Calling all TNs

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  • Leealice
    Leealice Member Posts: 87
    edited May 2014

    Thanks for the update Navymom and congrats. I also had 6 rounds of TAC so I'm happy to see someone 5 years out doing well

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  • TifJ
    TifJ Member Posts: 1,568
    edited May 2014


    Congrats NavyMom!! What a wonderful milestone!! I wish you many, many more years of health and happiness!

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  • MomMom
    MomMom Member Posts: 523
    edited May 2014

    Congrats NavyMom!!!!

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  • Lookingforward66
    Lookingforward66 Member Posts: 147
    edited May 2014

    Congrats NavyMom!!  So nice to have good news. We all strive for the 5 year mark & of course feel relief as odds of recurrence are real slim. So happy for you. 

    Proud of your son & all of our sons & daughters that serve.  Thank him for us!!

    Great day for good news!

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  • LanaM
    LanaM Member Posts: 142
    edited May 2014

    congrats navy mom! 

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited May 2014

    Thanks for all the kind posts.  Today I rec'd a beautiful flower arrangement from my gal pals who saw me through a ton of shit in my life.  What a sweet surprise.  We are going out Friday night to celebrate.  I am so grateful for all the people who have walked with me during the this journey called cancer.  And that includes everyone on this thread.....As horrible as BC is, having met so many wonderful people here on the boards has been a blessing.  Thanks to all of you.

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  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited May 2014

    And one more congratulations NavyMom!  Celebrate!

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  • Allydp
    Allydp Member Posts: 520
    edited May 2014

    Simplelife and others who have finished rads, congrats!! What an awesome milestone...and just in time for summer!!!

    NavyMom, another congrats from me as well!!

    Bak, I am so, so sorry for the loss of your sweet dog. Sending you lots of love. 

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  • Luah
    Luah Member Posts: 1,541
    edited May 2014

    Navymom:  Big cheers for your 5-year milestone! Have enjoyed your posts over the years.

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  • LRM216
    LRM216 Member Posts: 2,115
    edited May 2014

    Navy Mom: 

    Make sure you have one for us Friday night!  We'll be there with you in spirit!

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  • Stupidboob
    Stupidboob Member Posts: 345
    edited May 2014


    http://medicalxpress.com/news/2014-05-drug-triple-negative-breast-cancer.html

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  • simplelife4real
    simplelife4real Member Posts: 563
    edited May 2014

    Thanks for the article Sadie!

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  • Lookingforward66
    Lookingforward66 Member Posts: 147
    edited May 2014

    Thanks Sadie,

    Let's all hope this is a breakthrough. Wouldn't it be a big step forward. 

    Marsha

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited May 2014

    Thanks for the article, stupidboob.  I never stop praying for a break through.  And I am so grateful for those who participate in research studies.

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  • Nettie1964
    Nettie1964 Member Posts: 759
    edited May 2014

    It seems that I never fully understand these articles. Can someone translate?

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  • Islandmama2
    Islandmama2 Member Posts: 163
    edited May 2014

    I'm 35. I had a 4.7cm tumour. I had lumpectomy with SNB. 1 node had few cancer cells on immunostain but was otherwise negative. 

    I am awaiting my MO and RO consult. 

    I know I will get chemo and rads just not sure when.

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  • simplelife4real
    simplelife4real Member Posts: 563
    edited May 2014

    Welcome Islandmama.   I'm sorry you have TNBC but I'm glad you found us so quickly.  We are here to support you through treatment and beyond.  I finished treatment just 2 days after you were diagnosed.  Wishing you the best with chemo and rads.  Be sure to join the chemo thread for the month you start chemo.  I found the Sept. 2013 chemo thread (the month I started chemo) to be a huge help during chemo.

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  • Islandmama2
    Islandmama2 Member Posts: 163
    edited May 2014

    simplelife

    Thank you! I look forward to being able to support other ladies one day. For now, I need the help!

    When my friends ask about TNBC I explain that it is all bad but this one is slightly worse but has some advantages over the hormone receptive types LOL

    I am thinking I will receive ACT chemo but not 100%? I just want to know if I am likely to lose my hair! I think I will and it's ok, but just want to know how short to cut my hair tomorrow! Going to buy some cool scarves!

    Trying to stay positive and carry on

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  • simplelife4real
    simplelife4real Member Posts: 563
    edited May 2014

    Islandmamma, most people lose their hair about two or three weeks after starting either AC or ACT.  It's the AC part that really causes the hair loss.   I did 12 weekly taxol first and then 4 dose dense AC every other week.  I was able to keep most of my hair during the taxol and didn't shave it until after my second AC infusion.  I had a short pixie-type haircut before the taxol started and the "shedding" wasn't too bad during the taxol.   Since you are waiting for your consult with your MO, it may be a few weeks before your hair actually starts falling out.  Most people do the AC part first and become bald rather quickly (I'm an oddball since I did taxol first). Depending on when you start chemo and when you start the AC part,  you might be able to get by with one more regular haircut before you get it cut short.  It depends on what you want to do too.  If you have long hair, it will be a lot easier to get a short haircut first before it starts to fall out.  Hope that makes some sense.

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  • Islandmama2
    Islandmama2 Member Posts: 163
    edited May 2014

    thanks simplelife! Very helpful!

    My hair isn't quite to my shoulders so I'm going to go short!

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  • MomMom
    MomMom Member Posts: 523
    edited May 2014

    Islandmama,  What a wonderful positive attitude! It will serve you well. I've had AC and the 5th of my 12 weekly Taxol, to be followed by rads. So far it has been very tolerable. Yes you will lose your hair from the AC, but it grows back. I got a buzz cut 2 weeks from the first AC, but hair loss a week later.  You will find great support and encouragement here.  Experiences vary with treatment, but it's all good because we are all doing whatever we gotta do to be cancer free!  Hang in there.  You will feel more in control when your treatment plan is in place.

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  • MomMom
    MomMom Member Posts: 523
    edited May 2014

    Islandmama,  What a wonderful positive attitude! It will serve you well. I've had AC and the 5th of my 12 weekly Taxol, to be followed by rads. So far it has been very tolerable. Yes you will lose your hair from the AC, but it grows back. I got a buzz cut 2 weeks from the first AC, but hair loss a week later.  You will find great support and encouragement here.  Experiences vary with treatment, but it's all good because we are all doing whatever we gotta do to be cancer free!  Hang in there.  You will feel more in control when your treatment plan is in place.

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  • Islandmama2
    Islandmama2 Member Posts: 163
    edited May 2014

    interesting thing about my "positive node" was that it was a sentinel node but was initially clear. It turned up "positive" after immunostaining. The immunostain showed isolated tumour cells or "rare single cells and one tiny group of few cohesive cells in subcapsular sinus". 

    I asked my surgeon about the immunohistochemistry and he said it is a fairly new test. A few years ago the node would have been identified as negative as IHC wasn't developed yet! My Nottingham scale is T2 N0(I+) M?

    So feeling hopefully about that!

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  • Nettie1964
    Nettie1964 Member Posts: 759
    edited May 2014

    Can anyone tell me if they have had "odd" pains After treatment?

    I'm paranoid and trying not to go to the ugly place.

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  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited May 2014

    Islandmama,

    I'm starting AC every other week June 17. I was told my hair will fall out on about day 17 without a doubt.

    I know nothing about testing (especially New testing). My snb came up neg for all nodes tested but my oncologist prescribed chemo based on the fact that tnbc "is a tricky devil and tends to pop up elsewhere." I'm wondering if the new test you had is the key to discovering how it "pops up" elsewhere????

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  • Islandmama2
    Islandmama2 Member Posts: 163
    edited May 2014

    thanks radical!

    I have no idea either about the testing! I'm still in a fog and I am 10 days post op! It's all happening so fast but not fast enough.

    Did you get a PICC or port?

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited June 2014

    Just gorgeous

    Brad sent this one to me. #CopyCat

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  • TifJ
    TifJ Member Posts: 1,568
    edited June 2014

    Nettie1964- I will be 4 years out in August and still have "odd" pains. I have had lower back and left hip pain (leading to a bone scan and x-rays) that turned out to be caused by degenerative disc issues in my lower spine ( I am 48). My ribs don't hurt when I push on them, but if someone pokes or tickles me it really hurts. My MO said this is normal- chemo really messes our bodies up. I always used to feel younger than my age, but now I feel physically older, but still young in my mind and heart!

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  • Nettie1964
    Nettie1964 Member Posts: 759
    edited June 2014

    TifJ, thanks. I'm just so tired of all the new pains. But knowing when or what to report.  It's nice to hear that others have had stuff that was normal. I know everyone I'd different And I kknow the two week rule.

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  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited June 2014

    Islandmama,

    No port! Right now I'm excited about that but I'll have to let you know after I get stuck a few times!

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