Anyone have ILC or LCIS?

MamaM

After meeting with my doctor, I was told my biopsy said that I have both LCI & LCIS in my results.  Has anyone had this? 

Lojo

I didn't have LCIS on my initial biopsy, but after the MX, the LCIS showed up on the final pathology (no IDC or DCIS at all). My lump was too diffuse / big/ close to my chest (plus small boobs to begin with) to do a lumpectomy, and I imagine a lot of the thickening tissue I'd felt was probably the LCIS as well as the ILC.  I suspect it's rather common. The word is still out on how much a risk factor LCIS is (compared to DCIS). I don't think it's something to worry about on top of the diagnosis of ILC, but you should discuss the options of mastectomy vs lumpectomy with your surgeon.

vbishop

ILC and LCIS make up about 10 - 15% of all BC diagnosis.   I had both - a total of six tumors:  four ILC, two LCIS.  Is there anything specific you would like to know?  Here are some basics:

Typically slow to grow, even though it may be listed as a grade 2.  Grade 2 ILC is different than grade 2 IDC.

Sneaky little sucker in that ILC and LCIS typically don't show up on most imaging; this is why most ILC women are stage II or III at diagnosis

ILC and LCIS typically presents as a thickening and not an actual lump

Although lumpectomy is an option, many women opt for mastectomy or bi-lateral mastectomy because ILC is so hard to find

Feel free to PM me if you have questions.