June 2014 Surgery Sisters
Comments
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I had one sore throat, one not, and one possibly chipped tooth. The one no sore throat surgery I talked to the anesthesiologist beforehand and she said she would use a smaller throat tube. That worked for me.
No showers for me till all drains out.
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I wish more women came to us here before each phase of their journey. Before we are educated, we often have an unrealistic view of what's going to happen. I can't count the number of times I've heard women say, "Well at least I get a nice new set of perky boobs out of this." They are shocked when they wake up and don't look like the "boob job" pictures we are used to seeing. The implants are so weird looking for the first days and rarely do you find someone who is pleased by what she sees for the first couple of months.
Women yearn to be normal again as soon as possible...but the truth is, you will never be the same. You've just gone through a life changing experience and it may not be over yet. Things do get better and you find your "new normal." It takes some of us longer than others. Personally, I've had plenty of depression and had to learn so many lessons the hard way. I'm not always happy. Sometimes I think I can't face another surgery, even though I know it's necessary, because no matter what the PS does, I'll never be the same as I was before breast cancer hijacked my life. When it has gotten too hard, I've gone to see a counselor and little by little have learned how to screw my own head back on straight. Sadness is normal. Depression, tears, anger...they are all normal and you don't necessarily go through them once. The ups and downs seem to come too often and last too long. All we can do is stick together and try to support each other, understanding that each of us has to find a way to deal with our new normal.
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sandra4611 you are so right about everyone being different. We are all different stages and have different doctors with different treatment options depending on where we live. Looking at this board is very educating because it gives us all so much information but we also have to learn that everything that happens to another sister may not apply to everyone else. It's always good to take a step back and reevaluate your situation. Thank you for your knowledge and insight.
Tomorrow is a week since my surgery and I'm feeling very good considering what I've been through. Yes I'm still sore and very bruised but I don't feel too bad. My third night home was not a good night and I had a lot of pain after having the drains removed that day but since then, I've felt much better. I've been very fortunate that friends have brought dinner in every night and either my mom or sister-in-law have stayed with me at night because my husband went back to work on night shift. Other than taking a couple walks down the street, I've done nothing but rest and relax.
It will definitely be a while before I get to my new normal but I'm feeling very positive and know I can get through this.
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well said Sandra. Hugs to all that need it. I see my PS on Wednesday, hope I lose some of these drains. Having trouble sleeping, just hanging in there and watching lots of tv. I'm also on Facebook if anyone is interested. Made really close friends over the last six years from these boards.
Purplegurl, thinking of you tomorrow!
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Very well said Sandra! If one more person says to me "well at least you get a free set of perky new boobs" I think I will come unhinged. I was just thinking today that I wish my PS would have shown me pictures of what I was really going to look like after surgery. And that he would have explained the possibility of the "fat" that is now off to the side of each expander. Which, by the way, I am now being told that it is a completely different surgery to remove that and another scar. I'm not mad at him and I know that things can change dramatically after the exchange but I look at myself and I see misshapen breasts that are as hard as rocks and shaped nothing like a natural breast. Maybe I need to see a counselor! I think a lot of my sadness is also coming from the Femara (generic whatever it is) that I am taking. Really messing with me. More tears since taking this med. Sleeplessness and hot flashes! So, I dare the next person that say something to me that thinks this is a cake walk! Rant over -
thank you Sandra and all who have offered me kind words. I got thru today *without* starting out crying in the shower and continuing on and off throughout the day. Tomorrow is my 1st day of counseling and my 1st TE fill. Trying to take it one day at a time.
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Kfinnigan - glad your recovery seems to be going well! Only a few of us at least this month doing the lat flaps.
People think I'm nuts to have worked today and going in tomorrow too, but honestly it helps to keep my mind off Wednesday's surgery. Had a nice visit from friends tonight bringing food by for my husband and kids later this week.
Marren, thinking of you and wishing you all the best on your surgery tomorrow.
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Hi! Thanks Sandra for those helpful words! This is a great support system. So glad I found you ladies.
Marren-I wish you the best with the surgery and a smooth recovery. Your in my thoughts and prayers. The days leading up to the surgery were very busy for me. So I didn't get the chance over-think. The hardest is going to the hospital. The time flies and you will be in recovery!
They will take good care of you!
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Oh my gosh! Tomorrow is July 1st - I didn't realize. Where has this month gone? Well, let me pull the Pink Bus out of the garage and gas it up so we can escort Marren to the hospital tomorrow morning. I'll bring comfy pink PJ's and slippers for all of us. Good luck Marren!
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aw thanks ladies, your all so sweet. I really appreciate it.
I'll let you know how it goes.
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Sandra
@ing pretty and perky??Maybe my pain meds are making me crabbier instead of the other really bad word......I'm more emotional than I thought I'd ever be to people. This frustration and anger and some kind of insanity has taken a few months to build up. I know I'll never be the same. I'm ok with that. Didn't think I was going into a beauty pageant. I knew I wouldn't be perky or ever even remotely look like I did before. I have 1 very important thing to be thankful for. My Life . But I'm dealing with all of these cry/ laugh....crazy woman feelings a day at a time, or sometimes I find myself dealing a few minutes at a time. Thanks for listening to my rant. I'm so greatful to be able to come here and read, Learn and support one another. Think I'd be totally lost without this forum.
I hope I haven't posted this in the wrong place.
Marren
Your in my thoughts for a successful surgery and speedy recovery.
All of you other wonderful surgery sisters your all in my thoughts still.
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Marren the bus just stopped by and picked me up. I have pink lemonade and pink pinwheel cookies for our mid morning snack.
Prayers for smooth sailing through surgery and recovery. See you on the other side.
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I'm aboard with pink confetti to celebrate Marren's successful journey!! Woot! Woot!!
Ally
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I will have pink flowers for our hair! Good luck to Marren! We are praying for you!
Sammy, I'm right there with you. People truly do not know what the heck to say, and it can set off a fit of sort depending on our state of mind at the time. I've been hearing the tummy tuck and perky boob comments for awhile and yes, it sucks! Little do they know that we are blessed to be alive, and the fact that we have to slowly stretch out our torso when we stand, that we have to deal with shooting pains throughout our breasts and abs without notice, that we can't reach for things without considering that our ROM is not quite back yet, etc., etc., etc. etc. means nothing to them. They can't even relate! Yet, we just keep on keeping on, through the tough times, because we are warriors determined to win this battle!
Stay encouraged friends! Yes, we are blessed!
One love,
tp4ever
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hi ladies, checking in. Seem to have my meds under control which has helped with the pain management. I had a pounding headache for a couple of days and then it dawned on me I hadn't had any coffee for a few days, yikes. Caffeine headaches are the worst....none of the narcotics I've been taking helped. Yesterday I started back up on coffee and headache gone! I'm pretty sore and tight. When it's time for my meds I'm ready. The Valium is helping with relaxing the muscle. On Sunday I took my bandages off and had a shower with the help of my cousin and DH. That felt wonderful and cannot wait to have another today. My chest looked good considering. I didn't know what to expect but the expanders looked like they were in the right place. They put 100cc in each one....not sure if that is hi or low for the first fill. I did get my TE card that has all my info. It says recommended max fill at 400. Wondering if that will be enough? Guess I'll have to start posting questions on whippetmom's thread. Every time I get up to go pee I make sure and do five to six walking Laps around the house. I'm trying to focus on the big picture as how I look now will change.....trying to keep the bigger picture in mind. I guess it's good seeing myself didn't make me sad or have an effect one way or the other. All in all I think I'm doing pretty good just 4 days from surgery. Hope this finds all you sisters well...we all kicked some major C butt this month! xoxoxo
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sending healing hugs to Marren!
I have pink star shaped sunglasses for all of us, it's another scorcher here today!
Purplegurl, I worked last Monday and Tuesday also!
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ojoyjoy- You seem to be doing great!! I think the coffee deprivation headaches have happened to others so you are not alone there! I had 150ccs at the time of surgery but that amount depends on the TEs, the condition of your skin, the amount of breast tissue removed, etc. In other words, everyone is different. Great job doing laps when you get up to pee..every little bit helps. Just keep healing and take it slowly! Let us know how you are doing and know we are rooting for you.
Ally
PS IMHO, the expanders always seem to look ALOT better once you get several fills so don't pay much attention to them now!
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I agree...sometimes they move under your armpit!
I have 800cc and they are being deflated to 250 tomorrow. ugh. I will post before and after shots
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Ojoy, sounds like you are doing fabulous! Good for you girl. Keep us posted.
Purplegurl it's your turn tomorrow! I know what you are going through...we all do. But we KNOW you will get through it ok and be back with us soon.
OK Everyone...it's our last trip on the virtual Pink Bus of support tomorrow morning. I want everyone to jump on the bus with us and we will party all the way!
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On June 24th I had replacement of the Right TE. We could tell it had been affected in some fashion from a car accident I had. I was the driver and the impact caused an amount of force that the Right TE was moved. We could tell it moved by finding the port had moved.
When my PS went in to replace it, he found that it had pulled most of the TE stitches and the TE itself was damaged to the extent it would leak with specific pressure. All in all, I'm thankful it was replaced and to get back on track. Today the drain was removed and first fill will be next Tuesday.
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Hi all,
It's hard to believe my turn is finally here. Worked half a day, came home and went for a walk, friends dropped off food, now running a few errands with my husband and then planning for another walk once it cools down outside, followed by a shower. That should take me to around 11:00 tonight! Up and out bright and early at 5:30 to arrive at the hospital by 6:00 for pre-op stuff. Then surgery at 10:30. I'll be wearing my pink feety jammies and look forward to meeting you all on the other side tomorrow. Take care everyone and thank you so much for your support!
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hi all. I had surgery last Monday and doing great. The CT scan came back negative. I stayed 2 days in the hospital and have my apt with the PS tomorrow. Hope I get the drains out! Have really had no pain with the breasts at all but one drain is VERY sensitive. I just want to sleep on my stomach! Oh I did tell the surgical oncologist that I did NOT want that shot in my nipple for the nodes and they waited till I was asleep. They took 3/4 nodes and all were negative! Tumor was 1.8 but only 10% still had cancer. I think and hope I'm done now forever!
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Purplegurll Sending you best wishes and good vibes for a smooth surgery tomorrow! Sounds like you have awesome friends and good husband, those will help you get through this trying time and back to living life. Will be thinking of you tomorrow. xoxoxo
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Purplegurll hope things go well for you tomorrow!
Sweetjam great news on the ct scan and your clear nodes
Kendra
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Sweetjam - good to see you back and that the scan was negative - had been checking in here to see how you were doing. Good luck today purplegurl!! Hope everyone continues on the path to recovery!
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Good luck purplegurll, hope for a speedy recovery!
I wanted to offer to any of you ladies, I have an extra set of pink pockets. http://www.pink-pockets.com/ that I would be happy to send to anyone that would like it for free. I bought the set of 5 and only used 4 of them. PM if you'd like the extra one I have left.
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Thinking of you today purplegurll and praying for a successful surgery. See you on the other side.
Ojoyjoy glad you are doing well and looking forward to hearing from marren that she's doing well too.
And mulligan, Pink Pockets are great for the drains. A friend gave me some and it made the drains much easier to deal with. Anyone who has surgery coming up should definitely get them.
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Hello ladies! Checking in after surgery. I had a reexcision lumpectomy with SNB on the 18th. I see my MO tomorrow to find out what comes next. The surgeon said 6 weeks of radiation...I guess I'm doing fairly well. I have a lot of swelling, fluid and a considerable amount of burning pain in the breast and down the back of my arm. The burning areas were initially numb with some numbness down to my fingers. After a couple of days there was just numbness and about a week out the burning started. I was released to return to work and did okay, but these painful areas are very sensitive to touch, even my clothing touching them. Pain meds and ice packs don't help. When the pain starts to get worse, I start with the "poor me," and all the emotional garbage that goes along with having cancer. All of this makes working a real ordeal. I'm wondering if any of this is expected? Temporary?
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hello,
I just got home from the hospital a couple of hours ago. I'm doing pretty good. Thanks for the tips. I asked for the nausea patch, told them I got a screaming headache last time and well This time I didn't .
I also told them how dry my mouth was last time and that didn't happen either. I am dizzy though. So I'll make this fast.
Purplegurl I hope all went well with you too. I'll be checking. I have so many things hanging from me right now. 4 drains and the on Qpump.
I'm doing okay. I'm pretty sore and out of it.
This is kinda crazy but I woke up with implants instead of expanders. Apparently because I had plenty of skin and well whatever I was a good candidate for immediate implants. ??
They had called my husband in the middle of surgery and asked if that was okay. A little dangerous to ask the husband what size...but I had discussed with both PS and Husband before. I wanted the same size. Well what they used to be before kids.
So I'm quite happy. But she did warn me we might have to do some tweaking. But I think they look okay. they are swollen and bruised. But very perky.
Hope everyone's healing nicely
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kitkat - that nerve pain usually improves with time, but of course, more slowly than you would like. I found that if I could put fabric between the skin on my inner arm and my side I did better with that weird feeling. It took quite a while but the only place I have numbness now is the underarm itself and I only notice that when I shave. It is hard to be patient but it will get better. You might talk to your doc about some of the neuropathy meds if it is really unbearable - Lyrica or Neurontin - and some people have some relief from increased intake of B vitamins - by supplement, B-12 and B-6.
marren - what an awesome surprise to wake up with direct-to-implant!
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