INSOMNIACS place to talk in the wee hours

Hey Girls, I'm checking in!!

Field day was kind of a bust, but my kid saw me!  Went and sat down next to him.  Lil Chit gets that you-know-what-eatin' grin and scoots away from me!  Guess he is too cool these days.

Thanks for all the good wishes!  But it is NEXT Weds the 21st that I go for Fin Enhancement Surgery.  I did go yesterday for another PS consult.  Can't say I didn't do my due diligence!  I liked her, but not what I was looking for.  SO my guy is still stuck with me!!  I also found out about another lady PS in town that is doing node transplants and having great luck helping LE go away!  She takes 1-3 from the neck and moves them.  My LE PT lady, Miss Frizzle, thinks it would be worth going to talk to her.  My LE isn't that big of a deal and is hit or miss.  Hand is what swells the worst and of course that is what the garments really don't help.  I'm usually just lucky that way!  It really is all good though.

Susan, sorry you are bored at chemo.  We rolled into my first one, and I mean literally rolled coolers and all, humming the theme song to the Beverley Hillbillies.  They still remember us.  HHmmmm, wonder why!  I am sure although you are bored the meds are kickin' ass!  I saw somewhere that it was suggested to eat extra sugar before chemo to speed any buggers up so they were easier to find and knock out.  I also saw stuff about fasting for chemo.  I chose Krispie Kreme!!

Wren, bet you are right about the app.  He thought he was being cute and was surprised I said to go ahead and write that!  Big Fat Turkey!!

Maddy!  Love the cats!  I might get one soon.  I haven't because I am afraid the poor thing would get caught in a crap avalanche in the house and be lost forever.  But We had visiters of the long tail type and maybe a cat could fix that!  I have been looking for an excuse anyway.  Maybe I should just borrow Tungston from Susan!

Hi Golf Girl, nice to see you!!  I just came from the health food store.  I took/take some stuff for blood cell support.  Have you tried any of that??  It would help with energy too.  I say that as I look at the clock and think I can get a 40 minute nape before the Lil Chit Child gets home!

Chevy, cute geese!  We are expecting dovelettes first of the week.  Mommy is still in the flower pot hanging out, even through rain or hot sun.  Heck even when we light the charcoal grill!  Doves must not be related to chickens!!  Just squabs!  Oh and a friend brought me a dozen fresh eggs, like form her chickens!  10 are greenish and 2 are brown.  She has chicklettes too!  Fresh hatched.

FBB hope things are looking a little brighter today.

Jwoozy, I can just see Chevy staring at your avatar tilting her head from side to side to get a different angle on the pic to FINALLY figure out what it is!!

Spookie, Sas, Teka, Blessings, Zig, and anyone I missed, have a great day!!

Cami, What's the flavor of the day????

ok...Funny thing happened at the docs today...I am here on Wednesdays for the past 2 yrs...and forever at this point. So I figure...under the circumstances...all is well. I didn't know that when they asked how I was ...and I would say great .....that they recorded that. Ok so,I'm stupid.   I really mean " under the circumstances" I am great .  I was confused cause my doc didn't want to give me pain killers with refills. He was confused why I was asking for them.    We'll, we got it all cleared up and I have refills for life. Who,knew they were REALLY listening...lol

Hope everyone is having a great day 

4444444 so we are  Bit premature...we try soooooo hard. Good luck next week cause I will prob forget now...lol

Ok, one more thing - can someone tell me how to write something that will go under my comments that is not about my dx!  I see a lot of ladies do this, but I can't figure out how!

Holeinone - A pair of sisters, around 10, 12 started screaming, you are killing the butterflies! It was sad, but memorable.

OMG! I am imagining the same scenario tonight! 

Yep - memorable - that's a nice way of putting it!!!! 

fb..glad to hear your doing well. My doc told me to keep doing whatever I am doing cause considering what they are doing to me I am feeling good...I didn't tell him it is called occasional proseco...lol

Thanks. It was a big guilt dump that day.  The doctor who told me that is a specialist, who probably means well but these doctors don't know anything yet. And what works or doesn't work for one person might be different for the next.

I too have a big ol' basket of vitamins and supplements!  It makes me feel proactive in my health and those days when I'm waiting for results or between doctor visits I at least feel like I['m doing something that may be helping. At one point I was so upset and told my regular oncologist, I guess I should have been eating ding dongs and bon bons instead of kale smoothies and supplements!

holeinone, that's great news about your port! 

FB ..when I had my recurrence 2 1/2 years ago I came in to my onc with ALL kind of ideas. He never looked up from his computer and calmly said....I will take all the help I can get....that is when I realized, their schooling and the place they are At in research is all they got. And doesn't mean they have the answers. I am very happy that my doc can shrug his shoulders and say , I don't know why that works, or why that doesn't.  The only thing he has ever pushed on my is living...he always wants to know what I am doing and what I am planning. I am lucky that I can do lot and I do.

We all are so different in our individuality . At the end of the day, we need to be comfy with OUR decisions 

Keep on keeping on !

sas...that mad me laugh...I just called my hubby on the way home from chemo..had to run a few errands. And said to him...I think my bitchiness (can I say that) has expanded from only you and our daughter seeing it. I have brought it outside the walls of our house...oh boy . I was a little "attitude-ish"  out in Public....lol

The suppressed me is leaking out...take cover !! Lol

OK- finally have some time to read through the last week! You hens sure cluck a lot!

Everyone is posting some awesome and cute images! I love it!

Susan, thank you for your encouraging words. I hope that you find something that works to kick cancer to the curb. The world needs more people like you in it. Your patio is lovely! and I love the snake. really pretty. Hope your hubs is feeling better.

2nd- ooh- you give me hope that my hair will stay curly! and if you ever want to git rid of any more patterns- you just let me know It is good being on the far side of this one. This year is much better. Sorry your DH is being a dh. Big hugs to you.

Chevy- My av is my head- i am leaning forward. I have an amazing friend that does henna professionally, and this was the first one she did on me during my chemo. here are photos of all the ones she did on my head: 

Cherry Creek is soooo nice. Sounds like you had a good time. Love the story about your DD and the geese! So glad your hip is getting better. Your brother sounds like a good man, sometimes you just can't help your kids if they don't want it. So sorry you lost your niece too. Great to hear "Jake" found his way.

Cam- mmm peaches. that sounds yummy. I wish there was something we could do to make you feel better. I hope ou enjoy getting your nails done. I loooove Philosophy products. They smell so good and leave you feeling pampered!

Teka- That cookie cup rules! I hope you are feeling better. 

Ziggy- Thanks for the reassurance. I think we all get PTSD with this, and it is just hard to work around. I share your flower obsession. Sounds like your mom was a smart lady. Very sorry to hear about your GS losing his baby. I know that has to be devastating. You seem pretty wise yourself.

FBB- Mosquitoes are huge here too. Ugh- I wish there was a way to get rid of them. They are such a pain. YAY! you are finally getting your floor taken care of. Can't wait to see it! and so awesome you got a cleaning crew. It is so hard to get things done with you just don't feel up to it. re: your son, jsut keep loving him. I was a terrible student, rebellious, angry, etc. but grew out of it. I never went to college, worked my tail off, ended up finding a vocation I love (that i volunteer with,) and a job that is decent. He may find his way. Therapy is an option, eventually he may talk. A summer job may be just the thing he needs. Sorry your tests did not come back great. Know that we are always in your pocket.

Nettie- Get that cough checked out ASAP. Probably just allergies, but no reason to ignore it. I rinse my nose out if i go out and have allergy issues. helps so much. Good to hear your chiro and massage is helping you.

Sas- "Yeast is a bad neighbor." - this had me chuckling. Hope your vertigo is better. MMMm amaretto. I love the stuff. I seem to have missed the chair drama- what happened?

Holein1- too true- the future for everyone is uncertain. I too feel like a phony, but sometimes I just don't want to talk about it with ppl that don't or cannot understand. And- a fashion show! I am sure you knocked their socks off! Low WBC isn't always a bad thing.

Phyliedillie- glad they let you outta the looniebin. Thanks for the support.

Wren- your son sounds fun! Did he get the adventurous bug from you? That woman in green- that is so me.

Smaarty- congrats on your continued weight loss! How did your bra making go? Your mom and sister are so pretty, but I don't think you can beat crowds on holiday weekends

Dutch, I am a cashew lover as well. I HAVE to put a serving in a cup and close the container, otherwise I eat the whole thing. Love that duck photo. She seems quite happy.

Blondie, how are you doing? Good to hear you had a good time at the RFTC even though you were in a chair. Better to let someone push than push yourself too hard.

Spookiesmom- depresso- i love it!

4- sending good juju your way for your surgery. Your mom sounds awfully pouty. how is your ankle, neck, and arm? Sounds like you got some of my luck 96 aprons!? that is a lot of sewing! I don't envy you battling teenagers. I know I was a shit to my parents. I apologize every time I see them, because they continued to care and love me even though I was horrid. I wish you luck!

Blessings, omg- those sweatshirts with the cookies etc. My gma and mom had a ton for a while. Glad we were able to convince them to get rid of them. I love me some polyester though Hope the butterflies survived the release!

MosltyMom, what a beautiful bluebird photo! How are you?

Badger- that kid in your photo is so cute.

PawPrint- how are things? have not seen you here in a bit. 

Tang- How did you weather the storms? We got 4.25 inches the other night. It was fantastic! Good to hear that DIEP might be an option for you. So sorry that you are hurting so bad. Don't feel bad about feeling bad on Mother's Day. It is your day, and you should be resting. No need to apologize for stating how you feel. We are here for you!

Chabba, hoping you got some help and answers about your pain.

I am doing a little better. I had a great time at RelayForLife- it started with a gorgeous sunset. I cried my eyes out most of the night, and thought about all my BCO sisters while i walked the track. Love you gals so much. Here is that sunset:

Then had a great mothers day with a dear friends family, and then met my family for dinner. My dad's surgery went well, he went home an hour after and the surgeon said it was much less than he thought would be there. (whew!) I tell you what, I wish they would move closer, i worry about them all the time.

My LE is a real pain, but I am working through it.I got worked over and wrapped today, and will be getting a pump soon. Not really looking forward to lugging that around England in the fall, but, better than swelling like a balloon!

I am a little concerned about Possible Myelodysplastic Syndromes (MDS) as the tiny petechia i have is multiplying, and i am starting to bruise easily. That with this tiny cough I have and my fatigue- it is just weighing on me. I have an appt scheduled to see my ONC at the beginning of July, but may move it up.  

Hope everyone is having a good week!

JWoo,

That's some beautiful workmanship!

FierceBluebird, 

Doctors & Medical Personal no longer get a pass when an upsetting remark is made about My ongoing health care.   

No conjecture!!

 Susan, thank you! DH loves it freezing cold in here so when he comes home, the A/C gets cranked. OH, hold the presses! I get it - you posted a pic!!!  Way to go girl!!

I'm proud of/for you! Watch out now, you're dangerous!

ohh Blondie- have a great time! I would think that you could get them to give you a copy of your scan on a disc in a format you can read. It might cost you as most hospitals charge for things like that (even though you already pay for the damn things when you get them done.)  I hope they can get you breathing better. Could you be allergic to something in the chemo? I know I was allergic to the preservatives in the taxol. No fun!  <<<hugs>>>

I totally cheat when I am posting- I open a blank email, document or postienote on my computer first, then go through each page and make notes. Otherwise I would miss everything on here! Tamoxifen fog, chemo brain, and ladies that gab like we do? No way I could remember most of it if I didn't! 

Susan- yay for learning how to post photos!2nd taught you real good!

Smaarty- hope the bra fit. Awesome that you have a bra maker that can help you with patterns. 

Anyone else having an issue getting http://www.stepup-speakout.org open? I have been trying all day without any luck.