Starting Chemo in April 2014

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  • clarrn
    clarrn Member Posts: 557
    edited May 2014

    swissmiss- I have had a productive cough for 5 weeks now.  I cough up tonnes of pretty green stuff every day, but my onc is ok with it.  No fever.  Had my last 2 rounds of AC with it.  Like cold said, if you get a fever go, but otherwise I'd try to stay away from the germy ER!

    I happen to have my own stethoscope at home and so I listen to my chest every once in awhile to see if my air entry is ok, do you have a a nurse friend who could stop in for a quick listen?

  • Blueberry4
    Blueberry4 Member Posts: 98
    edited May 2014

    Swissmiss, I had a pretty bad cold just before my first infusion that led to a cough.  I coughed for about a month.  Since I never ran a temp more than 100, my MO didn't think it was a big deal.  He listened to my lungs at each visit, but there was no treatment from him.  Because the cough was driving me crazy, I went to my PCP, and she prescribed me a super duper cough medicine containing antihistamines and decongestants.  My MO was okay with me taking it ,and the coughing eventually stopped.  The ER is so full of germs, I think I would avoid it unless I was running a temp of 100.4+ or if I thought I had strep, but it's really hard not to go when a nurse tells you to.  Good luck, I will be thinking of you.

    Cold, I love the pink! You rock.

    Timbuktu, yay, on a clear scan.

    Clarrn, yay, for finishing AC. I go for number 3 of 4 next Tuesday.  I can taste it just thinking about it, yuck.

    Mompv and Cammychris, I really feel for you. The decisions and waiting are so hard. I had high ki67 and high oncotype scores so chemo for me and lots of it, 6 months.  Although my MO disagreed, my BS called me from home just before the oncotype score came back to tell me that if it was his wife, he would want her to have chemo unless the score was very low.  The two opinions muddied the waters a bit, but my oncotype was so high it didn't matter in the end.

    So, my heels have been stinging and have been really, really itchy. I called my nurse and she said it was likely neuropathy cause by the cytoxin.  Has anyone else experienced neuropathy with cytoxin?  I knew taxol and taxotere had this side effect but not cytoxin.  :-(

  • linda505
    linda505 Member Posts: 847
    edited May 2014

    Cold -love the wig LOL!!! You can have some real fun with that.

    Swissmiss  - do you have an urgent care center instead of the ER?  I know that my copays for urgent care are alot less than emergency room and then at least you are being looked at by a doctor who can order a chest xray if deemed needed.  But if you are running a fever and it is 100.5 or above then I agree the ER may be the place to go.  Strep is nothing to mess around with even without our compromised immune systems.

  • Swissmiss
    Swissmiss Member Posts: 111
    edited May 2014

    Thank you everyone for your feedback on my cough. Ugh, I wish this wasn't happening during my usual "feeling good" week. I do not have a fever, just the cough for now.  My daughter is counting on me for her recital tomorrow, so cross your fingers that I'll still be ok to watch her dance. Of course I'll be the one coughing like crazy and getting dirty looks :) I'll have to stop by urgent care tomorrow, I think. I just have the feeling it's going to get worse :( I'm wondering if this could prevent me from getting my first round of Taxol on Wednesday.  Thanks again, so nice to have you all here for me <3

  • EverForward
    EverForward Member Posts: 242
    edited May 2014

    Swiss, I had a bothersome cough after my first round. It stayed mostly in my throat not my chest. It sounded worse than it felt. I never got a fever but it stuck around for almost 2 weeks. If you don't feel that a trip to the ER is warranted, maybe make an appointment with your primary care physician. 

  • merg
    merg Member Posts: 61
    edited May 2014

    Cold, Looks really great, Thinking Pink!

    This is a "good" week. I feel this huge sense of urgency, in other words I am rushing around trying to get things done.

    Swiss, I think you should go to the doc in the box.I hope you feel better.

    Have an easy day today, Ya'll.

  • Ddkath70
    Ddkath70 Member Posts: 129
    edited May 2014

    nuelasta pain, any help or tips would be appreciated. I took a clairiton  yesterday right before then took some Advil this morning, now just took another clairiton. Anything else I can do?  Pain is intense. 

    Thanks,

    Dd

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2014

    I took 2 aleve every 12 hours. Dd. 

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2014

    so I should be starting my good week but I feel like crud. My skin is sensitive to everything I feel like I have sun burn from my torsos to my knees my throat feels like it's coated with Adromycin and I am approaching the DONE point. Monday is going to be interesting at my oncologist appt. 

  • MameMe
    MameMe Member Posts: 425
    edited May 2014

    Jamie, that is the pits. I am seeing how unpredictable chemo can be now. I felt pretty much ok for the last two weeks, at 8 out of 12 Taxols. Recently I am having heartburn despite a daily Pepcid, a lot of fatigue and ever more disappearing hair. Hang in there.

  • MommyQ
    MommyQ Member Posts: 117
    edited May 2014

    ColdInCanada: LOVE the pink wig! Such a great idea to have some fun!

    Jaimieh: Sorry to hear you don't feel well. On the bright side, you have an appt for Monday to ask the doc for some help. Hang in there. Maybe try some cool towels to soothe the skin???

    Starting my good week here. Pulse has finally dropped from the high nineties/low 100s to a normal 75 bpm. Went to the dog park to let my dog get some exercise, since I can finally catch my breath just walking! :) Ice cream is still just about the only thing that tastes right so I just enjoyed a bit of Ben & Jerry's Cherry Garcia. Mmm.

  • Ddkath70
    Ddkath70 Member Posts: 129
    edited May 2014

    thanks Jaimieh, I will try that. Here is me in my chair on Wednesday. It's been a blur ever since . Getting better now though,

    image

  • LovebeingNana
    LovebeingNana Member Posts: 134
    edited June 2014

    Hello all,

    Cold your picture gave me a much needed smile. I appreciate you….

    DDkath I love your pic too.

    Round 3 was Thursday and it has truly kicked my behind like no other. On Day two which was last night I started with severe chills…then at about 11pm I took my temp and had a fever of 102.3. Bad headache and fatigue were the only other symptoms. My MO had given me his pager number in case fever went over 100.5 so I called him and he told me to start taking my Levaquin that he had me fill before I ever started chemo. No idea what caused the fever but I am kind of wondering if it is my sinuses. Last night was kind of scary. Today was terrible too… fever did not break until 4pm today.  Can I just say this is making me petrified of doing this again???

    I hope everyone is doing OK. :)

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited June 2014

    Dd I hope it helps. 

    I have decided my new name is hot mess. Yup, I am a hot mess.   Tomorrow's another day I just sure hope it's better. 

  • Ddkath70
    Ddkath70 Member Posts: 129
    edited June 2014

    I wish everyone at least one night SE free! This rate I'm my mouth is rancid. 

    I loved your wig, Cold! Just an fyi, we spoke awhile back about nausea and I had emend, Zofran, compazine, and ativan. Ativan was my friend because it basically acts as an amnesia drug. I don't remember shit. Lol. 

  • jhodro
    jhodro Member Posts: 240
    edited June 2014

    MameMe: I too have some nasty heartburn, and I'm even on a break week. I am doing Pepcid, but I am thinking of asking for something stronger, if it exists. I was wondering if it was because of the doxycyclene they gave me for the nasty acne I have on my head, but I guess it could just be the taxol. I have also lost 90% of my eyebrows at 6 of 12, and about 90% of the hair on my head - - I have a little peach fuzz and that's it. Looking forward to getting this done!!

    MommyQ: Ice cream is the best medicine. :)

    Ddkath: my MO gave me ativan to try to sleep on chemo nights since the ambien didn't do a thing. Have you used it for that?

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited June 2014

    I use ativan when I need to.  I've found it to be very powerful, much more powerful than xanax.

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    Cute pic, Ddkath. I'm also fan of Ativan.  

    Jamieh - sorry you're having a rough time.  It's no fun at all.

    Jhodro and MameMe - my onc nurses told me to use OTC Prilosec for heartburn / reflux.  It's stronger than Pepcid.  I find I've got bad heartburn even in Week 2 and 3 after TC no.2 if I eat anything spicy at all.  Prilosec takes care of it.

    LovebeingNana - glad you checked in, was wondering how you were doing.  Sorry to hear No. 3 is starting out so difficult.  Hopefully the antibiotics will take care of things and glad your fever broke.

    I dreamt last night that I threw a temper tantrum when they were trying to give me the IV for TC No. 3 next week ...

  • MameMe
    MameMe Member Posts: 425
    edited June 2014

    Sharon, That's exactly how I feel about this whole thing! Great dream! As far as Pepcid vs Prilosec, I thought they were the same thing. I have an rx for Famotidine 40mgs, take one daily. What is Prilosec generic?

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    I'm not sure what else Prilosec goes by - it's sold over the counter as Prilosec.  It's definitely stronger than Pepcid, but so far I've had no ill effects from it.

  • mikishelley
    mikishelley Member Posts: 83
    edited June 2014

    Cold Great wig you look awesome!

    Blueberry - I too have neuropathy in my feet. I also have been peeling chunks of dead skin from my feet. It was scary at first but then I realize it was just dead skin nothing but a makeshift pedi. The tingling and stabbing pains come and go. I don't have any answers about how long it will last. I plan to talk to my MO on Tuesday.

    DDKath70- My MO gave me a prescription for percocet for the Neulasta pain. Mine was so bad I cried for three days the first time. The second chemo the MO decided I should skip the Neulasta. BIG MISTAKE. My Neutrophils and WBC's vanished and I got so sick and weak. So, back to the Neulasta and lots of Percocet. I worry about taking strong Narcotics, but I will get through the pain anyway I need to.

    Went to my Uncle's funeral yesterday and it wiped me out. An hour drive there, two hours for the service and an hour drive back. Glad I went though it was worth the exhaustion. He lived a wonderful 90 1/2 years and is now reunited with the love of his life. Smiling down from heaven together.   

  • MameMe
    MameMe Member Posts: 425
    edited June 2014

    Thanks Sharon. Miki, sorry to hear about your uncle, although its wonderful that he lived such a long time! 

    I just had an almost fainting episode, just leaning over to pick something up and then whoosh, practically passing out.  DH is gone til tonight, and its scary to feel that vulnerable. I am going to be really careful the rest of today. Man, this whole thing is for the birds. : (

  • mikishelley
    mikishelley Member Posts: 83
    edited June 2014

    MameMe- Be careful today. Anemia which can make you feel dizzy is a real SE. Use slow purposeful movements and eat some proteins. Hope your day is uneventful.

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    That's scary, MameMe.  Being careful is best.  My DH was planning to fly to Maine for a few days to check on our house there, but I think he's concerned about leaving me alone.  

    Mikishelly - sounds like your Uncle lived a full life - 90 is pretty awesome.

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited June 2014

    My onco recommende acetyl-L 

    carnitine for neuropathy.  I've also heard that b vitamins can help.

    I take the carnitine every day but how would I know if it's helping?

    I take the b viatmins on and off, I've heard vitamins fight the chemo.

  • linda505
    linda505 Member Posts: 847
    edited June 2014

    For neuropathy my MO gave me the go ahead on L-Glutamine powder 30 g a day - I do it 10g at a time mixed in juice - he said only the pure cause some of it is mixed with antioxidants which in his book is a no no during chemo.  He also gave me the go ahead on B6 and B12 - but I think the best thing he did for my neuropathy was reduce the carboplatin by 15% - both taxotere and carboplatin can cause neuropathy and he thought in my case it was the carboplatin - not sure why he thought that - but it was much better the 2nd go.  I also have been doing the b6, b12 and L-glutamin through the whole cycle this time which I was not the first time - so who knows what worked or didn't.

  • Ddkath70
    Ddkath70 Member Posts: 129
    edited June 2014

    thanks everyone. Yes, I'm a fan of Ativan as well. It's like amnesia in a bottle. Lol. I took one last night, but it didn't last. I probably needed 2. The pain is just dull today, but my temp rose a bit too. 99.7. Keeping an eye on it. I also woke up with white disgusting crap on my tongue, is that thrush? I have been rinsing with salt and backing soda, is there something better for it?

  • MommyQ
    MommyQ Member Posts: 117
    edited June 2014

    Ddkath70: The white stuff on your tongue could be thrush. Call your MO and describe it. If it is thrush, they can prescribe either Fluconazole, a single dose pill, or a prescription mouthwash that can get rid of it.

  • Ddkath70
    Ddkath70 Member Posts: 129
    edited June 2014

    thanks! I just talked to the doctor on call and he is calling in the prescription to my pharmacy. Thanks for the help,I can't stand this for one more minute. Ugh!!!!

  • MommyQ
    MommyQ Member Posts: 117
    edited June 2014

    Ddkath70: You're welcome! I hope the Rx clears it up for you. :)

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