Fall Rads 2014

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  • Susug
    Susug Member Posts: 193
    edited November 2014

    Lilyrose CONGRATS!!!!!!!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited November 2014

    Susug! YEAH!!!!!!!!!

  • skbrown
    skbrown Member Posts: 40
    edited November 2014

    you are done, and I had my radiation consult today, with tats and markings.  first treatment Wednesday, Nov. 19.  congrats to you.  I dodged the chemo bullet.  Doc called yesterday with the good news.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited November 2014

    SKBrown, you must have heaved a huge sigh of relief about no chemo. Hooray! Your rads will go by quickly.

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited November 2014

    Yeah Susug! Doing the happy dance with you.

    SK: very happy for you that you can skip chemo, the fatigue I got from rads was nothing compared to the fatigue I had with chemo. It'll be over before you know it.

  • tucker3
    tucker3 Member Posts: 17
    edited November 2014

    Hi Clarrn! I noticed a new palpable mass in my armpit area at the beginning of chemo (before rads). I insisted on follow up and was referred for an ultrasound. Happily, it turned out to be just scar tissue, so my fears were alleviated during the US. Phew. I can also say that I think the scar tissue is dissipating since I have been exercising more. Try not to worry, but do pursue the tests so that you can have the peace of mind that you deserve. Best, Kim

  • skbrown
    skbrown Member Posts: 40
    edited November 2014

    What are boosts and how do you know if you need them and how many?

  • skbrown
    skbrown Member Posts: 40
    edited November 2014

    Puffin, if you are HER2- and stage 2, why the chemo?

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited November 2014

    SKBrown, boosts are radiation targeted directly to the area where the cancer was rather than the whole breast and perhaps lymph node area. You don't feel anything different. Usually you receive about 25-27 full breast tx and 6-7 boosts. This help?

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited November 2014

    sk: we thought all I'd need after the lumpectomy would be radiation, but my tumor was sent for oncotype testing and I my score was a 27, which is high intermediate (30 is high) so therefore the chemo. Even though it was still small it was considered to be on the aggressive side.


  • skbrown
    skbrown Member Posts: 40
    edited November 2014

    radiologist told me to use toms or crystal deodorant.  also said to use dove soap or something else but I can't remember the name.  help?  anyone? 

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited November 2014

    sk: I have Tom deodorant that I never used - didn't sweat during rads! Send me a PM with your address and I'd be glad to send it to you. I used Dove Body Wash for Sensitive Skin

  • skbrown
    skbrown Member Posts: 40
    edited November 2014

    I was lucky Puffin, my score was 7 with less than 5% of re occurance.

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited November 2014

    That's an awesome onco score sk, probably the lowest I've heard. Great to have a decisive score rather than something in the grey area.

  • StrongEnough13
    StrongEnough13 Member Posts: 108
    edited November 2014

    Today will be tx 15 out of 35.  I'm getting 25 full breast and 10 boost.  I had the sim scan yesterday for the boost set-up.  So far, my breast and armpit are ok, not too red, and I've been using the calendula ointment my RO recommended.  But I have a very itchy rash on my chest up to my collar bone and between my breasts and underneath the treated breast.  Showed it to the RO on Tuesday & she said it was from reflected radiation & the skin on my chest is already sun-damaged, so it doesn't respond well.  She said the underboob rash looks like heat rash & it doesn't itch as much, so maybe so. She said use the calendula ointment and cotizone cream on it & take benadryl.  None of that helps.  It itches like the dickens!  It's been over a week now & it's driving me crazy!

  • Susug
    Susug Member Posts: 193
    edited November 2014

    I don't recall if they ever did an onco score on me. Would that have been done with my initial blood work when I fist saw my RO? Or is it a seperate test

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited November 2014

    Susug, the Oncotype test is done on your tumor. Not a blood test per se. It gets sent to California and takes 3 weeks. It is NOT done on all breast cancers. IIRC, It is for ER+/PR+, HER2- low stage tumors. Yours might not have qualified because it is ER-. Check the website here on Oncotype Test.for the definitive answer.

  • Susug
    Susug Member Posts: 193
    edited November 2014

    I am ER - I was told I didn't have to take hormone dru

  • hubermel
    hubermel Member Posts: 15
    edited November 2014

    Clarn -- That's great news!!!! I'm so happy to hear that!

    There are so many odd little things about bodies, eh?

    I've seen how all the new digital technology at the eye doctor, family doc, and the ultra sounds really hones in on so many normal, but different, things.

    Thanks to the marvels of modern technology, we now know that our son has a big freckle on his retina. Never would have known that in years past. Now it's something that caused initial concern but ended up just being an individual difference.

    And I'm sure that being hyper aware of all these oddities is what keeps us all prevention-minded and healthy, albeit a little bit stressed out sometimes.

    Doing the happy dance!

  • hubermel
    hubermel Member Posts: 15
    edited November 2014

    StrongEnough1 So sorry to hear you are having the redness and burning. It is indeed aggravating, isn't it?!!!

    I'm still stuck on the notion that Jeanne and I have discussed where we can't have skin or fabric touching that under breast area.

    It's like they expect our breasts to levitate!!!


    Until such time as someone invents a breast levitation device....


    I'm looking for some COOLING PADS or something to put in that under breast area.

    Anything that worked for others?

    I saw on an older rad board that someone mentioned they got RadiaDres Clear Hydrogel Sheets from their RO.

    I also saw a Lindi Skin Cooler Roll on a pinterest board that looks interesting.

    I gotta see if I can get a hold of something to cool things down.


    CREAMS

    It turned out I was allergic to the silvadene which made things worse.

    I moved to hydrocortisone creme but I usually can't do that for long either when my dermatologist had me try it for my rosacea.

    I'm about out of my biafine and I'm not plunking down another $75 at this stage of the game.

    doh! I've just done a bit of research and it looks like Calendula was shown to be more effective than Biafine.

    I'm heading to CVS tomorrow with this coupon in hand http://www.boironcalendula.com/coupons/calendula-2... for the product that was in the study.


    I finished my 18 tx!! woot!! but the redness sure isn't going away.

    It hurts my skin to wear any kind of bra and it hurts my tissues to not wear something supportive.

    Time to invent the breast levitator!!







  • Blownaway
    Blownaway Member Posts: 760
    edited November 2014

    Just joined the group with skin coming off the underside crease.

  • clarrn
    clarrn Member Posts: 557
    edited November 2014

    I also have the extreme itchiness, my RO said there is nothing more to do...lol. Saline soaks, hydrocortisone, and glaxal base is not working! So glad I am done 22 out of 25 treatments. So sorry the under boob area is such a problem for most of you, luckily that is the only good thing about a tissue expander, my girl defies gravity right now. Hope you all enjoy your weekend!

  • hubermel
    hubermel Member Posts: 15
    edited November 2014

    Sorry Blownaway and Clarn.

    No wonder we're kinda stuck without solutions.

    I just reviewed this article and it appears that from the limited research available, there aren't a lot of treatments that are very effective for radiated skin.

    The one thing they did end up recommending is the Calendula cream. (Here is a coupon for it http://www.boironcalendula.com/coupons/calendula-2...._

    Evidence-Based Interventions for Radiation Dermatitis

    Deborah Feight, RN, MSN, AOCN®, CNS, Tara Baney, RN, MS, CRNP, ANP-BC, AOCN®, Susan Bruce, RN, MSN, OCN®, CNS, Maurene McQuestion, RN, BScN, CON(C), MSc

    Clin J Oncol Nurs. 2011;15(5):481-492.

    "Topical and oral treatments, as well as various dressings, have been studied for effects on radiation-induced skin toxicities. A systematic review by Kedge (2009) examined results across 10 randomized, controlled trials from 1990–2008 with about 575 patients using topical agents and hydrocolloid dressings. No convincing evidence was found for any intervention studied (Kedge, 2009)."

    Figure 2 in the article offers their expert opinion based on the findings.

    image

  • hubermel
    hubermel Member Posts: 15
    edited November 2014

    P.S. I'm done with radiation so I'm not worried about anything interfering with treatment...just trying to find some relief at this point.

    I have super sensitive skin to begin with so everything, but aquaphor is stinging.

    I think the aquaphor is keeping things too moist and not allowing my skin to breathe.

    A friend suggested I try Crisco as her doc recommended it for her eczema. It protects like petroleum jellies, but allows the skin to breathe.

    I'm also going to try olive oil.

    I've tried coconut oil and even that stung.

    UPDATE: So far so good with the Crisco if you can believe that. It didn't sting during application or afterwards and provided some relief. The experiment continues.... I might add some vitamin E oil to it by squeezing it out of my vitamin E capsules.



  • Puffin2014
    Puffin2014 Member Posts: 961
    edited November 2014

    hubermel: have you tried Vanicream?

  • Gilesmt
    Gilesmt Member Posts: 65
    edited November 2014

    here is a suggestion that seems to have worked for me but I never thought of it until my daughter pointed it out. My dd hated that I was half bold, it really bothered her, so she went out a month ago and bought me hair, skin and nail vitimins. I have been taken three day day for a month, being blind I was thinking off to as hair improver, she reminded me it was for skin also.

    Even though my skin was broken down under my breast, it hurt for two days and within a week, all new skin was there and it looked great. My underarm skin turned black, then started to fall off, it was as large as my cell phone, now 8 days after the worst, all but just a small small amount is healed, it has not hurt for many many days. My collar bones, hurt and itched but never broken owns

  • hubermel
    hubermel Member Posts: 15
    edited November 2014

    Puffin2014 - No I haven't. It looks like that is one of the kinds of things on the list to use after I get through a bit more healing. Right now my skin is still to sensitive for moisturizers. But this too shall pass!! Thanks!!

  • hubermel
    hubermel Member Posts: 15
    edited November 2014

    I'm glad you found something that helped GilesMT!

  • Blownaway
    Blownaway Member Posts: 760
    edited November 2014

    I'm just using hydrocortisone cream topped off with Aquaphor. Today, I saw my rad/onco who assures me that my maroon breast with peeling underside is just fine. She said that shows the radiation is doing its job. No pain or itching - 7 more boosts to go and no reason to believe that I won't complete all.

  • jeanelle
    jeanelle Member Posts: 179
    edited November 2014

    hubermel - If you invent the breast levitation device, let me know! I think I had a reaction to the silvadene as the area is worse not better from last week. I am allergic to sulfa drugs but they thought it wouldn't bother me topically. Now what do do with 8 unopened small jars of the cream! LOL I think I'm going to get another week off of rads which pushes me now into December. I will be so glad when this is over. I am so close to being done and now this is happening.

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