Fall Rads 2014

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  • willowreed84
    willowreed84 Member Posts: 47
    edited October 2014

    Hi ladies,

    I am starting rads next week.  I have sims on monday and start rads Tuesday.   Just wanted to introduce myself.  I don't know how many treatments I'll get as my ro moved and I'll be starting with a new doc I haven't met yet.

  • Susug
    Susug Member Posts: 193
    edited October 2014

    Hi Everyone

    Hello to all the new women I'm also new just finished my 4 th treatment today. For some of you that have been having treatment for several week how long does it take to notice any side effects? Does it cause much fatigue ? Hope all goes well with all


  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Welcome Susug!  I've finished 23 treatments.  I can't tell you when I started having fatigue since I'm full time caregiver to my Parkinson's afflicted DH and now he's in the hospital - kidney surgery and then horrid pneumonia - and I've been exhausted from all that.  So very hard to isolate radiation fatigue.  But I did start to have a bit of red specks by my 17th treatment.  I'm a bit more red now but Aquaphor is working nicely for me.  Without it I'm somewhat annoyed.  I forgot to put it on last night and I had a little sensitivity today.  I only put it on at night and that's all I need.  Nothing troublesome at all.  You'll do just fine.  You might want to consider updating your profile with your diagnosis and the treatments you've undergone - we all find it helpful and makes it easy to find someone who has already walked your walk.

  • Susug
    Susug Member Posts: 193
    edited October 2014

    Hi Peggy, thank you for your info. I updated my profile. My cancer is 4mm very small. But still cancer i see from your diag you caught yours early also. My twin sister had BC 13 yrs ago she had a double mastectomy  it was more advanced.  

  • Susug
    Susug Member Posts: 193
    edited October 2014

    Peggy, so sorry you are going through a lot with your DH I beat you are exhausted. Hope all is well soon for both of you. 

  • mripp
    mripp Member Posts: 106
    edited October 2014

    Sharing with you Fall Rads, I found that using the cream (my RO prescribed Miaderm which was OTC at the Onc pharmacy) plus the Aquafor (yes, both) was beneficial and 3x day from day #1 of rads clear to end until I had some open weepy skin (about 24\33) and then switched to Silvadene Rx on open spots and same regiment on non-open areas. First the cream lightly rubbed in, then the Aquafor dabbed on. I also got some of the largest non stick but semi absorbant gauze pads I could find and I carefully placed on my underarm near my breast fold to 1) cover the Aquafor ointment and 2) keep rubbing from clothing, bra, cami or whatever off my most sensative area. Did that for the whole time plus post rad until all healed up. I also cut soft flannel squares that I used at the beginning to cover the area, but switched to the gauze later. My RO said on 2 week post rad to use the aloe and vit d cream for 1 year. Still doing it and plan on keeping it up!

  • Hortense
    Hortense Member Posts: 982
    edited October 2014

    I usually used Aquafor at night and Calendula oil during the day; although, when my skin got burned, I used Aquafor during the day because I could stick large Telfa non stick pads to it to protect the peeling area and go without a bra. I just wore a t-shirt over it which held the pad to the Aquafor.

    Be sure you continue to use some sort of cream for months after radiation so that you won't find your radiated skin getting hard like cardboard as I did. After a doctor told me to put cream on it twice a day I found "Say Yes to Carrots" body butter, a lovely thick cream with no forbidden chemicals in it that soften my skin up and kept it that way. It's available at Target and chain drug stores. 

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Susug, yes mine was caught very early and accidentally.  My breast was sore and I thought it was from my little doggie kicking it there at about the 3 o'clock position.  I'd had a cyst removed in that spot 46 years ago and thought maybe some scar tissue was torn.  No one ever felt anything.  The cancer was at the 6 o'clock position!  Never did figure out what was going on at the other spot.  The IDC was 9mm.  The BS wanted to make sure she got everything and took out a big "chunk" which included a surprise 9mm DCIS.  

    Thanks for the positive thoughts about DH.  It's been a very rough few years.  Every time he goes into the hospital something bad happens and he winds up there for weeks.  This time pneumonia.  He has difficulty moving due to his Parkinson's and that doesn't help.  Right now trying to get him to eat food and avoid a surgically implanted feeding tube.  I would guess as soon as he is reliably eating he will likely be discharged to a rehab facility for at least 4-6 weeks.

    Glad your BC was caught extremely early.  And thanks for updating your profile.  Keep positive!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    BC Survivors, if you have been tested for the BRCA genes and do NOT have them, you might be interested in this study:  BC Survivors Tested for BRCA Genes Study

  • jeanelle
    jeanelle Member Posts: 179
    edited October 2014

    I went for my simulation today.  It went really well and only took about an hour.  I ended up with 2 little tattoos.  I start my 30 sessions on October 13th.  I can't wait for this last hurdle to be over.

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited October 2014

    Welcome Susug, I finished chemo 2 weeks ago and have my sim and my tats on my Monday. Will find out then how many rads are planned.

  • tucker3
    tucker3 Member Posts: 17
    edited October 2014

    Hi Lolis...I am about a week behind you in terms of starting radiation. I start on Monday. I am anxious to get started so that I can be finished! I was wondering how you were doing with your plan to continue working out? I also intend to work out and am very hopeful that the radiation won't slow me down too much. I have been increasing my walking gradually and today I cut the grass. I am 5 weeks PFC. Hope things are going well! 

  • Susug
    Susug Member Posts: 193
    edited October 2014

    Jeanelle, I hear you girl.

    Puffin, they didn't do tats on me. They use blue and purple sharpies. I tell my friends it looks like I got in a fight with a blue and purple sharpie and they won lol! Gotta laugh. I'm going to my high school reunion this weekend so this morning they removed the BIG! X in the middle of my chest that shows no matter what I'm wearing. They put a permanent dot in its place. I do permanent cosmetics for a living so when I'm finished I can flesh it out. I'm having 33 treatments I think that's standard treatment for many. 

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    susug, my tats are almost below my rib cage so they don't show. And even if that part of my body was exposed they don't look like tattoos. Only nine more to go. Total of 33.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Jeanelle, I feel my tats are a teeny price for peace of mind and knowing I am KILLING CANCER!

  • jeanelle
    jeanelle Member Posts: 179
    edited October 2014

    I agree with you PontiacPeggy.  2 little dots are a very small price to pay for my peace of mind!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Jeanelle, I can also brag to my tattoed son that I now have tats 

  • Susug
    Susug Member Posts: 193
    edited October 2014

    y'all are right about how small they are I have moles larger than that Lol!!!

  • Blownaway
    Blownaway Member Posts: 760
    edited October 2014

    Its odd that our tats are in such different places. I did my simulation and got 3 tats yesterday - mine is mid upper chest, mid abdomen and side of rib cage. 

    First rad is Oct 7th. 

  • Susug
    Susug Member Posts: 193
    edited October 2014

    mine are very large X in between my breast one on my nipple. One on rt, side breast(so they can line it up wth the one on left sie of breast. They a blues xes and puple

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Mine are well below my girls.  One in the middle and one on each side of my rib cage. Well below my bra too.  I was surprised at the placement.  But they don't show (well, when I wear my bikini top they do but I do not wear it in public!).

  • Lolis197138
    Lolis197138 Member Posts: 512
    edited October 2014

    Hi Tucker,

    I have been working out all this week and I am walking from the train station to the hospital, which is 5km. The nurse told me to no overdo it and I am very conscious of my arm and weight that I lift. My legs are still a problem as I don't have the same strength as before (blame it on chemo and Tami). It is doable but just keep in mind the area that is getting irradiated. 

    First week of rads done. Just a little discomfort around the armpit area. 

    where do you get the aquaphor? My RO said to use just an oil free lotion or aveeno baby. 

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Lolis, Aquaphor is available everywhere.  Drugstore, grocery store.  It's in the health & beauty aisle with lotions.  I like it.  No aloe which I'm allergic to.  Congrats on getting through week 1 of your rads!

  • MommyQ
    MommyQ Member Posts: 117
    edited October 2014

    Susug - I just finished #15/33 and the fatigue hasn't really hit yet. My skin started feeling more sensitive around #11 and started looking a little bit pinkish a fewdays later. But everyone is different.

  • HomeMom
    HomeMom Member Posts: 1,198
    edited October 2014

    I have an appt on Monday, I assume for the sim. This seems to be dragging. I finished chemo 4 weeks ago

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Wonder if that is the usual "wait" time, HomeMom?

  • HomeMom
    HomeMom Member Posts: 1,198
    edited October 2014

    Well I did have to wait about 7-10 days for my appt with a new RO. I wanted to see if I could use him instead since he has an office located closer to where I live. Turns out the machine closer to me is newer then the one he has downtown. Monday's appt is in his downtown office, but the remainder will be about 20 min from me with no rush hour traffic to deal with!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    homemom, glad you are going to be able to get your rads closer to home. That will be a big help! 

  • Bippy625
    Bippy625 Member Posts: 890
    edited October 2014

    hi ladies, I am scheduled to do rads after bmx surgery, which is in early December. I have not yet met with my PS, but think I will need TEs and rads before recon.  Has anyone done it in that order, or different order?  I am leaning towards implants, but may change my mind to a flap of some kind.  Not sure if I should consider delayed recon after rads, and maybe that is the best way to go?  

    Advice from those further along this road would be so helpful. I finish chemo on Nov. 28th, and that has been rather hellish at times for me.  A bit scared of radiation too!  Rads Sound perhaps better than chemo though, I feel better after reading the posts here. Thanks! 

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited October 2014

    Bippy625, I don't have any advice or great thoughts to pass along to you.  I've found radiation to be quite easy (only 9 left!), but as the kids say, Your Mileage May Vary!  I certainly would think rads are easier than chemo.  Someone will be able to tell you their journey and give you advice.  I'll keep you in my thoughts!

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