Calling all TNs

Nettie1964

Lisa,

I was treated as triple negative from the beginning, it was only once all treatment was completed that I was offered Aromasin as my ER receptors were 2%!  I tried the Aromasin for several months, but my quality of life was Nothing, so I stopped taking it!

My path report showed the 2% ER+!

I have not been offered the metformin, but I see my MO in August, so I'm going to try to remember to ask about it!

TasiaB

well I had an MRI last week and yesterday my oncologist called and told me in my left breast I have a non specific finding at the three o'clock position it is a line not a tumor or cyst. It did not take up much dye so she doesn't know what it is. It's only a third of an inch long and very thin I am panicking feels like a roller coaster. So Friday I go for an ultrasound to see what they say about it . Also forgot to say on the report they called it lenear not sure what that means has anyone else have a scan that showed something like this 

 

Meadow

I am sorry to report that FierceBlueBird has passed. I read it in another thread, she posted here often. She was precious and encouraging always. So sorry. She is free of all her struggle.

NavyMom

Thanks for letting us know, Meadow.  Such sad news.  Cancer is an evil thief.  I hate it, hate it, hate it.

Cocker_Spaniel

Meadow that is terribly sad news.  Special thoughts to Bluebirds family.  May she rest in peace free of pain.

Yes Navy I hate it too with a passion. There is no other word I hate as much as the word cancer.   

lilyrose53

Meadow,  Such sad news.  I hate hearing that this horrid disease has taken another one of our sisters.  My thoughts and prayers are with FierceBlueBird's family.  May she be at peace.

MomMom

Meadow and all,  Such very sad news.  May she be at peace. 

Allydp

I am so very sad and sorry to hear this. My thoughts and prayers go out to her family. May she be at peace. 

slv58

how very very sad, I hate it when I read of another one of our sisters has passed. It's so unfair. Blessings and hugs for her family, I hope they know how much we will miss her, she was always a positive contributor here. Bluebird, you can drop the fierce now, fly free, free of pain. Rest now. 

simplelife4real

Lisa, I started on metformin after neoadjuvant chemo and surgery and before rads.  I don't think it matters much that you won't be starting until after rads.  Your MO may just want to be keeping things easier for you going through rads.

I am so saddened by Bluebird's passing.  (slv58, I like your thought that she can drop the "fierce" now.)  Her battle is over and she is no longer in fear or pain.  I was shocked at the suddeness of how quickly she went from being diagnosed with brain mets to being gone.  I absolutely hate this disease....it seems so unfair.  

Meadow, thank you for posting about Bluebird.

One thing I do is whenever I'm in exercise class and feeling sorry for myself, I think of  people I know who have died from cancer and I dedicate my workout to them.  Each of them reminds me of how precious life is and that it is to be enjoyed and savored while we are here.   Today as I'm trying to keep up in my ballroom dance aerobics class, I'll be thinking of Bluebird and dedicating my workout to her.  It will be a long time before I see a bluebird and not think of her.   

Fly high and proud Bluebird....you are free!

Nettie1964

So sad to hear of FBB passing!!  It envokes so many emotions from me! Anger, sadness and fear!!  To think that she as a fellow TN just takes my breath at how fast things moved!!  I'm going to try to take a break from the boards for a few days to gather myself!!

Sending hugs to her family!!

TifJ

My most sincere sympathy to Fiercebluebird's family. Simple, like you, I had no idea she was so close. Damn cancer.

LRM216

And yet another star to shine down upon us in the nightime sky.  My deepest condolences to Fiercebluebird's family and friends.  So tragic to lose yet another mother, wife, daughter and friend to this disease.  May she rest in peace.

Luvmydobies

My deepest condolences to FBB's family. I'll pray for them. This just sucks. I echo what Nettie said. God help us all. I wish more than anything that they'd find a cure for this damn disease!!!!!!!!! I cry every day. Nobody except us who have been through it can understand why we can't go one day without fear of recurrence or mets! It just sucks. Rest In Piece sweet FierceBluebird. 

Meadow

Dear ladies I know we have all been rocked and saddened by the news of losing our friend Fiercebluebird.  I, like so many of you I am sure, had a rough day. My thoughts are with her family, the preparations for the service and all the shock and loss they must be feeling, is just so much to shoulder. 

We have had our our fears stirred up. Fears that I kind of thought I had a handle on have shown me they are still there, not far from the surface. We share the TNBC diagnosis with FBB, and for many that is what brought us to know her so it is only natural that we think of our own health, and mortality. She was also IBC, which is so very aggressive, and BRCA, so she did have a fight on her little wings. I am pointing this out to remind myself that although we know her as TN, the fight is also with onco type, the genetic component, and so many other factors, so sisters, please do not give into fear that is telling us..."you are next". "If it can happen to her why not you". We must grieve our dear friend and honor her, and stay strong and focused on sharing the positive energy she handed us every single time she posted.  On another thread she frequented I saw where Bailey said "to make sure no cancer ever appears on my soul or spirit." And I like that so much I told her I would share it with you all. 

Please share your thoughts here and with loved ones and friends who are your support system. Hugs to eveyone.

MomMom

Meadow, Thank you so much for your beautifully said posting.  I also can't get FBB and her family out of my thoughts and prayers. And yes, something like this shakes us to our core as it hits our fears about our own mortality.  We can only wish our sisters and ourselves well and have confidence that each of us is doing exactly what she needs to do to fight it.

Paula

Luvmydobies

Well said Meadow!

slv58

Meadow, beautifully articulated what I'm sure we all feel. This has hit me particularly hard having just gone through a brain mets scare, but sometimes I think it's a good reminder to accept our mortality and LIVE for the now.  I think we all need a group hug in bluebirds memory

simplelife4real

Meadow, thank you for your beautifully spoken words.

Shari, you are right....we did need a group hug.  (((hugs)))

Allydp

So beautifully said, Meadow. I, too, can't stop thinking of her and her family. And I would by lying if I said it hasn't stirred up fears for myself, as well. I love the quote from your friend Bailey. I hope to never let this disease touch my soul. FBB was certainly a testament to that. 

DorMac

So very, very sorry to hear about FierceBlueBird (Kristine). My sympathies and prayers go out to all her family and friends. She fought a good fight but now she is at peace and free.

Doreen

Lisaj514

my beautiful TN bc warriors! I'm done with radiation today. Here is my post on facebook, dec chemo thread and rad thread. So sorry also to hear of fiercebluebird, but for today I'm living in the moment and will channel her spirit as she flys above and gives all her strength

 I feel great today! They played the song Free (Donavan frankenreiter) through the speakers during treatment, which I requested (find it on YouTube or I posted it on my fb page recently) and then the graduation song, lol!. www.facebook.com/lisa.r.boyce.

NO MORE CANCER!

My Breast cancer journey started 9 months ago on 10/18/13 and as of 7/25/14 I can now say my cancer is GONE! (and my doctors agree!) It has been cut out, poisoned, and radiated to smithereens! It is a journey that I never ever thought I’d go on.In some of the books I’ve read on breast cancer, some women would say that breast cancer was a blessing or that they were thankful for having breast cancer. Well I can’t bring myself to say those words but I now see how it has changed me, and in many ways for the better.

You know the quote that says, “You never know how strong you are, until being strong is the only choice you have” well, I get it now. From day one I knew the fight was on and my strength and courage emerged and became stronger as each day, week and month progressed. This has been the most challenging journey of my life, physically, mentally, emotionally and spiritually. But I have made it through and I am proud of myself and I am stronger and maybe even a better person for it.

I want to share some of the things I have learned, some of them are serious, some are funny but all of them are all part of my life now and part of what I have been through.

I have learned:

How important it is… to… just… breathe…

How music really does help you feel… and heal

That blue sky, green grass, flowers, clouds, soft rain and strong storms are really beautiful

How beautiful the beach REALLY is

How wonderful salt water air smells and that icy cold ocean water feels great

How amazing warm sand feels between your toes

How important nose hairs really are (you’ll never realize until you’ve don’t have them!)

That eyelashes really do keep the dust out…as well as make your eyes look good

That there are so many ways to tie a head scarf

How difficult it is to draw on eyebrows

That I do look OK with really, really short hair

That really, really short hair is still better than NO hair at all

That white/gray hair is also better than no hair at all

How nice it is to have a husband that says he likes this look with my new short “hairstyle”

How great it is to have a husband that will do anything for you

How great it is to be surrounded by a loving family when it is really needed

How wonderful it is to have sisters

How great it is to have friends that make you laugh

How good water tastes…when it tastes the way it should

How good food tastes…all food

That just putting your feet on the ground in the morning is a really big step

How great it is to just take a walk

That running 3 miles is not nearly as big of a challenge as it used to be

The benefits of one handed techniques and front closure shirts (thanks to my OT

background)

That having normal ROM in your arm is really important and how to regain it (thanks also

to my OT background)

That great friendships can be made with women all over the country that you have never

even met and how those women can help you through tough times because they “get it”

That nurses are the backbone of any medical office

How important it is to be your own advocate

How important it is to be an active part of your treatment

How it is OK to have people help you

How important it is to talk about difficult subjects and how it helps to lighten the load

How a person can turn a difficult situation into a reason for positive change

I have completed my journey, my story.I have won this fight!I thank everyone that has wished me well, prayed for me, kept me in their thoughts, sent me food, gifts and positivemessages, lifted me up, cried with me, laughed with me, and sometimes pulled me along when I didn’t want to go. You are also part of this journey and I thank you from the bottom of my heart. Now on to surviving and thriving!

Lisa

Cocker_Spaniel

You got it in a nut shell Lisa.  A beautiful and true post.  This is now the beginning of your new life.  ooxxoo

LovieLovie

TasiaB - I have had small things show up on my scans that are not there the next time.  I'm told that an injury can temporarily show up.  My first instinct was that it was a hair on the equipment.   I know that sounds silly.   I would have jumped for joy when the dr. said it wasn't a tumor. 

Congrats Lisa - A day to celebrate for sure!

My hearts in my stomach with the news of FierceBlueBird.

 

Radical2Squared

Congrats Lisa! I love what you learned.

Luvmydobies

Congrats Lisa! What a beautiful post. It is so true about all the things you learn. We tend to forget the positives (big and small), when we are feeling down. You look like a million bucks! Now go celebrate! 

slv58

Lisa, a big congratulations! Love your post and feel very much the same way. We are forced to look at our mortality and be truly appreciative for each day and the beauty which surrounds us. Today I truly celebrated my 56 th birthday. I made it! Very grateful for each day and especially each year as 17 months ago I wasn't sure what the future held. My birthday cake read " yahoo 56!"  

I hope everyone has a good week end and spreads a bit of kindness in bluebirds memory.

NavyMom

Happy Birthday,  slv!  And a big loud YAHOOOOO!

MomMom

Lisa, Congratulations!!!!  What an awesome post!  I absolutely love it and agree wholeheartedly!  You have whipped it and learned so much in the process.  You shine and you look amazing.

XOXOO,

Paula

JAN69

Lisa,  Yeah for you.  Now go live the life you deserve!  Jan