INSOMNIACS place to talk in the wee hours
Comments
-
Foots, are you lurking?
-
Yes just sent a prayer to someone here, and other that ask
for prayer, How are You doing?
-
No dusting of snow!
However, Husband and I managed to drag out this morning for breakfast at a local Fire Department.
Faith and You doing OK? Did You come down with a cold?
-
I have alittle cold but taking a lot of vitamin C and hoping it
will go away, I bet the fire Department breakfast was good
Faith is doing much better and helping me again. I love her
like she was my child. How was Your day?
-
I finished the Fall outdoor clean-up, then relaxed in the recliner while watching TV.
-
It sounds like You had a clean up day, and then rested.
I got my trees taken down cause its hard to do them all.
but love the shade. I am going to check and see if I can
get help to put all my summer chairs away if its not raining
-
I try to do as much Fall outdoor clean-up as possible which makes Spring outdoor clean-up easier.
I am no longer able to do Spring raking because of lymphedema. Husband and Daughter did Spring 2014 raking. Stronger arms!!
-
Have a restful night!
-
Have a restful night too, I have full body lymphedema
-
full body LE? How do you deal with that?
Teka, you're up late! Sweet dreams!
-
Hi Rosevalley, I was 95 percent er and less than 10 percent pr. I had the generic anastrozole and the joint pain became too.painful. exemestane is better.
-
thanks Teka, Mags and Little Foot!

For all who need or want a hug
-
Oh yes I would agree with that. Arimidex's joint pain was debilitating, did me in. Aromasin is better but still makes me ache. I was wondering, since most I talk to stay on it until their 5 years are up.
Your cats are cute. I need to put something in my avatar. Maybe my prick eared Border collie whose effervescent personality and sheer joy in living makes me laugh. Tess does not know the meaning of the word sad. You can not be sad around this dog. She is irrationally exuberant! I have had folks drive by roll down their window and laugh and tell me -"shame that dog is so sad!" She literally bounces on walks, wagging her tail like a black and white flag. Wish I could keep up with her! Thank goodness she can get exercise with frisbees and balls and pull toys!
2TA- Vent all you need. We have all been there or will be at some point. My Mom has dementia and it breaks my heart to see the changes in her personality. Pitiful. You have both your folks to deal with and that's tough- and your own needs. ugh.. Hugs for you.
You know I just read that report about Brittany and her death. Why they would put in all that crap about priests for life and the "culture of death that permeates our culture" and then not have the other side of the story. I wonder how many folks against assisted dying have watched some one with a huge brain tumor suffer headaches, seizures, inability to talk, walk, express themselves just wither under the crush of something growing inside a closed skull squeezing the brain against bone and their lives with it. It took courage to do what she did and bless her for doing it publiclly so folks have a choice. America is about choices. Don't want death hastened - don't use it. I have often said if my doctors won't treat my pain, I know how to end my life without a script.
One of the saddest conversations I hve ever had was with my father in law. He was 90 and had a brain mets from colon cancer. He called while I was making dinner and stammered to find his words. I was trying to help him and couldn't, since what he was saying mostly didn't make sense. Finally he blurted out, " Love you all." I started to cry and said," I love you too." Thankfully besides right sided weakness and losing his speech he seemed to have little pain. He died in his community with hospice. Not everyone is so lucky. Funny to think that after my FIL's death, 10 months later my Dad would pass and 1 month after that I would get stage 3 cancer. When it rains it pours.
-

2nd Time/Maddy, so sorry to hear that your parents are struggling so with their health issues. It is never easy. This is your safe place to vent & share your grief. Hoping for better days, soon.
-
maddy-don't feel bad about talking about your stuff ((hugs))I'm praying for peace of mind and strength for you and comfort for your parents. Take care and vent when you need to!
-
Morning gals.....MADDY............ I swear, you are living my life! I mean I went through all of this not that long ago! First, you will come out of this, but you won't think so yet....
But after Mom died, it was my DAD that also had CHF! I got there one night from the airport... His legs were both "leaking"... I couldn't underSTAND what was going on! Or what to do! I wiped them off, put this ointment on them... but it didn't help! I mean WHAT DO I KNOW! I drove him across town at night, to the emergency room.... He had been getting blood thinners, then blood thickeners, every DAY! HE had been driving over to the hospital!
I hope your Mom can stay comfortably in a nursing home.... there is so much going wrong with her, that you or your Dad can't possibly take care of it at home..... And no-one knows how long this will go on! I was frantic every day while watching my Grandmother go through this stuff... I just didn't want them to force-feed her.... the tubes... the dialysis... nothing.... Just "keep her comfortable".....
I tried to help my Dad, and talk to him all the time.... because Mom died 1 1/2 years before this.... He kept going downhill.... drinking, not eating, and losing Mom just tore him apart. I'm just sorry that anyone else has to go through this.... because it just breaks your heart. I know it's so frustrating for you! But you have to hang on for the ride! YOU are the only thing they have right now....
Your family can't even help you.... they probably don't want to get into it.... and they can't help. It's just you.... It's just you little Maddy.... Having gone through this, I can only say do as much as you can, then go home and let it go..... You have to find some sort of peace inbetween times....
It was during this time, I started having all of those heart problems.... Stress will take over, and your body can't take it. I had palpitations... wore heart monitors, and all because the stress will take over your life. It gradually went away,. a couple years after they both passed. But I felt like passing-out every day! Even after my Dad's funeral.... This stays with you, until YOUR body can heal.
And just try and not get involved with your Daughter too much.... she is on her own train-ride right now.... she'll come out okay.... maybe a lot going on in her life too....
And your BROTHERS? I would go find them and kick them in the butt, and sit them down and tell them the WAY it is going to BE from now on! Either YOU are taking over, or they are going to HELP you do it! If it's too much for them to handle, then STAY OUT OF THE WAY!
I'm thinking of you Maddy.... Love you! xoxoxo
-
Did you hear about the Skeleton that walked into a bar and asked for a beer and a mop?
-
2nd.....never feel bad about venting....life is about living it with each other . Iron sharpens iron. We are here to help you by listening, and praying for you. Hang in there
Sas....yes it smells pretty strong .....lol need a nose plug for it
Hope everyone has a good Monday.
Foots...hey girlfriend.....sorry about your lymphodema .....can't even imagine it all over. Hope faith makes you smile...prayers and gentle hugs your way

-
*Good Morning Owlettes*

I think the frogs are now buried in the bottom muck in our little frog pond.

Now the countdown to Thanksgiving!
-
I'm currently worried about my ears ringning, extreme sensitivity to light, dizzy/nasuea at times. I've already self dx'd brain mets, which is completely ridiculous...or is it? I spoke to MO's nurse last week and she told me to stop the tamoxifin to see if things got better. I see MO on Thursday for a previously scheduled appointment. I'm worried too because in June when I had a scan on my head they did see "something" but ruled out mets at that time.Someone please tell me that I'm crazy and this isn't mets...that there is no way, no chance. Please! How do you go thru post cancer treatment w/o worrying?
-
MO's nurse suspects the tamoxifin, probably because you aren't the 1st patient with similar side effects. Are you feeling any different? Even slightly better?
-
Tangarang, it is NOT brain mets. If we all got a brain MRI, they would see something on all of them. Our brains change, ( shrink ) as we age. Now I realize you are young, but still you have used that amazing organ for 40 years. It is aging, very slowly.
This post treatment time is difficult. You, in my opinion had a nightmare of chemo, infections...etc.....your bumps in the road were much more difficult than most. Now is the time to learn how in the hell to make peace with the past. 2 steps forward, 1 step back. I will be one year PFC at the end of Nov. I try hard not to think about the horror of my treatment, but as you know the pain & SE of the meds we take now are a constant reminder.
I do not think your crazy, but NO way is it mets...we need you here. Your beautiful DD needs a mom to grow up with.
-
good morning ladies.
2nd. Vent all you need to. We really don't mind listening. That's what we are here for. Quit trying to compare your problems to everybody's else's problems. You have your hands full and running over. Your shoulders have got to be weighed down like a bunch of cement blocks. Def is not whining or piddly. Don't be sorry. I pray for you and your family at least daily. If that is offensive just please let me know. ( I'll still pray but not tell you about it ). We are here for you. Someone is almost awake and on here. Wish we could get you in the middle and give you a giant group bear hug. Guess we will just have to do a virtual hug for now.
Chevy / you are correct ( as always) about what stress can do to our bodies and brain. Sex is a great stress reliever. As is most exercise.
Susan / iron sharpens iron. Never heard that but I love it. Hope you are feeling good.
Tang - no idea what the symptoms of brain mets are but do know what kind of problems stress can create for you. I am not a dr so can't sag no chance but can say unlikely. You always make sense to me. So how long does it take for tamoxifen to get out of our bodies fully once you quit taking it ? There are def some. other treatment choices available if this one is giving you too hard of a time. I agree, scans and waiting SUCKS. Just wondering did you ever call the lady from church ? (It was you that told the story right?). Sometimes I get confused. If you haven't called yet let me encourage you to do so. Don't put it off another day. Just call and get it over with. Of course you can always count on us when you need some encouragement, a laugh, or a shoulder to cry on.
Hope everybody is off to a great start for Monday. Hugs for all who need or want them. I guess I need to start on my to do list if I plan on getting anything done today. Still in my pjs right now and it's 11:30. Very unusual for me. Funny hoe just getting a shower , getting dressed and doing my hair and makeup makes me feel better mentally. However physically it is exhausting.
Hootie hoo
-
Just skimming through, time is NOT on my side these days! And I saw where Sas asked me a question because my name was highlighted, so please forgive me for not addressing other things!
Sas, I go to MO on Wednesday, will ask about it then, if don't like the answer, I will schedule with ENT! However, it seems to be getting less frequent, or maybe I'm just getting used to it! Also, I found out today that my dad has this, never has had any kind of sickness or anything, so maybe it's hereditary????
-
To my sweet friends on IT: I so very appreciate all the kind words of friendship and support, you have touched my heart! Not knowing where to turn for support may have been at the center of my frustration and loneliness, but that's not a problem any longer. Yes, I would welcome and appreciate any and all prayers if you feel inclined for me, I would never be offended by any kindness displayed, prayers are so very much important. I am, however, not a public prayer person (as some of you know), mine are done in private between me and the God of my understanding. (hopefully this pity party for one has ended)
Just a quick stop and post as I have been preparing for another interview this afternoon.
Love and hugs and prayers to all who want or need them!
-
Tang! So did it help by not taking Tamoxifen? I mean with the ringing in your ears? Did you try and find out if other women on Tamoxifen have that SE? I had to stop it, because of my hearing.... But that was almost 3 years ago.... Have you had a physical to see if it could be something else? Like your BP or also make sure that your coffee intake doesn't throw everything out of whack! I'm just saying that, because I had so many problems with stress, and then drinking too much coffee on top of that.
I got dizzy all the time, and almost passed out 5 times one day, while driving across the SFOBB one day, and then around San Francisco.... I COULDN'T because I had my Dad, who was totally soused, and my little 11 year old Grandson in the car. Actually, HE would have been a better driver at the time....in case I DID pass out.
All those tests, just to find out, the worries, and stress going on started all of that.
22222222222nd! We're ALWAYS here sweet one.... just come back and let's talk it over.... I wish I would have had someone when I had so much troubles going on with my family.... I DID find this church.... and it was beautiful..... But I could only sit there and cry..... You get to a point, where you think you can't take any more.....
I learned to relax, and just "listen".....
-
I stopped the Tamox on WED, still having some ringing in my ears but head not hurting as bad so far. Just a dull ache now....not sure how long it takes for it to leave system.Patty, you are right i need to call her.
I'm putting one foot in front of the other ((hugs))
2nd ((hugs))
-
Tang.... it sounds like it is something else.... especially with your head hurting? I don't know if Tamoxifen would cause that..... Maybe it is something that will just go away in a few days.... but I would get it checked anyway.
-
Sorry i have been MIA lately ladies. I have been working mad overtime, had a family reunion, am getting ready to fly out to England on Saturday, and find myself with a sinus infection, bronchitis, and laryngitis after i got too many vaccinations at once. (stupid me!!) I've been looking in now and again, but can't seem to get caught up.
Maddy, we are all here for you.
Spookie- hope your arm feels better soon.
Sas, Chevy, Holein1, Sudan, PattyPepper, Mags, Teka, tang, Rose, Cami, Foots, Meow, Ace, EVERYONE! giant hugs and healing thoughts all around. I will try to post a link to photos of my travels here if anyone is interested.
Will be glad to get back and have a week or 2 before the holiday madness begins. Maybe i can get caught up when i get back.
LOVE YOU ALL!
jeni
-
Jwoo be careful and have fun ! Yes to the pics of course.
2nd. Hugs
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team