Dancing in Limbo from summer rads 2014

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Louanne
Louanne Member Posts: 101

New topic for the ladies of summer rads 2014, or, for anyone else who would like to join in. Great name by Rosie! "Dancing in Limbo from summer rads 2014".

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  • Kicks
    Kicks Member Posts: 4,131
    edited November 2014

    Not sure what you mean by "Dancing in Limbo".

  • Rosiesride
    Rosiesride Member Posts: 513
    edited November 2014

    this is the title of a book Dancing in Limbo: making sense of life after cancer by Glenna haverson Boyd and Lisa Hunter....these ladies are also survivors and the book is about the aftermath of the intensely focused time of treatments...the emotional issues we face..fears, uncertainty etc. following the end of treatment....living a full life after cancer., despite the fears and uncertainty that lingers.

    The book defines limbo as a state of being midway between two extremes...

    Some of us may not feel like this...many different emotions after our year of treatment....for those that need support through this next phase, we thought to create a board for our summer rad 2014 sisters!!! Hope to see you all here and thanks Louanne for creating the board! Rosie

  • Louanne
    Louanne Member Posts: 101
    edited November 2014

    You're most welcome Rosie! Need to get some work done. Dr. appointment today. Going to need synthroid. Thursday MO. Have a wonderful night.

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited November 2014

    Thanks Louanne! Yes that's a great title.I have been getting back into old interests but I was feeling a little sorry for myself as I have been doing OK but still feeling a bit out of sorts, lack of sleep and concentration and a few aches and pains(think I need some massage) then today it got put in perspective.

    A lovely lady that I used to work with and have not seen for quite a while had a very close friend of many years. I was shocked and saddened to hear that he recently passed from colon cancer. He was only 46. I did not even say that I had had BC this year. I don't know if she knows but I just didn't want to mention it.

    I hope everybody here is doing well. It certainly does feel a little like limbo at the moment. Will see the onc next month and taking the tamox but does feel like I have been cut loose with not even a mammo until next spring and a boob that still feels a bit weird 3 months after rads.

  • Rosiesride
    Rosiesride Member Posts: 513
    edited November 2014

    lyzzysmom...good to see you on here! I was missing my sisters from summer rads! Hoping sunshineinky pops in!

    I ended rads august 13 after months of chemo...jumped right back into work routine teaching kindergarten and those kids are my joy! Also my distraction from thinking too much about the past year.

    But as my "cancerversary" or whatever you call it gets closer, I am pretty weepy and out of sorts...I guess it's dealing with the aftermath of the storm. But then I get myself together and say just enjoy the moment and the present days!! Silly old bear....lol...

    Had my mo follow up, tomorrow is my RO , dec 4 regular gyno...dec 23 diagnostic mammo and surgeon follow up (ouch!)...jan 6 new doctor visit with internist...geez... Busy!!!

    Going back up to the mountains in Asheville nc for thanksgiving...closer to heaven in the mountains!!

    Have a great day everyone! Rosieimage

    My beach at Topsail Island NC...my happy place!!!

  • Louanne
    Louanne Member Posts: 101
    edited November 2014

    lyzzy, the massage sounds good!! I have been feeling the same way also. My thyroid is "sluggish", that is what I've been told! It is so sad that cancer is taking young people. Seems like every Dr. is different on their opinion on mammograms. Mine was 3 months, but read any where from 6 to 9 months. I had a high Ki-67, and both infiltrating and DCIS, so that could have had something to do with the early mammogram.

    Rosie, I miss sunshineinky also! Must be quite a job with children so young, but, also very rewarding for you. The moment is where we are, so, makes sense not to think about it, but, it is very hard when all of these Dr. vists keep coming. Also, not worrying about every ache or pain. Love, love your happy place Rosie, it is so beautiful!! The beach is also my happy place. The beauty is just so awe inspiring.

    Have a wonderful day also!



  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited November 2014

    I love the picture Rosie! I am glad you are enjoying those kinders!

    I do wonder how Sunshine is doing.

    I was never happier than when I was adjusting my sail (windsurfing)! My happy place was a beach in the Greek islands in a little town called Vasiliki. Sounds exotic but from England it was like flying down the coast to Florida. It had perfect warm wind that would come down the mountain in the afternoons. We would run for our sailboards. There was an Irish couple that ran a bar and would do a full cooked breakfast and every Monday night there would be live music. He would do his version of Queen's Bohemian Rhapsody like clockwork LOL. There was no AC and no screens to keep the mosquitos out. If it was a cloudy day or you took a late shower the water would be cold as it was solar powered but it was just a great place and the ice creams were really good as were and the cocktails in the Zeus bar "downtown"!! I probably went there 10 times over a number of years and it was always the same. I expect things have changed a lot now. I am rambling but that pic and caption got me going!!

    Have a good evening ladies!


  • Rosiesride
    Rosiesride Member Posts: 513
    edited November 2014

    thanks for that wonderful visit to the Greek Islands, lyzzysmom!! Sounds so beautiful, carefree and fun! Just how life should be!

    How are you doing on tamoxifen? It hasn't been bad for me at all...I started a bit after you did! Talk to you all soon! Rosie

  • Curlyq1974
    Curlyq1974 Member Posts: 144
    edited November 2014

    Hi Ladies of Summer Rads 2014,

    I have been lurking. The topic of this board is so perfect - limbo is exactly how I feel! I have had a set back in my road to recovery. 10 months after my tissue expander was placed, 2 months post radiation, i started to feel tightness in my right breast. Turns out it was a staph infection. Very, very nasty. Had to have emergency surgery to remove the right tissue expander. Spent two weeks on IV antibiotics - thank goodness I still have my port! Finally just getting back to normal - or as close to normal as I think I will get :) I now have a fully expanded tissue expander on the left and a very sad, deflated, flabby mess on the right. Plastic Surgeon told me to just breathe.... he won't even talk about the reconstruction on the right until January but he did mention that another implant may not be possible. My right side is my cancer side and the tissue from radiation is just not happy. BLAH!!! Does it every end???

    Izzymom, your rambling of the Greek Island was wonderful. I could feel the breeze as you described it. Thank you!

    I hope this finds you all well and starting to adjust back to your new normal. Thanksgiving this year is going to have a whole new meaning for me. So very thankful for the ladies on here and the support, the skill of my doctors and the nurses who have taken care of me, friends who I didn't realize I had that have supported me continuously for the past year thru this hell, and of course, my family who spent many nights watching over me at the hospital and home, worried about me, prayed for me, took care of me, helped me bath... the list goes on and on... So very, very grateful this year! I have never sent out Thanksgiving cards before, but this year, it just seems so appropriate to thank some of the people who have supported me thru this all.

    If I don't pop back in for a while - I wish you all a very happy, healthy, and wonderful Thanksgiving!

    <<<Hugs>>>

    Janet

  • Amelia123
    Amelia123 Member Posts: 96
    edited November 2014

    Hi! I was on Summer Rads 2014, and hope more people from there find this page. Thanks for starting it.

  • Louanne
    Louanne Member Posts: 101
    edited November 2014

    lyzzy, your Greek island sounds amazing. You may want to venture into writing!

    Rosie, I'm not having many side effects with tamoxifen. Mainly hot flashes.

    Janet, glad you posted! So sorry you have been through so much. Have a wonderful and healthy Thanksgiving this year!

    Hi Amelia glad you are here!

    MO appointment went well today!! 6 months of freedom from appointments, I hope!

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited November 2014

    Louanne, thank you! I am not really very good at writing but that place and time was very close to my heart. Yippee for no more appointments for 6 months!!

    Rosie, glad you are doing OK on the tamoxifen. I am doing OK but I do feel rather weak and fatigued, and my brain can only handle so much thinking LOL I wake up so early. I have tried so many things but I finally called PCP last week and asked for something heavy duty and got ambien generic. I expected to wake up and find myself raiding the refrigerator or something but they did not have much affect at all so I think I may have to try the time release at some point .

    Janet, Sorry you have had such a rough time and hope you too have a wonderful Thanksgiving. 2014 has been a year I think we all wish had not happened the way it did but still there is a lot to be thankful for. Tissue does feel strange after radiation. Mine feels kind of smooth and tight like its been compressed. I do hope yours recovers enough for you to be able to get your reconstruction completed in the new year.

    Amelia, good to see you here. hope you are doing OK on the tamoxifen too!

    Snow forcast here tonight. Brrrr!

  • Rosiesride
    Rosiesride Member Posts: 513
    edited November 2014

    Hi ladies! Yes, it sure is a special thanksgiving for us and our families and friends who worried and went through all of this with us....

    My RO 3 month follow up was quick...he did stress the importance of stretching the arm with exercises every day...in the shower, in the doorways, climbing fingers up the wall, ect...for the pec muscles...it's an ongoing thing...it all feels so tight in there!! Visit was fine...see him in 6 months!

    Well, turned super cold here in southeastern NC! Good weekend for the firepit! I do love this season...just not the feelings it stirs...December will be rough as it gets closer to the time I was diagnosed...when the whirlwind began and I went into warrior mode without thinking too much, just getting it done....I think now is when it is all sinking in as we get back to our routines....

    Well, that's enough of that and I am going to relax after a busy day with my kinders....who were OFF THE CHAIN today....oy...wait until Christmas rolls around! Well, seems like it's already here in most stores anyway! Have a blessed weekend and hope more friends see our new board!!!Rosie

  • mripp
    mripp Member Posts: 106
    edited November 2014

    Hi all! Glad to checkin with this new thread! I have last followup appmt for this year with RO next Thursday. Was supposed to be yesterday but rescheduled as in Pacific NW we had snow, sleet, freezing rain and didnt want to risk commuting into the City. I still need to do Gyn checkup soon. Will have mamm in July and regular followup in April (6 mo recheck).

    I agree that Thanksgiviing will have extra meaning and time to reflect this year. We are hosting and I'm looking forward to the holidays! Started Christmas shopping and have date set for annual Cookie exchange party (I'm hosting) and just found a Groupon for the Nutcracker ballet in Dec. and invited DIL's and Granddaughters. Hope it works out! Feels good to "move on!"

    Miss Sunshineinky too. Hope all is well. Talk to you all soon and have a Happy Thanksgiving!!!

  • rettemich
    rettemich Member Posts: 369
    edited November 2014

    I'm glad someone finally started a new forum. Nice to hear from everyone. Glad to see I'm not alone in things feeling a little weird. They took me off the Tamox and but me on Aromasin. I haven't started it yet. I had an "adjustment" surgery with my Plastic surgeon on Friday. Even me out a little, and just a little fixes. Nothing really major but yeah I'm sore. And wearing an ace bandage tube top. LOL. Because I had such a hormonal crash when I started the Tamox we thought it best to wait until after this surgery to start the new one. I'm really nervous about this one because of the bone issue. They scheduled me for a bone scan next month and I have my mammo also.

    I love the name.

    Hope more of our summer sisters join in. We went through so much, and still are, together.

    sunshine, Have you in my thoughts all the time sweety. (((((((((((((HUGS)))))))))))))))


  • Rosiesride
    Rosiesride Member Posts: 513
    edited November 2014

    hey Rettemich...glad you found us! This is a whole new phase of the journey...coming up on the year cancerversary ( is that what you call it)?...and it really stirs a lot of emotions...happy thanksgiving to everyone! Rosie

  • Louanne
    Louanne Member Posts: 101
    edited November 2014

    Hi Mari! Nice to hear from you! Wow you're so busy!! Sounds like you are going to have a wonderful holiday season!

    rette, glad you made it here! Hope the Aromasin works better for you.

    I made a big change in my diet, and lost 20 lbs. I was feeling really good, then started adding foods back in that I haven't been eating, and have been feeling more tired and achy. I'm sure the weather doesn't help at all. I dropped around 65 points off my cholesterol, and my good cholesterol numbers increased. Thyroid was a little off, after my visit with the MO, I decided not to take the medicine for my thyroid. So much like limbo for sure. Have a wonderful night ladies!

  • OK4Now
    OK4Now Member Posts: 4
    edited November 2014

    Great day today. Braved the snow for my diagnostic mammogram. Worried about pain, but pretty much the same as always. Result was good--back in six months for another. Last year at this time didn't know anything for sure, so Thanksgiving was pretty rough. This year, heading out of state to spend the holiday with kids and in-laws. Looking forward to meeting my new grandson, born while I was in the middles of my next-to-last chemo treatment. Appetite returning, but sense of taste is still shot. Doctors said guidelines have changed & want to "revisit" genetic testing, so journey may change course once we get results in early December. Hope everyone has a great week & Happy Thanksgiving.

  • Louanne
    Louanne Member Posts: 101
    edited November 2014

    OK4Now, so glad your mammogram went well. Have fun with your new grandson! Let us know how your testing goes.

    A wonderful Thanksgiving wishes for everyone!

  • aff
    aff Member Posts: 279
    edited November 2014

    Hi everyone! I haven't been on in a couple months. I went back to work in Sept. I didn't realize how much I missed it. I'm doing very well and mostly moving on. Glad to see everyone here.

  • Rosiesride
    Rosiesride Member Posts: 513
    edited November 2014

    hey aff! Glad your back! Also glad you are moving on and back to work...it's a good feeling but it's also strange..happy thanksgiving! Rosie

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited November 2014

    Happy Thanksgiving Everyone!!!!

  • Rosiesride
    Rosiesride Member Posts: 513
    edited November 2014

    hope this board keeps on going! Love to hear from our old crew! Heading to the mountains for thanksgiving with one daughter and sisters family! We will leave our coastal region to enjoy a different view in Asheville NC.

    Never left home for thanksgiving but changing it up this year...only one out of 3 children home...times change when the "kids" have significant others and move out of our bubble! Hopefully we will all be together for Christmas which will be a longer break from school!

    So many wonderful blessings this year...adding the blessing of you all...cyber support sistas! Happy Thanksgiving friends...sharing one of my favorite cartoons...friends are there for each other always!!

    !!image

  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited November 2014
    My favorite ladies!!! I have missed you all! Just wanted to let you know that life has been crazy. My husband of course cheated. I'm still here, he's still alive but working on those trust issues has been hard. I had surgery 3 weeks ago! I now am the proud owner of a lapband and I'm currently down 27lbs. My oncologist is so happy she moved me up to 4 month visits instead of 3. I have my 1st mammo on the bad boob next month and I'm really nervous about it. I'm guessing that's normal right?!?!?

    Anyhow, I promise to do better about checking in! I miss talking to you all! Happy Thanksgiving, I feel blessed that each of you are a part of my journey!

    Hugs & love,
    Laura
  • Louanne
    Louanne Member Posts: 101
    edited November 2014

    Happy Thanksgiving everyone!!! Lots going on the past week. Family, friends, and lots of food! I think I have been comatose the last few days!

    Rosie, I love your cartoon! I sent this to a friend last week. It is so true. She went above and beyond through surgery and rads. It is fitting especially for all you ladies.

    image

    Yay!! Laura! Glad to hear from you. We have missed you too! That is great news on the weight loss, and the 4 month appointment. Definitely nervous with the first mammogram, but, not as bad as I had expected. Hope all continues to go well, and he earns your trust back! Glad you will be checking in. Have a wonderful weekend ladies!

  • Rosiesride
    Rosiesride Member Posts: 513
    edited December 2014

    Laura!! Yey that you found us! So many have been asking about you! I also have my diagnostic mammo on Dec. 23 rd...Merry Christmas to us...yeeks...but let's keep positive thoughts! My concern is for the other boob! It's been overlooked I think...so I am wondering the condition of it!!

    Happy you are back and hoping life gets better for you and hubby! Rosie

  • Amelia123
    Amelia123 Member Posts: 96
    edited December 2014

    It's nice to see people slowly but surely finding this topic! I hope everyone had a wonderful Thanksgiving. Last November I had my BMX, so this whole month of November I was giddy. Everything was a joy to do, since I couldn't do much one year ago. From raking leaves to carrying heavy shopping bags into the house, I was a smiling fool.

    I'm seeing Vinnie this week. A bit apprehensive but happy to be at this point.

  • mripp
    mripp Member Posts: 106
    edited December 2014

    Hi everyone! Happy reading these posts and that things are going well for most. Overall my health is really good. Need to lose weight and get more exercise. Ugh! Picked up an exercise class flyer yesterday I'm going to check out. Need to do some stretching and low impact program during these winter days. I noticed after a long day of going shopping last Friday, and to a huge bazaar, that I had some soreness at my Lx site. Carried kind of heavy bag for 4-5 hrs and think that did it. Better today. Also my DH told me my youngest son was here the other day before I got home from work, and he/our son is still worried about my health. Are your families worried? My husband said they think I've hardly slowed down. But should I? Work, other activities, etc. I do notice some fatigue near the end of the week, but am  trying to get some extra rest and get to bed earlier. I'm hosting our annual cookie party this Saturday so baking Friday (day off!) Well hope it goes good and everyone has a good time. Then later we're  getting our Christmas tree. Also have BIL coming from AK for a week on 13th and then our large family Christmas party (usually over 100), another party with close friend on 19th, and a trip to Nutcracker ballet with DIL's and 2 granddaughters on 21st. Then Christmas!! Looking forward to it all!!!! Well hope all of you a blessed holiday season!

  • Rosiesride
    Rosiesride Member Posts: 513
    edited December 2014

    mripp....you sound like me!! I was back to teaching kindergarten a week after rads ended august 13 and my chemo ended June 2! I haven't stopped yet!! Lol....I was napping every day in the beginning of school but now I am trying to walk after school.

    For me, I needed to stay busy to get thru this limbo stage of now what??? I had a hard time in October and kept thinking about this past year and just shake my head....I was diagnosed dec 17 2013 and now it's getting near...staying busy is best!! Rosie

  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited December 2014
    I agree! I stay busy too! I'm retired but work part time and go to school full time! I'm determined to have a college degree.

    Rosie I was told that my unaffected boob would be on its normal march schedule. I just wonder if they'll ever get back to doing both at the same time! I'm really dreading it. My appointment is Tuesday at 8:30 so think good thoughts for me!

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