herceptin

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GodsGrace2013
GodsGrace2013 Member Posts: 1
edited October 2014 in Managing Side Effects of Breast Cancer and Its Treatment

I was diagnosed last October,  had bilateral mastectomy. 

I have had 3 sets of different chemo, my last set was taxol and Introduced herceptin.

I feel that the herceptin has given me joint pain, thumbs locking, back aches. They want me to finish herceptin . I went off of heceptin for 6 weeks, I did not see much improvement but think the damage is done. Just recently went to rheumatologist and he thinks the herceptin is the culprit even though my onc. Say they have never heard of the pain I'm experiencing.  I was wondering if there is anyone out there that was diagnosed with her2 snd decided to forgo treatment of herceptin? Any advice greatly appreciated. I just am having a hard time making a decision what to do. Thank you

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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2014

    Hi GodsGrace,

    Welcome to Breastcancer.org community. We're sorry to hear about the pain you're going through from Herceptin. 

    Understandably this is a hard decision for you to make about what to do going forward. 

    Others will be along soon to respond to your question.

    Sending you our best

    Warmly,

    The moderators

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  • Nel138281
    Nel138281 Member Posts: 2,124
    edited October 2014

    absolutely joint pain,  I was on it for a year, and had knee and hip pain. Was off for about 6 months, pain went away. Back on it for more than a year now - joint pain back!  Knee and hip   I use aleve to eliminate pain. It just is what it is I think.  My onc does acknowledge it, even minimally

    Best of luck

    Nel

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  • VioletKali
    VioletKali Member Posts: 243
    edited October 2014

    I too have joint pains with my chemo regimen. I am on carbo/Taxotere/herceptin. My physician has prescribed narcotic drugs to help, and usually I feel better by 1 week post infusion. It appears that my symptoms are very predictable and follow a pattern.

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  • BigT16
    BigT16 Member Posts: 100
    edited October 2014

    I've been on Herceptin for 10 months.  I too get the joint pains, particularly in hip, knees and feet. Nel glad to hear this may go away once I finish treatment.

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