Liver mets

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Kiss77
Kiss77 Member Posts: 162
edited July 2014 in Just Diagnosed With a Recurrence or Metastasis


Hi all

Today doc told me that I have liver mets. They saw something suspicious on my liver , the PET said it is hemangioma and today they use more precision ultrasound and found 3 or 4 lesions. Next week I'm going to do ultrasound with contrast and maybe biopsy.  I think the mets were there last year when I was dx., just not enough big to be seen, as my TM 15-3 was 129 at the time of dx and now it is climbing again.  I'm terrified. I just need....hope..I have two kids - 12 and 7 and I have to be there for them. Just ...have to be there. I hate this cancer!

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  • Moderators
    Moderators Member Posts: 25,912
    edited July 2014

    Kiss, we're so sorry that you got this news. We know it's like a shock at first but hopefully once your treatment plan is in place, you will feel better!

    If you want you can also post in the Stage IV forum, where members are so welcoming and
    wonderful, and have a ton of
    advice and experience, which we're sure you can learn from! There you'll find an active thread titled How are people with liver mets doing? that you may want to join.

    We hope this helps. Thinking of you,

    The Mods

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  • Kiss77
    Kiss77 Member Posts: 162
    edited July 2014

    Thank you, Mods!

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited July 2014


    Hi Kiss,

    I am so sorry to hear about the news you've received.  Just wanted to send along some hugs and let you know I'll keep you in my thoughts.

    Bren

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  • dlb823
    dlb823 Member Posts: 9,430
    edited July 2014

    Kiss, I'm so sorry about your situation, although it still sounds like there's still a possibility this is not mets but something else entirely -- like an hemangioma or other pre-existing artifact.  But on the chance there is something going on in your liver, I wanted to point you towards a another thread I came across this morning that I hope will be very encouraging to you.   It's a thread called TheraSphere for metastatic bc to liver, and the post is the one by Bestbird that recaps all sorts of tx options.  I'll try to give you a link to the thread:   https://community.breastcancer.org/forum/8/topic/822329?page=1#post_4067472

    (((Hugs))) and prayers that you get some good news with your additional tests!    Deanna

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  • Karensusan
    Karensusan Member Posts: 15
    edited July 2014

    Hi!  I am sort of in your shoes.  July 1 I was told I have Mets to Liver and Lymph Nodes.  I had DIEP reconstruction in December.  CT scan in November was clear.  January Tumor Markers were high. Than I had PET scan which showed activity in Liver and Lymph node.  Liver was benign and Lymph node inconclusive.  2 and 1/2 months later TM's still rising CT scan showed growth and lymph node biopsy was positive for Cancer.  Dr. Is putting me on Xeloda.  A chemo in pill form that I can take at home.  I am really dreading side effects.

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  • Kiss77
    Kiss77 Member Posts: 162
    edited July 2014


    Bren, Deanna, thank you very much for the support!

    Karensusan, I'm so sorry that I have to meet you here! I'm keep telling myself that everything will be OK. Your liver is fine, right ?

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited July 2014


    Kiss and Karen,

    Sending big hugs and warm thoughts your way.

    Bren

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2014

    Kiss77 - So sorry that you have liver mets. There are so many on the stage IV board that can understand and offer helpful advice.  I recommend posting there as not all look at threads outside of that area.  The "How are people with liver mets doing" thread is great for encouragement and information.  I hope that you will be able to find the treatment that works best for you and kicks those suckers to the curb. 

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  • Karensusan
    Karensusan Member Posts: 15
    edited July 2014

    kiss77 I am trying really hard to follow my own advice PMA (Positive Mental Attitude).  I have several spots on my liver not sure how many.  I am supposed to start Xeloda which I am putting off because I fear the side effects and am gong to my nieces wedding in two weeks. Dr.  said not to wait too long.  So I won't.  I will get blood rechecked two weeks after I start.

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  • Kiss77
    Kiss77 Member Posts: 162
    edited July 2014

    Karen, it looks like you will start the new treatment before me. Keep me posted please how are you feeling. And don't forget to spend wonderful time on the wedding ;-) Maybe we should move to the "How are people with liver mets doing" thread as nbnotes advised. 

    Thank you nbnotes, I have already written in the threat and the girls there are amazing.

    Christina

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  • Denny123
    Denny123 Member Posts: 1,886
    edited July 2014

    Kiss-look for my posts about the liver.  In 2004, my liver was full of mets.  But after 9 months of Gemzar and Hercepton, my liver was clear and has been clear ever since.

    There are a lot of chemos that work very well on the liver.

    Good luck!

    Karen-check out the Xeloda threads.  I have never been on it, but the side effects are usually very minimal.

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  • JeninMichigan
    JeninMichigan Member Posts: 2,974
    edited July 2014

    I am another mets success story.  I had four lesions in my liver with the largest about 4 cms and along with bone mets (ribs and hip) and chest nodes.   I have been NED since June 2008.   I would really want those biopsied to make sure the path is not different than your original breast tumor.   If your her2 status has flipped, Herceptin could be a very good thing for you!! 

    I am sorry for your diagnosis and having little ones makes is just super scary.   My daughters were 12 and 8 when I started and are now 19 & 15!!  

    Jennifer

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  • Kiss77
    Kiss77 Member Posts: 162
    edited July 2014

    Denny, Jenin, thank you so much!

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