INSOMNIACS place to talk in the wee hours

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  • Teka
    Teka Member Posts: 10,052
    edited November 2014
    Foots, are you lurking?
  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited November 2014

    Yes just sent  a prayer to someone here, and other that ask

    for prayer, How are You doing?

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    No dusting of snow!

    However, Husband and I managed to drag out this morning for breakfast at a local Fire Department.

    Faith and You doing OK?   Did You come down with a cold?

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited November 2014

    I have alittle cold but taking a lot of vitamin C and hoping it

    will go away, I bet the fire Department breakfast was good

    Faith is doing much better and helping me again. I love her

    like she was my child. How was Your day?

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    I finished the Fall outdoor clean-up, then relaxed in the recliner while watching TV.

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited November 2014

    It sounds like You had a clean up day, and then rested.

    I got my trees taken down cause its hard to do them all.

    but love the shade. I am going to check and see if I can

    get help to put all my summer chairs away if its not raining

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    I try to do as much Fall outdoor clean-up as possible which makes Spring outdoor clean-up easier.

    I am no longer able to do Spring raking because of lymphedema.   Husband and Daughter did Spring 2014 raking.   Stronger arms!!

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    Have a restful night!

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited November 2014

    Have a restful night too, I have full body lymphedema

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2014

    full body LE? How do you deal with that?

    Teka, you're up late! Sweet dreams!

  • Meow13
    Meow13 Member Posts: 4,859
    edited November 2014

    Hi Rosevalley, I was 95 percent er and less than 10 percent pr. I had the generic anastrozole and the joint pain became too.painful. exemestane is better.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2014

    thanks Teka, Mags and Little Foot!

    image

    For all who need or want a hug

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited November 2014

    Oh yes I would agree with that. Arimidex's joint pain was debilitating, did me in. Aromasin is better but still makes me ache. I was wondering, since most I talk to stay on it until their 5 years are up.  

    Your cats are cute. I need to put something in my avatar. Maybe my  prick eared Border collie whose effervescent personality and sheer joy in living makes me laugh. Tess does not know the meaning of the word sad. You can not be sad around this dog. She is irrationally exuberant! I have had folks drive by roll down their window and laugh and tell me -"shame that dog is so sad!" She literally bounces on walks, wagging her tail like a black and white flag. Wish I could keep up with her! Thank goodness she can get exercise with frisbees and balls and pull toys! 

    2TA- Vent all you need. We have all been there or will be at some point. My Mom has dementia and it breaks my heart to see the changes in her personality. Pitiful. You have both your folks to deal with and that's tough- and your own needs. ugh.. Hugs for you. 

    You know I just read that report about Brittany and her death. Why they would put in all that crap about priests for life and the "culture of death that permeates our culture" and then not have the other side of the story. I wonder how many folks against assisted dying have watched some one with a huge brain tumor suffer headaches, seizures, inability to talk, walk, express themselves just  wither under the crush of something growing inside a closed skull squeezing the brain against bone and their lives with it. It took courage to do what she did and bless her for doing it publiclly so folks have a choice.  America is about choices. Don't want death hastened - don't use it. I have often said if my doctors won't treat my pain, I know how to end my life without a script. 

    One of the saddest conversations I hve ever had was with my father in law. He was 90 and had a brain mets from colon cancer. He called while I was making dinner and stammered to find his words. I was trying to help him and couldn't, since what he was saying mostly didn't make sense. Finally he blurted out, " Love you all." I started to cry and said," I love you too." Thankfully besides right sided weakness and losing his speech he seemed to have little pain. He died in his community with hospice. Not everyone is so lucky.  Funny to think that after my FIL's death, 10 months later my Dad would pass and 1 month after that I would get stage 3 cancer. When it rains it pours.

  • Holeinone
    Holeinone Member Posts: 2,478
    edited November 2014

    image

    2nd Time/Maddy, so sorry to hear that your parents are struggling so with their health issues. It is never easy. This is your safe place to vent & share your grief. Hoping for better days, soon. 

  • tangandchris
    tangandchris Member Posts: 1,855
    edited November 2014


    maddy-don't feel bad about talking about your stuff ((hugs))

    I'm praying for peace of mind and strength for you and comfort for your parents. Take care and vent when you need to!

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited November 2014

    Morning gals.....MADDY............  I swear, you are living my life!  I mean I went through all of this not that long ago!   First, you will come out of this, but you won't think so yet....

     But after Mom died, it was my DAD  that also had CHF!  I got there one night from the airport...  His legs were both "leaking"...  I couldn't underSTAND what was going on!  Or what to do!   I wiped them off, put this ointment on them... but it didn't help!  I mean WHAT DO I KNOW!  I drove him across town at night, to the emergency room....  He had been getting blood thinners, then blood thickeners, every DAY!   HE had been driving over to the hospital!

    I hope your Mom can stay comfortably in a nursing home.... there is so much going wrong with her, that you or your Dad can't possibly take care of it at home.....  And no-one knows how long this will go on!  I was frantic every day while watching my Grandmother go through this stuff...  I just didn't want them to force-feed her.... the tubes...  the dialysis... nothing....   Just "keep her comfortable".....  

     I tried to help my Dad, and talk to him all the time.... because Mom died 1 1/2 years before this....  He kept going downhill....  drinking, not eating, and losing Mom just tore him apart.    I'm just sorry that anyone else has to go through this.... because it just breaks your heart.  I know it's so frustrating for you!  But you have to hang on for the ride!  YOU are the only thing they have right now....  

    Your family can't even help you.... they probably don't want to get into it....  and they can't help.  It's just you....  It's just you little Maddy....  Having gone through this, I can only say do as much as you can, then go home and let it go.....  You have to find some sort of peace inbetween times....   

    It was during this time, I started having all of those heart problems....  Stress will take over, and your body can't take it.  I had palpitations...  wore heart monitors,  and all because the stress will take over your life.  It gradually went away,. a couple years after they both passed.   But I felt like passing-out  every day!  Even after my Dad's funeral....  This stays with you, until YOUR body can heal.

    And just try and not get involved with your Daughter too much....  she is on her own train-ride right now....  she'll come out okay....  maybe a lot going on in her life too....  

    And your BROTHERS?  I would go find them and kick them in the butt, and sit them down and tell them the WAY it is going to BE from now on!  Either YOU are taking over, or they are going to HELP you do it!  If it's too much for them to handle, then STAY OUT OF THE WAY!

    I'm thinking of you Maddy....  Love you! xoxoxo

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited November 2014

    Did you hear about the Skeleton that walked into a bar and asked for a beer and a mop?

  • susan3
    susan3 Member Posts: 3,728
    edited November 2014

    2nd.....never feel bad about venting....life is about living it with each other . Iron sharpens iron. We are here to help you by listening, and praying for you. Hang in there

    Sas....yes it smells pretty strong .....lol need a nose plug for it

    Hope everyone has a good Monday.

    Foots...hey girlfriend.....sorry about your lymphodema .....can't even imagine it all over. Hope faith makes you smile...prayers and gentle hugs your way :)

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    *Good Morning Owlettes*Nerdy

    I think the frogs are now buried in the bottom muck in our little frog pond.

    https://fbcdn-sphotos-f-a.akamaihd.net/hphotos-ak-ash2/v/t1.0-9/537232_368564189913026_322578827_n.jpg?oh=ddd72f0aaf346ba53f894028b3f1859a&oe=54DC5A9A&__gda__=1425145211_9cc0115fce6ece2a0a0c8ddf2d0100a9

    Now the countdown to Thanksgiving!

  • tangandchris
    tangandchris Member Posts: 1,855
    edited November 2014


    I'm currently worried about my ears ringning, extreme sensitivity to light, dizzy/nasuea at times. I've already self dx'd brain mets, which is completely ridiculous...or is it? I spoke to MO's nurse last week and she told me to stop the tamoxifin to see if things got better. I see MO on Thursday for a previously scheduled appointment. I'm worried too because in June when I had a scan on my head they did see "something" but ruled out mets at that time.

    Someone please tell me that I'm crazy and this isn't mets...that there is no way, no chance. Please! How do you go thru post cancer treatment w/o worrying?

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    MO's nurse suspects the tamoxifin, probably because you aren't the 1st patient with similar side effects.   Are you feeling any different?   Even slightly better?

  • Holeinone
    Holeinone Member Posts: 2,478
    edited November 2014

    Tangarang, it is NOT brain mets. If we all got a brain MRI, they would see something on all of them. Our brains change, ( shrink ) as we age. Now I realize you are young, but still you have used that amazing organ for 40 years. It is aging, very slowly. 

    This post treatment time is difficult. You, in my opinion had a nightmare of chemo, infections...etc.....your bumps in the road were much more difficult than most. Now is the time to learn how in the hell to make peace with the past. 2 steps forward, 1 step back. I will be one year PFC at the end of Nov. I try hard not to think about the horror of my treatment, but as you know the pain & SE of the meds we take now are a constant reminder. 

    I do not think your crazy, but NO way is it mets...we need you here. Your beautiful DD needs a mom to grow up with. 

  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited November 2014

    good morning ladies. 

    2nd. Vent all you need to. We really don't mind listening.  That's what we are here for. Quit trying to compare your problems to everybody's else's problems. You have your hands full and running over. Your shoulders have got to be weighed down like a bunch of cement blocks. Def is not whining or piddly.  Don't be sorry. I pray for you and your family at least daily. If that is offensive just please let me know. ( I'll still pray but not tell you about it ). We are here for you. Someone is almost awake and on here. Wish we could get you in the middle and give you a giant group bear hug. Guess we will just have to do a virtual hug for now.  

    Chevy / you are correct ( as always) about what stress can do to our bodies and brain.  Sex is a great stress reliever. As is most exercise. 

    Susan / iron sharpens iron. Never heard that but I love it.  Hope you are feeling good. 

    Tang - no idea what the symptoms of brain mets are but do know what kind of problems stress can create for you. I am not a dr so can't sag no chance but can say unlikely. You always make sense to me. So how long does it take for tamoxifen to get out of our bodies fully once you quit taking it ?  There are def some. other treatment choices available if this one is giving you too hard of a time.  I agree, scans and waiting SUCKS.  Just wondering did you ever call the lady from church ?  (It was you that told the story right?). Sometimes I get confused. If you haven't called yet let me encourage you to do so. Don't put it off another day. Just call and get it over with. Of course you can always count on us when you need some encouragement, a laugh, or a shoulder  to cry on.  

    Hope everybody is off to a great start for Monday. Hugs for all who need or want them.  I guess I need to start on my to do list if I plan on getting anything done today. Still in my pjs right now and it's 11:30. Very unusual for me.  Funny hoe just getting a shower , getting dressed and doing my hair and makeup makes me feel better mentally. However physically it is exhausting. 

    Hootie hoo

  • Nettie1964
    Nettie1964 Member Posts: 759
    edited November 2014

    Just skimming through, time is NOT on my side these days!  And I saw where Sas asked me a question because my name was highlighted, so please forgive me for not addressing other things!

    Sas, I go to MO on Wednesday, will ask about it then, if don't like the answer, I will schedule with ENT!  However, it seems to be getting less frequent, or maybe I'm just getting used to it!  Also, I found out today that my dad has this, never has had any kind of sickness or anything, so maybe it's hereditary????

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2014

    To my sweet friends on IT: I so very appreciate all the kind words of friendship and support, you have touched my heart! Not knowing where to turn for support may have been at the center of my frustration and loneliness, but that's not a problem any longer. Yes, I would welcome and appreciate any and all prayers if you feel inclined for me, I would never be offended by any kindness displayed, prayers are so very much important. I am, however, not a public prayer person (as some of you know), mine are done in private between me and the God of my understanding. (hopefully this pity party for one has ended)

    Just a quick stop and post as I have been preparing for another interview this afternoon.

    Love and hugs and prayers to all who want or need them!

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited November 2014

    Tang!  So did it help by not taking Tamoxifen?  I mean with the ringing in your ears?   Did you try and find out if other women on Tamoxifen have that SE?    I had to stop it, because of my hearing....  But that was almost 3 years ago....  Have you had a physical to see if it could be something else?  Like your BP or also make sure that your coffee intake doesn't throw everything out of whack!   I'm just saying that, because I had so many problems with stress, and then drinking too much coffee on top of that.  

    I got dizzy all the time, and almost passed out 5 times one day, while driving across the SFOBB one day, and then around San Francisco....  I COULDN'T because I had my Dad, who was totally soused, and my little 11 year old Grandson in the car.  Actually, HE would have been a better driver at the time....in case I DID pass out.  

    All those tests, just to find out, the worries, and stress going on started all of that.

    22222222222nd!  We're ALWAYS here sweet one....  just come back and let's talk it over.... I wish I would have had someone when I had so much troubles going on with my family....   I DID find this church....  and it was beautiful..... But I could only sit there and cry.....  You get to a point, where you think you can't take any more.....   

    I learned to relax, and just "listen".....  

    https://www.youtube.com/watch?v=LwGvfdtI2c0&featur...

  • tangandchris
    tangandchris Member Posts: 1,855
    edited November 2014


    I stopped the Tamox on WED, still having some ringing in my ears but head not hurting as bad so far. Just a dull ache now....not sure how long it takes for it to leave system.

    Patty, you are right i need to call her.

    I'm putting one foot in front of the other ((hugs))

    2nd ((hugs))

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited November 2014

    Tang.... it sounds like it is something else....  especially with your head hurting?  I don't know if Tamoxifen would cause that..... Maybe it is something that will just go away in a few days.... but I would get it checked anyway.

  • JWoo
    JWoo Member Posts: 1,171
    edited November 2014

    Sorry i have been MIA lately ladies. I have been working mad overtime, had a family reunion, am getting ready to fly out to England on Saturday, and find myself with a sinus infection, bronchitis, and laryngitis after i got too many vaccinations at once. (stupid me!!)  I've been looking in now and again, but can't seem to get caught up. 

    Maddy, we are all here for you. 

    Spookie- hope your arm feels better soon. 

    Sas, Chevy, Holein1, Sudan, PattyPepper, Mags, Teka, tang, Rose, Cami, Foots, Meow, Ace, EVERYONE!  giant hugs and healing thoughts all around. I will try to post a link to photos of my travels here if anyone is interested. 

    Will be glad to get back and have a week or 2 before the holiday madness begins. Maybe i  can get caught up when i get back. 

    LOVE YOU ALL!

    jeni

  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited November 2014

    Jwoo be careful and have  fun ! Yes to the pics of course. 

    2nd. Hugs 

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