extremely fatigued since diagnosis 10 days ago

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caseypunchy
caseypunchy Member Posts: 14
edited October 2014 in Just Diagnosed

Hi everybody

I'm brand new here and I'm sure this will be the site I need to refer to to find support and reassurance.  I'll find out tomorrow morning at the GP to learn what phase I'm at, of course I'm nervous about that but i'm optimistic because the lump they've found is very small so I'm not super-worried. (the tumor is 15 mm)

That being said, I've been extremely tired since the news has been confirmed and I think that could be due to the anxiety, I' m a pretty stoic girl and I've got that stiff-upper lip from my mother's British side of the family so I'm not weepy but has anybody experienced this before your surgery?, I've broken the news to family members so that's out but I really hope this'll get better once i know where I stand and get the surgery date, etc. I need all the energy I can get right now

thanks for any comments and even tips if you have any!

Comments

  • proudtospin
    proudtospin Member Posts: 5,972
    edited October 2014

    no reason why you should not feel bushed, I am sure I did.  Everything comes at you like a punch in the gut from a boxer!  rest as much as you can, best of luck in getting your team together, that is important and I do consider the boards here to be part of my team!  even after 6 years I still need some support!

    now go take a nice walk, or go get an ice cream? or something relaxing

  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited October 2014

    I don't think it is at all unusual to be anxious in this timeframe, and each of us experiences anxiety in our own way.  Perhaps your way is to be exhausted.  Please, just be kind to yourself and let yourself be tired.  It will improve as you know more about your situation.  We've all been through it. 

  • Siren40
    Siren40 Member Posts: 31
    edited October 2014

    Hi Casey, I'm in the same boat as you. Since this started I've not only been fatigued but I hurt all over. I too tend to hide my emotions so I definitely think they are becoming physical because of it. I don't have any tips, just wanted you to know I'm with you. Some days I feel so strong and ready to fight and others I feel so drained and defeated. I wish I could shut my brain down! From what I hear, it actually gets better when treatments start because you have a plan and you are finally taking action. Sending hugs and support......

  • Peridot61
    Peridot61 Member Posts: 2
    edited October 2014

    Hi Casey, I'm new also I was diagnosed on October 8, 2014 and had my mastectomy av week ago my tumor was 7.8cm. Because of the way the tumor was shaped I couldn't have a lumpectomy. 

    I am also tired and sleep a good portion of the day away.  With the support of your family and loved ones you will get through this. 

    Good luck with your surgery. 

  • caseypunchy
    caseypunchy Member Posts: 14
    edited October 2014

    Thanks so much for the comments, everybody , I'm sure that some exercise and a sense of certainty about the surgery and treatments will help all this fall into place. and that's a good analogy, proudtospin  about everything coming at you like a punch in the gut. That's exactly what it's like. ( my husband 's even feeling exhausted from this as well, but he's doing all he can to take care of the house etc, I'm fortunate... )

    hugs to all,

  • Kicks
    Kicks Member Posts: 4,131
    edited October 2014

    See a Counselor/Dr who is experienced with PTSD (Post Traumatic Stress Disorder).  There are so many 'ideas' as to what it is. It is not just from battlefield situtations but can come from any traumatic experience.    A DX of BC falls into that realm - for you but also for your Husband.

    In some ways/with some Hubbys, our DX can be harder on them.  We can(and will be) fighting but they can't fight.  It was a LOT harder on my Hubby ( of 33 yrs at the time) as he had lost his Mom at 9 to Cervical Cancer.  Seek help with dealing with your DX, not just for yourself but for your loved ones also.

  • Kicks
    Kicks Member Posts: 4,131
    edited October 2014

    See a Counselor/Dr who is experienced with PTSD (Post Traumatic Stress Disorder).  There are so many 'ideas' as to what it is. It is not just from battlefield situtations but can come from any traumatic experience.    A DX of BC falls into that realm - for you but also for your Husband.

    In some ways/with some Hubbys, our DX can be harder on them.  We can(and will be) fighting but they can't fight.  It was a LOT harder on my Hubby ( of 33 yrs at the time) as he had lost his Mom at 9 to Cervical Cancer.  Seek help with dealing with your DX, not just for yourself but for your loved ones also.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited October 2014

    I refused to talk to the social worker whom my cancer center referred me to...I regret not accepting that help,

    take all the help that is offered and then search for more, yeah, when you settle on your plan, it gets easier as you have a focus~~

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2014

    Welcome to BCO where you've already found a very supportive group who understand what you are going through. This type of support is so advantageous with going through the process and the horrible waiting for results. The stress of this would make most people tired, so as the members above have stated, it is normal.

    We hope that further testing shows your lump to be benign, but it all takes time and everyone is with you.

    All the best, The Mods

  • caseypunchy
    caseypunchy Member Posts: 14
    edited October 2014

    thanks for the good advice, I hope I'll get that info this morning.  In two hours I'll know more about everything, (hopefully)

    casey

  • hikingandhorses
    hikingandhorses Member Posts: 65
    edited October 2014

    Casey - I hope your diag goes well!  I'm through the hard part of my chemo and starting radiation this week.  Looking back, I struggled through the beginning of the process for me.  I'm a contractor (own my own business) and was in the middle of someone's bathroom remodel when I was diagnosed.  I had a hard time keeping stuff straight in my head, made mistakes (thank goodness, all correctable) and was going squirrelly.  I wanted answers faster than they were coming and was going crazy trying to get jobs wrapped up so I could begin my process of healing.  The hardest thing I've had to manage is giving myself a break - feeling physically drained and mentally scattered.

    Take lots of notes.  Ask lots of questions.  Read the blogs patients have posted on this site - there are a lot of people that post research findings for your diagnosis - I found that helpful when talking to the oncologist (we compared notes on protocol and reasons why).  Then, succumb to the nap - you're going to need it.  When you're awake, go for a walk or whatever you can manage.  I'll be thinking of you and wishing the best! 

  • tgtg
    tgtg Member Posts: 266
    edited October 2014

    Hi, Casey--  Sorry you are dealing with what we all have had to deal with, and hope all goes well today.  I find there are two kinds of tiredess, mental (the kind generated by the diagnosis) and physical (the kind generated by activity).  When I was in that limbo between diagnosis and surgery, I found that regular exercise (3x/week) at the fitness center and also spontaneous brisk walks (even in Dec., when I was dx'ed) really helped obliterate the mental fatigue and helped me sleep well at night.  They also helped my husband, since we walked hand in hand and used the time to reflect on pleasant hikes and trips we had done and also on ones we would take after surgery and radiation were over.  Drugs are not always the answer--Mother Nature can be our best ally, with her head- and body-clearing fresh air!   You will be able to deal with this!   tgtg

  • LCH033
    LCH033 Member Posts: 83
    edited October 2014

    Hi Casey--I was just diagnosed last Thursday and since this whole ordeal began 10 days ago my brain is like scrambled eggs and I feel utterly numb and exhausted all the time. I think the mental and emotional wear and tear in the beginning would wear anyone out. I just found out last night I will be having a double mastectomy & lat flap as I will lose my left nipple due to the location of the cancer; and then reconstructive surgery and all this will happen in the next 2 week. Will test 1 lymph node under each arm pit during surgery and if they are positive they will take the cluster if not leave them be. Surgery outcome will dictate treatment  however I must say; Chemo scares the heck out of me!

    This is a wonderful site for Facts, Experiences, Support and Comfort....I know I have a long road ahead of me.

  • caseypunchy
    caseypunchy Member Posts: 14
    edited October 2014

    Hi LCH

    I think the initial shock of the dx and the abrupt changes your body will undergo would send anybody's head reeling! I was told this morning i'll surely have to have chemo whereas for the past few weeks i was convinced it wouldn't probably be necessary! when the surgeon announced that , my blood ran cold as ice. but i know at least with the chemo, the treatment will be much more thorough!  

    Be patient with the struggle to process this dramatic news of the double mastectomy, it'll take time but you'll deal with it, talk about it, don't deny how you feel, if it helps to cry or pray don't feel as if you're being a big crybaby or a drama queen. you have the right to your emotions and so many of us can relate!

    good luck to you and keep in touch, i'll be thinking of you

  • LCH033
    LCH033 Member Posts: 83
    edited October 2014

    Hi Casey, 

    I am sorry to hear you will need chemo; please keep me posted as you will be in my thoughts and prayers.  I will feel the same way if I am told I need chemo, this it a tough road we are on however I am positive we will both come out stronger on the other end!! 

    I have had my melt downs and my moments; I talk to God allot; and I am surrounded by amazing supportive friends and family and a boyfriend that should be given a medal or something! 

    We are going over to tell my Dad in person tonight now that I have more details; he lost his mother/my grandmother who was my hero, to BC 30 years ago so this will affect him harder I feel. I want him to see in my eyes that I Know I will be OK and survive this. It's gonna suck at times; however it definitely shines a new light and perspective on life, doesn't it?

    You'll be in my thoughts & prayers! Positive vibes your way!! 

  • caseypunchy
    caseypunchy Member Posts: 14
    edited October 2014

    thanks so much for your kind thoughts LCH, by this time you've certainly spoken with your dad, i hope it wasn't too hard, (this past week has been horrific with the news I've had to announce and I haven't even spoken about the chemo yet)  There have been so many advances in the past 30 years, (even just in the past 10!) i'm sure he realizes that and knows that you'll be in good hands

    prayers

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2014

    It makes perfect sense to me.  I've been prone to really severe migraines.  I didn't see much of a pattern, but one pattern I recognized was that I often (but not always) got them after a stressor ended.  After a big test-migraine.  End of difficult workday-migraine.  Once I'd completed some big task-migraine.  I think we spend so much energy avoiding trouble that, once we can let our guard down, we actually start breathing again (sometimes we literally hold our breath) and it takes awhile to recoup.  I was stoic all through my diagnosis, and then, wham - "it" hit me at an odd time (a few weeks after surgery, I think it was).  I'd dealt with all the hard part without showing emotions (without "breathing") and it had to catch up with me.  My daughter also happened to captain a Relay-for-Life team at her school just two weeks after surgery.  I'd had a mastectomy but I was there, with just my sister to help (my daughter was in 7th grade).  I hauled in tents and canopies and food and sleeping gear and set our camp up with tables and coolers.  I did food runs.  I did a bit of walking in the wee hours when all the girls and my sister were asleep (I was the only one to stay up all night). I tore it all down again the next day, packed up the car, took my daughter and myself home.  I thought I felt fine.  Not even too tired. But then, when I knew I was home and could collapse, I immediately started vomiting until I fell asleep for about 10 hours, woken only to vomit again.  We "go" on adrenaline as long as we can because we have no other choice.  You will constantly see people on this site agree that the waiting is the hardest part. Once that is over, the adrenaline can stop, and your body gets confused.  Fatigue?  Meh, is not really something to worry about.  Make friends with it now.

    Best to ya!!!

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