Onco score of 19 no chemo
Hello,
I just returned from the bs and she reviewed my Onco score with me. It came back at 19...beginning of the grey zone. Since it was 19 my bs thought no chemo but she said I should start radiation in 3 weeks. I am three weeks out of surgery, a lumpectomy. I agree with her I do not want chemo. I met with the rad oncologist and he mentioned a Canadian radiation treatment. He also wanted to give me radiation boosts with the treatment. I read several clinical reports that the boosts are an over kill and would exceed the 7 week course of radiation. Has any one out there received this type of treatment???
How long after radiation a hormone treatment must begin? I am post menopausal, 56 years old. Which hormone drug has the least side effects? My doctor says very few women have side effects but when I read all the discussion topics, the side effects are bad and the percent is a lot higher than what is being told. It seems doctors aren't in touch with women with breast cancer.
Thanks for being there.......
Comments
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I think anastrozole seems a preference But after 1 years I couldn't stand the joint pain and ear ringing. Now taking exemestane but have neck ear and stomach problems but not serious enough to ditch the pills. My neighbor took all of them at one point her only side effect was hair loss. My hair is actually getting thicker. In 2011 neighbor was done with hormone and her hair is still thinning I don't think it was the meds. I have 2 years left. If you have bad se just ask doctor to take you off dont wait until you can't walk like I did.
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GoLilly, I am postmenopausal but my MOs plan is 2 years tamoxifen followed by 3 years AI. He thinks this will be kinder to my hair and bones than doing all AI. Started tamoxifen 9 days ago (early days). When the MO wants to start the pills varies. Some start them early. Others wait until rads are completed as in my case. I think people are probably more likely to post about bad side effects than none at all so maybe its not as bad as it looks. I hope!
Boosts are common. I had 33 total sessions including 5 boosts. this is a pretty typical number. My MO mentioned the Canadian rads, to get it done in a shorter time but RO went with the a common 6 - 7 weeks. Just my thoughts as I am not an expert but I would think the boosts are that extra insurance policy, especially if your Onco score is beginning of grey zone. The boosts were not bad at all to do I found.
There is a thread for ladies doing fall 2014 rads and also the one for those of us that have been doing summer 2014 rads that has a lot of info and tips. I think most of us in Summer 2014 have had boosts.
It does seem like an awful lot to deal with but the time really does pass quickly once you get into the routine!!
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Iyzzysmom,
Thanks for the info.and threads....I guess you are 3 months ahead of me with treatment. I just want to make sure I'm informed and making the right decisions. I don't have the emotional breakdowns as much as last month but I'm still not sleeping well and I'm pretty tired. How were the rads??? I will go to the other threads to read up on the all the different side effects and tips on handling the burns.
Thanks again for helping out!
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GoLilly, Rads was OK for me. I have had some fatigue and so tried to exercise and have plenty of protein and water, also take naps when I needed it. I did have a few days when I just wanted to sleep a lot, I was so tired.
Skin type does not appear to affect how the skin reacts and everybody reacts differently. For me it just got pinker during treatment, looked red at the end and the nipple was sore and tender right near the end. I moisturized all the time, went bra less as I am small breasted but nothing was really bad at all. Skin peeling was very superficial. Its 3 weeks today since I finished and my skin is fine. Even the tan has faded a lot already. For some it can get worse for a week or two after treatment but once it starts to heal the process is quick.
You will get through this!!
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GoLilly, My situation seems to be very close to yours. I started rads about a 6 weeks after surgery. I started the hormon therapy with a week of surgery.
The SE I have are hot flushes. I mean insane , on fire, I will combust kind of heat. No other SE so far. Its been a month.
I was on HRT before the diagnosis. I was taken off the HRT and on letrozole in a week. I am extremely low, sad. I have some very desperate feelings. I am certain that the letrozole is doing that. Its only been a month. I have to find the courage to take it. The recurrence rate goes up to 34% if I stop.
Most of the women in the cancer center support group of little or no SE from the letrozle.
I am doing rad now. Did 5 of the 35 needed. So far, its nothing. Feels like nothing, and no SE either. Everyone tells me to wait its coming.
I hope all good things come your way.
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Raider, has your MO considered tamoxifen or a different AI if Femera is causing bad SEs. I was never on HRT but have tolerated the tamox. ok the last couple of weeks. MO did not want me to start on an AI but to switch to one in 2 years from now due to hair and bone concern and I am WAY menopausal. Also I find lorazepam (ativan ) help with sleep, anxiety and feeling low. i have never tolerated the SSRI antidepressants at all. I do hope that you can find something that helps with the SEs ((hugs))
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Hello RaiderGirl....hope your Rads are going well and you are feeling better my thoughts are with you today....
I am on my third Rad treatment, out of 21 + 4 boosters.My MO wants me to start on arimidex and if I can't tolerate it then I could go on Aromasin. I would like to start on aromasin right away but he says the insurance companies won't pay because these pills are more costly. Does anyone out there know if this is true? I will begin hormone treatment the first week of November.
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hello everyone, this is my first time on here, I was diagnose on sept 3, 2014 I'm having surg sept 20, I was wondering when is the appropriate time to start treatment after surgery, I read on line that rad or chemo should start within 30 day from surgery, which will decrease recurrence, I know I will have to wait for my onco results, ( how long does that take) I wish everyone the best of luck and my God bless all of us, hugs and kisses.
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Welcome Pandapb.
Timing for results varies greatly by location, within the US or around the world. It depends upon the lab, workload at the time, Doctor appt to provide results etc. Waiting for results is a horrible time by keeping busy helps.
Follow up treatment depends upon biopsy results and type of cancer, if nodes clear or involved and other factors like recon.
We wish you all the best.for the 20th
The Mods
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Pandapb, Sorry you find yourself here. I cannot speak for chemo but the oncotype can take about 2 weeks after sample from surgery is sent although mine was available in a week. Also as you can tell by my dates, I did not start rads until around 7 weeks after surgery. None of the doctors, surgeon, MO or RO had any issue with this so I don't think you need to worry about there being a big rush to start rads although its stressful waiting for results. Wishing you all the best of luck!!
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Good luck on the 20th. I was diagnosed 8/13, just had surgery on 9/9. Scheduling my MO appts to discuss future treatment and was told to push out about 2 to 3 weeks. Waiting for oncoptype. Focusing on recovering from surgery. Went to NOLA. Will be thinking good thoughts.
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Be careful of what you read on line, it doesn't all apply to you and recommendations change all time. My BS said that they usually wait for a month after surgery to start rads, your breast needs to heal first. Some people wait longer, especially if they are doing any type of fertility treatment (e.g. Harvesting eggs).
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