DIEP 2014

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  • Teacher64
    Teacher64 Member Posts: 840
    edited July 2014

    jenjenl - I saw my PS today for stage 2 on the 30th. I have several divots and the left side is smaller than the right. He said he'd take from flanks (muffin tops) and thighs. I told him he could take as much fat as his little heart desired and he said he would. A bit personal, but I'm having mons area done too because I'm uneven now. He said it would take a little lipo and pulling up toward the belly incision. I bruise easily and he told me to be ready to be colorful. I am! Let your PS where you want him to take fat and he probably will be able to accommodate you.

  • Sweetie1972
    Sweetie1972 Member Posts: 84
    edited July 2014

    I have an appointment tomorrow with Dr Gimbal to schedule my stage 1. 

  • jbdayton
    jbdayton Member Posts: 700
    edited July 2014

    Prayers for Kayla and Goldie's niece. Hope both of them have excellent outcomes.

    I am another one with healing issues.  I did wet/dry bandaging for about 6 weeks with little progress.  Today I was hooked up to a wound vac pump to see if we can speed up this healing process.  I will let you know when I start seeing progress.  It would have probably taken another 4 months of wet/dry bandaging.  I am hoping to cut the time down to 2months or less.  My wound is the entire lower half of my flap opened back up after the staples were removed.

    Congrats to those completing surgery and to those making the decision to proceed with this surgery.  Even with my issues I would do it all over again.

    My prayers are with you guys scheduled in the next couple of weeks.  

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited July 2014

    If they had a diagnosis for ADHD when I was young I was a textbook case. Now that I am all grown up, almost old, the thought of relaxing enough to do guided imagery seems very out of reach.  Today a PT my therapist was doing some very zen type of stuff on me, and I was just chatting away.  I looked over and she had her eyes closed and was really going to another place.  If I can't go there with her what good will the therapy do me?  She does these awesome manual stretches on me, and it's all so slow and controlled.  She has the great hands and very positive intentions. I need to allow myself to relax.

    Have we heard anything about Kayla yet?  I have been praying for her so hard. BTW, thank you all for the positive energy you put out to my niece.  She is healing so much better than we all expected.  I really think a lot has to do with the German medical system, and her age, and her positive spunky attitude. 

  • Janet_M
    Janet_M Member Posts: 1,068
    edited July 2014

    Tina - Thank you! You used the words 'bright light in the dark'. Please please please know that the darkness is just temporary, and not part of the 'new normal'. I was there once too and it felt like it would go on forever, but I can say that I feel it is safely behind me. That's not to say I'm not going to get knocked flat on my ass from big angry storm clouds from time to time, but they no longer own me, or scare me. And I'm almost 99.9 sure I can get back on my feet. 

  • annieb4
    annieb4 Member Posts: 106
    edited July 2014

    I am really surprised how many of you had your Deip the same time you had your MX. That wasn't even brought up to me. It would have been great to get that process done the same time instead of these dang TE's, which are nothing but a pain and now having to wait to have another surgery. Have any of you had any complications from having the radiation after the Deip flap?  I was just going for implants but have had two PS tell me the Deip would be better for me due to what the radiation and expanders have done to my skin.

  • Kb33
    Kb33 Member Posts: 88
    edited July 2014

    well. After almost 3 months.   Surgery scheduled for Mx and DIEP 8/19 in NOLA.  Omg.  So much to do....  I don't know where to begin

  • Sweetie1972
    Sweetie1972 Member Posts: 84
    edited July 2014

    stage 1 surgery scheduled for August 11. Excited, nervous etc

  • pollyanna5
    pollyanna5 Member Posts: 85
    edited July 2014

    I've been off for a few days, nice to be back online.  Glad to see more of you are getting surgeries scheduled.

    Doing well, although starting to get indents on each breast armpit side, and they are both decidedly weirdly shapped, flatten in spots, , hard in other spots.  I see the PS next week.  And the size, it's up, it down, I've got a few bras in the rotation, as they really do seem to move around. 

    I forgot the binder for a few days and was a bit sore, not bad, so I've put it back on. 

    6 weeks, unbeleivable!  

  • Shine14
    Shine14 Member Posts: 25
    edited July 2014

    praying for Kayla!  Youth is on her side and with all these strong ladies praying for her, I have a great feeling that healing is around the corner.

    Speaking of good feelings, I am so happy to read the guided imagery posts!  This is right up my alley and I know it will help me before and after surgery.  Thanks ggtxs and Janet for posting.  And I just loved Janet's blog post about her noobs first birthday.  Your spunk  point of view has really refreshed me today.  Thanks so very much!

  • optimi
    optimi Member Posts: 67
    edited July 2014

    Healing thoughts and prayers to Kayla and Goldie's niece. It is so good to hear that your niece is recovering well, Goldie!

    I will be reaching my 6wk post surgery mark tomorrow. Woohoo :) I am honestly surprised at how well I have recovered thus far. I have to thank my mom a great deal for this as she was here right from the time of surgery until last Friday. She wouldn't let me do anything by myself, not even take showers on my own. I was able to completely rest. I am sure that made a lot of difference. I will be starting PT on Thur which I am looking forward to and Fri I will be having my radiation simulation appt. I can't wait to get this last phase of treatment over with!

    I am still wearing the surgical bra that my PS had given me but I think I am ready to move on to something a little nicer. My former BC breast is rather flat and out of shape. I was wondering whether anybody on here had any suggestions regarding comfortable bras with inserts that might help in giving a little more shape. I would appreciate any input.

    I hope all of you continue to recover well. And to those of you who are awaiting surgery...my prayers are with you for a surgery without complications and a speedy recovery.

  • naiviv
    naiviv Member Posts: 535
    edited July 2014

    Belly button issues....

    Started getting very weepy (clear reddish fluid)yesterday and today it felt sore and started having a thicker discharge. Took picture and PS said to come in.

    He took a culture  and debrided it until it looked raw and started to bleed. It was packed dry with gauze and I need to keep dry and change  every 24 hours.  Not fun, bob definitely has feelings. I see again in 1 week  unless it gets worse.

    This should not impact 8/6 surgery, if not healed by then he will take care of it.

    I saw a patient  at the office who was 2 weeks post lat flap, I got to see the incisions, breast flap and drains and speak to her. I felt a calm after seeing and am ready for a lefty. 

    Prayers continuing

    V

  • trish01254
    trish01254 Member Posts: 128
    edited July 2014


    Time for another venting.  Called PS yesterday and today with no returned phone calls.  Asked for an appt but PS only will see patients on Tuesdays.  I'm concerned with my upper ab pain and worried I may have hernia.  Feeling like a hypochondriac but would think that at 6 weeks out, pain should be receeding and not increasing.  I dont think I have done anything to strain these muscles that would cause this pain to begin over the last few weeks. 

  • Sweetie1972
    Sweetie1972 Member Posts: 84
    edited July 2014

    did anyone have to wash with a special soap 5 days leading up to surgery ? What's the purpose of this? Was anyone able to return to work at 6 weeks? I'm thinking more like 8. Dr said as long as I don't have to lift anything I could go back at 6 weeks. 

  • enjoyevrymoment
    enjoyevrymoment Member Posts: 334
    edited July 2014

    I have heard of people washing with Hibiclens prior to surgery, its intent is to reduce infection risk.  I returned to work at 6 weeks and was actually ready to go mentally, as far as I could only watch so many more episodes of Say Yes to the Dress :)  With PT now at 4 months post bilateral Mx and DIEP I am just now really feeling like there isn't pulling or such, but at 6 weeks I had some mildly reduced hours and I do office work so that was probably why it wasn't bad. I think 8 weeks would have been nice but I ran out of sick time and was dipping into my vacation time.

  • aff
    aff Member Posts: 279
    edited July 2014

    annieb4 - I am in the middle of rads now. My surgery was 6 weeks ago. My PS said that DIEP would give the best outcome with rads. I planned to have DIEP from the beginning so I was glad to hear that. Today will be 10 of 28 rads and so far so good. 

    optimi - good to hear from you

    naiviv - I am really sorry about your belly button. I hope it feels better soon. I am glad you were able to talk to another patient about your upcoming surgery. It has been a long journey for you and you have been in my prayers often

    trish - sorry your PS is not getting back to you. I hope you can get some answers soon. 

    sweetie - I washed with Hibiclens for 3 days before my surgery. It is to reduce the risk of infection. I am 6 weeks post surgery and I feel that I could return to work if my job was not active. However my job is active and involves standing most of the day with occasional lifting and moving heavy items so I am out until Sept. 

    I have a follow up with my PS today. Hope everyone has a great day!!!

  • Teacher64
    Teacher64 Member Posts: 840
    edited July 2014

    sweetie - Hibiclens was just day before surgery for me.

    Naiviv - my belly button was the last to heal and still looks weird. I talked about it with PS is stage 2 pre op appointment and he said to give it more time.

  • jbdayton
    jbdayton Member Posts: 700
    edited July 2014

    naive I am so glad you got to see lat flap surgery results in person.  I think that should give you a good idea of what you will be facing.

    I hope this next flap goes perfect for you.  It has been a long battle but as for me I would do it again even knowing our complications.

    Take care of your belly button, it will heal eventually.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited July 2014

    They gave me a soap to wash with the night before and the morning of the surgery.  Okay, then you put on your regular clothes and go to the hospital.  Such a dumb routine and a waste of time. Unless that soap has some magic barrier that it puts between you and the rest of the world I would think it is fairly useless.  It's like when I told my PS I would go buy sterile gauze for my wet to dry routine on my wound.  He said not to bother, there was no way to keep a sterile environment at home.  Once I opened the package it wasn't sterile anymore.  Even when you wear medical gloves, those are not sterile either.  

  • aff
    aff Member Posts: 279
    edited July 2014

    Goldie - thank you so much for a good chuckle as I sit in my PS's waiting room. "magic barrier"...that was priceless. I thought the same thing every time I got out of the shower and dried myself off with my towel. 

  • trish01254
    trish01254 Member Posts: 128
    edited July 2014

    I wasn't told to use any special soap prior to surgery.

    My third day of trying to contact the PS office was successful.  However, did not get to talk to PS just the nurse.  Per PS the type of pain I am having in the upper abs is all part of nerve regeneration.  Pretty much they told me to suck it up.

    Is anyone else having pain in their upper abs after 5+ weeks?  I don't have any other pain.  This is cramping my back to exercise plan.  You don't realize how often you use certain muscles until they are screaming at you.

  • Sweetie1972
    Sweetie1972 Member Posts: 84
    edited July 2014
  • Ridley
    Ridley Member Posts: 634
    edited July 2014


    Goldie -- thanks for the laugh re: the magic barrier!  I didn't have any special soap to use before surgery and came through fine, germs and all! 

  • Andrea623
    Andrea623 Member Posts: 959
    edited July 2014

    Goldie, I think I've spent too much time on Facebook. I wanted to "Like" your post.

    Has anyone heard any updates on Kayla? I've been thinking about her.

  • naiviv
    naiviv Member Posts: 535
    edited July 2014

    Hello all,

    While at PS met a patient who was a week post diep and she showed me her hip incision.  She was first patient with a new skin closing that PS is using. It looked like a zipper. It is suppose to help eliminate , dog ears, openings, stitches or staples that will com thru. And a thinner smoother scar.

    You can shower and everything, it falls off or is removed between week 3-4. It apparently has been used for a few years in other surgeries. 

    Those of you getting revisions or heading into DIEP  Maybe should ask about it.

    Sorry forgot actual name. Will ask

    Vivian

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited July 2014

    naiviv, see if you can find out the name of that incision closer.  Sounds interesting.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2014

    For me it was surgical glue, though it felt like train track. Amazing stuff...I was totally glued back together on the outside....very thin scarring, no shower restrictions, peeled off easily after @ two weeks.

  • debiann
    debiann Member Posts: 1,200
    edited July 2014

    Is everyone happy with the cup size they were able to get with Diep? I met with my PS, he said he will be able to make me a B cup. I'm currently a C, but that's due more to weight gain, I was always a B, then I gained weight with menopause (it was the first time I ever had clevage, lol). I was kind of hoping to stay a C, but with a smaller tummy I guess the B won't be bad.

  • Thimbleberry
    Thimbleberry Member Posts: 27
    edited July 2014

    Hi, I am new to this sight, but not new to cancer and reconstruction. I had a failed silicone implant due to poor wound healing after radiation. The only option I now have is some form of flap surgery. I winter in Arizona, and hoped that someone could give me advice on which plastic surgeons to consult in the Phoenix area.

  • aff
    aff Member Posts: 279
    edited July 2014

    I saw my PS yesterday. He is a man of very few words (excellent when I have questions but not much of a conversationalist). He's very happy with the abdominal incision and believes that my flap is holding up very well to radiation. I won't see him for 2 months which will be a month after I finish rads. Let's hope the next 17 sessions are as uneventful as the first 11.

    I had a teeny, tiny hole right in the middle of my abdominal incision. It never got any bigger or oozed anything and I knew I had an appointment yesterday so I didn't worry too much about it. I assumed that because I was pulled so tight it was the spot that would give, if any spot was going to give. However, when I massaged the scar it was always the area that was the hardest. I figured it was just scar tissue forming. Well, when I showed my PS the tiny hole he reached in there with tweezers and pulled out the end of a stitch. He kept pulling until he pulled out about 2 inches of undissolved stitches. No wonder I had a super hard spot right under the scar. That darn end was trying to poke out through that tiny hole, but never made it all the way through.

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