June 2014 Surgery Sisters

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sandra4611
sandra4611 Member Posts: 2,913

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 jdmac1199  May 29, Lumpectomy, reduction, lift...clynnoli  June 2, Breast mass removal...jbdayton  June 2, Ruben's flap procedure...shycat June 2, Bilateral Mastectomy...blessed2014  June 2, Lumpectomy...dancingdiva  June 2, Lumpectomy, ALND...gila4936  June 3, Bilateral Mastectomy, DIEP...kpmacmill June 4, Lumpectomy...thinkpink4ever  June 5, Bilateral Mastectomy, DIEP...bethq June 5, Bilateral Mastectomy, TE's...slappy-squirrel June 5, Bilateral Mastectomy...sweeetpeakisses June 6, Bilateral Mastectomy, DIEP, TE's...aff June 6, Left Mastectomy, DIEP...trish01254  June 11, Right Mastectomy, DIEP...mulligan June 11, Bilateral Mastectomy, TE's...optimi June 11, Bilateral Mastectomy, DIEP...songlady June 12, Bilateral Mastectomy, Permanent Implants...sjbaker June 12, Lumpectomy...helenna June 16,  Right Mastectomy...margie7121 June 18, Bilateral Mastectomy, right ALND...beachgirl50 June 18, Bilateral Mastectomy, left ALND...kitkatmo June 18, Second Lumpectomy, Wider Margins...rose111 June 20, Right Mastectomy, DIEP...kcat2013  June 20, Permanent Implants...sweetjam June 23, Bilateral Mastectomy, Permanent Implants...wildflower June 23, Bilateral Mastectomy, TE's...sammyjokk  June 23, Bilateral Mastectomy, DIEP...turtle42 June 23, Bilateral Mastectomy, left Lat Dorsi...wizard50 June 24, Bilateral Mastectomy, TE's...hopeellen June 24, Bilateral Mastectomy, TE's...kfinnigan June 25, Lat Flap, TE...worryocd June 26, Bilateral Mastectomy, TE's...ojoyjoy June 26, Bilateral Mastectomy, TE's...marren July 1, Bilateral Mastectomy, Permanent Implants...purplegurll  July 2, Bilateral Mastectomy, Lat Flap, TE's

               

 

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Comments

  • thinkpink4ever
    thinkpink4ever Member Posts: 205
    edited May 2014

    Hey Sandra, I hope to be in June.  I have an appointment with a PS on Monday.  Ready to crank things up and put this behind me.  Where are all of my other June Surgery Sisters?  I need you... <3

    One love,

    tp4ever

  • jdmac1199
    jdmac1199 Member Posts: 65
    edited May 2014


    Hello! I think I will be having my surgery in June. I see my PS on Tuesday. I am ready to do this! Diagnosed on the 23rd April. I am new to posting. I only posted once when I was waiting on test results, but I have done a lot of reading here!

  • thinkpink4ever
    thinkpink4ever Member Posts: 205
    edited May 2014

    Hey jdmac, so we may both be in June!  Aren't you ready to get this done and move on?  I certainly am.  Praying for good results and a quick recovery for all of us dealing with surgeries and treatment...

    One love,

    tp4ever

  • gila4936
    gila4936 Member Posts: 62
    edited May 2014

    Hi all! I'm new around here, too, but have read a lot of discussion threads. My surgery is scheduled for June 3. I'm all over the place emotionally. Some days I feel like a warrior and I'm ready to kick some cancer butt, and other days I just want to cry. I know that's all normal. Meanwhile I'm going through the joys of immediate menopause. I had a total hysterectomy (ovaries included) two years ago and was on hormones but had to stop taking them after my diagnosis.

    I'm looking forward to talking with more ladies having surgery in June.

  • thinkpink4ever
    thinkpink4ever Member Posts: 205
    edited May 2014

    Glad you're here, gila.  I'm new too, and have read quite a few discussion threads.  I'm all over the place emotionally as well, so we have quite a bit in common!  And for me, that makes it a little easier knowing that I'm not alone.  Before you know it, us June Surgery Sisters will be on the the flap side, healing and feeling relieved.  At least, that's my prayer for all of us...

    One love,

    tp4ever

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited May 2014


    Hi Jdmac and Thinkpink,

    So glad you have joined our little group. The others will be along before long. A lot of people go on vacation in June so we have a small group.

    ThinkPink, from your "stats" I think I see that you had a lumpectomy and rads for DCIS back in '01. You had a recurrence last month (same side?) so now you are having a bilateral mastectomy. Right?

    Jdmac, you were also diagnosed in April. What kind of breast cancer? Grade? Stage? What surgery will you have next month?

    I will be having my fifth breast surgery next month. I was diagnosed with DCIS in only one breast last July and although assured by several tests that the other side was healthy, I decided it had to go as well. In August I had a bilateral mastectomy with immediate Allergan Style 20 800 cc silicone round implants in an 8.5 hour surgery. It was a "one and done" surgery, no tissue expanders, no more surgery at all. Pathology reported that the "good" side had a lot of LCIS so it's a good thing I stuck to my guns and insisted on a BMX instead of a UMX.

    Unfortunately I picked up a bad infection from someone in the OR so within hours of getting to my room, my fever started. It was resistant to the first two antibiotics but on day three they switched me to the heavy duty antibiotic of last restort, vancomycin, and things started turning around. I was in the hospital 7 days and sent home with the IV vancomycin and a home health nurse for another 7 days to try to save as much tissue as possible. I lost parts of three muscles and most of the soft tissue under my arm and on the side of the left implant, so the implant had to come out. There wasn't enough skin to cover it anymore. I got a TE on that side. (The other side was fine.) Three months later, after fills and a month long waiting period, I had the exchange surgery and both sides were changed out for Allergan anatomical gummy bears, 740 cc's. Three and a half months later I was back in surgery for operation #4 to do more repairs on the muscles and repairs to the pocket on the left. Next month I'll have #5 to finish the repairs and work on the right pocket. That should be it. I don't want any cosmetic touches - no nipples, no tattoos. Enough is enough.  

  • thinkpink4ever
    thinkpink4ever Member Posts: 205
    edited May 2014

    Wow, sandra, you've been through a lot.  I would probably say "enough is enough" as well.  I'm so glad that you had the BMX.  That's exactly why I'm having my "healthy" breast removed.  Ready to be done with this stuff.  And yes, you summed my stats up accurately.  Can't wait to meet my other June Surgery Sisters!

    One love,

    tp4ever

  • jdmac1199
    jdmac1199 Member Posts: 65
    edited May 2014

    Hello Thinkpink , Gila  and Sandra!!! 

     My emotions are all over the place too! Today is a good day though I have had moments where I am reminded, heck.. I have breast cancer and I have cried a few times today..

     My lump seems so much bigger now I am really aware of it..and sometimes I freak myself out a little too much and over think things.

    Sandra you have been through a lot!! I would feel the same, enough is enough and you have had to deal with so much more than I think I could handle.

     I have IDC with some DCIS too.  Triple positive. First told it was 2cm but when I had my MRI this week, they said it is 3.6cm and one lymph node was swollen.  I am having lumpectomy with reduction and lift. ..and sentinel lymph node removal. Getting a port put in during surgery.

     

     


     

  • thinkpink4ever
    thinkpink4ever Member Posts: 205
    edited May 2014

    Hey Surgery Sisters,

    I'm having a horrible day today.  But when I read about those who are post-op and having a few issues as they try to bounce back, this emotional roller coaster makes a turn as I focus more on them than on myself.  These ups and downs are killing me.  Let's all hang in there or hang on - whatever it takes to get to the other side of this ordeal...

    One love,

    tp4ever

  • sweetpeakisses
    sweetpeakisses Member Posts: 6
    edited May 2014

    Hello everyone!

    I have my surgery scheduled for June 6. I am getting nervous/anxious/excited for everything. I have been googling non stop looking at pictures, reading stories, really just anything I can get my hands on. I am having a bilateral mastectomy followed by diep flap/tissue expanders. My doctor chose this method because I don't have enough fat to make the size that I have now (DD) so he will make as much as he can and then add implants to make up for the rest. I haven't seen a lot of people getting it done this way, its usually one or the other so this should be interesting. I have also been looking at recovery time as I have a 1 year old daughter so I don't look forward to not being able to pick her up for a few weeks. So many unknowns for me! Glad to find this group :) 

  • sweetjam
    sweetjam Member Posts: 27
    edited May 2014

    I have my surgery scheduled for 6/23.  I can not wait for this to be all over!   I'm praying for no node involvement which they don't think there is but won't know till surgery.  I'm having a double mastectomy with immediate reconstruction with nipple and skin saving technique. I'm also reading a great book about staying calm and relaxed during surgery for a speedy recovery and less pain meds. 

  • clynnoli
    clynnoli Member Posts: 16
    edited May 2014

    Hello, I'm scheduled for a lumpectomy, or excisional biopsy, or something like that on June 2. The pathology report came back radial scarring. 1st surgery, praying it's the last. I'm scared, there's some history of breast cancer in my family. I keep getting told "it's not cancer", but my brain keeps insisting "so why do they have to cut it out then!" I've done enough research to realistically know the answer, still... I'm scared.

  • jdmac1199
    jdmac1199 Member Posts: 65
    edited May 2014


    Hello everyone!

     

    thinkpink4e…, did you get your surgery date today? Was thinking about you! I see my PS surgeon tomorrow for my date. Saw the radiation Dr today . How are you feeling?

    clynnoli  I am scared too, hugs to you!!!

    sweetjam  I am praying for no node involvement either. My MRI picked up a swollen node.. but I had my period a week before so am hoping that is why it was swollen,

    sweetpeakis…  I have been trying not to Google.. it's hard to resist though.  I hope your recovery time is fast!!

    gila4936 How are you?

  • thinkpink4ever
    thinkpink4ever Member Posts: 205
    edited May 2014

    Hey my friends,

    jdmac, thanks for thinking of me!  I actually got my surgery date today - July 1st, so I'm not a June Surgery Sister any more :-(  So did you get YOUR date?  As far as how I'm doing, I'm sooooo confused.  I don't have enough tummy tissue for DIEP flaps for two breasts, only one.  So the PS is recommending the DIEP flap for the right breast since it's been radiated in the past, and then an implant for the left.  I'm so discouraged.  I'm even thinking that I'm gonna be lopsided.  How can he possibly attain symmetry with two different types of recon?

    clynnoli, stay encouraged, my friend.  We're all scared at some point (or points!) throughout this ordeal.  We're here for you, so know you're not alone...

    sweetjam, no nodes, no nodes, no nodes!  That's my mantra too.  Praying for us...

    sweetpea, you'll be on the other side of surgery before you know it.  And the unknowns are sometimes overwhelming because just when you think you've got a grip on this stuff, something comes along to prove you don't!  Hope your procedure works well.  Please keep us posted!

    I'm still your Surgery Sister - I'm just June + one day...lol

    One love,

    tp4ever

  • jdmac1199
    jdmac1199 Member Posts: 65
    edited May 2014


    Hi everyone!!! Been thinking about you all!

    thinkpink4ever Oh.. I am sorry!!!! Praying  they are able to get both breasts symmetrical . They know what they are doing..they do these surgeries a lot..and your breasts will look great...I am sure....but I know that doesn't stop you from worrying, and until it's over and all settled down, you will worry. . Hugs..

    Yes, I got my surgery date today too! I am also not a June surgery Sister. I am having surgery the 29th of this month...YAY.  lol

    Not sure if I am ready, I thought I was, until I  got a date.. and now I feel overwhelmed.

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited May 2014

    Hello All,

    Just checked this thread for the first time in a few days and see several new people. Our little group is getting bigger! I am on vacation in Florida and probably won't be back home in San Antonio for another week. Since I am not working anymore (medically retired) we don't have to be back at a certain time. My husband Mike has been retired for six years but it's been less than a year for me and all that time has been spent either on brain and heart tests, on stroke rehab, and on three breast cancer surgeries and recoveries,. 2013 was an awful year. I've already had one surgery this year in March and of course the next one coming up in June, but we are determined to travel and have some fun in 2014. We took another cruise (#9) in January, flew to Chicago for a great week with our oldest daughter, Allison, in April, and now we're in Florida, where I'm from. Today we went to the graduation ceremony for our #2 daughter, Stephanie, who got a Chemistry degree. Allison flew in from Chicago but our son Ryan is back in Texas, looking after the cats and plants. Cruise #10 to Alaska is in 108 days, but who's counting?

    Welcome Gila4936, Sweetpeakisses, Sweetjam, and Clynoli. I hope everyone continues to use this forum to share fears as well as happy days. No matter where you are in this awful journey, it's not a smooth path. There are plenty of days full of irrational concerns, overwhelming sadness, and just plain panic, but there are also days of good news and lots of accomplishments. Let's share them all here. 

    image

     

  • jbdayton
    jbdayton Member Posts: 700
    edited May 2014

    I will be joining the June group as well.  Surgery will be June 2.  

    Sandra and I actually had mastectomies back in August and were again in the same group with our March surgeries.  

    My March DIEP surgery had a complication with bad veins and I only got my left radiated breast reconstructed.  Had to leave the TE in my right side.  

    Did not want an implant in my right side so we now have a plan for another tissue breast.  I am getting a Ruben's flap.  It is a flap located on the side of the abdomen where the "love handles" are and back around the hips.  

    My PS said it is not done very often because it is quite delicate in the closing process and time consuming.  He likes this tissue better than the buttocks for making the two breasts feel similar and have the same shape.  

    I am ready to get this show on the road again.  

    I am here for anyone with questions I might be able to answer from my prior surgeries.  

    We can all hold each other's hands through this process and hide in each other's pockets during their procedures.

    Hugs to all.  

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited May 2014


    Jbdayton, so we meet again...we've got to stop this pretty soon. Winking I know you will be able to help Thinkpink since she has a complicated situation with DIEP coming up.

  • thinkpink4ever
    thinkpink4ever Member Posts: 205
    edited May 2014

    Hey y'all,

    I just emailed my documentation to the Center in New Orleans, and hope to get a consult scheduled soon.  If they are able to use the tummy tissue for one flap, and hip, back or buttocks tissue for the oher flap, then life will be good.  I really just would prefer not to have implants, if possible.  I hate to feel as if I'm being picky.  Of course, my first concern is to be cancer free again.  But, next in line is the preference to use my own tissue.

    One love,

    tp4ever

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited May 2014

    I just made some changes to the header. Please check to make sure I have your date and surgery correct. Send me a private message with any changes.

    jdmac and thinkpink, I changed the group to include those whose surgeries are a few days before or after June, so your May 29 & July 1 dates still fit. This is not unusual...dates change but once you are a part of our group, you are with us forever!Smile

    Feel free to post pictures if you like and speak your mind on any subject. Don't be surprised if one day you are Suzy Sunshine and the next you are wallowing in a pity party. Perfectly normal. Share the bad and the good. We can all learn from your experience.

    image

     


     

  • DiveCat
    DiveCat Member Posts: 968
    edited May 2014

    thinkpink...I would not even be surprised if NOLA thinks they could get enough tissue for both breasts from a DIEP. I have seen them find enough where other PS's had dismissed the possibility. In any event, I am sure they will figure something out that would work for you. They are very, very good when it comes to tissue reconstruction. Good luck!

  • clynnoli
    clynnoli Member Posts: 16
    edited May 2014

    Thank you for including me here. Sometimes I feel like such a baby with my little complaints compared to you all. I've had a sign in my office for a couple of years now "See the positive". Thanks for the words of encouragement, and I'm keeping you all in my thoughts wishing, hoping, praying for a positive outcome for all, whatever is positive for each situation. My positive for the day? I'm starting to get excited for my vacation before the surgery.

  • thinkpink4ever
    thinkpink4ever Member Posts: 205
    edited May 2014

    Divecat, that's good to hear.  Hoping they can work with what I've got!  Lol

    clynnoli, you can be a whinny  baby with us.  That's why we're here - holding strong for each other during good times and not so good times (I prefer that instead of saying "bad".  "Bad" is just so bad, you know what I mean?)  Love your positive - where are you going on vacay?

    I just sent a separate request to Dr. Marga as well.  Praying to hear from NOLA soon, and I'm ready to zip down there as quickly as possible.  Today was a good day for me.  For the most part, I was at peace - hardly any anxiety.  Even though my nerves may be out of whack tomorrow, I am thankful for the short periods of peace!  It's just like you said, Sandra!

    One love,

    tp4ever

  • gila4936
    gila4936 Member Posts: 62
    edited May 2014

    Sweetjam, what's the book you're reading? 

  • gila4936
    gila4936 Member Posts: 62
    edited May 2014

    thinkpink, I'm glad I read ahead - I hope you get good news from NOLA! 

    This week I scheduled my pre-admission testing and my pre-op appointment and CT scan with the plastic surgeons. It's getting so real.

    Today has been a down day emotionally. Something happened last night that, normally, wouldn't be a big deal at all, but today it's turned me into a puddle. I begged off going to dinner with my husband and a friend and I was pretty worthless at work. The good thing there is that I work from home, but still...

  • jbdayton
    jbdayton Member Posts: 700
    edited May 2014

    gila hang in there, some days you will not feel like socializing and it is ok to have a me evening.  You have a lot on your mind right now.  Now that pre-op is set take a deep breath and try to relax.  My pre-ops are tomorrow.

    Tp4ever I am thinking positive thoughts only that you get the tissue procedures you want and all the insurance falls into place.  I know exactly how you feel.  I fought until I got a second flap procedure scheduled with my own tissue.  Where there is a will there is a way.  

    Clynnoli welcome and have a great vacation before starting this journey.  I went on a cruise 3 days after my diagnosis and 3 weeks before starting chemo.  It was great even though we had a fire in the engine room and got stuck in the Gulf of Mexico for a few extra days while they towed us into Mobile, AL.  I missed my first MO appointment.  When I met him the following week, I told him I would do anything to avoid an appt to set up a chemo regime. 

    Jdmac looks like you are first up.  We will be ready to hang out in your pockets or maybe Sandra can book the pink bus again for this month.  

    Sweetpeak you have waited a long time to get to this point.  Take a deep breath and all you have to do is show up. 

    Sweet jam I remember the anxiety about the nodes.  We will pray they are clear or if any thing is found it will be declared pcr (pathologically complete response) from your chemo.  I had one possible micro met in one node at surgery with a pcr status on my final path report.  I was so glad I did neo-adjuvant chemo so I could know it worked.  

    Sandra what can I say, other than, I hope this next procedure is your last one.  You are a great example that everyone can overcome adversity with perseverance.  I am hoping to be through by year end.

    I am praying for a good healing with this next procedure.  My daughter and son-in-law are coming home for 6 weeks starting June 18.  They are in education overseas.  SIL is the director of an International American school in Baku, Azerberjan and my DD teaches third grade.  They will have to go back the last day of July. 

    Enough for now.

    Hugs all!!!

  • beths1
    beths1 Member Posts: 44
    edited May 2014

    hello ladies,

    I will be having surgery on June 3rd.  I have completed AC, 12 weeks of Taxol and am now on Herceptin every 3 weeks.  Lumpectomy and sentinel node dissection on June 3rd followed by 33radiation treatments.  If pathology comes back good from lumpectomy, no more surgery.  If not, a full masectomy will follow.

    I have some anxiety about this all but know there is great support from others on this thread.  I appreciate all your information and generosity.

  • Spooky1061
    Spooky1061 Member Posts: 33
    edited May 2014

    hope all went well with surgery. I has surgery last Wednesday of a lumpectomy and removal of two lymph nodes. My tumor in my breast was six cm and my boob felt like a balloon The swelling has gone down but still black and blue. No port in though. Follow up is tomorrow. Chemo probably next week.

  • Spooky1061
    Spooky1061 Member Posts: 33
    edited May 2014

    I am new here also and I also have done lots of reading. If u go onto the app stores, they have all kinds of apps for cancer. I hope everything works out for the best. O just has surgery last Wednesday and my follow up is tomorrow. Hopefully to start chemo next week. I was doing good and being strong for my husband for he is WEAK AND AFRAID. I said so am I. I lost it tonight going on FB and reading everyones post. It also didn't help to watch Hot in Cleveland, Melanie has a brain tumor. But since she was done with radiation her Dr called and said she is clean and no more tumor. That's the call I want.

  • clynnoli
    clynnoli Member Posts: 16
    edited May 2014

    thank you, I'll try not be a whiny baby too much. Sometimes though it just seems as if everyone else wants me to be optimistic, and I just want to be realistic, prepared for anything, but hoping for nothing (diagnostic-wise). My hubby and I are traveling to Savannah, staying there for a few days, then driving down the coast to St Augustine. Haunted History and Beach Tour 2014.

    todays positive: I was able to change seats on one leg of our flight to give hubby 6 more inches of legroom. He's 6'4''.

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