past & present sufferers of Neuropathy - will it go away???

Notbuyingit · May 2014

finished chemo Jan 8 of this year - had just a little tingling in my toes with the last two treatments.

this has progressively gotten worse - my toes are numb & tingly all the time, when i am on my feet a lot it travels backward to the ball & instep - both feet.

am taking a super B supplement/ acetyl L-Carnetine / alpha Lipoic Acid/ L glutamine, (all recommended supplements)

i tried acupuncture for 3 one hour sessions with no change - even the therapist thought i should have felt something if it was going to work

i have been told that it still could go away gradually...my Onc says if you've had it a year it may be permanent , so i am still hopeful. But it makes working difficult and makes me hesitate to do things that require a lot of walking...

anyone have any tips or suggestions? i need to feel like i am doing something to get better ( as we speak I am scrunching my toes in a pan of sand! ha!)

thanks!!

Sandydoc · May 2014

what chemo did you receive?

Notbuyingit · May 2014

carboplatin - taxotere -herceptin - 6 cycles - finished Jan 8 2014 continuing with the Herceptin til Sept

wrenn · May 2014

i had one cycle of taxotere, cytoxan last november and my heals hurt to walk. I started taking effexor for it because i was told it might help. I think i have to increase the dosage slowly. Hopefully something will work.

Wilsie2 · May 2014

My neuropathy is in my right hand and balls of feet. It came on just as I was finishing up 12 rounds or Abraxane. This was two years ago in June. It is not always bad sometimes I hardly notice, other times the pain is pretty bad, especially in my hand. Cold weather makes it feel worse. I can't say that the pain has improved, but it is not as constant. I am on Elavil, which seems to help.

Wilsie

YoungTurkNYC · May 2014

notbuyingit,

do not take acetyl l carnetine. it was proven by my onc's research that it actually worsens neuropathy. you can find the research results online. i do not know about the other supplements. i still have neuropathy one full year after my chemo infusion but it is better than before.

YoungTurkNYC · May 2014

This is the link to the research.

http://jco.ascopubs.org/content/early/2013/06/03/J...

Notbuyingit · May 2014

wow thanks Young Turk - it certainly isn't helping so I will stop that one

it's just so weird that it's constant numbness - i had arthritis in my feet before this & am wondering if it made me more susceptable (sp?)

past & present sufferers of Neuropathy - will it go away???

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