Anyone with Adenosquamous Breast Cancer
I've been told I'm the 36th case even known with this breast cancer. Trying to see if anyone else has ever been diagnosed and if so what was your outcome. I can find research on 5 known cases on the internet.
Comments
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This is an older post, but I was also diagnosed in late 2012. Had lumpectomy and they are following it closely. No genetic mutation.
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Amie, how are you doing?
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Hi I am Macie and I have only just found this site. I was DX with Adenosquamous cancer in Aug 2007 with ER+5/8 PR- HER - .I had WLE with radiotherapy followed by Arimadex . Jan 2012 recurrence in sternum bone and soft tissue mass in chest wall this time ER+2PR-HER-so told it was Triple Neg and had Paclitaxol and Epirubicin which was stopped after 12 cycles owing to terrible side effects.
I then had stereotactic RT (cyber knife ) with some success in October 2012
December 2013 saw progression to ribs, and now pleural mets and mediastinal lymph nodes and progression to soft tissue mass in chest while a sternum mets remain stable.
I am currently on Xeloda and Ibandronate acid.
I would dearly like to hear from any one who has the same as I know it is very unusual and I know this is an old site so I hope somebody picks up on it Best Wishes to all love Macie x x
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Hi, Macie. I do not know about this type of breast cancer, but I am hoping that someone who does sees your post. I am glad to hear that you had some success with stereotactic RT in October 2012, and I am glad to hear that you are stable. Although I hope you can make contact with someone with this diagnosis, there are many people here who would be pleased to talk with you -- including some folks who have researched breast cancer and are very knowledgeable about many things, including treatments. Jeanne
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