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  • MomMom
    MomMom Member Posts: 523
    edited August 2014

    Purplegirl, I had the exact chemo as Nettie, 4 rounds of DD AC, ended up having a 3 week break & then 12 weekly Taxol.  I was also one of the lucky ones and tolerated all the chemo with relatively minimal side effects.  Just knowing that the chemo was doable for two women I knew who had their bc diagnosed 23 & 12 years prior (they're still doing great!) implanted the idea that I just might be one of the fortunate ones too.  And I was.  Best of everything to you as you start your treatment.   

  • GuyGirl
    GuyGirl Member Posts: 182
    edited August 2014

    Purplegirl, I had 4 dose dense adriamycin and cytoxan every other week and 4 dose dense taxol every other week followed by 33 radiation treatments.  That was four years ago.  The chemo and radiation did not bother me, but the shot they give you the day after chemo for your white blood count gave me a fit.  First time around I got a really bad sinus headache and mouth sores.  I took Mucinex D the day before and 3 days after chemo the 2nd-8th treatment and did not have any problems with the shot.  My doctor had me take valtrex for my mouth sores.  I continued to work all through treatment, but during chemo week I worked from home and took a lot of naps.  Make sure you get plenty of rest and fluids and try to get some exercise.  I walked 2 miles daily throughout all of my treatments with no difficulty.  The worst part for me was losing my hair, but after I got used to it, I kind of liked being able to be ready to go somewhere at the drop of a hat.  Feel free to ask this group anything.  We are all praying for you.

  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited August 2014

    Hey Purple,

    Just finished round 4 of A/C every other week. Next Tuesday I start Taxol every other week and my oncologist tells me that part will be much easier. It was that blasted Neulasta shot that got me every time! Come visit us on the starting chemo June 2014 thread and read some posts. There are a bunch of us doing AC/T.

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited August 2014

    Just dropping in to say hello and check on everyone.  All is well, I am still in remission.  Every three months I go for follow-ups (tumor markers and to get feeled up).

    So sorry to hear that we lost another fighter.  Sending prayers to her family.

  • Seashore
    Seashore Member Posts: 33
    edited August 2014

    Purplegirl - I had 12 weekly taxol/carboplatinum chemo treatments and then 4 dose dense (every other week) A/C treatments.  Also for me, the taxol/carboplatinum seemed easier (but also at the beginning).  With A/C fatigue REALLY set in for me.  Similar to GuyGirl, M/O recommended I take OTC Clariton tablets the day of the neulasta shot and for 5 days or so after to lessen the bone aches - which I never got but I still had stiff/sore muscles a few days after the shot.  

    Fighter - thanks for sharing your good news!

  • Allydp
    Allydp Member Posts: 520
    edited August 2014

    Hi Purple - I'm so sorry you're going down this road again. I did 4 rounds AC (dose dense every other week) followed by 12 weekly taxol and 4 dose dense carbo every 3 weeks (so every 3rd taxol I would also get the carbo). I breezed through AC, but struggled with the taxol/carbo. Lots of fatigue. Also, the carbo was hard on my counts and I ended up needing a blood transfusion about half way through. I did neulasta with AC and neupogen with taxol/carbo. Both gave me pretty bad bone pain for about 48 hours. I tried the claritin, but it didn't do much so I ended up not taking it. My onc made mention on more than one occasion that without the carbo, I would've been in great shape. I agree with her. I really think it was the dose dense carbo that put me over the edge. I wish you all the best and hope you're one of the lucky ones who get through without too many side effects. Keep us posted on how you're doing. Hugs. 

  • Purplegurll
    Purplegurll Member Posts: 135
    edited August 2014

    Thank you all for your info on chemo regimens. It seems like many had dose dense. Also many mention taxol vs. taxotere, and several had carboplatin. I'm asking my MO some additional questions based on your feedback.

    Thanks also for the heads up on side effects and possible help for those. I will take a look at the June 2014 starting chemo thread as Radical suggested for more good info.

    I appreciate you welcoming me to the group. I sailed pretty easily through my first BC five years ago but this time around the support definitely helps. 

  • lilyrose53
    lilyrose53 Member Posts: 216
    edited August 2014

    Hi Purplegurll,

    I also had A/C four rounds, DD...but it was hard on me.  I am currently on 12 weekly Taxol...#9 tomorrow!  It is definitely easier on me except I have been developing neuropathy and edema.  I sure hope you do well with your treatments!

    Hugs to all,  lilyrose

  • BanR
    BanR Member Posts: 289
    edited August 2014

    hello everybody..its always a pleasure to read thru all the messages.

    i was so shocked to hear that fierceblue passed away. i pray for her and her family.

    fighter: lovely to hear from u girl! you and me and most of us here are in remission now. hopefully this too shall pass..

    newbies: i am sure by now you know that this is a very good forum for all doubts and discussions

    simple: pls let us know your biospy results. i am anyway sure its nothing

    ally": all the best for your surgery. keep us posted

    cocker, titf, radical, lily, jianchi, titan, stupid, kathy and all the old timers here...helloooo

    where is inspired by the way? she suddenly vanished? anybody in touch with her?

    i m doing fine. i do have on and off random aches and pain. onco has asked me to take a few physiotherapy sessions.

    keep writing ladies... we are together!

  • ALHusband
    ALHusband Member Posts: 344
    edited August 2014

    Today is the 1 year anniversary of my wife's last chemo. Since there seems to be no definitive right or wrong calculation of the "cancerversary" date, I guess we'll celebrate all of them! So thankful to God she's doing wonderfully. Newbies and ladies doing chemo currently, there is indeed a light at the end of the tunnel. Best wishes to all of you!

  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited August 2014

    AL,

    Congrats on your wife's chemoversary! I like the idea of celebrating all the anniversaries!

    Dxaversary

    Surgaversary

    Chemoversary

    Radiaversary....


  • TifJ
    TifJ Member Posts: 1,568
    edited August 2014

    Thank you for the shout out BanR and the morning giggle- you typed my name in as titf! What an appropriate site to accidentally type in tit instead of tif. I know, very juvenile to laugh at that word, but I couldn't help myself!!

    Hi Fighter!! Thanks for checking in and congrats on the remission!!

  • MonikaV
    MonikaV Member Posts: 201
    edited August 2014

    Hi Ladies,

        It has been over a year since I last wrote. In the past year we moved from California to North Carolina. It's beautiful here. I have been really busy at work. 

        How are you girls? Navymom, Luah, Titan? 

        I just saw my new doctor and I am still in remission. Feeling Happy. :)

  • simplelife4real
    simplelife4real Member Posts: 563
    edited August 2014

    Hi All, 

    I just wanted to let you know that I got the biopsy results back on my lump today.  It IS fat necrosis!  Hooray, hooray!  That's what they thought it was, but it is great to get it actually confirmed with a biopsy.  They will do another mammo on the lump again in six months just to keep an eye on it.  I'm obviously very happy with the report.  My first biopsy (that diagnosed my bc) was done almost exactly a year ago, so it is so nice to have such a different result this time around.  What a difference a year makes!  

    Purple, good luck with your chemo.  You can do this.  The chemo thread for the month you start will be a huge, huge source of support as well as all of us wonderful ladies (and gent) on this TNBC thread.  It will help you a lot to be connected with other people that really get what you are going through.....particularly during chemo.  Wishing you the best.

  • slv58
    slv58 Member Posts: 1,216
    edited August 2014

    simplelife4, that is great news! I'm "yahoo ing" with you!!

    Purple, chemo is very doable, my MO told me that if I felt nauseated to tell her right away because that meant she wasn't doing her job-that made me feel so much better

    Fighter__34, I've been thinking of you, I'm so happy to hear you are doing well, so a "yahoo" for you as well!

    Everyone else, wishing those waiting for results an easy wait and hoping everyone going through tx minimal SE.

  • MomMom
    MomMom Member Posts: 523
    edited August 2014

    Simplelife,  So so happy for you!! Yes, what a difference a year makes.Doing the happy dance right along with you!  

  • Allydp
    Allydp Member Posts: 520
    edited August 2014

    Fighter - Wonderful, wonderful news! 

    AL - congratulations to you and your wife! I hope you guys are doing something special to celebrate. 

    Simple - YAY! I am thrilled for you! 

  • Meadow
    Meadow Member Posts: 2,007
    edited August 2014

    Happy Dancing for Simple!

  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2014

    Simple...woot woot woot!!! HAPPY HAPPY HAPPY FOR YOU!

  • lilyrose53
    lilyrose53 Member Posts: 216
    edited August 2014

    Great news Simple!!!!  

    ALHusband,  wonderful anniversary!!!

    Yay Fighter!

    Wishing you all well!

    Hugs,  lilyrose

  • lilyrose53
    lilyrose53 Member Posts: 216
    edited August 2014

    BanR,  Are you doing ok?  I haven't heard anything from Inspired...it's been several months since I've seen her on here.  I hope she's doing alright.

    Hugs,  lilyrose

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited August 2014

    Would you get it done?
    Thought this might make you giggle.  I must admit though she does look younger than the real duck!!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited August 2014
  • ALHusband
    ALHusband Member Posts: 344
    edited August 2014

    Cocker that's really funny! Stole it and sent it to some folks

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited August 2014

    Your welcome AL Husband and great to hear that your wife is doing well.

  • TifJ
    TifJ Member Posts: 1,568
    edited August 2014


    WOO HOO Simple!!

  • Meadow
    Meadow Member Posts: 2,007
    edited August 2014

    Cute cartoon Cocker

  • ALHusband
    ALHusband Member Posts: 344
    edited August 2014

    Does anyone on here take Turmeric? Specifically in capsule form? I see article after article about its preventative/protective properties for cancer but none seems to recommend a dosage! Anybody have any suggestions?

  • placid44
    placid44 Member Posts: 497
    edited August 2014

    ALHusband,

    WebMD has info about dosing. It doesn't specify dosage for cancer prevention, but maybe the other use doses will help. My iPad isn't  letting me copy it here, but i googled it and it came up on webmd. It is the main spice in curry. 

  • Meadow
    Meadow Member Posts: 2,007
    edited August 2014

    Al, We add turmeric as much as we can, in chicken dishes, beef, if we can sneak it in we do! I love indian curry so thats easy. I figure why not, lots of press about it now helping prevent BC

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