The hardest part about cancer
Comments
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I know what you're saying. When there's a big group sitting at a restaurant you can't talk to everyone. Is your avatar your diva? She's beautiful. I have to confess, my poodle never looked as cute as the one I posted for my avatar. Shhhhh, don't tell anybody!
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Yep, that's Spookie. On her 3rd birthday, just back from the groomer, on the coffee table.
Seems like the Tampa ladies are about recon. I'm not. So less in common there.
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hi barbe- Join meetup.com You can meet plenty of people. But, you may have to drive a bit. They do all types of fun stuff
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A lot of good points brought up. Sometimes when we are diagnosed past friends treat us like we have leprosy or it's contagious or something! Also, transient residents (snowbirds) may not be the best support, either. My best friend for years was 25 YEARS older than me! We had a hoot! At my bookclub I am one of the youngest but I love the reactions and thoughts from the older generation. We are all reading the same book so it makes it interesting. I don't talk to my neighbours - I live in a "lifestyle" community (retirement) and they are just too old and keep to themselves. Depressing. Makes me worry about when I get old. One neighbour does to go an art group but it's full so I can't join. Doing the same thing helps bridge that discomfort of getting to know someone so the book club was good for me. I joined a photography club here in my community but have never fit in. I take fab shots and all, but they go on day trips through the week and I work.
I just don't know what to say to people I meet unless we are doing the same thing (quilting, book club, etc).
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Oh, meant to add...at one job everyone was having jewellery parties. I was invited to them all as they knew I would "suck up" and buy at each one. I didn't bother having a party of my own as I KNEW no one would come and didn't need the slap in the face. I think they were very, very surprised that I didn't attempt to even host one! Then of course, they probably thought I didn't have a nice house or something....sigh.
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I guess that's why the dog park works for me. Dogs are the one thing I'm truly interested in. A bunch of like minded people watching them play. Some of them do extend into getting together out side the park. I don't get into that scene. I'm not asked, usually can't afford. I've noticed when cliques form, they don't last, feelings are hurt, and they don't come back to the park. Not fair to the fur kids.
Most there know I've had ca. I'll talk if they ask.
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And Barbe, ditto me on the parties. I hate them, very very seldom go. Usually over priced junk! And I WONT host them either, same reasons as you.
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I have no energy right now to go seek out NEW friends. The desire is there, just not the motivation. I will though look into the local support groups nearby. I think I've been in denial somewhat.
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A support group could be a good thing. If you can find one you are comfy with. My center ran one, it was nice, but not a good fit for me. I'm sure there were more around here, it took a lot of effort and energy to go. Do you have a hobby? That might be an option too.
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My hobby lately has been working. I thought about going to Curves or something like that. I want to get exercise mostly.
One of my things that I thought I would do when I became semi retired was to go to a charcoal art class and or cooking classes. I can cook, but I would like to learn more about seasons, sauces etc. I used to love to draw up until my mid to late 20's. I wasn't bad at it. I'm 53 and I have a high paying but high stress job. So I thought I could do this another 5-7 years and then do something fun for a job!
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Well, I sure know how it feels alone and not having alot of friends. In the beginning of my dx I did have an outpouring of support from friends, people from church, and even acquaintences. It was quite overwhelming and left me feeling blessd. However, alot of that dies down after initial dx and after the shock of dx wears off to the reality of what is happening, it starts to feel lonely.I tend to not really trust or even like people, I know that sounds awful but it is true. This forum is helpful for someone like me because I can interact with people and still have space. However, I am planning on going to a cancer support meeting at my church. I've also found that I have had to reach out more to people for some help, which under normal circumstances that would never happen.
Alienwish-I'm sorry you are feeling so alone. ((hugs)) I think alot of people on social media(aka FB) can easily say "praying for you" and move on like it is nothing. It can be hurtful and I've experienced that too. I had a "friend" beg me to let her be a part of my treatment and she just wanted to be there for me....she came over once and I've not heard from her in months.
I guess I'm rambling, just want you to know you are not alone. This forum can really be a lifesaver and I've found alot of support and love here.
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Part of my problem is that I down-played the diagnosis so my kids wouldn't worry too much. Two of them were getting married the following year within 5 and 8 months, so I had a double mast rather than be the "poor" mother wearing a wig!! What we do for our kids.....
I mentioned my cancer once and my DD jumped on me with a scathing "That's pitiful!" (for playing the cancer card). My fault.
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I couldn't stand the "looks" I got when people found out I had cancer. It was pitiful. I wanted to shake them and say... "I am not going to die- stupid". lol. I prefer not even to talk about my circumstance (cancer free now- just cosmetic at this point)- I can't stand those looks. Then people think of you - as a disease versus a person. Secondly- sometimes women can be passive aggressive. The most supportive people were men (besides my PS - in which I fired and got a new one).... just their kindness. I found women got pissed that I didn't go into details. So weird... I am a person with a life first and the disease is just something happened to me along the way....
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...is knowing i have (had) cancer. i wish i could get it out of my brain for one day.
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i have lost my two best friends in the last 5 years to two forms of cancer, and i am seriously mourning the loss of them. they liked me! and i loved them! they were awesome, and i let them lead the conversation, if they had a day they wanted to talk about cancer or not. the were both fun-loving, and i am just not doing this as gracefully as they did. they were close enough that i could walk to their house and knock on their door, and they would call me up and knock on my door. i just miss em.
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kathec- Your not doing it as gracefully as your friends because you don't have as good as a friend as you were to them... I am sure you changed their life and enhanced it and helped them handle things gracefully.
I hope that helps..
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Oh man Kathec, I can only imagine how you feel. To have not one but TWO close friends succumb would make me weak too. I have not had to deal with much cancer in my life, but what I've seen (My dad with mesothelioma and my dear mother n law w/ colon cancer) it was not survivable. I know I have something totally different, but I am feeling blue over the place I am right now. Sometimes the tears just flow (always when I'm alone). I have to have another scan on Monday. I had a small node on my lung in my pet scan and the MO said she didn't think it was anything because it looks like a scar, but she wanted to wait three months and do it again. Now I'm just tired of the treatments and now gotta do this. I'm worn out with the tests and the results and the roller coaster. I'm pissed that I have to deal with this. I feel it's going to be ok, but I have to get through the next week. Friday is my first Taxol treatment. UGH!
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it IS a pisser, isnt it? thank you both for responding, i didnt think anyone was here on saturday for some reason. its like, i made it through treatment sort of in one piece, but am really falling apart now, and feel like i better get a big basket and a scraper, so my boyfriend can scrape me up and put me in it, a true basket case.
my pre- surgery pet scans showed lung nodules, bony islands, and schlerotic lesions in my bone. and then i did one last week, and no mention was made of these things. are they gone? was/am i stage four? and then i feel like my docs are not being honest with me. i am planning on getting my port out, and just being done with them, and finding a new place for follow- up.
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I had lung nodules appear on my first PET scan, they followed up with CT scans every 6 months for about 2 years and let it go. most people will have lung nodules from previous lung infections. I was diagnosed with bronchialstasis (sorry spelled it wrong) and since then nobody pays any mind to the lung nodules. This last PET showed a new nodule but nobody is really worried about it, I will go for follow up CT eventually just to make sure it was nothing. But I also had bronchitis a week before the PET so I wasn't surprised that something new popped up.
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basia, it sounds like you are in good hands, and that they at least wanted to watch you closely, with ct scans. i had to practically beg mine to do one, as i was curious. and then the last time i saw my new breast surgeon, she reminded me that femara would plunge me into instant menopause.( that i already had, 7 years ago.) so i wonder if they even read charts at my place.
if i am entirely honest, those women were just really good at friendship, and i just don't think i am as good. and i don't think i even know how to anymore. but it does make me feel better, to come here and read, and get to know some of the women here, better.
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that is really reallystressful kathec. Sorry to hear this. Like you mentioned nobody is concerned- but, I am sure it would make you feel better if there was nothing on the scan....
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I guess some of you are right. I need to deal with my emotions before worrying about friends, but I always thought that having friends helped make people happy. I've hit an emotional patch -- and PMS is making it worse -- so I've been angry and crying the past few days. I'm already on an antidepressant. The thing is, I know I'm going to be fine. I'm not going to die. It's all treatable. I just feel sorry for myself because my sisters and brother don't care. I don't get cards, flowers, phone calls, etc. My parents, though, have been angels and my mother bends over backwards for people in need, including me. So, I know I need to focus on them. Without them, I don't know where I'd be....
I have surgery tomorrow -- to remove breast tissue and have lymph nodes tested for cancer. Wish me luck.
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Aha. I understand a bit more Alien. Your sibs don't "have" to care if your parents are still alive!! They let Mom take care of you. Both my parents are dead and my sibs didn't step up to the plate.
AND, friends don't make you happy. I'm one of the happiest people I know (though extremely stressed out!). I don't need someone else to make me happy. It's not their responsibility, it's mine. A lot of people didn't believe I had cancer as I was so calm about it and stayed my happy self. Then I returned to work dead flat and they believed me! Doctors sometimes don't take me seriously as I don't tend to whine and complain.
Good luck on your surgery tomorrow, keep us posted. Wake up HAPPY!!!!!!!!
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Barbe, you're right. I think it's just a phase. I need to use this situation to build up the strength I never knew I had. I'll wake up tomorrow knowing that I'm one step closer to being cured. Just get those nasty cancer cells out of me!!!
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AllenWish,
That's a good way to think about it. I'll be thinking of you tomorrow and praying all will be well!
((((Hugs))) from another Florida nerd.
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Kathec you have been a good friend to me on here.........xx
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lily55, how could i not? you were very honest with your feelings about what you were going through, and i just wanted you to know that some one cared, and that someone in the whole wide world, cared. You have had a tougher time than many, and your being so up front about yourself, made me realize some things about my self, too. so thank you.. alien wish, i know it sounds kind of silly, but please go and look up chemo angels. there are some people there who will send you cards, and they do care, and it is for people who are going through this with no one to encourage them. i felt for me, like it wasn't for me, but really? it made me happy to see something in the mailbox besides bills and junk, and it was kind of fun, and, it got me up off the couch and gave me something to look forward to. i enjoyed it much more than i let on to my boyfriend, who sweet man that he is, wanted to be the only thing i needed. And the women here, who really do get what we go through mentally and physically, when you just don't want to scare some one closer to you.
what barbe has said is very true. i have been pretty happy in my life, even with some awful things, i think i was just born that way. i am telling you, if i could make it through, i KNOW you can, and good for you for finding all the great women here, so early in the game.
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Kathec,
You have been lovely, thoughtful and welcoming to me too. You ARE a good friends. Please don't put so much pressure on yourself about this. You have had and are still having a tough time. Be very kind to youself. X
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WEll said Wintersocks - this came up`on facebook for me today and I think it is so true, we were all mega stressed when diagnosis and then the treatments etc, we need time to settle and of course we re-assess, people I thought were friends I now realise were stressors........and I really am working on de-stressing and not getting stressed in the first palce, that should be written the other way round. I think i am 100% better than I was pre diagnosis.....
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I had a great inspiration message sent to me this am. I was at the pet store and truthfully kinda feeling sorry for myself that I am having a 9th surgery soon. I shed a tear or two on the way and brought my dog into the store with me.I saw a younger man in a wheelchair... 40ish . I didn't stare but did glance. He left in his wheelchair.... I thought.... hmmm who is driving him??? He opened the back of his car and slid down a wheelchair ramp and he rode up it into the front at the steering wheel and drove away... It looked like a little sports jeep... Messages from god come in different forms.... this one told me you can still live your life even if there are or is a big obstacle....
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