Starting Chemo in April 2014

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  • Ddkath70
    Ddkath70 Member Posts: 129
    edited June 2014

    Sharon, thank you for including me in your collage! Everyone looks great - it was nice to see all the smiles :)

    Clrrn - happy you are doing better! 

    Cold - is this your last?? Are you celebrating? :)  Love your ty-dye scarf!  

    I had to go to urgent care today due to a UTI. I called my MO and they just said to be sure to get there today and start the antibiotic if it was positive, and it was. So, I'm home taking it easy tonight.  I can't complain really, I'm on day 10 and I have felt great the last few days. Tired in the PM, but I'm able to get out and do a little retail therapy which was something I didn't think I was going to be able to do.  #Grateful

    Hope all you ladies have a great weekend! 

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    Glad y'all liked the photo collage - it was fun to do while on my steroid high.  Keep the new pics coming.

    Longisland - can't stand those anti-chemo blowhards.  Like we are doing this for fun.

    Day 3 after tx No. 3 and doing very well.  Fatigue has not set in yet, so I am going to see if I can move around more instead of succumbing to it.

    I am still surprised at how much hair I have.  No regrets about shaving it, it would be clumpy now anyway.

    Wishing fewer SEs for everyone.

  • MameMe
    MameMe Member Posts: 425
    edited June 2014

    Sharon, that collage series was INCREDIBLE! You really socked it to us, I can feel this upsurge in loyalty and my sense of being in this all together. What a treat! How long did that take to put together? Are you a techie? 

    My desk top computer will not let me sign in, and I can't add pics from my ipad, so once I get that figured out I will share more of the progression of hair with you all.  I no longer look like the avatar, that's for sure. : )

  • merg
    merg Member Posts: 61
    edited June 2014

    Wow Sharon, That was a great collage. All the pics are beautiful. Thank You for that.

    The bad week is coming up for a lot of us. I know I am dreading it. Prayers that it won't be so bad.

    Thank you all for listening & being here.

    Here's to easy SE's!

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    Thanks, Mame.   I am a little techie, but these were done with an iPad App called Pic Collage - the grand kids taught me how to use it :)

    I think they were mentioned earlier, but I am in love with the Original Buff head covers.  The most comfortable thing I've found yet.  I finally get my chance to play Survivor.

    Added - hugs for an easier week, merg.

  • MommyQ
    MommyQ Member Posts: 117
    edited June 2014

    SharonDe: GREAT collage. Nice wig too! :)

    Golfingirl: That's great news from your ultrasound that the chemo is working! Woo hoo!

    mikishelly: Congrats on finishing treatments! That's awesome. Looking forward to your posts of life after chemo.

    Taxol Ladies: I'm happy for you all that the Taxol treatments have fewer SEs. That's excellent.

    Ladies with Nausea: I read that sniffing a little isopropyl alcohol helps relieve nausea for post-op patients. I also read that it helps some chemo patients as well:

    Here's a link to one of the articles about post-op nausea relief: http://www.ncbi.nlm.nih.gov/pubmed/15632723

    And here's a link to a page where at the bottom where people wrote comments, some chemo patients said it helped and some said it didn't, so it's probably worth a shot, since everyone has some around the house, right?: http://www.earthclinic.com/CURES/nausea.html

    Enjoying the good days until I go back in the chair on Wednesday for TC #3, which will be my chemo halfway point.

    Have a good Saturday y'all!

  • jhodro
    jhodro Member Posts: 240
    edited June 2014

    SharonDe: Is it BuffUSA.com? I am looking for some lighter weight scarf/hats for our vacate in a couple weeks. I'm just worried some of these won't cover the back of my head, or am I looking at the wrong thing? Thanks!!

    Hope everyone is able to enjoy their weekend, or some parts of it. I'm headed for an afternoon nap now. :)

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    Yes - Buffusa.com

    They are actually quite long, so you have lots of options. Check out the short video on the site for 12 ways to wear them.

  • jhodro
    jhodro Member Posts: 240
    edited June 2014

    Thanks, SharonDe!! I just watched and ordered two. I find that all the head covers I have are very hot, and it hasn't really even gotten much over 80 here...

  • Blueberry4
    Blueberry4 Member Posts: 98
    edited June 2014

    I love the collage, Sharon.  We all look awesome and strong.  Thank you.

    I don't understand the anti chemo bunch.  I would never tell them not to have vitamin C infusions or coffee enemas or whatever they think will work.  I'd keep my judgements to myself and wish them the best.  Why must they push their choice on us.  We all have done our best to choose the best path with the best possible outcome.  The world looks completely different when you are faced with the choice of chemo/no chemo when you actually have cancer.  As someone else already said, I think many make the statement of, "I would never do chemo," without having faced cancer.  Nobody chooses this for fun. Perhaps what they really mean is, "I would never have cancer," as a way to put the fear at bay that this could ever happen to them.

    I purchased buffs from Amazon and love them.  They are light weight enough to wear in the brutal Texas heat. Go buffs!

    Have a great weekend ladies!

  • Blueberry4
    Blueberry4 Member Posts: 98
    edited June 2014

    Thanks for the links, mommyq. I am one of the severe nausea ladies and will check them out.  Hopefully, the ginger I am taking will help to lessen it next week.  I smell like a ginger snap all the time now.  :-)

  • ColdInCanada
    ColdInCanada Member Posts: 95
    edited June 2014

    Ddkath70 - I WISH I could say it was my last, but sadly, I still have two more to go. :(  On the upside, I have now officially finished more infusions that I have left! So, YES, I am celebrating THAT. Go ME! :)

    Emend seems to be working. I'm definitely more tired the today, the day following Chemo Day, but there's almost nothing in the way of nausea (as long as I don't let my stomach get too empty), so I will take that as a WIN. 

    Blueberry - YES. What you said. EXACTLY, because you expressed it so well. Until you're actually faced with cancer, you can't begin to know what choice you would make regarding chemo. And the "coffee enema"? HA! You totally cracked me up with that one. :) P.S. PLEASE tell me there's no such thing. 

    Wishing you all a Happy, SE-free weekend. I'm hoping The Dark Place won't be so bad this time without the nausea. And THEN, when I come out on the other side into the Light, I will only have to do it TWO MORE TIMES. YES! 

    :)

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited June 2014

    Well said Blueberry! 

    I have one friend who said "no chemo" and I think she is coming from her heart, not her head.

    She can't handle it.

    Others have this crazy political thing where they think that the medical community is making a bunch of money off of us.  

    There is a kind of arrogance about it that blows me away.  Steve Jobs was a genius.  He'd probably still be with us if he'd had the humility to believe that drs. knew more about cancer than he did.

    And there are a lot of quacks out there telling vulnerable people that tomatoes or blueberries will cure them.

    To tell the truth, it's hard to believe that all of this poison is "good" for me.  lol  So yeah, I'd rather have blueberries.  Problem is, I was eating a lot of blueberries and broccoli when I got cancer...

  • merg
    merg Member Posts: 61
    edited June 2014

    Ok, I'm thinking twice before I drink coffee anymore! I needed a laugh today. Thanx Ya'll.

  • clarrn
    clarrn Member Posts: 557
    edited June 2014

    Coffee enemas are real!  Definitely told by a few of my palliative patients that they had tried it!

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited June 2014

    I think Princess Diana used to get those.

  • Golfingirl
    Golfingirl Member Posts: 40
    edited June 2014

    Cold - so glad to hear the emend is helping. I hope it continues and you can get some rest.

    Blue - good luck with the ginger. Now I'm craving ginger snaps!

    SharonDe - thanks for the buff idea. I have two I use when backpacking. I forgot all about them. I'm going to find them!!

    For the record... that's a total waste of good coffee. The only place coffee is going in me is in my lips!

    Quite tired here this week. I feel pretty good in the morning and fade quickly as the day wears on. I took advantage of it today and took my motorcycle out for a couple hours with a friend. That's my idea of therapy. Fantastic. Made me feel 'normal' for a little while. Until I took off my helmet off and had some funny impression on my bald head!

    Have a great weekend everyone. I hope it's easy and restful.

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited June 2014

    I just got palpitations and felt I was going to pass out.  Lunged for the sofa and lied down.

    It all went away but it was so scary I'm thinking I might stop chemo.  Has anyone else ever had something like this happen?  I'm on Taxol and Carboplatin.

  • jhodro
    jhodro Member Posts: 240
    edited June 2014

    So I had to google coffee enema. Don't do it. But it was definitely great for a chuckle. Luckily I'm not a coffee drinker, could have ruined it for me.

    I feel like the anti-chemo peeps are similar to the no-vaccinate peeps. I know it is political too. The whole thing frustrates me. I lived next door to a non-vaccinator when my son was an infant, she chose not to vaccinate and her two kids got whooping cough while my son was too young to be vaccinated. We were terrified he was going to get it because it was during the summer and my kids had played with her kids, blah blah. So yeah, don't vaccinate. Don't do chemo. Doctors only want to make money. I don't know about you, but the team that I'm working with, they are definitely not in it just for the money. Plastics, maybe. But oncology, I don't think so. 

    Timbuktu: I'd call the doc. Who cares if it's saturday night - - you should put your mind at ease. Hope you feel better. And like you, I was eating pretty clean and definitely organic when I got cancer too. :\

  • Blueberry4
    Blueberry4 Member Posts: 98
    edited June 2014

    Timbuktu, I hear you, sister.  The dizzy thing happens to me when my blood pressure drops.  I run low to begin with, but with chemo I'm usually 90 something/60 something.  When it drops I get really dizzy and sometimes the world goes grayish purple, and my heart pounds. My MO says to stay hydrated, so I do. I have no solution or advice, but you are not alone.

    Jhodro, I don't get the feeling my docs are in this for the money either.  I hope they make a lot of it, but they never make me feel that it is a factor.  I even think my plastic surgeon truly cares and wants a beautiful outcome for me.  His office is gorgeous, and he is clearly made out of money, but still I don't think it is only about the dollars.  It doesnt make any sense that docs would routinely give treatments that don't work, because then, even if they were in it for the money, they wouldn't make any.  Sometimes people say such hurtful, uninformed things.  Also, I'm sorry you had the scare about whooping cough.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited June 2014

    Timbuktu- I had those issues last time on TC. It was my red blood cells were WAY too low and I need a blood transfusion. :(. I would call your MO and let them know what is going on.

    Golfingirl - glad you were able to get out on your bike. 

  • MameMe
    MameMe Member Posts: 425
    edited June 2014

    Timmy, I had a near fainting episode last week, also. Its no fun. Scary. Call the doc. 

    So, I solved the problem of getting onto BCO on my desk top rig, and have been changing avatars because I can... Now to settle on one for awhile!

  • Golfingirl
    Golfingirl Member Posts: 40
    edited June 2014

    Timbuktu - that sounds very scary. I have also been getting syncope and pre syncope ( passing out and almost passing out). Call your OC for sure. It could be caused by many reasons. Palpitations are often caused by low electrolytes. Hydrate well. Gatorade could help. Hopefully it's an easy fix. They don't know my cause yet so I'm getting a heart monitor before my next round.

    I'm with y'all. It's not about the money. If there was a cure, I know they'd be glad to be out of business.yes, chemo is barbaric to some degree. I don't want to go thru chemo. Give me an alternative that has actually, scientifically proven to save lives and I'm in! When it's your life, you don't mess with 'it may work'. You take the stuff that is proven even if it's tough.

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited June 2014

    I really appreciate everyone posting about their experiences.  It's nice to know that you've all survived!

    I see my onco tomorrow, supposedly for another infusions but I think we'll have a talk first.

    It's very reassuring to know that I'm not the only one.  I did have diarrhea so it's possible my electrolytes were off.  Or my iron is down.  I just didn't bounce back from round 2 and I do mean "round 2" because it feels like a prize fight and I'm on the ropes.  Trying to stay in the moment...

  • Golfingirl
    Golfingirl Member Posts: 40
    edited June 2014

    I wanted to share this picture and the story of the shirt. It the shirt offends you, I apologize and I will remove the picture. 

    The story is I received this in the mail yesterday from a friend. Her husband just finished treatment for Hodgkin's lymphoma. He received the shirt from my friend Krista who went thru treatment for BC and is now 2 years cancer free, she in turn received the shirt from another mutual friend who is also now cancer free. It was  their good luck charm going thru treatment. I hope I don't have to pass it along. 

    image

  • brigadoonbenson
    brigadoonbenson Member Posts: 412
    edited June 2014

    Not offensive.  Great shirt!


     

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    Golfinggirl - the shirt is priceless.  I doubt it will offend anyone here :). What a great idea to pass along the shirt, although I can see where it would be nice to retire it.

    It will be in our next updated collage, if that's okay.

  • boobieprized
    boobieprized Member Posts: 36
    edited June 2014

    sharonde, AWESOME collage!

    Love the shirt, not offensive at all.  Could be a little more to the point though without all those extra letters...lol.  ;)

  • jhodro
    jhodro Member Posts: 240
    edited June 2014

    Golfingirl: Love, love, love the shirt and the meaning behind it. I really hope you don't have to pass it on, too. I hope it does it's job for you as well.

    Good luck tomorrow, Timbuktu!

    Mame: Love the avatars! :)

  • Swissmiss
    Swissmiss Member Posts: 111
    edited June 2014

    Had my first of four dense dose Taxol on Wednesday...since Friday I've had muscle and joint pain.  The nighttime pain is so bad I've been taking my leftover Percocet.  Ugh. Honestly, nothing is working and the pain is terrible...even my toes hurt! Anyone else have this with Taxol?  I didn't think anything could be worse than the nausea I had with AC.  I'm in the Dark Place :( 

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