BP cuff applied to BC arm?

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RebeccaDianne
RebeccaDianne Member Posts: 5
edited September 2014 in Lymphedema

I was recently hospitalized for a heart condition and the first morning, I was awakened with a BP cuff around my left arm squeezing very tight and painful. I now have arm pain from my fingers up to my left ear. Could this be lymphedema?

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  • Marple
    Marple Member Posts: 19,143
    edited August 2014

    Rebecca, certainly if the cuff was applied to your affected side (which I'm assuming it was) it wasn't a good thing to have done however, first things first.  How are you doing?  I hope the heart issue is resolved or at least resolving.  Now, if you are still in hospital they need to be  informed, NO BP, blood draws on that arm.  Since you've already had BP done here's what you can do for now.  Elevate that arm/hand, the whole shebang.  Drink LOTS of water so long as it's allowed with the other issues you have going on.  Take deep belly breaths when you can.  Several, maybe 10 at a time 3 or 4 times/day.  This web site is a wealth of information.   
    http://www.stepup-speakout.org/  

    Hopefully your arm will settle down but afterwards you may want to find yourself a qualified therapist to further evaluate you.  Here is a link from the above web site for that.

    http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm 

    I hope this helps and please check back in to let us know how you are doing.  Good luck.

     

  • Marple
    Marple Member Posts: 19,143
    edited August 2014

    I assume you've told the hospital staff about this pain.........just in case it's heart related.

  • Moderators
    Moderators Member Posts: 25,912
    edited August 2014

    Hello RebeccaDianne, and welcome to Breastcancer.org. This is a wonderfully supportive community and we're sure you'll be receiving more responses to your post soon. In the meantime, you may also want to check out our page on Lymphedema Signs and Symptoms.

    Warmest regards,

    The Mods

  • RebeccaDianne
    RebeccaDianne Member Posts: 5
    edited August 2014

    I told them the day before when I was taken there by ambulance. I told them no cuffs and no needles in or out. They tried a couple of times to check my bp on that arm and I continued to remind them not to. The morning that it happened, I was exhausted from having blood drawn every three hours and I didn't wake up until the cuff was inflated on that arm.  Shortly after it happened, I was transferred to Duke Hospital for my heart.  They put the cuff on my leg!  It only came to me today, since the pain is still very intense, that it might be lymphedema.  

    I had a heart cath and they said my heart is "beautiful!"  It is just misfiring a bit.  I will wear a heart monitor for 30 days to see exactly what is going on.  Thanks for asking, btw!  :)

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2014

    Dear RebeccaDianne

    There are also light weight tube Alert Sleeves available, for wearing to hospital, that have warning printed boldly on them "NO BLOOD PRESSURE; NO INTRAVENOUS; NO BLOOD DRAWS should be administered on the affected arms(s)".

    You may find having one of these an advantage for any future visits.

    The Mods

  • RebeccaDianne
    RebeccaDianne Member Posts: 5
    edited September 2014

    Thank you!  This is very good advice.  I thought later to write "NO bp or iv on this arm" with a magic marker.  When I had my mastectomy, I wrote NOT ME!  With a smiley face on my right breast.  You can imagine where the nose was on the face!  :)  

  • carol57
    carol57 Member Posts: 3,567
    edited September 2014

    In addition to the visible alerts, it can help if you ask a physician or surgeon to put arm precautions in your chart while hospitalized. Make it a physician's order and it's more likely to be respected.

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited September 2014

      I can barely imagine your horror, RebeccaDiane, when you woke up to find the bp cuff on the wrong arm.  So very sorry this happened,and I sure hope no permanent damage has been done.
    Ladies, the anesthesiologist always comes in for a chat before you're given any meds.  As it is s/he who monitors your bp, perhaps making absolutely sure s/he knows where not to put the cuff, and writes it in her notes, is a good idea.  Also, a surgical nurse comes by for a brief visit.  This is the nurse who really has to know which arm needs to be pronounced verboten.  As for me, I always refuse premedication if the procedure allows.  That way I am awake and aware while they prep me in the OR and can make sure the cuff is on the correct arm and nobody has had a senior moment concerning issues important to me.  And yes, I did need a minor procedure after my lumpectomy and was very, very happy to be "present" in the OR to monitor the placing of the bp cuff.

  • carol57
    carol57 Member Posts: 3,567
    edited September 2014

    It's incredibly frustrating to wake up to the BP cuff in the wrong place, no kidding. Brookside, great suggestions,and thank you. I woke up from SNB/bmx that ended up taking 6 nodes, with the BP cuff on that arm. I had to literally argue for that to be changed, and for arm precautions to be put in my chart and posted above the bed. I'll never know if that led to developing my LE, but it sure did not help matters any. And this was at a highly regarded, big-city university hospital. Subsequent surgeries have all taken my arm needs seriously, fortunately, but I don't leave much to chance in who I talk to and how I mark my arm.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2014

    I'm so SO irritated when I hear stories like this. Really. Rebecca Dianne I'm so sorry you had put up with the ignoramus treatment. I too hope there's no damage done to you. I'm another one who faced the scenario of having to stand up to the medical fraternity literally, both pre/procedure and post procedure and of all the things we like to put behind us, that's likely to be one of the last. It's simply unacceptable to be on the receiving end of this sort of treatment. Nobody should have to be put in a position of having to argue about what they've clearly stated before, much less pre op/procedure.  I actually wonder how many people have had to defend their decisions.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited September 2014

    I think the black magic marker is a great idea, I recently had sinus surgery and was terrified that they would mess me up.  Fortunately, when I arrived they immediately gave me a special medic alert bracelet from the hospital!  I also have allergic reactions to NSAIDS and a simple aspirin can set me into a serious anaphylactic shock so maybe that was what triggered to care.  guess I have been lucky

  • Binney4
    Binney4 Member Posts: 8,609
    edited September 2014

    Just to clarify on the pre-printed arm sleeves for surgery, Lymphedivas makes an alert sleeve that is a regular day-wear gradient-compression sleeve but printed with warnings. It should NOT be worn if you're going to be unconscious, as it's not a sleep sleeve. It's a great sleeve to use for wide-awake procedures and makes your statement loud and clear, but definitely not when you're going to be asleep or even just inactive. It's here:

    https://www.lymphedivas.com/en/product/hospital

    G-Sleeve makes one you can wear in the hospital for any procedure--it's not a compression garment, just an over-sleeve, so it's safe to wear during surgery or when you're drugged or drowsy. It's here:

    http://www.g-sleeve.com/index.htm

    I use a G-sleeve over my wrapped arm for anesthesia procedures, and I write directly on my arm with a permanent marker under all that--one of our gals awhile back woke up from a minor surgery to find all her wrappings removed and stuffed into a bag under her bed and an automatic BP cuff pumping away on her arm, so always best to cover all your bases.

    It is a shame that the place where we're at the most risk for mistreatment of our LE arms is in the hospital, no?

    Be well!
    Binney

  • Marple
    Marple Member Posts: 19,143
    edited September 2014


    Binney, any idea what the price is for the g-sleeve?

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2014


    i thought about getting one of those G-sleeves, but I think I'll just write on my arm.  It can't get removed so easily!!

    edit:  Binney, thanks for letting us know NOT to wear compression sleeve while unconscious for surgery.  I was wondering about that. Was going to ask my GYN, but wasn't sure she would know. 

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2014


    FYI,,, TLC catalog has that sleeve too.  It's $12 there.    http://www.tlcdirect.org/Lymphedema-Alert-Sleeve.html

  • proudtospin
    proudtospin Member Posts: 5,972
    edited September 2014

    12$ sounds like a good investment in security!

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited September 2014

    But will they let you keep it on in the OR? 

  • Binney4
    Binney4 Member Posts: 8,609
    edited September 2014

    Talk to your doctor about it beforehand, but yes, that's what it's made for (as long as it's not your arm that's being operated on!)

    Some of the women here have wrapped their arms before surgery and it was allowed--the non-sterile areas are draped. 

  • Marple
    Marple Member Posts: 19,143
    edited September 2014

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