MIDDLE-AGED WOMEN 40-60ish
Comments
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Elimar, what IS that? at the top? it looks like a lighthouse teepee, somewhere in europe.
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is it an old stereo-opticon images? is it really on the edge of central park?
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I am 49 and also just went in for my yearly mammogram not even thinking there was anything wrong. I got a phone call from the BC the next day telling me they found something they didnt like and that they wanted me to come in for diagnostic films and possible US. I went in for the films and then they said they wanted to do the US because the films confirmed what they found on the mammo. I knew during the US something wasnt right when the tech went and brought back in the Radiologist who then looked under my arm as well. Next was the biopsy which I was still thinking in my mind would be benign. A couple of days later I got a phone call from my PCP who also happens to be a friend of mine. I knew from the sound of his voice he had bad news.
When he told me I had IDC I heard nothing else he told me. I am a Respiratory Therapist and immediately thought the worse. All I heard was invasive cancer. I couldnt sleep, was gagging, angry, crying, depressed. Here I am 49 I have two children. A son who is 28 and a daughter who is 25 and a beautiful grandson who is 2. What the heck! My grandmother had breast cancer and died from ovarian cancer and I have a Aunt who died from ovarian and cervical ca, my dad had just passed away a year ago from small bowel ca, and his twin had lung ca. What am I going to do.
When I went to my BS he told me I have stage 1 ER+ PR+ HER2- Grade 2 cancer. I had my lumpectomy July 30. They didnt get all of the cancer so I have to go back Sept 10 for a re-excision. Then Radiation and Tamoxifen. As of now the BS said I dont need chemo. I meet with my MO on Wed though and we will see what he says. BS said I was borderline on oncotype test.
I am very nervous. I still hurt, my lymph node was clear but I have had this cough off and on since April and get SOB just walking a lot or walking fast. I am also very tired, which I didnt expect yet since I havent started any tx yet. Glad to find this site.
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you have SOB and a cough? What about getting a chest X-ray? R/O pneumonia??We are here for you. Vent all you want.
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Nancy, so sorry about your troubles. I had pneumonia 2 years ago, and was absolutely exhausted for weeks. I hope they figure out what's wrong. Two family members with ovarian cancer is a red flag for a BRCA1 or 2 mutation. Have they ruled that out?
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3littlebird they did a CXR on me today I dont have results yet. They are going to have me see a Pulmonologist just as a preventative and to stay on top of things because I also have asthma. I also did have the BRCA test in 2007 when my grandma died and they were both negative but they are doing more genetic testing on me due to all the other cancers.
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KLJ, Thank goodness because I was not trying to be one of those people. Just anyone in the family having it so young would indicate that the other members need to be proactive and get screened earlier than the average bear. So, 3littlebirds and I were wondering has anyone had the BRCA test?
ncollett, Your story sounds a lot like mine, right down to the "going deaf" reaction upon getting the Dx. I was an 18 on my Oncotype test; did not do chemo for BC. However, I did not need to get re-excision and I am sorry that is so in your case. It is fairly common, unfortunately. [I just have to insert that when they don't get good margins, why do we get the bill for another surgery? Funny how low-level mechanics/techs have to stand by their work and if something was done wrong, they correct it gratis. Where's the motivation for the docs to do it right the first time?] Anyhoo, I think you should try to get to the bottom of the cough before beginning your rads because rads can sometimes give you respiratory SEs, and how would you recognize that if you went into rads with pre-existing symptoms?
kathec, Is that Central Park? More likely England. You are looking at a Helter Skelter. Like in The Beatles song. It's a giant slide. Since we are always comparing BC to some of the more discombobulating carnival rides around here, this seemed to fit right in. Actually, I was thinking how odd that one looks plopped in with some more traditional architecture. Just like our body build nice, orderly cells; and then along comes cancer and builds some crazy, helter-skelter looking lump in the midst of all the order. But, besides the BC analogy, the Helter Skelter looks fun and wouldn't you like to go on this one in Bournemouth? Except the slide looks like it stops about seven feet above the ground...yikes!
Tell me, tell me, tell me the answer. How long til they find a cure for cancer? Helter skelter, helter skelter.
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I did have the BRCA test, it was neg. -
Yes Elimar, Daughter1 had the BRCA testing and it was negative. I need to call my ins. and see if they cover it for me to be tested. I just read on a site suggested by SpecialK that with all of the relative factors that Daughter2 has going she is definitely high risk and the assessment test shows that she is 4 to 5 times more likely to get breast cancer than the average person. That really ups the ante. Bright Pink has lots of info and answers lots of financial aid questions. Lots of homework to do. No matter how old they are they are always your children
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KLJ and glennie19, good news about the BRCA. That is likely to be only the tip of the iceberg as far as the genetics of BC goes. I know there has been another genetic factor that has been isolated (and I have a mental block on its name,) but who knows how many genes can be involved? When you see it occur in clusters in families, it seems that it is more than just coincidence.
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KLJ: glad you were able to get some helpful advice!!elimar: i was also lucky that insurance covered the test!! That thing is HUGELY expensive.
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I had a CXR today so we will see what it says. I should hear something tomarrow hopefully on that. I am on Keflex and Cipro right now to get me over this cough but I have been on antibiotics for over a month now. Frustrating...
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that's a long time to be on antibiotics!! i hope you get some answers soon. -
Yes it is and I hope I do as well. I dont like being on antibiotics for this long. I was sweating so bad last night that I would wake up with puddles of sweat on my legs and chest, has anyone else had that ?
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ncollet, that sounds like annarborB symptoms to me, or, maybe you are in early pre-menopause? Have they done all the other imaging tests? has your onc suggested being tested for i think its called: Li-Fraumeni syndrome? its blood test i think, that will give them a lot of info about you, especially with those specific types of cancer running through your family..
Elimar, thank you so much for your picture information, i had no idea there was even such a thing. i wonder which came first, the phrase people use, or that? guess i will go put my googles on..
oh yeah, ncollet. if you do have that syndrome (L-F), then they would want to think twice about giving you radiation.
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Hi ladies, done done done last RX treatment today. Hugs to all
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3rdtimenow, CONGRATULATIONS!!!
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Congratulations!!!! -
No they havent but I see my MO on Wed so maybe he will check for that.
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ugh. This explains so much. Wine was NOT my friend:
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jbokland I'm not sure what I'm going to do about the wine thing. I'm no lush, but a couple nights a week I liked to have 2-3 max glasses of good red wine.
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me too. .. It really my only vice.
I also read about minimizing a reoccurrence...alcohol was on the hit list too
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was chocolate on the hit list? Please say no,,, I need one vice left. -
Homemom I am the same way. I like to have a glass of wine at least once a month.
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I was very scared of my beloved red wine initially. I have relaxed some since then. Other studies have not confirmed the great evil of moderate alcohol consumption. There is also an issue with the difference between getting the stupid cancer and having a recurrence. In other words, that which contributes to the primary cancer does not necessarily contribute to recurrence in the same degree. Lastly, when they look at death from all causes, the slight increase in cancer risk from moderate alcohol intake is outweighed by the decrease in cardiovascular risk.
So, I continue to drink red wine in moderation.
Chocolate is on no hit list. Chocolate is a health food. Seriously.
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From Johns Hopkins
Take care of yourself emotionally
Physically- exercise, maintain healthy weight, quit smoking, seek treatment for LE
Eating- choose organic, wash fresh produce well, limit red meat, eat high omega 3 and fiber diet
Reduce stress
limit alcohol
Keep your vitamin D level up
Take your endocrine therapies as prescribed
Interesting emotional well being is number 1 !!
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I agree they say now a days that just about anything causes some type of cancer so I just choose to live smart, enjoy life and do everything in moderation. Live Life
http://youtu.be/ZAAvPDgKf30 This is a song that I love love love. Hope you all enjoy.
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Because I had to stop alcohol 48 hours before surgery, I made a deal with my God that I would quit completely if all went okay. I didn't even toast my kids at their weddings with alcohol!! I've had a drink or two in the past 6 years but maybe only 4, so I'm pleased. (God has pissed me off a couple of times so we're even) Anyway, the way I read it now is that drinking alcohol "implies a certain lifestyle" and that is the concern. If we drink, we over eat?? Hmm. I know of a couple of tri-athletes that have bc, so that doesn't cut it with me. The concept is just belly fat. If we drink we gain weight and belly fat is just ER+ junk. BUT, having quit alcohol, I now crave a sweet desert! Go figure!! So my wine has been replaced by icecream or another treat which I would never had had with wine! And FYI, I didn't lose an OUNCE once I quit drinking (and before ice-cream) and I used to drink EVERY night. It was the way I fell asleep.
Ahhh, the devil you know is better than the one you don't....
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Barbie, I'm with you on the chocolate. Not much of a drinker anyway but hope I don't find chocolate on the list, lol. The dietician I saw said dark chocolate is fine. Not my favorite but I guess I'll have to deal.
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You guys are right we are damned if we do and damned if we dont. I did hear that dark chocholate has a lot of antioxidents in it that are supposed to be good for you.
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