March 2014 Surgery
Comments
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Kelly, I think I'd worry about the seatbelts and restraints across my chest. I would think the kind that have a bar across the lap would be ok.
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All my PS said was to avoid bouncing and to wear a supportive sports bra when walking. No mention of roller coasters.
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I took a simulator ride at the Empire State Building the other day -- and that was plenty enough. My body did not like all the jostling about. My TE's especially. I would not try a roller coaster ride myself. Like anything else -- I would say you judge it for yourself-- however I am erring on the side of caution as I want to stay healthy and physically good for EXCHANGE. I have also pulled a muscle from sternum to spine -- against my rib cage and around to my back -- and I have no idea how I did it. Hurts to sneeze kind of pull -- it is slowly healing and the pain is going away. I think things are just delicate and continuing to adjust to TE.
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I guess it's your call what you feel comfortable with. If you have a season pass, you know which of the roller coasters have a smoother ride and which ones don't. I think I would definitely avoid the Mean Streak - lol. Some of them have a smoother ride, but a lot of them have the flipping upside down too, which I'm not quite sure how that would be, and Jullie's right, the restraints might be located in a bad place.
I don't even want to cut grass on our riding mower, we have 3 acres of rough land, and I remember last year when we got the new mower, I was bouncing around all over the place. I made a comment to my b/f then (now husband) how the tightest of sports bras wouldn't have helped. Needless to say, he is on his own with the grass cutting this year. It's too bad, because I rather enjoy it. I may give it a try in a month or so, if I go really slow.
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I don't even like where the seatbelt hits me in the car, so I couldn't do it on a roller coaster right now. Maybe with a lap bar and if the ride isn't too jerky or goes upside down. But I have implants, nort TEs. Kelly I just think it's awesome that you feel good enough to even think about roller coasters. I think we've a all come a long way.
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I hope all of my March 2014 Surgery Sisters are doing well. I was visiting the June 2014 Surgeries forum and they were talking about nips. So that made me think about something. If I had nipple-sparing, will my nips stay flat like they are now? I thought they would be raised, but if I understood the PS nurse correctly yesterday at my second fill, they will stay flat. What are your surgeons telling you about nipple-sparing? I don't see the PS until my last fill, and at 50ccs that will be a while!
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Southernbling, I will check with my daughter. She had nipple sparing surgery 2 years ago. But, if I remember right hers are not flat. I will let you know!
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southern - I had nip sparing - they stretch out a bit as you expand and have no retraction mechanism as that has been removed. I would imagine they are a bit different for everyone depending on how they looked prior to surgery, but mine a pretty flat.
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Southernbling, talked to my daughter and she said if anything hers are less flat than before surgery. And more responsive. But she had immediate implants placed. No expanders. I don't know if that makes a difference or not.
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Morning March sisters - just dropping in to say hi to all that I don't see in the other forums. Hope everyone is doing well with their recoveries. Funny my TE's start bothering me the middle week after chemo - and they they go back to not bothering me at all. I guess chemo makes the muscles less elastic as a SE - don't know if that is medically correct but that is what it feels like.
Fighting a UTI right now - not feeling bad just a little back pain - but hate that I have an infection at all ugh - oh well - at least my system is strong enough that I am battling it at home and not in the hospital.
Saw the nip conversation in the June forum and also in here. I originally thought I was going to have nipple sparing but my PS did not feel comfortable leaving behind that little bit of breast tissue in my case. I thought it was odd that my BS was comfortable with the idea and in fact suggested it, but my PS did not want to do that. He does them and I saw pics of ones that he has done and they looked great to me, but I went with his gut. I am glad now that I did based on my little healing issues - I fear those might have been worse.
I had kind of decided that I would have nipple reconstruction, as that is what my PS was suggesting, and then a tattoo. But I am now leaning towards the 3d tattoo only - I really don't think I want any more cutting on my skin than needed and I really don't care if I have nips or not. My PS says he does the 3d tattoos also and also has his book of pics of those - and again they looked great to me - so I think I will trust him to do them. I really love him - he is such a kind man and his staff is wonderful and even though I know that when I see him - he is going stick me with needles and shoot liquid into to me - I really look forward to seeing him and his staff. He is definitely someone that I will miss after this is over.
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This is all interesting. Since I had a UMX, when I go in for exchange, the other will be lifted and reduced and he will make a nipple out of the existing nipple for the surgical side. The things they can do!
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Re: nipple sparing and nipple projection
I had nipple sparing, direct-to-implant on April 24, so no expansion. Before surgery, my right nipple was flat/inverse; it has been so my entire life. It would only project a bit if cold or if I manipulated it. My left nipple had more projection and was not inverse, but really I have to state that both my nipples pre-surgery were kind of unimpressive as far as nipples go - I have never had "pencil eraser" nipples, more like wrinkly bits of pale pink tissue gathered in a sort of circular shape...you can see pictures in the picture forum of them pre-surgery.
My right nipple after surgery is no longer inverse. I understand that this is because when nipples are "naturally inverse" it can be due to short or tight ducts/connective tissue or something pulling it in. So, when that tissue was removed it was released. It has more projection now (I was actually surprised by this!). My left one is a little flatter than it was before surgery at this point, but in part this may be due to fact I had some scabbing/healing happen so lost a bit of tissue on it.
I would not call mine flat, at least not any flatter than they were before surgery. One has more projection than it did before, one has a little less than it did before - now they are actually more even! Both react to cold and still project as they did before surgery in cold. I do however notice that they are more sensitive to pressure, so if I am wearing a bra with some compression in it, they will be "flattened" down unless it is very cold and won't pop back out again until I release the compression.
I think it really does vary, as I certainly have seen some women end up with flatter nipples, and others with nipples that do not appear to have any less projection than they did before surgery.
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Another chapter in the saga of reconstruction...this time a delay but it's for a good reason. My PS postponed my June surgery #5 until September. I go to a military hospital and unfortunately there have been too many soldiers who have been brought in from the middle east wars recently. My PS does all the reconstruction on burns and most of the men and women have burns because of the IED explosives. So his breast cancer reconstruction patients got taken off the schedule. I'm happy to wait. These brave young people deserve the best and my PS is THE expert in burn reconstruction.
I've also had some changes in my newest implants. Actually my right side is perfect, as usual. The left side that was damaged in the infection after the first surgery continues to have a hard time adapting in spite of several attempts to redefine the pocket and a change in implants. All the swelling from the March 21 surgery #4 to repair left shoulder & axillary muscles is long gone. The swelling extended onto the top of the left implant so it looked good. The PS put in another row of sutures to try to prevent migration and reduce rippling and indeed it looked better at first. Now the rippling has started again and the implant has migrated a bit. (Up this time, not down like last time.) I have really no fat under a significant part of my chest which leaves areas of skin and bone. They are quite sore even 9 months after the BMX. The switch in implants from rounds to anatomicals in December seemed to be the answer. Because they are so tall, they covered some of the most tender places. The right side is fine. (It doesn't care what kind of surgery, adjustment, pocketwork or implants it gets.) The left side is just jinxed. The top is leaning a bit towards my sternum and there is a little "shelf" there which is uncomfortable.
So I'm thinking I will ask to go back to rounds in surgery #5 and see if fat grafting will do enough to cover the divots instead. If that's not possible or doesn't work, I think I'll just give up and go flat. My anatomy was obviously too damaged in the infection to be able to have an uncomplicated reconstruction on the left side.
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I had nipple sparing direct to implants but then had to lose the right nipple a month after my BMX because the margins were positive. My foobs were 10 weeks old yesterday and my remaining nipple isn't flat, it looks just a little bigger than it was before because it's stretched out some. I have decided to get a 3D tattoo instead of nipple reconstruction. I'm trying to get an appointment with Vinnie Myers in New Orleans but he's booked solid through the end of the year and they aren't booking for 2015 yet.
Sandra, that's too bad you have a delay but understandable in this case, and I'm sorry you continue to have problems with the left side. I have the anatomicals and so far I really like them but wish there was a little more projection. I really need to get back on a diet and lose some weight - I think that will help make my implants stand out a little more.
I think I've taken out my frustrations at having these medical issues this year by eating too much and not getting enough exercise.
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How does the direct-to-implant at the time of surgery work instead of the tissue expanders? This is the first time I've heard of such a thing.
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ever - direct to implant is done basically the same way as TE placement. Generally, surgeons do this type of surgery when they feel confident that you will not have issues with clear margins, and will not need radiation. It is often done if the patient is willing to stay on the smaller side - there is only so much room under the pectoral muscle, but some can go larger if their pectoral muscles are more lax. If a patient already had implants prior to a diagnosis they can sometimes have this surgery. Some doctors are reluctant to do direct to implant as it is a bit more prone to capsular contracture. There are a couple of threads on this site devoted to this surgery.
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Direct to Implant was nice because I woke up from the BMX with nice little mounds. I guess they weren't so little...they were 800 cc Allergan Style 20 rounds. But I had super-sized breasts before so anything looked small in comparison. I didn't have any muscle spasms even though my pecs were nice and tight. (I was a fitness instructor.) It's a "one and done" surgery which is nice. No TE's. No delays. If some stupid person in the OR hadn't given me a serious gram-positive staph infection on one side, all this would have been over last August. The unaffected right side has never given me one minute of trouble.
When I lost the left implant and all the necrotic soft tissue and muscles at 14 days, a TE was put in. In a few hours the muscle spasms started. TE's are hard and my traumatized left side didn't like it one bit. The right side with the original direct implant continued just fine so I REALLY know how the two different procedures feel.
If your PS does Direct to Implant, I can recommend it.
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Everforward...
Usually direct to implant it is done with a tissue matrix - like Alloderm, Stattice, etc. The surgeon can then make a "pocket" at the IMF using the matrix that makes more room available for the implant without needing to expand and it also means they usually do not need to dissect the serratus muscle. The Alloderm is sewn along IMF to chest wall, and to pectoral and serratus, which also reduces risk of lateral migration and bottoming out, and adds protection, coverage and support to the implant. Think of it as an internal bra. Eventually your own body tissues integrate with the Alloderm. Alloderm also may decrease risk of capsular contracture and it allows the surgeon to create some natural looking ptosis.
You do need a large enough, healthy tissue flap. The direct to implant can be a bit harder on the skin and tissues compared to expansion. Location of cancer, or planned treatments such as radiation, may mean it is not available as an option. Sometimes women can go a bit larger, especially if they had more deflated breasts but lots of skin, but usually you should be willing to stay the same size or a bit smaller. If you do nipple sparing rather than skin sparing, then very ptotic breasts or very large breasts can limit it as an option.
I was a natural 32DD before surgery and had 435cc Allergan high profile silicone round implants placed immediately after my mastectomy, and Alloderm was used. I had a very, very good recovery with very little pain and discomfort. It does take a while for the implants to drop into their new pockets, and when I woke up they were at my neck and very firm! However, they have already changed a lot in 5 weeks and will do so over next few weeks and months. I have not had crazy spasms (though I too had strong pectorals from being very physically active and weight training...I was doing pectoral exercises in the days before surgery too) nor had the discomfort of hard backed TEs. I have honestly never felt uncomfortably "stretched" in my chest. Swollen initially yes, but not "tight" or anything. Even if I need a revision later (not sure if I will) I am very happy, and happy I was able to avoid weeks or months of tissue expansion. I will probably end up around a 32D which is great as I wanted to be smaller and asked my PS to try and achieve that! I was very pleased to find an experienced and skilled PS who suggested I was a great candidate for direct to implant.
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Dang it Sandra!! - keeping you in my thoughts and prayers and hoping the rounds are the solution for that stubborn righty!
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Thank you. I will add this to my list of questions when I consult with the breast and plastic surgeons.
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Okay, since none of the March 2014 Surgery Sisters have posted in almost a week, I thought I would share a scary thing that happened to me Saturday evening. I was bitten by a brown recluse spider! Not only did it get me me on underside of my arm but also right next to my boob! No, I am not kidding, and yes it was a brown recluse! So here goes...
I had been working outside all day, walked 4 miles on a nature trail, and then visited an old cemetary to look for the grave of my son's great great great grandmother. I was in the shower when I felt a sting then I felt something between my arm and boob. I grabbed it without even looking and threw it against the shower wall. Hubby retrieved it from the shower, and we placed it in a bag. I had some redness in both areas but no pain. Red area increased on Sunday, but I waited until Monday to go to urgent care center. Nurse and CRNP both said it could not be a brown recluse because I would have already had a more severe reaction like bruising, blister, pain, etc. CRNP said it was cellulitis and put me on an antibiotic as a precaution. I went to the PS for my weekly fill-up and got my favorite nurse. She took one look at my bite and said no way would she give me a fill-up because the PS would absolutely kill her for even thinking about doing the fill. She didn't think it was a brown recluse either, but...
I had already looked at the brown recluse under a magnifying glass, and I just knew it was one. So I took it to the pest control owner that my husband has known his whole life. He said he looked under a microscope and that it was definitely a brown recluse! Still red today, but getting better. Can't have my fill until I get off the antibiotics so that adds another 2 weeks to the implants schedule! I had wanted to get the implants during Fall break, but that little spider just might have changed my plans!
Just thought I would share! Hope you ladies are doing well!!!
Keep smilin', keep shinin'...
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southern - omg, you poor thing! I can't imagine how scary that was - brown recluse is a bad news spider. Glad you were proactive!
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Southern so sad to read this. Haven't we gone through enough already. Glad the antibiotic seems to be working.
I am so glad your husband pursued getting the spider analyzed. Hope you have no other problems with that and are able to get your exchange fairly close to your original planned date.
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Southernbling, Oh my, how scary!!! So are they treating you as if it was a brown recluse spider? You said the urgent care people didn't think it was a brown recluse spider bite? Is there an anivenom you should have? I hope it gets better soon. Sorry it delayed your fills.
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Southern, that is just awful. Glad you pursued it for correct treatment. I had a fill today only 75cc. PS said it was too tight to do more. He said one more fill of 75cc and I'm done. I can schedule final surgery in August or September. I tentatively scheduled September 9th. I thought I would wait until summer is over to enjoy it without being laid up, and the nurse also said the longer you wait before the final the better. It helps prevent capsular contracture. Will be so happy to get this over with!
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Southern, what a coincidence! This just happened to my husband - or should I say we just identified what caused it. The actual bite occurred in APRIL !! I have learned so much about brown recluse spiders now and the people you spoke to first were just wrong. Except for people with unusual sensitivity that causes extreme symptoms like throat closing and not being able to breathe, 99.9% of people don't notice it until sometime later when they see redness around the bite. As the days progress, it gets swollen and much redder so many people go to the doctor. Others like my husband wait until it is already showing signs of infection. He could tell it was a bite but had no idea what did it, nor could the doctor tell. He got antibiotics for 5 days but it required another round of 5 days to make much of a difference. It was VERY slow to heal. You can still see it two months later! Looks like the tissue around the bite has died but the swelling is gone and the redness is just discoloration around the dark bite area. Now for the WEIRD part.
My husband developed hemolytic anemia in May. It turns out it was because of the bite, which we now know was from a brown recluse spider. (There are websites that show you what different spider bites look like.) The venom of a brown recluse is known to do this about 30% of the time. The venom causes his red blood cells to die at a much faster rate than the normal 120 days. His bone marrow was unable to keep up with the destruction by making new red blood cells fast enough. In May, Mike began to has dizzy spells now and then and felt run down. His energy level has decreased ever since and by last week we were blaming it on a combination of an injured rotator cuff and hip, as well as an abcessed tooth. His doctor did routine blood work and told him he was anemic. They repeated the test earlier this week and it is even lower. Something clicked in the doctor's head and he remembered treating Mike for the spider bite. Bingo! The doc checked the literature and sure enough, the bite of a brown recluse causes hemolytic anemia 30% of the time. They confirmed the bite by photo comparison.
Who knew?
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Sandra - are they discussing giving him epoeitin or Procrit?
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Sandra:
Sounds like your husband had a much more severe reaction than I did. My husband is still not convinced the spider was a brown recluse even though the post control guy said it was. Maybe I just didn't have too bad of a reaction. It is barely red now and was never swollen. After reading about your husband's experience, I will definitely keep a close eye on my bite.
Hope you fabulous ladies have an awesome weekend!
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Special, the doc gave him a mega dose injection of steroids and he is feeling amazingly better today. Earlier in the week he started mowing the lawn but could only make half a pass across the first part of our normal smallish suburban yard. He had to come in and rest. This morning he felt good enough to finish the entire rest of the yard with no stopping. Those steroids certainly did the trick. He had more blood drawn this morning.
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Sandra - tell him to be careful with the energy from steroids, because when they wear off he may crash. Hope it does the trick and he starts to produce healthy red cells on his own. May be a "tincture of time" thing.
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