ADH recurring?

Hi Lynette, I don't know what your symptoms mean.  Obviously the imaging is the next logical thing to do.  I do know that they don't actually try to remove all of the ADH when it is discovered.  it isn't cancer, so they don't go for "clean margins" with the surgery, so obviously ADH can remain, which potentially puts someone at risk for further problems.  I had ADH found twice, and the second time it was adjacent to DCIS.  About the symptoms, most of the time ADH does not produce symptoms--pain, lumps, discharge.  Cysts certainly do cause symptoms, and you had those last time. Let us know how it goes.

I had a dx of ADH almost 4 years ago. Atthe time, I asked both my onc and BS about the probability of the ADH coming back. Both told me that there is no research on this and so my question had to be left unanswered. Very frustrating. The only thing I was told was that with an ADH dx, 20-25% of the time, there will be a progression to BC eventually (but I knew that already.)

I have been extremely lucky-- no further issues (so far, anyway.). It's been very stressful getting checked every 6 months and feeling like I am waiting for the other proverbial shoe to drop. I am just hoping I continue to be in that 75-80% that does not go on to develop cancer.