INSOMNIACS place to talk in the wee hours

1…573574576578579…1503

Comments

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    Chevy can we tighten up the date that we are going to meet or haven't you been able to tie down those rascally grandsons? Not terribly important right now but if it's doable :)

    · Share on FacebookShare on Twitter
  • Alyson
    Alyson Member Posts: 4,308
    edited September 2014

    Just flying by. Really want to sleep because we have been up for three hours and have been at the airport for half of that. Will soon get boarding call. We are off to Australia for three weeks. 

    Found out something don't take gabapentin with tramadol. Really spaces me out funny but a bit frightening.

    Anyway big hugs. 

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    image

    Blessings this was on W &F's today. Thought it ironic

    · Share on FacebookShare on Twitter
  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2014

    I'll have to second tightening up the meet date if possible?

    I just found out about possible in law invasion. They aren't sure of dates either. How is it we went 20+ years without them, then •I• have nice plans.......

    If they are here, I'll say fu$ k them and meet the Chevater anyway!

    · Share on FacebookShare on Twitter
  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited September 2014

    Okay, I just sent her an email, and told her we are just trying to figure out which day would be best!    I really want to know TOO.... Ha!  Damn kids.....

    Yes Spookie.... we don't do in-laws..... do we?  I want to see the dogs..... not any no damn in-laws..... Ha!  

    It's still only 42 degrees out!  I found my bermuda shorts...  Or are they called cullotte's?  They cover my knees anyway!   Geesh you guys are particular!  I have a jacket on right now.... been putting garden stuff away.....  trying to sprinkle or snow!

    Sassy.... it would be best for you to go to an ENT....  They can figure out what is going on with your ears....  Write all those symptoms down.... like cymbals clanging, planes flying overhead, drums pounding, and water gushing!   

    Okay, so Cammi..... do YOU know what she is talking about?  I don't have a clue....  I cannot figure out all this Dr. Rinds reverse TR3.... or NOTHING!   Maybe we should pay closer attention....

    · Share on FacebookShare on Twitter
  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2014

    Yea  for culottes!!!! It's 6:30 my time, 84 humid degrees. 

    This particular in law is the same one who drove 16 hours straight because we were "supposed" to get a hurricane, and he'd never seen one. He stayed one day and left. So right now there is a low going over south Florida, which has a small chance of developing in the Gulf. I think that's why he's chosen now to come. 

    And he and wife will pitch tent in yard, since we don't have room inside. Just where I'd like to be in a hurricane. NOT

    When a storm comes, sensible people get the hell out!! If it does develop, Spookie and I are outta here, he can stay in his tent. Or swim, or fly. 

    · Share on FacebookShare on Twitter
  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited September 2014

    You all can just call me ZJ if you like.  I just started chemo on Monday...facing a long 14 month journey.  Does anyone know if the next round (taxol 12 weeks along with perjeta 6mo., and herceptin 1yr) has as bad sides as the Adriamycin/Cytoxin I am on now for 4 treatment s over 8 weeks?  I just feel yucky and wiped, like coming down with a stomach virus.  

    · Share on FacebookShare on Twitter
  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2014

    I did 4 A/C treatments. Felt like chit the first week, by the time the next was due was pretty sure I'd live, only to do it all again. My worst was diarrhea. No appetite lost all taste, even water. Keep in touch with your MO, they have suggestions and meds to get you through. Now is the time to take care of you, let the dust bunnies do their thing. 

    I can't speak about your other chemo, somebody prolly can. 

    · Share on FacebookShare on Twitter
  • Nettie1964
    Nettie1964 Member Posts: 759
    edited September 2014

    image

    Just thought this was 
    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014

    Chevy naw you don't need to pay attention.:)

    · Share on FacebookShare on Twitter
  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited September 2014

    Sassy - eardrum vibrating like a cymbal? Hmmmm ... is there noise? Tinnitus can take on many forms. Sounds can range from a teakettle whistling, a high-pitched EEEEEEEEEE sound, ringing, hissing, static, crickets, screeching, sirens, whooshing, roaring, pulsing, ocean waves, buzzing, clicking, dial tones and even music. (I think one of my friends on the Meniere's board had cymbals clanging.) There is also pulsatile tinnitus, where the noises get louder and softer according to your pulse. 

    Here is an interesting website that describes the sounds of tinnitus, but I have to warn you: the sounds are LOUD. With your hyperacusis, you may run screaming out the door. http://www.ata.org/sounds-of-tinnitus

    RE: having a baseline audiogram before chemo... please feel free to copy and paste what I wrote, onto the thread you mentioned. 

    I have a really hard time keeping up with BCO, and often do not post for long stretches. Mostly I lurk, reading is difficult, and I forget what I read. Hoping that improves.

    Hugs to all you Owlettes!!!

    xoxoxoxoxo

    · Share on FacebookShare on Twitter
  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited September 2014

    Couldn't go to bed without sharing this with y'all...

    image

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    Blessings what fun there's a story. I think it was two maybe three years ago. I was awakened by music. Glenn Miller horns, OH they were loud. I looked at the clock 8:50 am. Walked out on the deck and thought how rude, this time of morning. Somehow realized that it wasn't the neighbors. Ah-Hah, I did as I do. I threw it to the computer, keywords" Tinnitus and music". Came up with an article written by Bauman. His original article of 2004 was pulled. Now did a relook and he has done further publications and his term Musical Ear Syndrome(MES) has become widely accepted now.

    http://www.hearinglosshelp.com/articles/mes.htm

    Back to my two hours that day. Glenn Miller horns OMG, loud very loud. Then started to dissolve. It was thank god!. It went to a different tune, kind of jazzy like I thought. The music went away at 10:50 am. Okay. Just hoped it wasn't the beginning of a NEW thing.

    Then about two weeks later, I have the music channel on Jazz. Unusual. Usual choice is Soundscapes. I hear this sound, OMG, rush into see the title, Louis Jordan, Caldonia, 1945. I then searched the history. We are so blessed to have the internet and YouTube. One reporter called it by a new term______   Need to find it ---now another search cuz I forget, but it was attributed to the 50's and it was used to describe a change in music associated with the 50's music.

    LOL, remembered it :). There was a reporter that described this tune of Jordan's as "Rocking and Rolling". It's attributed to music in the 50's, but the first use was to Jordan's Caldonia

    I searched endlessly to see if I could have been exposed to it through old movies. Nothing connected. The sound I heard was and instrumental. All that's available is with voice and instruments. If you listen to the link, Stop when the vocals start :)

    http://www.youtube.com/watch?v=5LxmxVFoyOc

    Now for the cymbal sound. When it occurs the eardrum feels like it's vibrating. That's a very unique feeling. As if a thin sheet of metal were hit and it wobbles and makes a sound. Very different from the sounds in my head. Some plausibility, it is associated with an acute barometric change. Plausibility, is b/c I am sensitive to barometric changes. But it has occurred when no known barometric change has occurred.

    Blessings, understand the reading thing so well. Seven closed head injuries, Not good. Used to read always. Couldn't just watch TV, had to be reading at the same time. Now, nada. Books, can't hold on to anything. I know your bummer, b/c I share it. It SUCKS.

    BTW almost all the falls related to the head injuries were due to a weak right ankle. My joke "If you hear that I've died of a head injury, know that it was my right ankle that killed me"

    · Share on FacebookShare on Twitter
  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2014

    DH has the 4 tenors singing all the time. I have static. 

    · Share on FacebookShare on Twitter
  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited September 2014

    WTH?  You guys are up talking about WHAT?  Hell, I have HEARING aids, and I don't get THAT much action!   And it's only 37 degrees out there!   Like that matters, when you're in the house.

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    Spookie, are DH 's tenors a nice tune? Initially my tinnitus started with a rhinovirus( nose cold), I had the roaring and crickets/ frogs. For a year it was hell, but each month it got just enough softer that suicide was taken of the agenda. When I went to the ENT initially, he put both hands on my shoulders and said " There is nothing that I can do for this, it is b/c of your hearing loss, the brain is filling in the absence of sound with a noise". Odd. Asked why he was so intense. The year before an ENT doc was shot and killed by a patient

     Now most recently softer crickets and frogs. There have been a few days since 1998, that there was silence. AH tttttttttttttthey were so appreciated. No rhyme or reason to those days. Tried to figure connections b/c I of course, would repeat them. I'll go with the lower summers eve crickets. Today, no tinnitus in the left ear and really soft crickets in the right ear.

    Blessings, FYI through that search a couple three years ago, came across an article that described how to RESET your tinnitus level. At that point, it was loud so figured I'd try it. The article described using another vibrating source. I used my vibrating bed. Put the ear side flat on the bed with vibration on(bed has an auto shut off - I think 1/2 hour). Fell asleep. In the morning the level was softer. Sometimes gone in one ear. Oddly, realized it was the up ear not the ear next to the vibration. Done it many times when the noise got loud---whatever roaring, cricket sand/or frogs after a rainstorm, the noise of a subway. But since it wasn't always the up ear.. just as tinnitus isn't constant, the resetting wasn't a constant response, but it did make a change. Any change from loud was doable.

    Once or twice used the hand held back massager, placed it on the mastoid area behind the ear.

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    Chevy are you working on your morning wakeup report Yay I love them. Then when Cami chimes in, I'm in LMAO heaven  :) You two are better than Abbott and Costello, Martin and Lewis, Rowan and Martin, Kermit and Monster. Make our day!

    Alyoop have a great time in Australia! Hope you see Chrissy

    · Share on FacebookShare on Twitter
  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited September 2014

    Okay, so tell us again Sass...  You did WHAT with the massager?    You are so creAtive!  Who knew?   And what's this about your crickets and frogs....  and a rainstorm?

    Cammi, did you hear that?   I'm not sure if I should get involved with all this goings on.....   Here, I have my Bermuda shorts all ready, and she probably won't even be able to HEAR me with all that noise going on....   

    Maybe I should lend her my hearing aids?  I have ringing in my ears right now..... always do..... even WITH my hearing aids.... The only time I don't, is when all the other sounds are LOUDER than what I have going on in my ears.

    I have crickets too, but they are in my yard.

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    OH Chevy, I'm so blessed to have you in my life. So blessed. You make tomato soup out of garlic LOL

    · Share on FacebookShare on Twitter
  • camillegal
    camillegal Member Posts: 16,882
    edited September 2014

    Good Morning Ladies---OMG I can not keep up--between m computer and me we are pretty much useless.

    Nettie don't read anything, I know this isn't a popular stance to take, but if u must read read the oldDick and Jane books and find out why he was named Dick. That'll keep 'r mind busy.

    Ears, oh ears--mine ring or I have ocean sounds all the time they take turns, u'd think the cean would be soothing but it feels like my head is blowing off--keep TV on all the time it helps. But my sister and I have had this for years, my mom had it too. So I don't really think about it unless I'm thinking about it.

    I've been so crazy busy doing odd things. I just can't keep up.

    Chevy u know Goldie from the other thread--well she's coming to my house today long with one of the other gals (I don't think u know her) So we've been back and forth with who, how and when nd another one from Ohio wanted to come but she can't mke it. So between phone calls and PM's that's what I've been busy with, plus being excited and nervous cuz I'm not a good hostess anymore and they are both so young and I'm much older they know tht, but I'm a mess all the time so I have to comb my hair today. This is a big deal for me. LOL And it's funny cuz Goldie and Leslie my DD1 have become friends on FB so they talk all the time, I don't even know what they talk about but they are much closer in age. hahaha So I don't know if we'll go out for dinner or just order pizza cuz u don't get Chicago pizza's in AZ like u get here. Whtever they want to do, but I'm excited and it's been days of msybe she can't or maybe she can then the other gal is from Indiana and she'll be in IL for a shower today so she'll ome after and she's younger.

    I was busy with work too I am not a multi-task person, u see back in the day when  Chevy and I were strippers full time that's all we did we just stripped without a thought, now I have to think and it's to late to start.

    I didn't read the last 2 pages so I'm not caught up, but I hope everyone is doing OK--I'm usually on here much more so as soon as I get orgsnized again I'll be on regularly cuz I have to keep an eye (just one that's good) on Chevy she tends to embellish things she says or just doesn't make any sense like me.

    · Share on FacebookShare on Twitter
  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited September 2014

    Thanks Spookysmom.  I will let sleeping dust bunnies lie for sure.  I took an anti anxiety pill in the middle of the night last night.  Was having feelings like going down a roller coaster.  It helped and I actually feel a, touch better now 5 days post chemo.    Tis really starting to look like fall here in the Hudson Valley.  Hope everyone has a good day.

    · Share on FacebookShare on Twitter
  • Holeinone
    Holeinone Member Posts: 2,478
    edited September 2014

    zjrose, I know very little about the targeted therapies. Does not sound like they cause the horrific side effects that the chemo drugs do. Cami, ( posted right above you ) is the only one of our group that I can think of that is Her +. There must be others. I started A/C one year ago. Are you getting it every 2 weeks? Did they explain that it is  cumulative ?  Rant & whine if you need too, it is still fresh in my memory. I had to really dig deep & tell myself, just get through this day. I lost weight, could not eat. 

    Blessings, great to see ya post. So sorry you are healing slower than expected. Have you thought of, or been offered art therapy? The best part of my job at school was getting to create silly art projects. We cut & pasted silly faces from magazine photos of food, water, bugs, whatever. 

    I think I might of said this already ( chemo brain, I still struggle with it ) but, I did read an entire book on my big trip. That seemed like a milestone. Of course it was a easy read. 

    Ok Sas & gang...I skipped over most of the ear ringing talk. I occasionally get that, I am scared I could bring it on by reading about it. I have bad ears, lots of scar tissue. 

    Cami, big smiles for you. Wonderful to meet new friends. Have fun. 

    Sas, Phyillisintx, do you hear from her? Tell her hello & we miss her.

    Chevy, just when Denver is getting heavy frost & light snow you will fly to tropical Florida... Ah....q

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014

    HI1-phyillyinhouston had chemo last week . Then again this next week. Ct next Sat and bone scan next Monday. Off day today-she's not feeling well. Told her. Short call b/c of the way she was feeling.

    · Share on FacebookShare on Twitter
  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited September 2014

    hey ladies. Been reading what everyone is up to but too lazy (sleepy) to post. Finally got my lil sis and her family to leave. It was a wonderful time but so very exhausting. Went to reg scheduled mo visit yesterday and brought up the tired issue. Checking thyroid since I haven't had a change in synthroid doseage in over 2 years. Hope to find the answer soon. Hate sleeping away my life.  

    Hugs to all. 

    Hootie hoo

    · Share on FacebookShare on Twitter
  • Nettie1964
    Nettie1964 Member Posts: 759
    edited September 2014

    Read ask about the ear ringing, I have it now, I think caused by chemo, like someone said, mine is worse when it's quiet.

    This is what I did today. Went to The Pink Dress Run. This is me and my MO.

    image

    · Share on FacebookShare on Twitter
  • dutchiris
    dutchiris Member Posts: 855
    edited September 2014

    imageIt is unseasonably cool here but yikes!  Hell might even be frozen over if this was actually today's temp.

    · Share on FacebookShare on Twitter
  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited September 2014

    Nettie!  That's WHO?  Damn girl!  And what is MO?

    Sassy and Spookie..... Okay DD called and said for YOU guys to pick a day..... either Thursday or Friday..... Okay?  And what time?  And she said it is right next to where we always go.....  

    Isn't it too hot there for the pooches?   Or, never mind.... y'all are probably USED to that by now.....

    She was wondering who would pass out first, us or the dogs!  She and her Sister will shop around, while we have lunch....

    Sass, isn't Phylli in that control test or something?  Let us know..... 

    · Share on FacebookShare on Twitter
  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2014

    thurs would be better for me. Let's see what Sas says. Spookie will be in her stroller, it has a cover to keep sun off. 

    12:30?

    · Share on FacebookShare on Twitter
  • Nettie1964
    Nettie1964 Member Posts: 759
    edited September 2014

    Chevy, that's my medical oncologist.

    · Share on FacebookShare on Twitter
  • Smaarty
    Smaarty Member Posts: 2,951
    edited September 2014

    Nettie, he looks good in pink! (And fun!)

    · Share on FacebookShare on Twitter

Categories