No more tears
I Found Out Yesterday At Work. I'm A School Teacher. I Work At A High School. My High School Has Lost 3 Students This Year Already. This Is My First Year Teaching. The Last Student Was Buried Last Friday, The Day Of My Biopsy. When I Found Out Yesterday, One Of The Assistant principles was told because one of my coworkers thought that I would break down in front of my students. My Students Can't Take Anymore. The Assistant Principal requested that I go home. I Really Didn't Want To. I Had Been Facing This For Weeks. I Would Do Well When Teaching And Only Break Down When Left Alone Or Around People That Knew What I Was Going Through. I Knew Something Was Seriously Wrong About Three Weeks Ago. It Started Out With A Rash Under My Arm, Which Threw Me From Getting Help For A Couple Of Weeks. I Thought The Rash Was The Culprit Of My Red Breast, But It Just Kept Getting Redder And Redder. I Finally Went To The Doctor And She Played It Off As An Infection And Put Me On Antibiotics, Two Rounds Before Referring Me For A mammogram. after the mammogram they wanted to do an ultrasound but my insurance wouldn't allow it the same day. What stupid insurance. so the next day I went back for quote a biopsy ultrasound. since my insurance wouldn't allow two test in the same day. the doctors knew that I could do a biopsy after they did an ultrasound if they did the ultrasound first, something about An ultrasound biopsy. you can't biopsy what you can't see. after hearing the news yesterday all I could think about was a dying. the three kids at school that have died and now A teachers going to die. That's all I could think about. I first told my husband, I told my mother, my aunt who is a breast cancer survivor, And my older son , but I have yet to tell my younger son, my father and some other people in my life. I'm still scared but this board just reading a few articles on it has helped calm me down but I still swear there's no more tears, I've cried and cried. you have to excuse this funny message my phone decides to pop a capital in there when it wants to and if you change it it messes up the whole thing. thank you all for being here. I'm sorry we all have to meet under such awful circumstances. I'm going to fight This ugly devil inside of my body.
Comments
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Welcome to the club that no one wants to be in. I am glad that you found this site, it is full of wonderful ladies that can help you through this. You are in the first stages of this when everything is new and scary and you don't have all the answers. Hopefully soon you will be able to get answers about the type of cancer you have, which will help to determine the treatments that you will receive. Don't assume that you are going to die, there are many women who have been where you are and have gone on to live very full and long lives after treatment. Keep us posted, there are many here to help you through this!
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Bren58,
Did u have DCIS, have a BMx and then Years later get diagnosed with invasive? That's something I fear! I had DCIS, LCIS and ADH so I opted for BMx- I just hope it doesn't come back
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I am so sorry that you have to join us and also that you have already been through so much sadness at your school but you will find wonderful support here. Please do not assume that you are going to die. Soon you will get more details and with that a treatment plan, a plan of attack. Many ladies find that things become less scary once that is in place and you can move forward with treatment and as Bren says many women do very well and will live long and healthy lives.
Its a bit quiet on the weekends but I am sure other ladies will also chime in to offer support and advice and there is a wealth of information on this site.
Hang in there. Its an emotional time and we all have a cry from time to time. Sometimes it just sneaks up on us. I just want to send you hugs and good thoughts. Keep us posted!
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ILoveteaching,
The beginning is so difficult, sometimes unbearable. Once you know the particulars of your diagnosis and have a treatment plan in place things will be clearer and you will be able to put one foot in front of the other and move forward. It may not be easy, but move forward you will. I am a teacher too. I was on medical leave for 3 1/2 months and couldn't wait to get back to my class (I teach first grade, but was originally a high school teacher). That was three years ago, and even with stage IV, I continue to lead a happy productive life including hanging out with 24 fabulous 6 year olds. Yes, people do die from bc, but chances are, it won't be happening to you anytime soon. Take care.
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Iloveteaching, I remember the first days when I cried so hard that I knew I'd have to stop or I'd throw up, sobbing on my way to work & having to slap myself in the face to get myself under control before I got out of the car. It is brutal. As others have said, those days are the worst; once you find out what exactly you're dealing with and you get a plan in place....then it gets better because you just buckle down and do it.
I can tell you that you won't die from BC this year, probably not next year, and hopefully not ever. There are very specific treatments for each different types of BC that can either cure you or extend a good quality of life for a long time. So, that is something to hang onto during these dark days.
I am a teacher too (middle school). Two good teacher friends were diagnosed in the 6 months before I was, and another good teacher friend was diagnosed a year later. So, from our experiences, I do have some specific 'teacher' advice:
* We all had lumpectomies and were back to work after a week (of course, if you choose or need to have a mastectomy your recovery time will be much longer).
* One lady was lucky enough to go right to radiation. She'd have it early in the morning & didn't miss any school at all from radiation. (I was 'lucky' and did radiation in the summer, but could have definitely taught during it).
* the other three of us had chemo. It is just a crap shot on how you'd do with that. One lady was pretty much knocked out, the next worked part time, and I was lucky enough to work through it (I'd have the infusions on Friday, feel rotten on the weekends & be back to work on Monday). If you need chemo, and want to try to keep working; I'd do it dose dense with the Neulasta shots (the shots kick your white blood cells into production so that you don't have to worry about germs etc.).
* I kept the principal in the loop, explained that I would be there if at all possible but wouldn't be on any committees, maybe skip some of the after school meetings etc. (I only missed one or two anyway....should have missed more while I had the chance!).
* with my principal's permission, I would occasionally e-mail an update the rest of the staff about what was going on, and I accepted any help offered (my staff did a sign up & brought us meals a couple times a week, which was GREAT), but other than that I didn't talk about it. If people asked me how I was doing I would say 'I'm hanging in there' and change the subject, ask them about their kids, their weekend, whatever.....I wanted them to think of me and treat me as ME, and to do so I had to give them the permission to talk about 'normal' things.
* as for the kids; I told them what I had, a brief summary of what I'd be doing, "I will be having surgery & be out a week. I will missed a day now and then for appointments." (At middle school, I didn't think I needed to talk specifics), and I emphasized that I'd be okay.....and then we just went about our days. I felt I could be an example of how to handle difficult situations with grace (as difficult times will happen to everyone). Kids are pretty self-centered; so if you act 'normal', they will treat you normally too.
* My teacher friends who did chemo & I all wore wigs. We felt that teenagers would be freaked out by bald lady teachers & the focus should, of course, be education, not us.
Best of luck. Let me know if there are any questions I can help you with.
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My lovely friend, Ruth, offers some good tips. Although the atmosphere at an elementary school may be a bit more intimate, letting staff know about what you're going through can bring you lots of support. You don't have to go into minute detail, but I think being as honest as you're comfortable with not only brings support but helps nip any rumors in the bud.
I was changing grade levels the year I was dx'ed. I taught for the first 10 days of the school year and told the parents about my situation on Back to School night. They were shocked, initially , but then rallied behind me (save for one family who didn't want their daughter to have a long term sub and requested she be moved to another class. My principal said no, very emphatically). Both parents and teachers had a schedule for providing meals to my family (they set it up on one of many online sites that make it easy to do this). My students are quite young, so all I told them was that I was having an operation but would come back as soon as I could. If their parents wanted to tell them any more, it was up to them.
I know we all have different comfort levels with how much to reveal but, for me, being open and honest (without nitty gritty details) worked quite well. However, even though I knew I was stage IV since virtually the beginning, I have only been public about that, at work, quite recently. They've seen me function normally at work for the past three years, so revealing that I'm stage IV hasn't provoked much reaction.
Try to take it a day at a time. It will get easier.
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I work with college students and when I was dx was doing projects that did not have me working too closely with them-so it was primarily the myriad of colleagues-- and I decided early to keep the circle small so that work could be a place where I could go and focus on other things. I had my lumpectomy during the Thanksgiving week, so no one noticed--- then, like Ruth, chemo on Friday- but I sometimes could not get back into the office until Tuesday or Wednesday, but because of the project nature of the work at that time, I could do alot from home. Wore a wig-- just really did not want to talk about it much-- when radiation was over, I started to tell people--- I had some long time colleagues that I did not tell... so many were shocked when I finally did tell them.
There were/are a number of people in my division who have gone through this or something like it--everyone manages differently--I just had to listen to my instincts--- I had young children and we decided not to say anything to the school and just see how it went. Thankfully I tolerated everything fairly well-- it was the dead of winter and also during the financial crisis--events were cancelled (all institutional/corporate xmas parties were cancelled so I did not have to be social-it was a true gift). I felt really lucky about all of that.... so I could burrow on my couch by the fire and do nothing.... in retrospect, it was great!!!
Life is back to its crazy normal again--yours will be too..... hang in there...
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