Anyone have an IV fusion fosomax?

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B123
B123 Member Posts: 730
edited September 2014 in Hormonal Therapy - Before, During, and After

because of the dreaded arimidex and having a hyster, I now have osteoporosis in low back. Tried fosomax orally, got stomach pains and queasy feeling. I'm told to stop taking it, that I'm not tolerating well so next step is fusion 1x/year. I'm told it's safe and no SE except maybe sore for few days but since my D3 is up, I shouldn't have a problem with that.  Anyone have this done? Is it safe?

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  • Ariom
    Ariom Member Posts: 6,197
    edited September 2014

    I have Osteoporosis too -3 for almost 13 years. I can't take any of these. I had a terrible time with the once a week Actonel, same as Fosomax. I tried it for 8 weeks and had to stop. It took ages for my stomach to improve after taking it.

    I take Vitamin D, my levels are good and I eat as much Calcium rich food as I can, but finding Calcium that doesn't irritate my stomach has been hard too.

    A few years ago I tried the once yearly infusion called Aclasta, it isn't actually Fosomax, just another drug of the same type, it didn't agree with me either, I got every side effect, so I didn't have it the following year. They used to only recommend it for just 3 years, now they give it for 5 years, I believe.

    There are some women here who have the 1 x year infusion and others who have the 6 monthly Prolia injection with no adverse reactions whatsoever.

    Like everything, it is a good idea to research the drug and discuss any concerns with your Doctor. I am sure there will be others along who can give you their positive experiences, with these drugs. 

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  • B123
    B123 Member Posts: 730
    edited September 2014

    Ariom

    Thanks for responding, that's how I am.. I took for 3 weeks and couldn't bare it anymore, still feeling effects in my gut.  My endro doctor swears that the infusion causes no SE but I'm not to sure about that and am afraid to try, I think with infusion it takes a long time to get over once in your system?? He said it does not effect the stomach?

    I'm afraid that if I don't do something I will get worse? My D3 is good and I take calcium but he said calcium does nothing for us? So confused and frustrated!

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  • Ariom
    Ariom Member Posts: 6,197
    edited September 2014

    Hi B123, I am sorry you are so conflicted about this. I felt exactly the same way. I was told that there were very few SE's with the infusion too, but I was unlucky and manifested all of them with the first infusion, so I wasn't interested in doing it again. It didn't give me any negative stomach issues, but was like a bad flu, with worsening of my Rheumatoid joint pain, not what I needed! My Doctor was very surprised, but later discovered there actually were more people having a reaction to the infusion, than had been reported when I was offered the infusion on a free trial, when it was first introduced to Australia. Gee thanks guys!!!!

    The only reason I went on the Actonel weekly tablet, after my last Dexa scan, was so that I could stop, if I had any negative reaction to it. I stuck it out for 8 looong weeks and felt miserable with the awful stomach issues. The stomach problems continued for longer than I took the drug, but have subsided now.

    There are others here who are having the yearly infusion, or the 6 monthly injection with no se's to speak of, so it certainly isn't something that effects everyone badly.

    I wish you all the best!

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