INSOMNIACS place to talk in the wee hours
Comments
-
it's Tuesday night. I think everyone decided to take pole dancing lessons!
-
I hate it that my days and nights continue to be mixed up. I've been this way since reconstruction surgery in Dec. finally fall asleep around 3, dh alarm goes off at 530, I really rest after he leaves at 730 for a couple of hours.....but then I feel like the whole day is gone.
M
-
On another note... I went to my naturopath today - I don't go see him real often, and after today, I'm not sure if I'll go back. Anyway, I've been taking some Chinese herbs my acupuncturist gave me. He (the naturopath) told me to stop them as some of the herbs were phytoestrogens. Fine, I don't mind stopping those. However, he then told me to take 3 Tbs of ground flaxseed each day. So tonight I look up flaxseed, and it's a phytoestrogen - and according to a couple of websites, contra-indicated for ER+ cancer patients. Well, if I'm not supposed to take one pill because some of the stuff in it are phytoestrogens (he didn't tell me which things, and there's about twenty different herbs in the tablet) then why the HELL is he telling me in the next breath to take something else that is definitely also a phytoestrogen. I completely lost all faith in the guy. My husband has a lot of faith in him, but I haven't yet told him what I found - as he's asleep and I am obviously NOT. I'm awake and PO'd.
-
maybe your dh can take it so it won't be wasted and you can switch to the chia seeds. Was the naturopath selling the flax?
-
no - he just told me to take it. If he was selling it too, I'd probably be visiting him with a baseball bat.... (not really, but you know what I mean!) Thanks for saying something about the chia seeds - i'll take those instead. -
Beatmon, I totally can relate to the whole sleeping issue. it drives me absolutely nuts! I hate feeling like im wasting the whole day away becuz I have to take a nap due to the lack of sleep at night.
-
Just when I thought I might be able to check. Nope, not going to happen today. Hopefully, can get some sleep tonight.
Happy Wdnesday!
-
Although the 1st few days were a little rough, it's nice recovering from the flu...starting to enjoy lollygagging on the couch, reading, sleeping, eating soup, snuggling with my doggie. I've been sleeping on the couch so not to wake DH - my little kingdom :> DS has been waiting on me, but I don't think I can stretch this out much longer. Haven't had fever in > 24 hrs, ibuprofen and pseudoephedrine are doing their job. Maybe one more day???????? I have a book to finish.
-
-
Wow, everyone must be busy! I wasn't so far behind today!
I read where several of you are having sleep issues, well I've had them as well, it seems that my body doesn't want to sleep until it's time to get up, so I also find myself having to nap when I get home from work, which also steals away valuable time! But it is what it is! Hoping we can all find our way back to a normal sleep pattern!
That brings me to another thing that I've thought about mentioning several times, then forget when I start posting.... I've often wondered if this thread was started because of true insomnia, or was it because we wonder and worry at night when things are quite and still! Plus for me, it seems that aches and pains always rear there ugly head at night! Anyway, that is just my thought!
Happy Wednesday
-
No posting of our morning coffee today?? Where is everyone? Chevy i saw your post, are you disappearing into that rug? Gardengumby, my oncologist told me not to take flaxseed since my cancer was 100% estrogen positive. A nutritionist told me take Chia seeds...I always think of those cha cha cha chia commercials that come out around Christmas time.
)Off to work now....have a great day everyone. Hugs.....
-
Boy we are moving slow today, but I bet since I won't be able to be here much this afternoon, when I come back tonight, I will be pages behind! Hope everyone is just out and about enjoying the day! -
yes I was told not to take flaxseed for estrogen +.
I def hear ya about the sleeping. Every night no matter what time I lay down I am awake at 2:00 - 3:00 with no hope of getting back to sleep. Then in the quiet while my family sleeps my brain starts overtime - all the what if's, when kind questions - ugh. So by the time I am finally sleepy again dh and dss r getting up. Long Nap in the daytime feels like I have wasted the day. But I guess it is what it is for now.
Chevy - privates pole classes today ? Where is everybody.
-
-
thanks ladies. I won't be taking flaxseed, that's for sure!! I probably also won't be going back to that ND. we chose him because he was supposedly an expert on cancer. If that is his level of expertise he's no expert! I is still most definitely upset over the whole thing! They also drew my blood to test my thyroid, and I totally forgot to make sure that they would test the TSH. Ah well. I'll find out...
-
ok, too late for coffee but-
-
chocolate in anything is just the ticket! I want some!
-
Hey gals! Sorry, I have been remiss in posting, but I have been so very-berry busy! Well no, not really but it sounded good........... I met my older friends for Breakfast, and it was soooooooo good as always.... We have the chili-relleno plate, with 2 eggs over easy, crispy fried potatoes with onions, and all smothered in their chile, served with 2 warm tortillas! We usually take 1/2 home, so I also have breakfast in the morningt.
Then we went up to play at the Casino.... and I didn't lost MY money.... Even had a Starbucks, and the time just flew. We left at 2.... so we aren't too serious when it comes to gambling. But it's fun to do something else, rather than walking around a store or mall!
Thank you Smarty! I LOVE the Chocolate Coke! You knew that, didn't you?
GardenGumby.... GG.... Littlegardens.... So we aren't supposed to use flax seed NOR chia seeds? But.... but I grind those things in my NutriBullet, and mix with my greens and things! I also love almonds.... But I have to use those seeds, because I HAVE them! I think if you over-due anything, it is not good!
Nettie, are you doing okay today?
And Littlepaws.... How are the furry kids? Maybe another picture? I just love your dogs! Okay.... I have to post this, or I will lose it!
-
Nettie.... I forgot to answer you ! "LittleHoney" is/was Phylliwiththebighouseissue! SHE was feeling awful, and having tests, and Lord only knows WHAT all! So we have to keep her in our prayers.... along with that little Cammi with the phone-job.... SHE is one big accident waiting to happen... Sort of like ME. She has to stay in bed, where she belongs.... with Joey and Katie-Kat. Then she will get better!
Cammi, wasn't it today that you were going to the Docs for a sit-down? Okay..... spill-it! What did he/they say! We promise we won't say a word.... xoxoxoxo
-
Chevy I think chia seeds are just fine. Flax isn't for those of us who are highly ER+. I was just sounding off cuz of my dimwit EX-naturopath.
-
Pawprint I am 95% estrogen + so no flaxseed??? Omg I am such a nuts case I take flaxseed bread, pills u name it I take it I am seriously crazy I never care to read about estrogen + in terms of what to avoid
-
Peppermint, I thought I was the only one who woke up between 2-3 am! Can almost set a clock! Not a hot flash, don't need to pee, Spookie isn't walking on me. What's up with this? So I get up, we go out, have a cig, then sleep. I sleep more than I'm awake most days.
-
not feeling it tonight. Going to try to sleep.
-
Hi ladies!
while looking for info on phytoestrogens to avoid myself, I found this:
-
Morning gals.... Okay, I'm going out on a limb here.... no wait..... I mean a rock...
I'm thinking that anything we eat, in moderation is going to be alright... I also did a lot of reading about what we should or shouldn't eat and drink, by reading the alternative forums.... And I found this from BC.ORG...
http://www.breastcancer.org/tips/menopausal/ask_expert/2004_07/queston_04
And from looking on the Internet, you will find so much "information" it will make your brain go into re-hab.... So my own determination is that since I HAD breast cancer, (going on 5 years now) AND and post-menopause, my chances of getting breast-cancer again are about nothing to worry about. Just WALKING is hard enough for ME, Ha, ha!
I mean at MY age, I almost get a free-pass! Not really, but with MY luck, I had better just enjoy myself, eat all the things I like, but not over-due on anything... and stay out of the alley.... and off that pole!
I eat Flax-seeds occasionally, same with Chia seeds, when I make a smoothie.... or I add the Flax to oatmeal... Same with Yogurt, and soy products... I haven't had any sort of tests of anything to see what is running around inside here, but if I FEEL good, and don't really eat those products everyday, then I am on the right track.
That article says you shouldn't smoke much weed.... if I understand that right... Now THAT is funny! But it is good for pain issues?
I once saw an article about sugar-substitutes and breast cancer... Those people SWORE that is what caused breast cancer...
I just think that sometimes when we eat or drink certain foods or supplements, that MAYbe they react on certain pre-determined conditions already in our body, and MAY cause "changes".... maybe for the better or for the worse. But I think that has a lot to do with each individual persons make-up.
Same with Tamoxifen maybe causing my deafness... because of a "stroke" near the 8th cranial nerve in my brain stem... Tamoxifen DOES warn of strokes... but it would not have happened maybe, if I did not HAVE this "gene" that would make that possible.
So we are all different...
What you might take from all this, is just go light up a joint, drink maybe ONE Chocolate Coke, and enjoy a bowl of Oatmeal with flax-seeds.
It is just so HARD here, trying to be serious... hope you guys appreciate my attempt to sound doctorly and semi-intelligent...
-
Oh my, I was sure that after signing off early last night, that I would be way behind, but it seems everyone took the night off! Hopefully that means everyone got some rest!And Chevy, I'm so proud of how serious you remained in all of that about eating and flax and weed and chia and chocolate coke! And I too believe exactly as you do! I'm not going to live a miserable life, I'm going to live the life I have as full as I can but also understand that moderation is needed in things that could be bad for us! I used to eat flax in my cereal as it was supposed to help with the joint issues, this was prior to the dx! Haven't had any sense, not because I knew better, just haven't! But guess now I'll try to avoid!
Now for a little more seriousness from me....again, I'm back to having hip and back issues! And yes, I've been to the doctor, once again, they say, no need to scan, so I'm left with the wonder! So, I would just like to know if any of you have had sciatic pain, but only at night, this is what scares me, because they say if it's the "c", it would tend to flare more at night! Once I get up, even in the middle of the night and move, or even just stand still, the pain immediately goes away! But as soon as I lay back down, there it is again! Now I haven't tried lying down in the day, if I nap in the day, it's in my recliner, so maybe today, if I need to nap, I'll try it lying down and see if the pain flares.
Anyway, just wondering if once again, I'm the odd ball out!
Still thinking about those of you having tests and so on... hope things get better.
-
Nettie, I have a lot of lower back pain at night. Doesn't shoot around to my hips or down my legs. I take a pain pill around 3/4 o' clock, and then I don't have that pain anymore. But my joints all flare up and start aching at that point to. I get scanned all the time, and I have no cancer in my lower back, or hip. I think I would have to go with your bed, it ties in with your pain. Cancer doesn't have a timetable, it always hurts when it's in your bones.......that the news from doc Susan this morning...lol
Chevy I agree....for me......we are all different. As a hairdresser, I have met sooo many people with all different cancers. Many have died from their cancer. So many of them were totally obsessed with food and supplements and and and....personally I think whatever path you choose is ok . You have to be happy with your choices at the end of the day and it is a very very personal journey. However, I do feel for those who become obsessed with controlling the cancer, they seem to forget to live and the fun is zapped out of their life. Having said that, obsession about anything will eat you up. I don't mean to be morbid....but in the end we all die, we can't control that, so in the meantime I am going to have fun fun fun, and live and love fully.......accept when I am having my pity pary, or a huge anxiety attack, or just plain anger....lol. Other than that, I am determined to see people and laugh a lot and realize how precious life is.
You know how people say....well....I could die before you, and they have given you 5 years......so tired of hearing that......well.......someone I know, her husband has multiple myeloma , and his sister is a perfect match for stem cell transplant. She was killed in a car accident a couple of days ago, before the transplant. Very sad for the family.....but that put things yet again into perspective for me...I won't ever get mad when people say they can die before me...because we certainly never know the day we are exiting.....
Look what you started Chevy....a serious talk....wow.....ok, I am climbing down off my soap box now, and going to get ready for work.
Have a great Thursday everyone. Hope everybody is doing ok.
Cami, how were the doc appts.
And I forget who was in the hospital on antibiotics cause of the thing that popped and oozed out. Sorry I forget......remind me......and how r you doing?? To far to scroll back. I think I need to keep a written journal so I sound smarter...ha
Ta ta
-
Geez, I just re-read what I wrote, and it didn't even SOUND like me.... Ha! Glad you guys know I'm not advocating anything, just talking from my own personal experiences.
EVERYone has their own idea of what caused their cancer.... but no-one knows for sure! Just changes in cells... and sometimes we can't control that. We inherit certain characteristics and genes, and our chemistry is just different from anyone else...
Susan, I started a note-book also, when I was new to this.... And I'm always researching stuff on the Internet, and save it on my computer, or print it out.
If you listened to everyone on TV, like Suzanne Sommers, or people who advocate alternative ideas they have for "curing" cancer, then you will go nuts. They are entitled to their own opinions, and they can do whatever they want.... but most of us can't afford to do, what they say they are doing.... and I would never tell anyone to stop what they are doing, and do it THIS way....
I know this woman who had her breast surgery.... not clean margins, and her nodes were involved. Instead of the recommended chemo and radiation, she and her DH deciced to go see "John of God" or someone in Brazil? to be prayed over and cured. So a year later, her cancer had advanced, and metastecized to everywhere, and she passed away... She thought she was doing the best thing for her.... but you have to LISTEN to your body, and the experts that know more than we do....
Unless they are smoking Pot, and a pack of cigs a day, and drinking a 2 litre of Jack a day. THEN still, it's their business what they do.... just don't try and get me to try it too!
-
Good morning all.....wow, you gals can talk some serious chit
) I agree with you Susan, we're all dying, we never know when for sure, so have fun and live life. And Chevy, everything in moderation, what causes cancer is individual, I so agree with you on that. Enerva, my oncologist told me no flax seed but you'll have to research it or ask your oncologist. I think it mimics estrogen in the body and for us gals with estrogen positive cancers, we certainly don't want to feed any pesky stray cancer cells that may be in hiding. Although, estrogen is hard to eliminate. It lives in our fat cells. But flax seed occasionally probably won't do us much harm. Nettie I hope your back feels better soon. Cami, you ok? What did the doc say? Off to work for me. Have a great day owlettes........ -
Nettie. I have mets to bone from my skull base to my tailbone, hips and a couple tiny spots on rib. My back pain is constant. Although it is worse when I lay or sit still, walk or stand. I have read it's worse at night but not because they were lying down just because they stayed still to long and got stiff. My pain doesn't radiate down my leg or anywhere else but that's just my story. Everyone is different. Hope this makes you feel a little more at ease. Maybe it's your bed? That being said, we know our bodies better than anyone else so if it don't feel right keep getting it checked out Til you feel comfortable with the answer. :-).
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team