Fall Rads 2014

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  • Puffin2014
    Puffin2014 Member Posts: 961
    edited October 2014

    Psalm: good to see you back here, hope your sim goes well.

    a video of beautiful photos and an awesome message, An Interview with God. http://vimeo.com/8898059

  • Blownaway
    Blownaway Member Posts: 760
    edited October 2014

    tucker3 - Did they put goggles over your eyes (like a virtual video game) so that you can see a bar graph of your breaths.  My center has the goggles and I have to breathe in to make a yellow line at the bottom come up to meet a blue line at the top of the graph as I inhale. I have to hold my breath, keeping the yellow line even with a blue line at the top.  My only problem is I breathe in too much so they have to move the blue line way up high for me.

  • Blownaway
    Blownaway Member Posts: 760
    edited October 2014


    PontiacPeggy - I had a lumpectomy, followed by 4 rounds of Taxotere, Carboplatin, Herceptin and will continue with just Herceptin every 3 weeks until June.  Today, I just had my 3rd of 35 external beam rads. 

    Thought I would look up the various side effects of whatever type of drug I'll be getting next.  I was diagnosed at the end of March so they took away my HRT (Premarin) which I took for 12 years to alleviate my severe hot flashes. So not only was I having hot flashes before the chemo started.....chemo also causes hot flashes and I've heard that the anti-cancer drugs you take for 5 years causes hot flashes - TRIPLE WHAMMY! - it's just irritating during the day but right now I wake up 4-5 times a night with my heart pounding, sweating, the bed feels like an oven....Can I have some cheese with this whine?????? 

    Lucky me, I have a little bit of high blood pressure and someone told me to ask my cardiologist to switch my b/p med to Clonidine which is known to help alleviate hot flashes and it has really helped - I had been having more severe hot flashes before I switched my bp med.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Blownaway, you certainly have a lot going on.  Interesting that a BP med can help with the hot flashes - and very nice.  It's been over 20 years since I've had a hot flash and mine were never bothersome (I actually enjoyed being warm!).  It'll be interesting to see what the Arimidex does.  Some AIs apparently can cause hot flashes, I gather.  I'll let you know!  

    Only 5 boosts left!  Had one yesterday out of sequence and finished up my "regular" rads today.  My journey has been shorter and less traumatic than yours.  I'm looking forward to my next step.  Radiation is easy and, aside from fatigue, I've had very little in the way of SEs - just some pinkness that isn't even bothersome.  I use Aquaphor on it.  You'll do well!

  • willowreed84
    willowreed84 Member Posts: 47
    edited October 2014

    I get my sim tomorrow,  tats too.  I thought I was going to get the sim last Monday but the center is getting a new ro and he had not started yet, so I am delayed a little.  I got ct scan and sharpie marks last Monday.   I got a flu shot from the chemo infusion nurses too.  they made the molded pillow for holding me still during treatment.  The sharpie marks are below my foobs where the bra band hits...one next to each drain hole scar and one in the middle.   They put tape over each sharpie mark to keep them from fading but one is falling off and taking the sharpie mark with it.  I want to get started already  so I can be done before thanksgiving. 

  • Blownaway
    Blownaway Member Posts: 760
    edited October 2014

    Willowreed - I've got all the various colored sharpie marks, tape and tattoos also.  It looks like the road map to Morocco!!!!! It's hard to believe we have to keep this stuff on till the end.  I finish the day before Thanksgiving with my last rad and a Herceptin infusion which made me sick last time.  Hope I don't miss out on the dark meat!!!!!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Interesting.  I have only my tats.  No sharpies marring the poor girl.  They did put tape of some sort on the incision for my first boost.  Assume they will do it for the remaining ones.  Why would they think that sharpies are permanent?  I'd be happy getting a couple more tattoos to avoid ink all over.

    Blownaway, hope the Herceptin doesn't make you sick this time!  Can you take anything for it?  Did you get nauseous?  If so, why not try Dramamine?  They gave that to me before my lumpy.  It must have worked since I wasn't one bit sick from the anesthesia.  Just a thought :)

  • HomeMom
    HomeMom Member Posts: 1,198
    edited October 2014

    I got a call from the RO nurse and said my RO was trying to get in touch with me to reschedule my sim because they want to deflate me. UGH  I wanted to be done before Thanksgiving, now it is looking like December :(

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    HomeMom, Poop!  You do want it done right and well, at least you'll have that thought to keep while growling about going into December.  Not a huge consolation, though, is it?

  • HomeMom
    HomeMom Member Posts: 1,198
    edited October 2014

    Yeah yeah yeah Peggy, I do. I guess I need to look for a prostheses ?  Or should I just stuff like I did when I was 12? lol

    J.K I never stuffed. I was who I was, take it or leave it!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    HomeMom, I stuffed but I'm sorely lacking in the shape department.  I would guess you probably should look for prostheses.  Can you find them inexpensively?  Are they heavy?  If they cost too much and/or weigh too much, how about wearing a padded bra or those things you stuff in your bra (which I use in a few of my bras when I wish to appear busty)?  I really don't know what challenges a mastectomy  presents so not much help.

  • HomeMom
    HomeMom Member Posts: 1,198
    edited October 2014

    The RO just called me and said it looked better then he thought it would, BUT my lung is kind of sorta in the way and could get radiated causing scaring. He said I could deflate and move it out of the way but that won't guarantee that it won't get some radiation anyway! So now I have to decide between now and 9am tomorrow what I want to do. I have the mapping appt tomorrow at 10 and wills tart rads on Monday if I do NOT deflate. If I decide to do so I have to make an appt with the PS first and then reschedule my sim - pretty much start all over with no guarantee it won't cause scarring.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    HomeMom, no easy choices there.  From what you say, I'd be tempted to not deflate but that's your call, definitely not mine.  Damn.

  • mortmain
    mortmain Member Posts: 63
    edited October 2014

    Peggy, a boost out of sequence? Nothing like a changeup to keep us on our toes. I too was given the six-boost finish and it was sharpies all over. Of course it washed nearly off in between. I played with the idea of drawing a smiley face on but didn't in the end. My daughter thought I should put one of those fake red clown noses.

    Blownaway, I love your 'road map to Morocco'. Got to have a sense of humor if you can. And Puffin, I was told the same thing regarding hormone therapies. I see my MO Monday evening for my perscription, and probably Arimidex.

    Stray question, and this may be for the Hormone therapy thread. Will my MO know what I mean if I request the Teva brand of Arimidex generic that folks talk about?

    Amy

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Amy, your MO will prescribe generic Arimidex.  YOU ask your pharmacist for the Teva brand.  I went to Walgreen's and asked what manufacturer they used for Arimidex and they said Teva.  I replied Good and please make note on my record that that's the only one I want.  They did not have it in stock (not too surprising) and I should be able to pick it up this weekend.  Glad I ordered in advance (won't start until next Friday).

    BTW, the RO said having that one boost out of order is fine :)

  • maryland
    maryland Member Posts: 1,298
    edited October 2014

    Blownaway, I am doing the active breathing control rads as well. They told me the bolus acts as a layer of skin so it brings the radiation closer to the skin. Causes more redness and burning, but the ones without the bolus go deep and the ones with it treat closer to the skin. I've had 11 now and just starting to get good and pink but no real discomfort.

    Hooray for those of you that have finished or close to finishing. I can't keep up too much, back at work and so busy but my yhoughts are with you all.

  • Jules_NY
    Jules_NY Member Posts: 276
    edited October 2014

    Jhodro- congrats on being done!!! Getting herceptin till April too, one more chance to celebrate when that is done.

    Jenwith. Loving the hair in your pic!!!!

    Homemom sorry starting rads is such a PIA for you!!

    Missyjean I'm a NICU PA!! I hope your skin is holding up with the bolus

    So I can officially say I am more than half way done with rads! My skin is ok so far even with the bolus. It's getting a little pink by where my bra is. My RO gave me a steroid cream to use from the first week of rads. Hopefully my skin holds up because I don't want to not wear a bra, there is no other way for me to wear my prosthesis. And I am more self conscious about my one missing boob than I am of my hairless head!!

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited October 2014

    What's the story on using the Teva brand of Arimidex. I haven't gotten to the point of researching that yet, but it's just a few weeks away now.

    Thought my rads might be delayed, but got it worked out yesterday.I have an angiomyolipoma on my right kidney, have had it for 8 years, following it every year with ultrasound. In July it was larger than they wanted but was starting chemo then so couldn't do anything about it. It's a mass of blood vessels and muscle and fat, problem is if it gets too large it can burst and bleed and could be lethal. I saw the urologist earlier this week, yesterday saw Interventional Radiologist. He says it's safe to wait until Nov but I need to have an embolization - he'll go into the groin like for a heart cath, only they thread the catheter to my kidney and inject something to wizzle up the blood supple to the mass. He'll send in the authorization request to my insurance company, and after they get it scheduling will call and we'll set up the date after my rads are done.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Puffin, nothing like having too many things going on.  Glad you can get your kidney taken care of!

    The story with using Teva:  There's nothing wrong with the other brands at all.  Some ladies have had issues with the fillers in some of them and Teva seems to use the most "neutral" fillers.  I've had issues with fillers in the past so thought I'd try to avoid them by using the Teva brand.  You might want to read the Arimidex group postings.  It's very informative. The wife of a high school classmate of mine has been on it for several years (don't know which brand) and has had no issues at all, which is very encouraging.  I just picked up my Rx - $21 for 3 months.  I'll start in one week.

  • Jenwith4kids
    Jenwith4kids Member Posts: 635
    edited October 2014

    i rang the bell today!

    image

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Hooray!!!!  So glad you're done.  I finish next Thursday.  Now sit down and figure out what you are going to do with your free time!!!  HUGS!

  • jeanelle
    jeanelle Member Posts: 179
    edited October 2014

    Congrats Jen!  

    Hopefully that will be me in 6 more weeks!  

  • Susug
    Susug Member Posts: 193
    edited October 2014

    That's great Jen . I have had 10 treatments so far I'm doing ok. I'm wondering if there is anyone on here that have implants ( before cancer) if so how did your implants do through radiation and did you have any shrinkage. As of now I don't have any symptoms maybe a little sensitivity. If I'm going to have any about how many treatments in will it be?

    Wow! Peggy your almost done that's great.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Susug, I can't wait to be done.  Not that the treatments are hard, because they aren't.  Just that I will have so much more time and that will be wonderful.  

    I think my redness (more pink than red) showed up after 17 tx.  I slather on Aquaphor at night only and by morning, it's quite tamed.  I did not use anything as a preventative.  My nipple is extremely sensitive but that has to do with the lumpy rather than the rads.  I also am prickly at times.  All the SEs are annoying rather than a problem.

  • jeanelle
    jeanelle Member Posts: 179
    edited October 2014

    Peggy,

    I have to say I was happy to hear that your nipple is still sensitive after the lumpy.  I about 6 weeks out from surgery and my nipple is really the only spot that is still really sensitive and discolored.  I was beginning to think I was nuts.  It is nice to know someone else has this same issue.  :)  

    Good luck on the rest of your rads.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Jeanelle, heaven help me if I even lightly brush my nipple (and believe me, it's by accident).  I die.  I am assured that it gets better.  Guess just not as fast as I'd like.  I'm 11 weeks past my lumpy.  My cat regularly reminds me why I need to wear something non-squishable over that nipple (which, of course, I don't - braless most of the time).

  • jeanelle
    jeanelle Member Posts: 179
    edited October 2014

    Peggy, that is me too!  I get really nervous every time the cat jumps into my lap.  I really hopes it gets better because wearing a bra is torture now, I can't imagine it after the SEs from radiation starts and unfortunately, I can't not wear a bra at work.  

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Jeanelle, surprisingly wearing a bra isn't a problem because of my nipple.  I'm just prickly enough that it's annoying.  I found a bra cami at Walmart that I wore all day and it was very comfy.  I did feel a bit squished by 9PM but thought that was pretty good.

  • Jules_NY
    Jules_NY Member Posts: 276
    edited October 2014

    congrats Jen!!!!!

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited October 2014

    Jen: Congrats! Great bell ringing photo

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