely anyone can say anything they choose. ^5 for freedom of speech. :-)
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I am firmly in the integrative camp, best of all worlds, and that every person is unique and individual, others have said what else I was going to post, so I will close by saying I don't think diet, exercise or juicing are "alternative" but should actually be made part of standard "treatment" protocol. i am horrified at dietary advice given to people on chemo......
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lily,
I have never been on chemo, so this is only what I learned in chemo class. While good sound nutritional practices were encouraged, due to taste changes and stomach upsets people often eat whatever they can tolerate. That'sbetter than eating nothing.
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Exbrxgrl ... that's so very true. My MO and my chemo nurses were full of valuable information about nutrition and exercise during treatment. Good nutrition and exercise are ALWAYS part of conventional cancer treatment and always have been. Period. But taste changes and lack of appetite during treatment make it hard. Despite trying my best to adhere to a healthy diet, by mid-chemo, I was reduced to eating what I came to think of as "white" food: bread, rice, pasta, cottage cheese, yoghurt and bananas. Not the best dietary choices, but I was losing weight hand-over-fist and these were the only things I could bring myself to eat. My MO and chemo nurses said that - while a good, healthy diet was VERY important during treatment and to continue to try to do my best - it was also important to EAT period and to do what I could, when I could and if I could. I considered this very good advice during a difficult time when it's hard not to worry about every little thing.
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I think a lot depends on which country you are in, USA medical treatment is about the most expensive so I guess you get more resources, in Europe its very hit and mis
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Please read this if you are considering skipping conventional treatment. Her mets are now in her bones, liver, lungs and brain. God bless her for stepping up to warn others.
https://community.breastcancer.org/forum/68/topic/822249?page=2#idx_40 -
I chose mostly conventional treatment even though I have always firmly believed in natural healing for just about everything except cancer. But after talking to some alternative cancer tx proponents, I came to the conclusion that the docs @ UCLA had a far better understanding of what breast cancer was all about, especially its unique individualities. The anti-conventional proponents, OTOH, kind of lumped my bc in with all cancers in general, believing it's all a dis-ease of the body that would resolve with their recommended tx -- far too simplistic for me. Plus, since I'd always done things naturally, I decided more of the same was not what I needed -- that my body probably needed some "shaking up" with something totally unlike anything it was use to. It helped that UCLA has a huge integrative department, so I knew my holistic questions and bend wouldn't be poo-poo'd by them. And I still believe in treating most other illnesses and conditions holistically; just not cancer.
When it came to an A/I, I had a bad experience with Femara and aborted my half dose of it after a couple of weeks in favor of I3C. I try not to second guess that decision, but the fact that I was re-dx'd with bone mets this year has certainly made me think twice about the way it was presented to me, as well as recommending my choice to others. I do wonder now if I should have tried a different A/I, although I don't dwell on it. OTOH, I feel as if my holistic lifestyle, including going to a 95% vegan diet 5 months ago, has greatly benefited me now, as my tumor markers have dropped beyond what I think my oncs ever expected. So I clearly think there is room for both conventional and complimentary medicine in treating metastatic bc -- or at least a generous dose of sensible integrative medicine. But as limited and rough as surgery, chemo and RT can be, I would never encourage anyone to skip them for early stage bc.
I also think you have to realize that not all docs are equal in knowledge and experience, and the danger is that they don't know what they don't know. So simply choosing conventional medicine may not be enough, especially if docs are not associated with a research hospital where they not only specialize in bc, but absolutely have to keep up on the latest research.
I try never to steal the hope from someone who strongly believes in alternatives by posting negatively on an alternative thread -- unless it's just such total bs that I can't contain myself! So I hope finding one thread like this with our collective insight is a great idea and will be very helpful to some. Thank you for starting it, Racy. Deanna
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Deanna, Great post!
If there needs to be a reason for this thread, I think you hit on it. We don't want to go over to the alternative thread to compare that road with the one we chose, but we all have thoughts and feelings about why we are participating in the kinds of treatments that we are undergoing.
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April485 - don't forget the exact same thing could have happened to her even if she had gone down the conventional path...
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Deanna,
Thank you for your reasonable and rational post. I am glad that you're not doing much second guessing. The past can't be undone and history only teaches us lessons for the future.
Bigmc,
Yes, there are no guarantees but most cases of DCIS are successfully treated. Conventional medical tx for bc is far from perfect, but it is researched , trialed and scientifically documented, the good and the bad.Cancer is too complex, IMO, to leave to anecdotes and casual evidence.
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I went the conventional route too. Not willing to play Russian roulette with BC. Steve Jobs is a perfect example why not to do alternatives. When he realized it wasn't working it was too late. His family begged him to go conventional. He thought his way was better. Cost him his life.
Diane
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"Cancer is too complex, IMO, to leave to anecdotes and casual evidence"....even when it involves Steve Jobs. :-)
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Absolutely! None of us were privy to what happened with Mr. Jobs.
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Thank you ladies for your intelligent contributions to this discussion, to help newbies.
Wishing you all the best in conquering cancer. Love y'all!
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steve Jobs didn't have breast cancer...........cancer is NOT one disease........we ourselves are the cancer cells, they grew from each individual person with differing routes even though the cancer cells themselves have distinct identities for ir each type of cancer diagnosed.
Standard cancer treatment is fir common standardised symptoms and prediction patterns, although this is normally at least FIVE years out of date by default (survival is measured in five year chunks), and this is why stage 1 or DCIS can progress to Stage 4 before a Stage 3 person, as real people are not it standard. Its the cancer that is treated not the person, and uts interesting that research is moving tiwards individualised treatment.
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Racy....I don't want to bring this thread off track...however, I want to share and enlighten some of our sisters about what I recently learned from the rare breast cancer researchers at Sloan Kettering. I know it has become a popular mind set for many of us to think along the way that cancer, like many diseases are complex illnesses that require "individualized" "targeted" therapy. As Eric Topol, MD, pointed out in The Creative Destruction of Medicine, we are moving in that direction. We are looking at the genetic makeup of our cancers and have targeted drugs, like Herceptin, to treat our unique cancers. HOWEVER, and this is a huge HOWEVER, what our clinicians and researchers still haven't figured out is why two individuals with similar genetic tumors respond differently not only to the medications....but...why one person's recurs, while the other person's doesn't. Recall how I mentioned earlier how magnificent the body is and how difficult it is to manipulate a cell.....What our researchers are telling us is that they are finding COMMUNICATION between the rogue cancer cells and the well behaved cells along side them. This is an area of research that is gaining a lot of attention. That is one of the reasons why I choose not to trivialize or for that matter support "alternative" therapies. There are just too many things going on at a cellular level tht still need understanding before we can figure out what individualized treatment might work. Likewise, while some conventional treatments might not be effective for some people, I take comfort in knowing that behind those therapies that are offered, there is a body of evidence to support their use.
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