Starting Chemo in April 2014
Comments
-
swissmiss- I have had a productive cough for 5 weeks now. I cough up tonnes of pretty green stuff every day, but my onc is ok with it. No fever. Had my last 2 rounds of AC with it. Like cold said, if you get a fever go, but otherwise I'd try to stay away from the germy ER!
I happen to have my own stethoscope at home and so I listen to my chest every once in awhile to see if my air entry is ok, do you have a a nurse friend who could stop in for a quick listen?
-
Swissmiss, I had a pretty bad cold just before my first infusion that led to a cough. I coughed for about a month. Since I never ran a temp more than 100, my MO didn't think it was a big deal. He listened to my lungs at each visit, but there was no treatment from him. Because the cough was driving me crazy, I went to my PCP, and she prescribed me a super duper cough medicine containing antihistamines and decongestants. My MO was okay with me taking it ,and the coughing eventually stopped. The ER is so full of germs, I think I would avoid it unless I was running a temp of 100.4+ or if I thought I had strep, but it's really hard not to go when a nurse tells you to. Good luck, I will be thinking of you.
Cold, I love the pink! You rock.
Timbuktu, yay, on a clear scan.
Clarrn, yay, for finishing AC. I go for number 3 of 4 next Tuesday. I can taste it just thinking about it, yuck.
Mompv and Cammychris, I really feel for you. The decisions and waiting are so hard. I had high ki67 and high oncotype scores so chemo for me and lots of it, 6 months. Although my MO disagreed, my BS called me from home just before the oncotype score came back to tell me that if it was his wife, he would want her to have chemo unless the score was very low. The two opinions muddied the waters a bit, but my oncotype was so high it didn't matter in the end.
So, my heels have been stinging and have been really, really itchy. I called my nurse and she said it was likely neuropathy cause by the cytoxin. Has anyone else experienced neuropathy with cytoxin? I knew taxol and taxotere had this side effect but not cytoxin. :-(
-
Cold -love the wig LOL!!! You can have some real fun with that.
Swissmiss - do you have an urgent care center instead of the ER? I know that my copays for urgent care are alot less than emergency room and then at least you are being looked at by a doctor who can order a chest xray if deemed needed. But if you are running a fever and it is 100.5 or above then I agree the ER may be the place to go. Strep is nothing to mess around with even without our compromised immune systems.
-
Thank you everyone for your feedback on my cough. Ugh, I wish this wasn't happening during my usual "feeling good" week. I do not have a fever, just the cough for now. My daughter is counting on me for her recital tomorrow, so cross your fingers that I'll still be ok to watch her dance. Of course I'll be the one coughing like crazy and getting dirty looks
I'll have to stop by urgent care tomorrow, I think. I just have the feeling it's going to get worse
I'm wondering if this could prevent me from getting my first round of Taxol on Wednesday. Thanks again, so nice to have you all here for me
-
Swiss, I had a bothersome cough after my first round. It stayed mostly in my throat not my chest. It sounded worse than it felt. I never got a fever but it stuck around for almost 2 weeks. If you don't feel that a trip to the ER is warranted, maybe make an appointment with your primary care physician.
-
Cold, Looks really great, Thinking Pink!
This is a "good" week. I feel this huge sense of urgency, in other words I am rushing around trying to get things done.
Swiss, I think you should go to the doc in the box.I hope you feel better.
Have an easy day today, Ya'll.
-
nuelasta pain, any help or tips would be appreciated. I took a clairiton yesterday right before then took some Advil this morning, now just took another clairiton. Anything else I can do? Pain is intense.
Thanks,
Dd
-
I took 2 aleve every 12 hours. Dd.
-
so I should be starting my good week but I feel like crud. My skin is sensitive to everything I feel like I have sun burn from my torsos to my knees my throat feels like it's coated with Adromycin and I am approaching the DONE point. Monday is going to be interesting at my oncologist appt.
-
Jamie, that is the pits. I am seeing how unpredictable chemo can be now. I felt pretty much ok for the last two weeks, at 8 out of 12 Taxols. Recently I am having heartburn despite a daily Pepcid, a lot of fatigue and ever more disappearing hair. Hang in there.
-
ColdInCanada: LOVE the pink wig! Such a great idea to have some fun!
Jaimieh: Sorry to hear you don't feel well. On the bright side, you have an appt for Monday to ask the doc for some help. Hang in there. Maybe try some cool towels to soothe the skin???
Starting my good week here. Pulse has finally dropped from the high nineties/low 100s to a normal 75 bpm. Went to the dog park to let my dog get some exercise, since I can finally catch my breath just walking!
Ice cream is still just about the only thing that tastes right so I just enjoyed a bit of Ben & Jerry's Cherry Garcia. Mmm.
-
thanks Jaimieh, I will try that. Here is me in my chair on Wednesday. It's been a blur ever since . Getting better now though,
-
Hello all,
Cold your picture gave me a much needed smile. I appreciate you….
DDkath I love your pic too.
Round 3 was Thursday and it has truly kicked my behind like no other. On Day two which was last night I started with severe chills…then at about 11pm I took my temp and had a fever of 102.3. Bad headache and fatigue were the only other symptoms. My MO had given me his pager number in case fever went over 100.5 so I called him and he told me to start taking my Levaquin that he had me fill before I ever started chemo. No idea what caused the fever but I am kind of wondering if it is my sinuses. Last night was kind of scary. Today was terrible too… fever did not break until 4pm today. Can I just say this is making me petrified of doing this again???
I hope everyone is doing OK.
-
Dd I hope it helps.
I have decided my new name is hot mess. Yup, I am a hot mess. Tomorrow's another day I just sure hope it's better.
-
I wish everyone at least one night SE free! This rate I'm my mouth is rancid.
I loved your wig, Cold! Just an fyi, we spoke awhile back about nausea and I had emend, Zofran, compazine, and ativan. Ativan was my friend because it basically acts as an amnesia drug. I don't remember shit. Lol.
-
MameMe: I too have some nasty heartburn, and I'm even on a break week. I am doing Pepcid, but I am thinking of asking for something stronger, if it exists. I was wondering if it was because of the doxycyclene they gave me for the nasty acne I have on my head, but I guess it could just be the taxol. I have also lost 90% of my eyebrows at 6 of 12, and about 90% of the hair on my head - - I have a little peach fuzz and that's it. Looking forward to getting this done!!
MommyQ: Ice cream is the best medicine.
Ddkath: my MO gave me ativan to try to sleep on chemo nights since the ambien didn't do a thing. Have you used it for that?
-
I use ativan when I need to. I've found it to be very powerful, much more powerful than xanax.
-
Cute pic, Ddkath. I'm also fan of Ativan.
Jamieh - sorry you're having a rough time. It's no fun at all.
Jhodro and MameMe - my onc nurses told me to use OTC Prilosec for heartburn / reflux. It's stronger than Pepcid. I find I've got bad heartburn even in Week 2 and 3 after TC no.2 if I eat anything spicy at all. Prilosec takes care of it.
LovebeingNana - glad you checked in, was wondering how you were doing. Sorry to hear No. 3 is starting out so difficult. Hopefully the antibiotics will take care of things and glad your fever broke.
I dreamt last night that I threw a temper tantrum when they were trying to give me the IV for TC No. 3 next week ...
-
Sharon, That's exactly how I feel about this whole thing! Great dream! As far as Pepcid vs Prilosec, I thought they were the same thing. I have an rx for Famotidine 40mgs, take one daily. What is Prilosec generic?
-
I'm not sure what else Prilosec goes by - it's sold over the counter as Prilosec. It's definitely stronger than Pepcid, but so far I've had no ill effects from it.
-
Cold Great wig you look awesome!
Blueberry - I too have neuropathy in my feet. I also have been peeling chunks of dead skin from my feet. It was scary at first but then I realize it was just dead skin nothing but a makeshift pedi. The tingling and stabbing pains come and go. I don't have any answers about how long it will last. I plan to talk to my MO on Tuesday.
DDKath70- My MO gave me a prescription for percocet for the Neulasta pain. Mine was so bad I cried for three days the first time. The second chemo the MO decided I should skip the Neulasta. BIG MISTAKE. My Neutrophils and WBC's vanished and I got so sick and weak. So, back to the Neulasta and lots of Percocet. I worry about taking strong Narcotics, but I will get through the pain anyway I need to.
Went to my Uncle's funeral yesterday and it wiped me out. An hour drive there, two hours for the service and an hour drive back. Glad I went though it was worth the exhaustion. He lived a wonderful 90 1/2 years and is now reunited with the love of his life. Smiling down from heaven together.
-
Thanks Sharon. Miki, sorry to hear about your uncle, although its wonderful that he lived such a long time!
I just had an almost fainting episode, just leaning over to pick something up and then whoosh, practically passing out. DH is gone til tonight, and its scary to feel that vulnerable. I am going to be really careful the rest of today. Man, this whole thing is for the birds. : (
-
MameMe- Be careful today. Anemia which can make you feel dizzy is a real SE. Use slow purposeful movements and eat some proteins. Hope your day is uneventful.
-
That's scary, MameMe. Being careful is best. My DH was planning to fly to Maine for a few days to check on our house there, but I think he's concerned about leaving me alone.
Mikishelly - sounds like your Uncle lived a full life - 90 is pretty awesome.
-
My onco recommende acetyl-L
carnitine for neuropathy. I've also heard that b vitamins can help.
I take the carnitine every day but how would I know if it's helping?
I take the b viatmins on and off, I've heard vitamins fight the chemo.
-
For neuropathy my MO gave me the go ahead on L-Glutamine powder 30 g a day - I do it 10g at a time mixed in juice - he said only the pure cause some of it is mixed with antioxidants which in his book is a no no during chemo. He also gave me the go ahead on B6 and B12 - but I think the best thing he did for my neuropathy was reduce the carboplatin by 15% - both taxotere and carboplatin can cause neuropathy and he thought in my case it was the carboplatin - not sure why he thought that - but it was much better the 2nd go. I also have been doing the b6, b12 and L-glutamin through the whole cycle this time which I was not the first time - so who knows what worked or didn't.
-
thanks everyone. Yes, I'm a fan of Ativan as well. It's like amnesia in a bottle. Lol. I took one last night, but it didn't last. I probably needed 2. The pain is just dull today, but my temp rose a bit too. 99.7. Keeping an eye on it. I also woke up with white disgusting crap on my tongue, is that thrush? I have been rinsing with salt and backing soda, is there something better for it?
-
Ddkath70: The white stuff on your tongue could be thrush. Call your MO and describe it. If it is thrush, they can prescribe either Fluconazole, a single dose pill, or a prescription mouthwash that can get rid of it.
-
thanks! I just talked to the doctor on call and he is calling in the prescription to my pharmacy. Thanks for the help,I can't stand this for one more minute. Ugh!!!!
-
Ddkath70: You're welcome! I hope the Rx clears it up for you.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team