June 2014 Surgery Sisters
Comments
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Slappy, you now have me wanting to do a few drive-by peep shows today. Lololol! Heck, I'll never see those people again, especially if I focus on out of state license plates. And hopefully Auntie Linda and Uncle Bob from Texas haven't purchased a new car that I don't recognize and are coming into into town to surprise the family! *I lower my shirt in shame* jbokland, too funny! I love it! And I, like the both of you, also tend to appreciate a little humor in stressful situations...
But on a serious note, my friends, the decisions that we've made on our surgeries is no different than alot of irreversible decisions that we've made in our lives. You cannot go back and change things, but we just pray that we've made the right choice. To make it even more difficult, those of us with active cancer don't have much time in which to make those decisions, plus your whirlwind of a world is quite foggy after receiving the shocking diagnosis. That's SO not fair!!!
So, here's to the last weekend with my natural born breasts. So long girls!
I've got two words regarding Thursday's surgery - Ner. Vous.
One love,
tp4ever
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The Pink Bus will be rolling out tomorrow morning for the first five of our June Surgery Sisters. Hop aboard to escort these five nervous ladies to the hospital. Brink snacks. Clynnoli is having a mass in her breast removed so I'm sure she's worried what it will turn out to be. Jbdayton is having a procedure that is new to me, a Ruben's Flap, so I'm anxious to hear how it goes. Shycat will have a BMX and Blessed2014 and Dancingdiva are having lumpectomies. I hope all five of you get outside and enjoy the fresh air today. It will help you with your anxiety. Have a nice meal. Smell some fragrant flowers. Smile as much as you can. Everything you want is on the other side of fear.
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I am an April surgery sister but wanted to pop in say best wishes to all those with their surgeries this month. I wish you all a smooth surgery and recovery, but no matter what as you know there is great support and experience here. I know it is anecdotal and no guarantee but I was fortunate to have a very smooth, relatively pain free (just some discomfort from swelling, etc) and easy recovery, so it can happen, it just seems that usually we hear more about the difficult recoveries and complications. Maybe in part as those with good recoveries feel a bit of guilt for posting about it (I can relate to that sentiment, but I still think it is important for those facing surgery to know that there are good recovery experiences out there too) I was prepared for the worst and hoped for the best and was truly shocked by how great my recovery was. However, it is noted my surgery was prophylactic so I did not have nodes removed and was not coming out of or facing any other treatments.
There has been lots of discussion in here over last few days on nipples; I had nipple sparing and just to let those who are being swayed from it as they have heard about permanently erect nipples....I do not have permanently erect nipples! They do react to cold though still like before, though probably with a little less projection than before. If I was not a candidate for nipple-sparing, I likely would have done 3D tattoos or some other fun non-nipple like tattoos. I already have a couple tats, so would have considered doing something kind of fun on my nipples. 4-leaf clovers or flowers maybe? Not sure if anyone ever watched Ink Master this season, but one episode they had the contestants tattoo women who had had MXs/recons with tattoos and they turned out gorgeous. I know another surgery to reconstruct nipples would not have been for me, though. I am glad I kept my nipples even though they were rather unimpressive as far as nipples go before surgery - since I had direct to implant my breasts still really looked familiar to me and I still connected to them immediately as "mine" after, though were high in my collarbone and armpits initially and are still developing their final position and shape. But it really is a personal decision and of course not available or suitable as an option for everyone. If anyone has any questions though about it, please feel free to ask or PM me.
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I also had skin and nip sparing and do not have erect nipples at all, and mine do not react to cold. They are actually flatter than previously - most likely because they were stretched by tissue expanders, with no NAC (nipple-areolar complex) underneath.
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For those worried about caffeine withdrawal....I understand they can give you some sort of caffeine or something by IV for those who suffer bad headaches from it. Ask about it!
Also regarding drive-by mastectomies - I was in overnight. I would be concerned about monitoring for infection too. During my 24 hour stay (actually a bit longer as the day nurse had never had an immediate reconstruction patient before and did not want to release me though the PS had already given discharge instructions...she wanted to hear from BS who had already released me to PS; the night nurse came in and was like "why is she still here...she was doing great last night and walking around"; she had me out in less than an hour) I was given IV antibiotics (2-3 treatments) and IV anti-nausea (though I had lots during surgery, I tend to feel nauseous with drugs quite easily) and they made sure my pain was under control with oral narcotics. I had a 2.5 hour drive home so I appreciated them making sure it was all under control even though I was up and walking to use the washroom only a couple hours after surgery (I never had a catheter and was not interested in using a bedpan!)
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Good luck to all of you! I also had a very easy recovery. Before you know it, you'll be doing a lot of the things you used to be doing except maybe lifting things that are heavy. This is me after I woke up from my 6 hour bilateral mastectomy with TE placement. I didn't even remember falling asleep or waking up. It was like 5 minutes had passed. I woke up with 200cc boobs on each side. I was smiling and joking around. I had no nausea or pain. I talked to the anesthesiologist beforehand about this. She gave me an ear patch and probably something else to prevent nausea. I went home that same evening. I had discomfort in the upcoming weeks but nothing that made me cry or anything.
One week later I was going out to dinner with my 4 drains tucked in and feeling pretty good.
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Juliecc, thanks for your post. It is very encouraging. The pictures are wonderful, and you look beautiful and happy. I go into surgery for bilateral mastectomy on June 12. I pray that my recovery goes as smoothly as yours.
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You're welcome, songlady. I swear the stress and worry leading up to the surgery was much worse than the surgery itself and the recovery. You'll be so relieved to get it behind you.
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My BMX with direct to implants took 8.5 hrs, but like Julie said, I was totally unaware of time passing. My family, however, was worried sick because the breast surgeon told them it would take about 4 hours. That's true...HIS part was 4 hours, but then he had to step aside for the plastic surgeon to do his thing for an additional 4.5 hrs. I have a vague memory of seeing them standing there as I moved from the gurney to the bed but apparently they accompanied the gurney from just outside the recovery room, into the elevator, and to my room. They also didn't tell my family that they wouldn't see me until my time in the recovery room was over...so that added another hour. Be sure you get an accurate estimate of how long it will be until your family can see you. Time in recovery can vary considerably. Some hospitals may allow family to visit you there, others will not. Ask. Information chases away worry.
Even though I am deathly allergic to narcotics and opiates (I have flat-lined 4 times) I got through the surgical recovery just fine with only Tylenol. I do have a high pain tolerance, and I'm not saying there was no pain, but it was manageable. Nausea from the general anesthetic was my nemesis and I stayed pretty miserable from that for a couple of days. (With the rest of my surgeries, we have managed to eliminate PONV - post operative nausea & vomiting.) How? Before your surgery, speak to the anesthesiologist and ask him for the scopolamine patch behind your ear
http://www.transdermscop.com/transderm-scop-patient-information.htm
and an Emend tablet.
http://www.drugs.com/news/fda-approves-emend-prevention-postoperative-nausea-vomiting-1855.html
These two things along with getting Zofran at the end of the surgery and during the first few days of recovery, made all the difference in the world.
http://www.webmd.com/drugs/drug-30-Zofran+Oral.aspx?drugid=30&drugname=Zofran+Oral
I had a catheter placed during surgery but it was removed after only one bed pan experience so I had to get up and go to the bathroom - a LOT. (They fill you up with IV fluids.) Getting up is a challenge but you can do it, especially if you have no PONV and are on pain drugs. (If I could do it without any drugs and with constant nausea, you can do it.) Don't let anyone pull you up. I asked the nurse to give me her forearm for stability, but not to help me. Let your bed do all the work. Lower it down and put the back straight up. Ask the nurse to put down the side rail so you don't have to scoot down to get out of bed. Let your legs fall over the side. (Be careful not to get any of the tubing from your drains under you as you move in the bed.) Get your feet nice and wide, grab onto the nurses forearm for stability, and use your LEGS to stand. Don't pull on anything or you'll be sorry. I experienced a rush of uncomfortable tingling the first time I stood but it faded away quickly. I had a blood transfusion the next day and felt much stronger afterwards.
Because I was on a monitored floor, I was attached to heart monitors, oxygen, pulseox, and IV lines so the pole had to come with me to the bathroom. (The nurse will have to disconnect everything. Don't try to reach down to pull a plug out of the wall.) I was glad I was in a hospital gown at that point because I could not have managed pulling down underwear or pj bottoms quickly...I had to GO. NOW. The first time you do this, you will be so glad to get back in bed! By the next day you'll manage better and if you don't have any IV's or monitors, you can just get up and go without alerting the "calvary" to come disconnect you.. Pushing the IV pole over the raised up threshold of the bathroom was challenging but I soon figured it out. Getting a sponge bath, brushing your hair, and putting on your pj's will make a world of difference in how you feel.
Other tips...have them fill your plastic water container half full at the most. I found a full cup way too heavy to manage. Also if you have something with a screw cap, ask someone to open it for you. I wanted that bottle of orange juice so bad but couldn't get the top off and felt embarrassed to call a nurse just for that! I should have asked them to open it when they brought it to me.
Make sure everyone washes their hands before they touch you or touch anything that is attached to you. Don't be shy. Speak up and ask. In four surgical recoveries in the hospital, I've had to remind at least one person every time. I kept a little sign that said, "Did you wash your hands?" on my bedside table with a big bottle of hand sanitizer next to it. That way I could just smile and point. No confrontation. The staff is busy and can get distracted. Can't hurt to remind them. You might think this is silly, but ask any one of us who has had to deal with an infection. You don't want one. Be your own advocate. Hospitals are full of germs and people get infections there every day. Protect yourself.
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Sandra, yes, I think that was one of the hardest parts of recovery was getting in and out of bed. You can't really use your arms to push yourself up or scoot yourself around. Pecs are connected to your arms so it causes pain. You really rely on your abs and legs. I also avoided bending over so if I dropped something on the floor, I had to bend my knees to get it. I remember thinking I wished I had become proficient at squats before surgery. Don't be afraid to ask for help from those around you no matter how small the request like trying to open a darn childproof cap on a pill bottle. I order all my pills without that now. I also had those little heart shaped pillows Sandra recommended. They kept my arms away from my body where my drain tubes came out. During my recovery, all of my pain was from my drain sites. My entire chest was numb so I didn't have any incision pain at all. I've had no pain from the needle getting fills either because of this.
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June 12 Bilateral skin-sparing mastectomy with immediate reconstruction/implants
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Julie thanks for the pics, they are so encouraging! I am so anxious and depressed right now I even started questioning my surgery this morning.
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hi everyone! Not sure of date yet but meeting with surgeon on Tuesday. Not sure if it will be a lumpectomy or double mastectomy ...waiting on BRCA test results. Should know on Tuesday. Surgery will be this month.
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Great pics Julie! I remember when you posted on the March board, it helped me get through my upcoming surgery - great idea showing the ladies on this board. I agree with you, the anticipation was worse then the actuality of it all.
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Welcome Songlady. Glad to hear you are going direct to implants. (You'll be one of "my" people.
) What kind of implants are you getting? Nimm, we're glad you are here as well. Once you know your details, I'll post them in the header. Did your mother or sisters have breast cancer? -
I just love the advice, support, and encouragement here in the forum!
What really worries me is all of the incisions that I'm going to have - both breasts plus the abdominal incision from hip to hip. That should be pretty painful and make mobility and sleeping pretty difficult. Can't use your arms, can't stand up straight, can't sit on the toilet, can't lie down flat, can't get up from the bed or recliner, etc. I'm going to be so frustrated to not be able to do anything for myself. But it will be all worth it in the end, and it beats two separate surgeries. I'm just excited that I will wake up - no cancer, and new breasts. The flat tummy is just "lagniappe" (pronounced lan-yap), as we say down here in Louisiana - meaning a little something extra!
One love,
tp4ever
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Yes Thinkpink, you are in for some serious challenges. One person on another thread rented an electric recliner that went from flat for sleeping all the way up to standing. That would surely help you at home.
The other thing that might be especially welcome for you is to see if your plastic surgeon will use Exparel at the end of your surgery. It is an anesthetic that is injected into incisions at the end of surgery. It turns into a long lasting foam that makes you pain free for 3 days. My PS had no problem ordering it for me, although it isn't commonly used because it is expensive, $300 per dose. If your insurance company won't authorize it, your doctor could appeal, saying it is essential that you move around after surgery to prevent blood clots but you won't be able to because of both surgeries at the same time. (You might be able to move around, but the insurance company needs a reason why Exparel is needed.) I posted a link to details of Exparel earlier today. It was an absolute God-send to me. If for some reason I found out it couldn't be used on my next surgery, I would pay the $300 or more myself. It's that good.
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Julie those pics are great, thanks for them! I hope I will be up and around in a week post mastectomy!
clynnoli, jbdayton, shycat, blessed2014, and dancingdiva, positive thoughts and prayers for you all tomorrow. I will be thinking of you all.
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clynnoli, jbdayton, shycat, blessed2014, dancingdiva - praying for you...sending positive thoughts your way for tomorrow
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This is a JP drain. You won't see the flat white part...that's inside your body. (Yes, it is 8" - 10" long.) The clear tubing can be much longer than this picture. Mine was way too long and my PS ended up cutting some of it off because I kept catching on things. You will have two per breast probably. You'll see red blood along the tubing and draining into the bulb at the end. Mine did not have the drainage plug as shown in the picture. You just pull the tubing out of the bulb, empty and measure the drainage, squeeze the bulb tightly while you put the tube back in the opening, and let go. The suction will start. It doesn't hurt. The tube is sutured to the skin on the side of your breast. If the tube is pulled on, it will hurt those sutures. After a few days your skin will begin to be annoyed by the sutures so don't make it worse by allowing anything to tug on the tube. Pinch the tubing right below the suture and hold it still while someone else empties the drain. Everybody should be wearing new gloves each time. To "strip" the tube, your helper pinches the tube right below where you are holding it still and then moves his/her fingers down toward the bulb, moving the contents of the tube. Some people use an alcohol wipe to make their fingers slide easier down the tube. We didn't, but didn't have a problem. Ask your doctor what he wants you to do. When you are still in the hospital, other people will come in every few hours to empty your drains. (They fill up pretty fast at the beginning.) If no one comes and the bulb is pretty full, call the nurse. Make sure EVERYONE who touches any parts of this drain have washed their hands and have on gloves. One time an aide was walking me to the bathroom and my long tubing got tangled with my IV pole, pulling off the bulb. The aide picked it up and was going to just put it back onto the tubing!!! You have to be your own advocate. Do not assume that people who should know better will do the right thing. The drain will be kind of gross...expect clots and odd looking strings. The color will gradually change to a yellowish color and the amount will dwindle...unless you do too much, then it will increase and may go back to red. Expect one drain to put out more than the others. It always seems to work out that way. Your PS will take out the drains when they have a minimal amount of drainage. Some people keep drains for 3 or 4 weeks. Some get them out sooner. My PS doesn't remove a drain until it has measured 20 cc for two consecutive days. I felt absolutely nothing when my drains were taken out. They clip the sutures and gently pull the white part out. Make sure they aren't pulling on the tender suture area though and that they take it out all at once. Don't stop and start. It takes about 2 seconds. They will put a little gauze or bandaid over the opening. It might drip for a day or two..
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There are different kinds of drain tubing (and even drains). Mine did NOT have the flat white part. Instead the tubing was still clear and round, and the perforations were smoothed/turned inward so that tissue would not "attach" to them as it healed. Mine did not have a drainage plug on the side.
My tubes were more like this:
This photo shows the different kinds of tubing and drains that may be used. Most in North America seem to get the smaller grenade type, but I have seen the flat disc type show up sometimes in European sisters.
I had one per breast, but no nodes were removed so that may be why.
I stripped my own drains and emptied them. My husband was there to help if I wanted but I found it pretty easy to do on my own, and it reduced number of hands on them too which was good in my view.
As soon as I left the hospital I drained about 20-25ml per drain a day, except for one day when I had pulled on drain in middle of night and got bleeding from incision and higher output. I had only had to have them emptied twice in hospital, and the second time I did it myself before I left for drive home. I was down to between 11-17ml by day 6 or so. Mine also never increased with activity...I would walk 5-6 miles a day with drains in and no increase in output so everyone is different!
My PS removes at under 30ml but as I was already at that when I left hospital and as PS is out of town, I waited until one week after surgery for removal. Removal was super easy, nurse just snipped stitches and pulled. I could feel them snaking over implants, but there was no pain or anything,
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I also never had to pull the tubing out of the drain. There was a little plug at top with a cap. I would just open the cap, clean it off with alcohol wipe, dump contents into measuring cup, wipe again, squeeze bulb, and recap.
You can see the opening and opened up cap on this drain on the right side:
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To all of the June 2nd sisters.....you'll be in my thoughts and prayers tomorrow. Wishing you all a speedy recovery! ((Hugs))
I've been slowly getting the things everyone has recommend to be prepared. Lots of various size pillows with washable covers, silky button up night shirts/PJ's, button up blouses/shirts, alcohol pads, throat lozenges, pink pockets, new shower head, rubber gloves, and hibiclens. I still have not been able to find the little heart shaped pillows many of you have mentioned. Anyone have a link they could share? My PS said to use sanitary pads in a sports bra. I'm going to get some and give it a whirl. I also have some gauze pads and will have to see what works best. Going to see if I can find a front closing sports bra tomorrow. Haven't had any luck at the few stores I've been too.
Thanks to all for the helpful tips and encouraging words. It helps me heaps! Looking forward to being on the other side of this surgery. The 26th can't come soon enough!
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I want to wish those ladies who have surgery tomorrow...June 2nd a successful surgery. I will say some prayers for you gals tonight before I goto bed.
I have a question about hormone replacement and PBM surgery. I had a hysterectomy ten months ago and currently taking estrogen(premarin) every day. Works very well and am happy with the pill....minimal menapausal symptoms. I asked my bs about being off the hrt and he said they usually want you off any meds for a week prior to surgery. MY ps recommends to keep the body balanced and funtioning properly and suggested to stay on the hrt. I go for my pre-op with the anestesia people (excuse my spelling) next week. What happens if I feel awful without the hrt? Is it a good idea to feel awful before having a major surgery? One day I took my pill late evening, when i usually take it after breakfast. I felt awful the next day...headache....rundown. I don't know whether it was my body reacting to little estrogen or getting sick.? For those of you ladies who were taking HRT during the time of a BMX what do you think?
Thanks for all the helpful info above! So grateful I found this site. Hugs to you ladies!
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Thanks for all the prayers and good wishes for tomorrow.
I am feeling fairly good tonight since this is round two of reconstruction, a left DIEP in March and another type of flap tomorrow (Ruben's flap) a lot less known but it uses the fat tissue from over the hip and waist. Apparently this tissue is very similar to the tummy tissue. PS likes this better than the butt tissue flaps. Hope he is right. I will know after tomorrow. I am also hoping this recovery will be easier since it will involve only one side, right breast and right hip.
Clynnoli, shycat, blessed2014, and dancing diva I will say a prayer for you and we can connect again on the flip side.
I have been enjoying the past few days. My granddaughter got married last night so we were busy the past few days. Glad I had the distraction. Only problem was no internet.
Going to bed, already had my shower for the evening and need to go put on my nausea patch.
Good night.
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Hi everyone,
I know there are various sites that can help with arranging for friends/family to help with meals, errands and chores if needed. My DH and I only need meal help for the first 3-4 weeks after surgery. My DH can do everything around the house except cook. My dearest friend took on the task of setting this up for us and used the website mealtrain.com. There are so many people in my life that want to help and this is the perfect thing. She has set up a calendar for meal delivery every other day and asked those who sign up to make 4 servings. She also suggested some local eateries and things we like if someone wanted to pick up take out. For some who want to help but have busy lives this is another way to bring a meal.
If you are in need of such help, ask a friend or family member to get this started for you. They can specify dietary restrictions, preferred drop of times and people can see what others have signed up for so it limits getting the same meal all the time. My friend also put in the information part of our calendar that do to this being a major surgery, I need to stay germ free and to please drop off the meal on the front porch. Good thinking on her part! I'm sure the first week or two I might not be feeling super social. This gives me a out if I'm not up for visiting.
I know this is going to help us tremendously. I hope this website can help some of you too.
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thank you for your thoughts and prayers, good thoughts and prayers for jbdayton, shycat, blessed2014, and dancingdiva. See y'all after!
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NMM I see my surgeon today. seems like we are on the same road.
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All Checked in waiting to go back to prep. Talk to everyone later.
I did my job, I just showed up!
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Thinking of clynnoli, jbdayton, shycat, blessed2014 and dancingdiva today!
I'm anxiously waiting for the phone to ring with my instructions as to what time I need to show up tomorrow.
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