generic letrozol and have new pains

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sschmidt
sschmidt Member Posts: 178
edited August 2014 in Hormonal Therapy - Before, During, and After

Hi members,  I have searched high and low to figure out why I am feeling so rotten.  I have extreme knew pain in the front and back of both legs, headaches with fatigue.  Has anyone experienced new side effects with a new maker of their generic femara.  My new company is Teva and the pill is a really light yellow compared to the past pills being almost orange with a shade of brown thrown in (took for almost 8 years).  These are marked.....

TEVA on on side and

B1 on the other side

I just had blood panels done for inflammation and complete CBC and Metabolic panel.  Low in Lymphocites a tad but all else normal.  I do have a pulpitis going on with one of my teeth.  

My oncologist suggested I go on Aromacin last meeting...out of the blue.  he said that switching to Aromasin may take my aches and pains away but....it has a history of hair loss that I am worried to mess with.  Been bald once ha ha and the side effects of Aromasin baldness are irreversible according to web sites I read.

Can you help me by one: have you experienced different side effects after changing generics of letrozol?   2: Have you switched from letrozol to aromasin?  Have your pains gone away due to the switch?

So can you please help me figure this out?  I just saw my onc about one month ago and everything else is OK.

Shirley...thank you

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  • sschmidt
    sschmidt Member Posts: 178
    edited August 2014

    The leg pain is in the knees...sorry

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited August 2014

    I was taking the Mylan brand of generic letrozole and had a lot of pain and developed a trigger thumb, switched to Teva brand and have almost no pain - we are all sensitive to the fillers and dyes in different ways - I would suggest trying a different brand of generic letrozole before you switch to a different drug.  I also found that an anti-inflammatory diet was helpful in reducing aromatase inhibitor joint pain and weight gain.

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  • sschmidt
    sschmidt Member Posts: 178
    edited August 2014

    Thank you so much for responding.  I would like to add that I am going to a physical therapy to loosen my legs...thought I had hip bursitis.  Says the primary doctor and he said that PT would help a little but big pharma helps more.  Shots and pills.  

    The first visit to the PT I was massaged so deeply to pull muscle away from ??? that I ended up with dozens of bruises.  I mean big mean and nasty bruises.  I was horrified.  Perhaps too much fish oil in my diet but it was overkill on their part.

    When I don't walk my knees are ok.  I like to walk using trekking poles around 4 miles a day.  Have not been able to do that for days and days lately.  Depressing.

    Going to retire this year and want to walk the Camino de Santiago in Spain.  I have to practice.  Got my backpack and need to get in better shape.  Yahoo!

    Thank you,

    Shirley

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited August 2014

    sschmidt - wow on the bruising!  Maybe the fish oil, and do you take daily aspirin?  I take it every other day as I get some esophageal discomfort if I take it daily. I found that more movement helped, but I know that doesn't work for everyone, and it is hard to get started when you already hurt!  I stopped eating dairy, sugar, gluten, corn, peanuts, eggs, and soy - far less joint pain for sure, but it is a pretty strict diet.  I also lost the 20 pounds from chemo/steroids/AI that I had gained.  I now weigh less then before diagnosis.

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  • sschmidt
    sschmidt Member Posts: 178
    edited August 2014

    Thank you am going to look into that.  Yes that is a strict diet.  Do you eat meat?  Me and my weight are a big issue.  Shirley

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