INSOMNIACS place to talk in the wee hours
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lol have a great dinner Sass, you are right I found some info on Wheepetmom s tread. Which help, I do think it's all due to my rad.
need to bring it up with the new Ps see what his opinion is.On the other subject, I haven't heard tang,or the others
Have a great meal 🍴
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Hi everyone--I've been busy and lazy today, doesn't differ from other days I know. It got cool outside so we have everything open and it's nice.
Nettie oh wht a mess u'r in--my neice is a lot like u--when her boys were little and got up during the night they were not allowed to flush the toilet even tho it was far from her she wakes up for any little noise and so does her father my BIL
my sister and my BIL do sleep in different bedrooms now --that's the only way he can sleep and now my sister can sleep on her terms too. I don't sleep as well as I used to and I notice I feel not as good as when I do sleep well now--never bothered me before..and sometimes I think it takes our brains longer to catch up with all the crap our bodies go thru for healing, that's just my opinion.
Enerva I'm sorry about u'r furbabies that's tough I think most of us know how sad it is. Chevy has just gone thru this too.
OK I might BBL depending on my nite now LOL
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Nettie, so go sleep someplace the light and DH won't bother you. Spare room, couch, tent with a/c in yard!!!??? DH and I have separate rooms. We sleep much better that way.
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smarty- you rock ! 25 lbs. that's awesome. Keep up the hard work !!!
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Pm'd Jwoo, she's got stuff going on . She'll be back.:)
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Hi ladies...too far back to catch up. A little update:Sunday during church service I started feeling like I was going to pass out. I was sweating, tingling sensastion and tunnel vision. I left church after it eased up and drove to my parents house. DH met me there and I apparently passed out briefly 2 times, they called 911. I was taken to ER and found out there that my WBC was down to 2000. The pumped me with fluids, did CT scans on my head and lungs. Lot's of labs and all that good stuff. Doc admitted me *sigh*
When they did the CT on my brain the doctor saw a spot, so of course they want to do an MRI. I'm panicked, dh and I are scared and we don't tell anyone that night about that. Good news is the MRI was clear.
Now, in the meantime...my left "breast" area starts getting swollen and pink again. They give me the neupogen(spelling??) shot sunday night and put me on reverse isolation. Meaning everyone has to wear masks and gloves. By Monday morning my left breast is huge again.
So, now I'm back on IV antibiotics...cefepime and vandamycin. Tuesday morning doc comes in and says, your hemoglobin is at an 8, you may need a blood transufusion. uggggg...I'm grossed out by this. We decide to wait until this morning to make a decision and sure enough, it dips down to 7.8.
I got the transfusion and I'm home now. I'm still worn out, wondreing how long before I feel anything from that transfusion.
Sorry for the book and probable grammer issues. My bones are killing me too.
((hugs))
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Oh tang...so sorry. Hope you feel better soon. Makes me ashamed of my petty complaints.
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tang sending you hugs. Good night everyone. My sister had her. NSBmx, this afternoon and hopefully she will be ok next will be rad.
I wanted to show you she only got one draínage apparently from France and supposed to take care of both breast. Here they send me pictures. I wish we have that here I had 4, at my mx and 4 at my exchange. 
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Hello Again!
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Omg too funny. I love it. That cat is too sweet lol
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oh tang.....I am so sorry. Hope u have a good night sleep at home and feel a bit better tomorrow. Hugs
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Tang I'm so sorry this keeps dragging on for you. I'm glad the MRI was clear though. Feel better ((((((Tang)))))))
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tang and Nettie, sorry you guys are going thru this. Nettie, it's not petty, we all have our issues.
I love the weight lost but can see a big difference in the girls and they ache now, I think it's from still stretching. My BP was 100/59 this time, so I'm suppose to email the doc. I'll see them next week and just need to slow down some of my moves. (No, I don't pole dance!)
Everybody try to have a peaceful night.
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Tang oh sweetie you've been through the wringer. Please, tell me you have a homehealth nurse? They can do the lab draws at home. They will likely want to test you tomorrow. Not fair to ask you to go in for the test. One unit of blood averages one gram elevation in HGB, so you are still anemic. Probable level no greater than 9. Don't stress yourself by doing much. They want your body to kick in and make blood. Hope they gave you decent pain meds. You have my phone number. Try for no visitors till this passes So, sorry you are going through this L&H&P's sassy
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notself, you expressed how I have been feeling while on the anastozole (arimidex). I lurk but most of the time I am exhausted, in pain or something and just too tired to post. I beginning my second year on ALs and can hardly imagine going another three plus years. Was given a three week break at the beginning of the year and by the end of the three weeks, I felt like a brand new baby. Of course, now that I am back on, I feel like an 80 year old woman. Thanks for letting me know that after treatment-I can get my energy back.Sass- my reconstruction is also a mess. Will have to wait to get it revised because not only am dealing with other issues like a painful foob, etc., but just found out I am pre-diabetic. So disappointed with my lack of progress and all the underlying issues involved with taking ALs. Hope all is well or better with you --your thyroid, etc., and situation. PM me if you wish!
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dwill,
Sorry to hear that you are having so many side effects. The pain is the worst I think. I switched meds and for a month I was pain free. After a month the pain was even worse on the new meds so I switched back to Arimidex. I did get a prescription for just plain codeine which helped when the pain was really bad. I can't take any of the drugs with acetaminophen.
I also had trouble sleeping and would go days with only two or three hours of sleep a night for weeks. I finally broke down and got a prescription for Ambien. Unfortunately, Ambien made me groggy the whole next day even when I was on the lowest dose and cut the pill in half. Now when I can't sleep I take Alka-Seltzer Plus Night. It comes in two pills in a pack and I dissolve one pill in water and that's all I needed. I still use it occasionally.
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Smaarty - that reminds me of the time that Oprah came out onstage in her skinny jeans, pulling a wagon full of fat representing the amount of weight she had lost. These days, I can't even carry the 40 pound bag of bird seed from Costco.. how could I have carried it around on my body for all those years?
4sewwhat - SO CUTE! I want that raccoon AND that kitty!!!
Nettie - please forgive me for not remembering, but have you been through a Pain Management Program? I'm not talking about a short appointment with a Pain doc, but a long-term, medically-supervised, educational and physical program of rehabilitation and pain management. I have a reason for asking.
~ ~ ~
Thought I was doing better by being off the Femara, and doubling up my Synthroid. But this morning, DH and I attended an Obstructive Sleep Apnea seminar at Kaiser, and while I was taking notes, the signs and symptoms all started sounding eerily familiar.
DH snores like a chain saw, stops, gasps for breath, and starts in again. He also yells in his sleep, and has periodic limb movement disorder: punching and kicking in his sleep. His dad has it, too.
However, he doesn't wake up with a headache, isn't cranky, and doesn't fall asleep during the day. I wake up like a bear being poked out of hibernation, my head feels like it's filled with concrete, and today I took a five hour nap and missed dinner entirely.
The Tech giving the class said that OSA was prevalent in post-menopausal women, and those with hypothyroid. There is no longer a need to go to a sleep clinic and try to sleep in a strange bed, hooked up to a million wires.
Today's tests consists of a small wrist unit that measures sleep times and depth, and two finger clamps that measure blood oxygen, pulse, BP, etc. No electrodes, no wires, and you're in your own bed. DH is doing his study tonight; I will be asking for a referral for me tomorrow.
While we have a nice big master bedroom, we finally decided to make the bigger guest room HIS room. He has it furnished nicely with his own things, has a great Tempurpedic bed, can read as late as he wants, and get up early if he wants to. The main bathroom is actually closer to him than the master bathroom is to me.
We both get a good night's sleep this way. This is not a subject that was up for discussion. It didn't matter whether he "liked the idea" or not. His priority was my health. In the end, this arrangement benefits both of us. We can always have our "together time" in the big room, then to sleep, we each have our own beds.
They say sleep apnea can be fatal - I know this because many times I have considered putting a pillow over his face. And I love this man dearly!!!
Stay tuned for more sleep apnea info!!!
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Tang, my heart goes out to you. You've been thru so much. Big hug to you {{{{Tang}}}}.
Nettie, you too have lots going on. I know you've had tests and tried lot of things. But you're still in pain, so something must be going on. You need Doctor House.
Chevy, your pic of yourself is beautiful. It's nice to see your face. Your daughters sure are brave out on the river.
Hope your doing okay tonight after chemo Susan. Love all the animal hug pics you post.
Notself and dwill, I agree with you about arimidex. I will be on it 4 years in August. Every muscle aches and bones hurt, and now have osteoporosis and feel 100 years old. Looking forward Notself to enjoying life again like you are. One more year on this estrogen sucking drug.
Enerva, sad to hear your dogs died. Love your avatar.
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I know I missed a bunch of you and I'm trying to catch up. 44444 your pics make me laugh.
Hi Sas, I'm still feeling yucky from iron infusions. Labs will be repeated after 8th infusion.
Celebrated my 60th birthday over the weekend. I guess now I can officially post on the old ladies thread
)Smaarty, congratulations on your weight loss. Did you post any before and after pics?
Yea, Blessings, your long post came thru this time. Thank you info on seep apnea. So glad I can do the test at home. I'll have to ask my doc about it.
Hope you're doing okay 2nd, miss your posts.
Goodnight all, sleep well.
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Congratulations Smarty! You DID it girl! That is a great accomplishment... Now if I could just DO it! I guess I just don't want to try hard enough....
Nettie, we are all trying to fix you... like notself says....You just gotta try it! Besides, maybe you aren't old enough to realize that all this stuff is not about your DH, it is about you...
You are just like the way I used to be... Afraid to make waves.... But you could just mention that you are going to TRY sleeping elsewhere. I don't mean with your neighbor, oh well wait... maybe that WOULD work.
But I mean you need YOUR sleep.... we don't really care what DH is doing in HIS space... but that is not YOUR space.
There are times in our marriages, where us WOMEN get to play boss, and not succumb to husbands wishes... now is the time.
I don't know ANYone who could sleep under those conditions... NOT in the same room... We have a couple little night-lights on, so we don't stumble and fall all over again in the dark, but I am used to them...
So just "man-up".... take the bull by the horns, and TELL Mr. DH that you are sleep-deprived, and that you can't STAND to follow his instructions anymore concerning you.
That if you get any crankier, you are going to smack him over the head with that stand-by cast-iron skillet. Period. There! I fixed you! If DH has any questions, tell him "nothin' doin!" That "Chevy is a busy woman, and her pay is exorbitant."
I don't know nothin' about pain... so someone else has to fix THAT for you.
Morning miss Cammi... you are right.... about something.... I forgot what it was... Oh wait.... It's that thing you said about our brains catching up with our bodies... You KNOW our brain does not work together with our body, our heart, or sometimes our desires.
Our brain has a mind of it's own. Our heart works with no-one. And our desires? Forget it. See, our brain is supposed to be in charge, governing our other parts... but our other parts over-ride our brain, and just go off on their own.
See, my brain was begging my leg to MOVE... but it wouldn't. Leg was just off on it's own somewhere... It is STILL fighting my brain.
Our heart just works willy-nilly, and thinks things that our brain would like to slap the hell out of it... but our heart is hell-bent on destruction sometimes.
And our desires? Forget it! The brain has no control over what we WANT and what we shouldn't have. That's with sex, food, and going out and partying ... like the Cammi does.
Okay, now what else can I fix?
Geese Tang! I don't think I have a clue as to how to help you... just to say I'm sorry for all that stuff... Hoping you get all fixed up SOON!
Enerva! That is some contraption! Man, I know nothing about drains.. I just had tubes hanging out from the MammoSite device.. but only had that going on for a little over a week, until they removed it!
44444444444444444! I just always love your pictures! I sent it to my Daughter's!
Morning Sass, Dwilli, Susan and Blessings!
Yes, Good Morning Littlepaws! How's those fur-girls? Happy Birthday! Geez, you guys are ALL younger than I am...Wish you would hurry and catch up! And thanks for the compliments gals... it means a lot!
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happy 60th paw!!!!!!!!!! Hope you celebrated in style:)
Blessings. I think we have twins for husbands..lo. I actually stood on the bed, years ago, and started hitting him with my pillow....lol. Told him he had to go to a sleep clinic cause I couldn't sleep with HIS sleep disorders Never went....those men.......but I bought him a tenperpedic pillow....WHEN, he uses it, he sleeps like a baby...still some muscle twitching , but not as bad, and doesn't wake me up. But the nights are so funny...he falls asleep with 2 or 3 pillows, and when he falls asleep I pull the 2 pillows out so he just has his tenperpedic . He tries to grab them from me and we have a tug of war...lol so funny....until he kinda wakes up and is like...ohhhhh.....then we both sleep more peacefully. But I have been known to throw him...nicely, out of the room...he slinks out with is head down
. I do worry about that twitching thing, his body can't be resting well with.Have a good day everyone
Chevy, my daughter and hubby are on their way back from Florida, they kayaked...my daughter wouldn't get out of the kayak cause of sharks and alligators.....lol. Not as brave as your kids !!!!
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oh I need to tell you all that my dogs past away around 7 years ago. I didn't mean now. I only was saying that in answer to Nettie who asked me what was my avatar all about. Thanks you for.you kind words I still keep my babies cloth and toys I adored my dogs so much that I have not been able to get another one here is a picture of us.
back then. 
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Enerva, I knew that.... but I know how you still miss them! I just wanted to ask... do you want to get another one? Our Daughter's keep pestering us, to get another puppy, but I reallyt want one just now... I'm so afraid when the Orlando one gets here, she will try it again!
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oh no, I could not get another one, at least not now. I live in a condo and it's not nice to have dogs in an apt maybe if I one day move up north to a house. Went I went home to visit my family I spent time with my brother s new puppy. It broke my heart to say good bey it also reminded me of the great feelings my dogs provided me all those 13 years but also of the pain I felt when I had to let them go. I personally am not ready. I have to focus on my health for now, I now live in this Wierd fear 😨 that I may not live too long lol
Now I LL just live LA vida loca. Lol
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Okay.... I understand... That's how I feel too... just can't do it... Thanks.
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Morning owls! Happy birthday paws! We could have had a party, I guess better late then never. So let's party on! I think Tang and Nettie could use a little fun. Someone should bring the booze, must have fancy coffee for this (and Chevy can bring the cannibus).
Enerva, like your pics. You'll know when it's time to get a new fur baby in your life.
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happy birthday 🎂 Paws
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Tang, sometimes I need a kick in the head anymore for stuff to fall out. Your life is at risk b/c of BC. But your life is also at risk from your life saving treatment. Based on what you described, they closed the incision after the clean out(debridement). The infection was given another closed environment to grow. Then your immunity was decreased again by the chemo. Chemo stops the healing phase of tissue growth. You are on very high powered antibiotics. Antibiotics themselves can suppress the immune system.You need an advocate. Please call your insurance company and ask for a "Critical Care Nurse manager that handles complex major cases". It's important to use these words. This type of person will review your records and step in to talk with the docs re: your management. To get this position this person has to have a very strong clinical and management background. They are not the couple years in med-surg type. That type in this situation would not work well.
If the incision was closed, you are at risk for it opening again. As it is, in the development of the treatment plan, another debridement should be discussed. Generally, a wound such as yours is left open and allowed to heal by filling in from the bottom. This takes a very long time. Very often today a Wound Vacuum (Vac) Is used. It shortens the healing time. But nfectious Disease doc would know if can be treated this way. There is criteria a wound bed site must meet in order for a Vac to be used. A vac used improperly can cause problems.
Your Infectious Disease doc should be directing your wound management. Is this happening? Talk with him about the situation.
Someone prescribed high powered antibiotics without a culture and sensitivity being repeated. Without a C&S they are guessing that it's the same bacteria. A new bacteria could have moved in and set up housekeeping.
Please, call for the advocate. They can cut through the bullshit and get answers that we can't.
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