Anyone have ILC or LCIS?

Options
MamaM
MamaM Member Posts: 80
edited October 2014 in Just Diagnosed

After meeting with my doctor, I was told my biopsy said that I have both LCI & LCIS in my results.  Has anyone had this? 

· Share on FacebookShare on Twitter

Comments

  • Lojo
    Lojo Member Posts: 303
    edited October 2014

    I didn't have LCIS on my initial biopsy, but after the MX, the LCIS showed up on the final pathology (no IDC or DCIS at all). My lump was too diffuse / big/ close to my chest (plus small boobs to begin with) to do a lumpectomy, and I imagine a lot of the thickening tissue I'd felt was probably the LCIS as well as the ILC.  I suspect it's rather common. The word is still out on how much a risk factor LCIS is (compared to DCIS). I don't think it's something to worry about on top of the diagnosis of ILC, but you should discuss the options of mastectomy vs lumpectomy with your surgeon.

    · Share on FacebookShare on Twitter
  • vbishop
    vbishop Member Posts: 616
    edited October 2014

    ILC and LCIS make up about 10 - 15% of all BC diagnosis.   I had both - a total of six tumors:  four ILC, two LCIS.  Is there anything specific you would like to know?  Here are some basics:

    Typically slow to grow, even though it may be listed as a grade 2.  Grade 2 ILC is different than grade 2 IDC.

    Sneaky little sucker in that ILC and LCIS typically don't show up on most imaging; this is why most ILC women are stage II or III at diagnosis

    ILC and LCIS typically presents as a thickening and not an actual lump

    Although lumpectomy is an option, many women opt for mastectomy or bi-lateral mastectomy because ILC is so hard to find

    Feel free to PM me if you have questions.

    · Share on FacebookShare on Twitter

Categories