Starting chemo September 2014

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  • badhairday
    badhairday Member Posts: 178
    edited November 2014

    Poppy, was thinking of you today. I changed out of my pajamas, into clean pajamas! LOL! Hang in there, only 1 more to go for each of us!

    Slept a lot today, but was able to eat, and no heartburn or nausea so far. Friday is when it usually kicks in, but I am scheduled for IV meds and fluids at 10 am, so hoping that does the trick.

    Finally wised up, and set up the visitation schedule for Little E to be with his dad for 3 days post chemo, so I can lay around and relax and sleep without guilt. I have hardly moved today, so I think it was a good choice. I'm planning to give in to the fatigue and just try to sleep it off. Fighting it just ends up with me in tears and feeling like a horrible mom. My onco suggested listening to my body and crashing out when I need to.

    I don't know what I am looking forward to more, the return of my hair or the return of my energy!

  • melannmor44
    melannmor44 Member Posts: 14
    edited November 2014

    Badhairday

    The hives just got worse, ended up going in to my MO and he thinks it's an allergic reaction to something possibly my Taxotare. I was supposed to have a treatment on 11/19, my last one. But now he may stop them completely or do something else. My knees hurt so bad I can hardly bend them or even lay in the bed with them straight. I got a steroid shot and a Medrol dose pack, so far the shot has done nothing and I'll start the pills tomorrow. I just thought the itching was bad, this joint pain is horrific.

    Anyone had something similar

  • badhairday
    badhairday Member Posts: 178
    edited November 2014

    Melannmor, I had a terrible allergic reaction to Taxotere, but it was immediate and anaphylactic, so I was switched to AC. Toby also had issues, and is being switched to a new tx. Hopefully she will see this and chime in, as her situation is more similar to yours. I hope you get it all straightened out and feeling better.

    Trying to get myself moving this morning. Have to leave early for tx thanks to lake effect snow. I love Cleveland! So far, so good on the nausea and heartburn, so I am braving the weather, hoping to have a puke-free weekend.

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited November 2014

    My port placement and 2nd taxol was Monday. Port is starting to feel better and thank God no terrible reaction to the taxol. I slept pretty well last night. Hubby was sick but he is feeling better too so I finally have him back. He does a lot for me so I was missing the help while he was sick. Hope you all have a good day. We can do this. Love, Jean

  • badhairday
    badhairday Member Posts: 178
    edited November 2014

    Jean, so glad to hear that you are doing so well with the new tx. Hope your hubby continues to improve as well. You are so right, we can do this!

    Went in for Neulasta, some fluids, steroids and Ativan. I am feeling like a zombie right now, but a non-nauseous, non-heartburn having zombie, so I will take it! Back in my pajamas and have a hot date with a stack of DVDs and my couch!

  • Tobycc
    Tobycc Member Posts: 789
    edited November 2014

    imagefelt ok to go to lunch with DH after tx.

  • simplelife4real
    simplelife4real Member Posts: 563
    edited November 2014

    Hi All,

    I'm dropping in from the September 2013 chemo group. I have been thinking about you a lot the past few weeks as the weather shifts into winter for many of you. This time last year as the weather got cold, I was hanging out in pajamas and wondering if I would ever feel good again.

    I just wanted to drop by and give all of you some encouragement. I finished my chemo on Jan. 14, 2014 and my hair is so long now that I'm thinking of getting a trim! Hubby and I just finished a month-long vacation with lots of camping and hiking. Things like that were only a dream for me last November. Now, my energy is back...pretty much back to normal. Chemo is becoming a dim memory although I'm really aware of how much better I feel this year at this time compared to last year.

    Hooray for all of you for being a part of the Sept. 2014 chemo group. It is one of the best things you can do for yourself. As many of you know, our September 2013 group created a private facebook page for ourselves after we finished chemo. We waited until March to do it and all of us were done with our initial treatment. We are still going strong as a support group for each other. I hope each of you find tremendous support here, not only now, but in the months to come.

    Wishing you the best.

    Kay

  • LARock
    LARock Member Posts: 229
    edited November 2014

    Kay, thanks so much for thinking of us and taking the time to drop in with your words of encouragement! So glad to hear that you are doing well and to know that, soon enough, we'll all be in a similar place.

    Tobycc, great pic! You look fabulous!

  • badhairday
    badhairday Member Posts: 178
    edited November 2014

    Toby, great pic! You look awesome! How did the change in tx go? Hope your SE have settled down.

    Kay, thanks so much for the encouragement. The closer I get to the end, the harder it gets to get through some of the days, and hearing from people who are a bit ahead gives a ton of hope!

    LaRock, good to see you.

    3 hour nap for me.Now to figure out dinner. It is Snowmaggedon here in Cleveland. So glad I don't have to leave the house this weekend!

  • KayaRose
    KayaRose Member Posts: 183
    edited November 2014

    Kay

    Many thanks for the words of encouragement. So good to know that we will one day feel normal again. Right now it does seem like just a dream. You made it a reality for all of us. Thanks again.

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited November 2014

    Toby, you look great!!!! 

    Badhairday, Sounds like you have a great weekend planned.  Enjoy it!!

  • Tobycc
    Tobycc Member Posts: 789
    edited November 2014

    so blessed to go to concert tonight with Casting Crowns and Mandisa. You are ALL "overcomes". A couple pics to follow

    Gentle hugs and strong prayers for allimage

  • HockeyCat
    HockeyCat Member Posts: 222
    edited November 2014

    Toby, nice pics. You look great!

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited November 2014

    Okay, ladies, I have a petty little problem that is just about to drive me to tears!!!  As most of you know by now, I am a "what you see is what you get, tell it like it is" very private person.  I have a close co-worker that finished her battle with colon cancer a couple of months ago and is an open book to anybody who asks.  The office has our annual open house this Friday and a lot of clients will be there at this function.  I have tried not to meet clients face-to-face during this whole ordeal and I pick and choose who I tell about having BC.  The problem, my co-worker not only tells them about her colon cancer fight, but she also tells them about me and my BC fight.  I have told her on numerous occasions that she has no right to tell anybody about my BC.  My boss said she would talk with her again, but it doesn't sink in, as we have had this problem when I was first diagnosed.  My husband says...well never mind that is not nice.  I am proud to be a survivor, yet, I am terrified of this open house and seeing some clients and friends I haven't seen in a year, as I don't want to spend the night hearing "well when I had....".  As I tell my co-worker, she can hide her colostomy bag, I cannot hide my head.  Can I duct tape her mouth shut? NO!!!!  So what now?

  • badhairday
    badhairday Member Posts: 178
    edited November 2014

    Nomatter, I have no advice, as I would be using the duct tape! LOL! I have found that BC is a lot like pregnancy. Everyone feels compelled to share their experiences, good and bad, and give their opinions. It's annoying as heck! I have become very good at changing the subject. I hope you get through this with your head held high. You have earned it! Your coworker is unprofessional and your boss should really be more forceful about her big mouth!

  • Tobycc
    Tobycc Member Posts: 789
    edited November 2014

    NOMATTER....you have to have another talk with her before the open house, and your boss too. Remind of HIPPA......that should do it

    As CEO I do not have the right to even ask employees why they are sick. Now, I am not mean like that, but I never share about another if they confide in me

    She does NOT have the right to disclose this....and let her know in a nice way

    Kath

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited November 2014

    Thanks for the advice Toby.  Confidentiality is the number one priority in our law firm and HIPPA concerns are number two.  My boss, Managing Partner and myself had a conversation today and there will be a firm wide e-mail go out that let's everybody know that under NO circumstances are they to mention either of our cancers to anybody and if we want people to know, we will tell them ourselves.  If clients ask anybody, they are to tell them that they will have to ask us directly if they want to know.   I have been at this firm for 21 years now and this function is "my baby" and I have to tell you, this is the first year that terrifies me. 

    Badhairday,  I still like the idea of Duct Tape. LOL!!

    Jan

  • Tobycc
    Tobycc Member Posts: 789
    edited November 2014

    jean, am SO glad!!!! I am right with you. I have been at mine for 21 years also. If word got out, heads, or hair, :) would roll. My first of two huge fund raisers is on 12/5. Focusing on getting through that.

    Hugs

    Kath

  • PoppyK
    PoppyK Member Posts: 1,805
    edited November 2014

    Nomatterwhat, Glad you have a plan to handle this! I don't think it's a minor issue at all. It's nice to have a "cancer-free" place... such as with clients, or certain friends, or school. The Open House is your baby! I can understand not wanting to spend all night taking about stupid cancer!

    Toby, Guess the above comment applies to your fund raiser, too.

    Speaking of hair.... Today I went to my youngest son's school to bring root beer floats to his class to celebrate his birthday. When my son first saw me, he gave me a strange look... big eyes and shaking his head "no". I assumed it was because I showed up to his classroom sporting my short and sassy red wig. Tonight, my little guy told me he was concerned when I showed up at his school because he didn't want me to get sick. I guess I'm still self conscious when wearing one of my wigs. I usually wear hats or scarves.

  • badhairday
    badhairday Member Posts: 178
    edited November 2014

    Rip Van Winkle here, checking in. I feel like I slept a year's worth of sleep this weekend, and yet I am still so tired! I'm happy to say that Friday's IV saved my weekend. Nausea was well controlled, no heartburn, just a tiny bit of stomach gas, and a mouth that tasted like a dirty sweat sock. Ick! But I was able to eat and drink and keep it down. That's the important thing!

    Nomatter, so glad you have a solution to your work situation. Good for you for sticking up for yourself, and getting the problem handled.

    Toby, wishing you success with your big projects. I am in awe at your ability to do it all so well.

    Poppy, your little guy is a sweetheart. How adorable is he to worry about your exposure to germs. Love it! (Little E told a man at the grocery store God Bless You, and then said please don't sneeze on my mom, she has cancer! LOL! ) I guess they listen to the lectures about germs. Happy birthday to your little man!

    Speaking of birthdays, Little E will be 7 on Thursday. I have recruited friends for a top secret mission Weds night while we are at support group. They arr sneaking in and setting up the habitat for a bearded dragon in E's room. He has no idea! I can't wait to surprise him. I'm also feeling a bit nuts for doing this, but he is going to be so freaking excited. I am still not sure how I feel about purchasing bugs and bringing them in to my home on purpose. That boy really is the love of my life! I hope he knows that!


  • melannmor44
    melannmor44 Member Posts: 14
    edited November 2014

    Well, i went to my MO yesterday and he has decided to forgo my last treatment. I am officially finished with chemo!!!! I completed 75% of my therapy and will start the Tamoxifen in two weeks. I was wondering if there are others on here that stopped on the third treatment? All my cancer was removed seeing as I had a Double Mastectomy and no nodes were positive. The only reason the doc wanted me to take chemo was my onco type score was 19. I feel pretty good about it and my doc seems to as well. He was just afraid after my reaction to whatever it was could have possibly been to the taxotere and thought that if we tried the last treatment I may end up in the hospital. Hope all is well with everyone and Thanksgiving will be a great day with family for all.

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited November 2014

    We can do this together Toby!!!!  I know that there will never be a day in my life that I don't think about cancer, but I just want this one night to be able to focus on having fun and mingling with old friends without the "c" word being mentioned.  IS THAT TO MUCH TO ASK???  LOL!!!!  I can do this with you ladies riding on my shoulders. 

    Oh, Poppy what a special little guy, worrying about his mom.  Enjoy it!!!

    Badhairday, Bugs, on purpose?  Have you lost your mind??  The only bugs we have ever had in our home are ants in our smoke alarms.  What fun that is at 3 a.m. and then try to explain it to an exterminator. 

    melannmor44 CONGRATS on being done!!!!! 

    Jan

     

  • badhairday
    badhairday Member Posts: 178
    edited November 2014

    Melannmor, congratulations on being done! It must be such a relief. Having an allergic reaction is no small matter, and the fear of that is pretty rough to deal with. I'm the girl who is allergic to everything, and I hold my breath every time I have tx, waiting for it to happen again. (No matter how much experience you have with an epipen, it's never not scary!) It sounds like your doctor is confident that you have done what you need to, and it's time to take the next step. I wish you the best!

  • badhairday
    badhairday Member Posts: 178
    edited November 2014

    Yes, Nomatter, bugs! I am actually going to spend cash money on crickets to feed this thing. Paying for insects, and purposely bringing them into my home. I'm going to blame it on the chemo brain thing! LOL! Have I mentioned that I am terrified of bugs and can't even get close enough to squish one? I am so lucky to have a friend who is not a sissy and is willing to help with the bug aspect of this. I can't wait to see Little E's face when he sees his new pet!

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited November 2014

    BHD,  I have looked up bearded dragons.  Seriously??  You are a better mother than I.  LOL!!!!!  I'm sure Little E will love it and what a neat surprise.  You are going to have to post pictures of Little E and his new pet.  Give him hugs from me and tell him Happy Birthday. 

  • PoppyK
    PoppyK Member Posts: 1,805
    edited November 2014

    Badhairday, I've also paid for insects and then brought them into my house... all for my middle son. Crickets, fruit flies, meal worms... all sorts of gross things. But I only had to feed the frogs when my boy was camping. When one of his frogs got old, it went blind. I had to place crickets on the frog's face so he could snatch them with his tongue. You should consider buying one of those cricket keeper that has a "tube" so you can just shake the disgusting crickets into the dragon habitat. Better than having crickets loose in the house... or touching them. Here's a link so you can see what I'm referring to: http://www.petco.com/product/112284/Rep-Cal-Cricket-Shaker.aspx?CoreCat=LookAhead

    Poppy

  • badhairday
    badhairday Member Posts: 178
    edited November 2014

    Poppy, thanks for the link. I bet a mom thought of that! LOL! I

  • Robin73014
    Robin73014 Member Posts: 21
    edited November 2014

    hi ladies!

    I have not been on for a while~ my mom had to have emergency brain surgery in October then she had a acute stroke after the surgery. She is now at a rehab facility but it has been tough trying to deal with her care and mine. I started Taxol ( treatment ) 2 was last week and I am not doing well.....

    * neuropathy

    *hot flashes

    * achy bones

    * insomnia

    I have been given a slew of drugs for the symptoms, but I suffer from those side effects. The nausea is not so bad now ( AC nausea was horrific) but I thought Taxol was suppose to be "easier". Anyone else having Taxol or experiencing side effects?

  • Tobycc
    Tobycc Member Posts: 789
    edited November 2014

    Robin, my legs hurt so bad I am leaving work by 3:30. Feels like I caught 4 baseball games in a row.

    Taking glutamine, b6,b12, to ward off neuropathy

    Good news ...got the okay for free cleaning today! Once a month for 4 months. Org is called cleaningforareason if interested. Mine is through MaidPro

    Took about a month, but I am feeling blessed! Going to lay in the couch in my bald glory and enjoy them cleaning!

    Gentle hugs and prayers to all

  • Tobycc
    Tobycc Member Posts: 789
    edited November 2014

    oh, and Bad hair.... We got one twin a leopard gecko 7 years ago. Bought it a bride, they had a baby girl. Now DH and I still are buying crickets and dust for John, Jennifer, and HissyPissy while the boys are in college!

    E will love it!!!!! They live a LONG time :)

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