June 2014 Surgery Sisters

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  • ojoyjoy
    ojoyjoy Member Posts: 110
    edited July 2014

    Ally, thanks for your support, kind words and for bringing a smile to my face. Working on that river as I type, lol. ((Hugs))

  • Margie7121
    Margie7121 Member Posts: 19
    edited July 2014

    Dear Trish

    I am having the same problem.... too scared to get on the scale!

    I have picked up weight during my chemo but I am pretty sure this is the same with surgery namely due to the fact that I was not that active for the past 3 weeks! It hurt too much to just even breath needless to say to do any exercises! But the pain is getting better now so maybe I should just get my act together! I am just so so happy for my hair has started to grow out after chemo, wow a whole half inch of hair has appeared over the last week!! Can not wait to have a hair do and be able to comb my hair and not having bald anymore yeah, I massage my scalp every morning with the hope it will grow out faster, my husband says it looks as if I am trying to pull the hair to become longer... !!!!

    Again thanks to everybody for their kind words of encouragement thru this whole ordeal that is what makes this group so so unique and amazing, we stand by each other and comfort each other no matter what else goes on in the world! We as women are strong and we will make it thru this together, always always remember you are not alone, this is what helped me a lot knowing that there are other ladies going thru this as we speak and whole lot more before us and there are a great deal of survivors out there, why can´t we be part of the survival rate and getting back to having a normal life after all of this, yeah sure our bodies will never look the same again, but it is not what´s outside but what´s within our hearts and personalities that counts! Nobody gave us the insurance it was going to be easy, but life never throws something you can not handle, we will all come out on the other side better, stronger and more beautiful!

    I have found in the past week that doing my arm exercises has helped a LOT with the pain and numbness so I am doing it 3 times per day, where I could not move my arm and now I can even start to use it slowly and with caution

    Sending everyone a big hug, wishing you speedy recovery and loads of positive energy and you are ALL in my prayers!

  • Ally2345
    Ally2345 Member Posts: 320
    edited July 2014

    ojoyjoy-  Soon it will be laughter through tears because I can tell you are strong and that you have a great sense of humor...humor will prevail!!  You are really doing so well given all that you are dealing with so just hang in there and take it slowly!!  

    Margie7121- I bet you will feel even better tomorrow!!  Keep doing those exercises. Slow and steady.  More important to do them each day then a lot one day and stopping because you hurt too much!  I know that they have helped my range of motion immensely plus I just generally feel better.  Keep us posted and take care!!

    Ally

  • Luvadancer
    Luvadancer Member Posts: 7
    edited July 2014

    June 6, 2014 Lumpectomy

  • worryocd
    worryocd Member Posts: 41
    edited July 2014

    ojoyjoy -  Glad to read you had a great pathology report.  It must feel so good to be free from drains! :) So sorry to hear about the ordeal with the drive and the pain meds.  I also had constipation....the worst I have ever experienced.  I agree that the constipation can take a big toll on a person.  This whole process is an emotional experience.  So cry it out.  I had a bad day yesterday, felt depressed.  Every day should get better and better so hang in there!  Sending positive thoughts and prayers your way!  :)

  • Purplegurll
    Purplegurll Member Posts: 135
    edited July 2014

    Finally got the pathology results I had been waiting on. Now I wish I had not been so eager. Originally thought 1.4 cm in actuality 3.0 cm and involved 3 of 6 lymph nodes. Final staging I guess is II b. Chemo and possibly some radiation. Was holding out some hope that surgery alone would do it for me. I would have to say, not one of my better days. 

  • Wizard50
    Wizard50 Member Posts: 113
    edited July 2014

    Sorry to hear about your pathology results purplegurll.  I got my results yesterday and they were not what I wanted to hear either.  My final staging is 1b.  Initially I was diagnosed as stage 0.  All tests showed DCIS so I'm a little freaked out that the mammo and MRI never showed  any invasive cancer. 

    I continue to send positive thoughts and healing prayers to all you lovely ladies :)

  • jbdayton
    jbdayton Member Posts: 700
    edited July 2014

    I am so sorry you ladies are getting path reports showing more involvement than originally suspected.  

    I pray you can relax and breathe deeply and regroup.  Your treatments may change and not be what you wanted but I know you will fight for your best results.

    Keep us updated.  I will be praying for your comfort both physically and emotionally.

  • Ally2345
    Ally2345 Member Posts: 320
    edited July 2014

    Purplegurll and Wizard50-  Darn it!!  I am so sorry that the path reports did not come back clean.  Well, as jbdayton said, deep breath and regroup.  Now you know what you have to deal with and can develop a plan to kick its ass.   Know that we are with you both and sending lots of positive thoughts and prayers your way.  Keep us informed and remember, "you are braver than you believe and stronger than you seem" (just a little Christopher Robin to Winnie-the-Pooh...some days I need to channel my "inner pooh.")

    Hugs to you both!

    Ally

  • turtle42
    turtle42 Member Posts: 139
    edited July 2014

    I'm sorry to hear about the path reports. Mine wasn't what we expected either but it makes me feel so much better about my surgical decision. Nothing showed on my mammograms 8 years ago when this all started for me. At that time I chose lumpectomy. Fast forward to now and I just couldn't shake the feeling that here was something going on even tho mammo was clean.

    Never underestimate your strength. Sending lots of positive thoughts and prayers to you!

    Jackie

  • HopeEllen
    HopeEllen Member Posts: 37
    edited July 2014

    Purplegurl and Wizard50, so sorry that your pathology reports weren't what we were all hoping for. Sending you big hugs and positive thoughts through this process. Cancer really sucks! Makes you just want to scream sometimes. 

    Keep us updated and we will be praying for you. 

  • SullivanSF
    SullivanSF Member Posts: 13
    edited July 2014

    Wizard50 and Purplegurl Im so sorry your path reports werent what you were expecting, my heart goes out to you. Sending you extra kicks for cancers ass from San Francisco. 

  • kfinnigan
    kfinnigan Member Posts: 1,729
    edited July 2014

    oh poo on the path reports that you didn't expect.  Been in your shoes, but we are all here for you and you will get through it.  Sending strength and we are in your corner!  Big hugs

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited July 2014
  • trish01254
    trish01254 Member Posts: 128
    edited July 2014

    Stay strong Purplegurl and Wizard50.  My thoughts are with you.  Scary how things can change even with all the pre-surgery tests/biopsies.  I'm kind of regretting not taking care of lefty at the same time.  Best of luck to you both.

  • thinkpink4ever
    thinkpink4ever Member Posts: 205
    edited July 2014

    Purplegurl and Wizard50, sorry to hear that the path report results were not what we hoped, but please know that we are still praying for you both.  Stay encouraged!

    I went shopping for some soft bras to get me through the next couple of months until my Stage 2 surgery, but no luck.  And the one bra I tried on depressed me because it really showed how different the size of my breasts are.  Oh well, I guess I'll keep wearing these soft surgical bras until September.  In the whole scheme of things, it's really the least of my worries...

    Happy healing, surgery sisters!

    One love,

    tp4ever

  • jbokland
    jbokland Member Posts: 890
    edited July 2014

    Our  path reports are never what we want or expect. What keeps me sane and grateful is knowing it can always be worse.  When you need perspective, read our other sisters' situations that are far worse and offer them some strength that you didn't know you had enough to share. You will find more.  Shared strength is doubled strength !

  • Frostecat
    Frostecat Member Posts: 447
    edited July 2014

    Trish - I have regrets too, like I told you before, I have buyers remorse.  But I'm still holding on to the fact the my Dr's told me I didn't need a BMX  . . . time will tell.  Looking forward to my next surgery that will include exchange and a lift/reduction.   The hardest part is now, and I'm hoping when it is all said and done, I will ultimately be happy with the decision I made.  Keeping fingers crossed.

  • turtle42
    turtle42 Member Posts: 139
    edited July 2014

    Just curious, has anyone found any bras that are comfortable at this point in their recovery? I have 2 from the hospital but they go down too low and bother my ribs. I tried some sports bras but haven't had any luck. 

    Jackie

  • kfinnigan
    kfinnigan Member Posts: 1,729
    edited July 2014

    turtle/Jackie, I haven't been told to wear a bra yet, still in ace bandage.  Did your PS say to wear one now? 

  • Frostecat
    Frostecat Member Posts: 447
    edited July 2014

    A lot of the ladies from the March board with BMX like the Genie bras. 

  • linda505
    linda505 Member Posts: 847
    edited July 2014

    Genie Bras are great for going through this stuff.   I live in mine - got them at walmart in the "as seen on tv" section usually towards the entrance.  Walmart also carries these

     http://www.walmart.com/ip/Simply-Basic-Women-s-Fu...

    They were in my bra section at walmart and are less expensive than the genie bras.  I bought some of those also and they work well.  

    The genie type bra has been great going through the fill process as they expand as you do and they seem to help with the discomfort.  I usually wear them at night to sleep for a few days after my fills also - it helps me alot.

  • linda505
    linda505 Member Posts: 847
    edited July 2014

    Oh forgot to add - the other thing that is great about genie bras is that you can step into them and pull them up - really great when you are still having discomfort raising your arms and when you are still restricted from doing that!!

  • HopeEllen
    HopeEllen Member Posts: 37
    edited July 2014

    I'm with you ladies on the Genie bras. I had some before surgery and love them more now. Easy to get on because you can step in them. I wear them pretty much 24/7.  For doe reason Bed, Bath and Beyond has genie bras too and you can use the 20% off coupons.  

    I had my first fill today and it went well but tonight I'm pretty uncomfortable and feel like my boobs are in my throat.  I had just gotten comfortable sleeping again but not tonight 😊 This to shall pass. 

    Hope everyone has a great weekend! 

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited July 2014
  • Helenna
    Helenna Member Posts: 86
    edited July 2014

    Purplegurll and Wizard50- also I want to send hugs on the path report. No one needs surprises on this journey but lots of support here when you need it.

    worryocd and ojoyjoy  I hear you guys on the constipation, why don't they warn us about that more? all I can say is it was awful, I cringe just thinking about the pain I had.

    Do you guys still have the surgical tape on your incision? Mine is falling off at both ends so I trimmed it a bit but is mostly still tight as can be despite showers and soapy water. I know I'm not to remove it so just wondered.

    Sending best wishes and healing vibes to all my June surgery sisters. xoxo

  • Purplegurll
    Purplegurll Member Posts: 135
    edited July 2014

    Hi all,

    Hope everyone's surgical recovery is going well. I actually feel very good but can't wait to get rid of these drains from my 7/2 surgery, hopefully on Monday at my PS appointment. I'm wondering if they might also do a fill that day. I remember her telling me they put in some fill the day of surgery but not how much. I am not wearing any bra, just a light bandage covering. My appetite is slowly coming back. Friends and neighbors have kindly brought so much food to our house and I've been not able to eat much though my family is certainly eating well! By the way, all those comments about constipation following surgery are 100% on target! I won't forget that again any time soon!

    I will meet with the oncologist this week. I always felt like surgery would be the "easy" part of this journey for me. It was the possibility of chemo that frankly scared the crap out of me. Being triple negative with lymph node involvement I assume they will recommend chemo. I've started looking at the chemo threads and I am more apprensive than ever. I believe that knowledge is power but sometimes being oblivious can have advantages. Some things I knew to expect - hair loss, nausea - but others I did not. I hope and pray that none of my June surgery sisters will have to go down this particular road with me but if you do, know that I will be there to assist and support you. With big hugs to all.

  • KLJ
    KLJ Member Posts: 284
    edited July 2014

    Good morning June surgery girls! I'm not sure if I have posted in your group before but after reading your post Purplegurll I thought I would re-post the advice my BS gave me about constipation. One full glass of room temperature prune juice. If that isn't effective after a bit make a "White Cow". A glass of room temp prune juice with a shot of Milk of Magnesia. I never had to resort to the MOM. It's something to do with it being room temp! It worked like a charm for me and I never suffered with constipation. Hope that helps and hope you are all doing well!

  • KLJ
    KLJ Member Posts: 284
    edited July 2014

    image

    I couldn't resist a little humor for you all the morning! Hope it helps you smile :)

  • Purplegurll
    Purplegurll Member Posts: 135
    edited July 2014

    KLJ, thank you for the humor. That was great and so appropriate! Could have used your prune juice cocktail a few days ago :))

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