In shock
Comments
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edi....that sounds like the "method" used by my gang while hiking!!! We call it "squat in the woods...stay away from anything scratchy....make sure you're facing uphill"...method. I have never heard of a specific piece of furniture for it..have to fire up google now...!
Truly, the only thing that worked and still works for me re: fatigue, is consistent, regular exercise. I don't mean it has to be sweat till you drop, but something to get you moving at least 30 minutes a day to start...At times when I for what ever reason, fall off that wagon, I can feel within a couple days that everything physically and emotionally starts to unravel for me. There are days when it's very hard to do something....but I ALWAYS feel better afterwards. And, occasionally, I let myself have a day off, because I'm human.
There is an exercise thread on here that is EXTREMELY POSITIVE!!!! The ladies on it range from years out and hard core gym rats, to those still in chemo and walking a block around their neighbourhood. The idea of the thread is to post everyday, to help keep you accountable. Maybe I'll see you there??!!
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Nihahi dear friend, I will really try to do so something, just get low and think why bother ?
Hate gyms and doing stuff with other people, always have, will try the walking around the block again. Did start and then DH wanted to come so I gave up again, needed me time. Now he walks 5 miles a day listening to his music think he realises how peaceful it is.
Squatty potty finished !! Very sturdy and all painted white so blends well. Hope you googled it ?
Reflex and reiki tomorrow I so need it.x
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edi...the answer to "why bother".....exercise is proving more and more to be the one single most effective tool to minimize the chance of recurrence. I know how that lays heavy on your mind....this is one weapon you truly have a choice to use or let gather dust. Why not ask your reikki master if she knows of any tai chi classes or maybe yoga classes....they might be a better fit for you. Very "un-gym" like things. then again....walking just takes a pair of good shoes and the determination to put one foot out the door...once you've done that...you're off and at it. Being active is a great role model for your grandkids too!
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Edi-Tai Chi or Yoga might be just your thing........find a class and see if the instructor will let you have a try before you sign up! I love my Yoga.....I'm not very good (I'm awful, as a matter of fact) but I go anyway.....after all, it's MY Yoga practice! Don't give a fig what anyone else in the class can do....I"M the only one who matters..........or just take a stroll around your neighborhood......Nihahi is right on the money with her advice.....when you feel like you just can't-that's when you HAVE to! I also am going to research "Squatty Potty".....sounds intriguing!
My mother is slipping down that slope before death.....she's still upright, but SO slow......and she sleeps more than she is awake.....the circle of life, I guess. Most of my day is spend working around her eating, and bathrooming......>sigh< This too, shall pass.....but I am exhausted, and looking forward to 6 days away.....visiting my DD in Ft. Collins, CO.......I hope it doesn't snow!
Liefie, I know I have already said it, but Emma is adorable.......and you and DH look hilarious! I saw that picture of DH on FB first last night, and burst out laughing!
Love to all........XO
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hi ,
Thanks for the kick up the axx girls. The recurrence part scares me witless of course, then think does that mean everyone who gets it again hasn't exercised ?
Not being rational I know just in a bad place right now.
Movie, so sorry Mom getting worse, take care of yourself. X
Bed time, sigh, having weird dreams too must get my act together !! Tomorrow is the start of new routines honest.
Love you both xx
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sweet and peaceful dreams, edi.....I'll be looking for you on the exercise thread....it will help you more than you can imagine, and I KNOW you will be warmly welcomed and not judged.
movie...my heart just aches for you. Such a hard part of life's journey, sending so many hugs and prayers to you. Mom does sound at peace though...it will serve you well in the future, to know your love and care gave her a gentle passing.
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Hi Edi, you are not alone, friend! I am also on that slippery slope of not exercising regularly at the moment, and trying to find all kinds of excuses not to. Had to stay away from exercise after the surgery on March 31, but no reason why I can't do it now. So tomorrow I WILL go to a yoga class, and I WILL walk 3 miles. The weather is fine, and there is no excuse not to do it. My motivation is really low at the moment, but I am just lazy. That's all. Will get out of this funk, and I'm the only one who can do it; nobody can do it for me. Hope you can find something you like to do. 30 minutes a day is the minimum . . . it's not that much. Let's do it!
Movie, BIG HUGS to you. It cannot be easy, and your mom is so lucky to have you.
Thanks everybody for the nice words re little Em. I miss that sweet little baby sooo much.
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I noticed some referring to Facebook, is there a private group there? That's where I usually hang out, have wanted to find a group.
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I have signed up for "Run for the Cure" in October! (Gulp)
One of my chorus buddies asked me if she could run in my name, and I told her of course, I was moved that she wished to do that.
Then I thought, I don't need people to run for me, I can do it for myself, both in gratitude for the advances in treatment that might have saved my life, and to raise funds for continuance of those advances that might help others and possibly myself, in the future.
So far I've raised enough that I don't have to buy my own T-shirt!

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Well...well...well! Hello to All my Sisters! (((HUGS)))
Has been an eternity - I know... It's so nice to see the gals!
Nihahi! So good to see your gorgeous pics! Hope you are getting on well!? Missed you! Liefie... You look fantastic in the wig and lashes! Lol, you sound like me... only I have yet to begin any recon. just now. Too many other issues at present. Have missed you too!
Edi!!! xoxo to you too young lady! Have missed your humor and daily pick-me-ups! (((hugs!)))
websister...seems our struggles are just never really over for very long periods of time, huh? Everyday is a challenge for me... xoxo
movie, dakota, magdalene, morwenna, and any and ALL I may have missed...
where's Trey?It has been Far too long. A year ago this 04/22 dx. to BMX, to port implant for chemo for the next few months... Had to move, twice. Two of my boys moved out of state...
another just had prom, and will graduate Salutatorian w/5.9gpa...(so very proud, hee, hee) and another is getting quite good on the Banjo.I, on the other hand have been stressing by Supreme Savings" style="background-color: transparent !important; border: none !important; display: inline-block !important; float: none !important; font-style: normal !important; font-variant: normal !important; font-weight: normal !important; font-size: 15px !important; font-family: Arial, Helvetica, Verdana, Tahoma, sans-serif !important; height: auto !important; margin: 0px !important; min-height: 0px !important; min-width: 0px !important; padding: 0px !important; vertical-align: baseline !important; width: auto !important; text-decoration: underline !important; background-position: initial initial !important; background-repeat: initial initial !important;">more
than I ever have. I was warned of some of this...but by Supreme Savings" style="background-color: transparent !important; border: none !important; display: inline-block !important; float: none !important; font-style: normal !important; font-variant: normal !important; font-weight: normal !important; font-size: 15px !important; font-family: Arial, Helvetica, Verdana, Tahoma, sans-serif !important; height: auto !important; margin: 0px !important; min-height: 0px !important; min-width: 0px !important; padding: 0px !important; vertical-align: baseline !important; width: auto !important; text-decoration: underline !important; background-position: initial initial !important; background-repeat: initial initial !important;" in_hover="" in_hdr="">panic attacks
, emotional tyrades where my faucet runneth over, is crap that I just wasn't quite ready for! So much for my easy-going spirit...I can turn on a dime, and feel like I'm ready to open up a can of whoop-ass! Seriously! This disturbs me; I have never felt so out of sorts...not like this! My appetite has been down, so I've lost 8lbs in the last 6-8wks. And I don't Need to do that!; as I'm too dang thin already. My follow-up with my Onc. is soon, and she will not be happy with me for this by Supreme Savings" style="background-color: transparent !important; border: none !important; display: inline-block !important; float: none !important; font-style: normal !important; font-variant: normal !important; font-weight: normal !important; font-size: 15px !important; font-family: Arial, Helvetica, Verdana, Tahoma, sans-serif !important; height: auto !important; margin: 0px !important; min-height: 0px !important; min-width: 0px !important; padding: 0px !important; vertical-align: baseline !important; width: auto !important; text-decoration: underline !important; background-position: initial initial !important; background-repeat: initial initial !important;">weight loss
.It's as if, all went so well...for the duration of tx, etc. Could have been alot worse. Then, after the Holidays, my brain said, "Ok, you have not mourned the loss of bodyparts"...No prob! But THEN, not long after, I felt by Supreme Savings" style="background-color: transparent !important; border: none !important; display: inline-block !important; float: none !important; font-style: normal !important; font-variant: normal !important; font-weight: normal !important; font-size: 15px !important; font-family: Arial, Helvetica, Verdana, Tahoma, sans-serif !important; height: auto !important; margin: 0px !important; min-height: 0px !important; min-width: 0px !important; padding: 0px !important; vertical-align: baseline !important; width: auto !important; text-decoration: underline !important; background-position: initial initial !important; background-repeat: initial initial !important;">more
fatigued mentally, tired, lazy, (no drive), wiper-blades for my eyes,
and my loved ones wondering if I've 'lost-it' sometimes... that scared me. How flippin' 'normal' is it to go through this, seemingly, introverted, (Not Me!), Second guessing myself, blah, blah... Sorry...see...? It's not always some self-imposed pity party. It's anything...anyone... Damnit! I want to be ME again!!!My apologies. I was w/o internet for months and months also! Oh well... good to be able to rant. Thanks for your ears! I need to go back and read some posts! xoxox
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hi ,
Nihahi ,EDI found her trainers !! First step ha ha. Don't get excited now, gotta get them on and don't think PJ's go with them.
Alive, hi gorgeous lovely to hear from you. My, you have been a busy bunny !! At least you aren't alone in the" feeling all over the place "without my warrior sisters I know I would be in a much darker place. Chin up chuck ( Liverpool saying ) x
Magdalene, those of us on here and FB have all friended each other. No set group.x
Liefie,bet you do miss your little angel, I had a lovely Saturday afternoon at the local kids play place. GD's play and we drink coffee, perfect.x
Morwenna, me too !! Race for life here in the summer. Like you, feel like this year must give something back. x
Love and Life to you all xx
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Edi....hope reikki was good, and that you've given those shoes a good dusting off. Now...LRLRLRLRLRLRLRLR....
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Nihahi, ashamed.com 😢 still haven't got Out there. Have had such a horrid week, last night went to choir at the break was sent home, almost collapsed in a heap.Drove home and slept for 12 hours straight.
Phone call just now from the choir director, she said she had never seen me look so low. Turns out she is a 12 year survivor of BC and that did cheer me up.😀
She says therad fatigue continued on and off for a lon g time so will have to kick its ass.😬
Found the exercise forum, will log on as soon as possible. ED is giving me a dance exercise DVD which is good but fun so hopefully can at least do something that doesn't entail leaving the house for too long yet.
By the way I have done two days of stretching exercises 😊 can almost touch my toes !! Joints less painful too. Baby steps 😆
Xx
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edi....survivors are EVERYWHERE. sometimes we just can't imagine ourselves being one....but you fought the physical stuff, and won, and you will do the same with the emotional. It DOES take time.....we vets keep shouting that from the rooftops, but we also know how hard the battle is to get yourself to have faith in the future. If you can get yourself into doing "something" everyday....I bet the first thing you notice, is that the emotional highs and lows are much more even keeled, and you just plain feel better.
Stretching??? AWESOME....!!! I really do hope you will visit that exercise thread...it is a super positive group of ladies, some still going through chemo, some very new post bmx, some farther along the way....many with aches and pain of age or injuries, some of them so fit they make me tired just reading what they've done. But, the positive attitude and faith in the future just shines through the messages!!!!!....we all can and should do something!!!! There....lecture done for the day....now just plain sending hugs...(x)(x)(x)(x)(x)(x)(x)(x)(x)(x)(x)(x)(x)!
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Edi - warm hugs and kind thoughts are coming to you all the way from Canada! So sorry to hear that you are going through a tough time - I totally understand it. But I do believe that nihahi is right about getting out each and every day. The pain I have felt the last 3 months has really pulled me down mentally, and I have felt so emotionally fragile - and to be honest , if I didn't have my lovely dog to take for a walk every day, I know I would have felt much, much worse. I hope you start to feel much better soon - take great care of yourself - you have been through a lot recently and everything takes time!!!
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(((HUGS)))) and welcome to an amazing, supportive group of women who really get it !!
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Edi, sorry that you are feeling so low, but you have been given such excellent advice by Nihahi and Adagio. I need that too at this stage, and they are inspiring me to go out and do something too. It is so amazing that the moment we start moving physically, our minds also start moving in the right direction. I have experienced it so often in my life. BIG HUGS to you!
Alive, so good to hear from you again! I think we have all been where you are now. All treatments done, and now what? One feels set adrift sort of, and it is a struggle to find some semblance of normalcy again. But it will come, I promise you. Just go about life, be good to yourself, get some exercise, and you will get past this stage. All the best to you!
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I thought I was doing so well, but the CT scan shows a lesion on my scapula..hence my chronic muscle pain. Now I need and MRI. I do not feel confident that this is "nothing". I cannot tell the DD and I am crying under the covers. I do not think I will get to see Keiko Cottage this summer.
WHY????
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Awwwww, Jenifer, this just sucks, but you do not know for sure what it is yet. I know we automatically first go 'there' after what we've been through, but we can still get other ailments like everybody else. It can be a host of other things, really. So sorry that you have to go through this scary scenario once again, and will keep you in my prayers/thoughts. Just take things one minute at a time, and find stuff to keep busy. Have you finished the curtains for Keiko Cottage? And how's the wedding planning coming along? I wish I could give you a real big ole' hug right now, but here's a virtual one instead. ((((((((Jenifer))))))))
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Mom (((hugs ))) like Liefie says try not to leap ahead. Keep us posted on MRI. So many of us, me included, go straight to the worse case scenario prayers flying out to you.I am sure you will soon be at the cottage hanging those curtains.x
Adagio/Liefie/Nihahi, thanks for all your kind words, not as exhausted today 😀 didn't win at bingo but had fun.Did bit of walking, enough to get puffed out feeling more positive again.xxx
Love you all xx
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Hugs, Jennifer....giant, continuous hugs. I won't say don't go "there", because honestly, who amongst us wouldn't. But......I will say try to take things one step one day one hour at a time. It is very true, that so many things happen to us, that have nothing to do with BC, and you have recently had some strong strong medicine and done everything asked, so try to have a bit of confidence in what you have already done to beat back the FBC. I, for one, still see you throwing open the doors to your cottage this summer, with a smile on your face, and a song in your heart. Hang on to that goal....no one has told you it isn't going to happen.
Always remember....you may feel like it, but you are never alone...we are in your pockets, and will not leave. (((((((X)))))))
edi...liefie....come on girls....get those asses in gear. I'm NOT gonna let you sit and collect dust along the roadside!!! Just like benny...I too own some pointy toed cowboy boots, and I'm NOT afraid to use them!
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Nihahi, LOLOLOL! You will be pleased to hear that I've been to the gym yesterday and today. Tomorrow morning I have a yoga class, and afterwards a strength training class. Weather's gorgeous here, so walking too. Wished I lived closer to you - we could have walked together. Would have been nice. Edi, good to hear you are out and about too!
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momof2 - my heart goes out to you - what a blow to receive such news. If that were me, I would just want to run away from everything and would find it devastating. But, hang in there - the waiting will be hard, and like Edi said - we all immediately go to the worst case scenario which is a very dark and lonely place - so you are not alone in that regard. You are very much in my thoughts and prayers. You will make it to Keiko cottage - believe it.
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Edie - yeah for getting out and puffing. I love walking around my neighbourhood especially at this time of the year looking at people's gardens and getting ideas for my own, and it is amazing how fast 30 minutes goes by, and presto - before we know it we have moved our bodies for all that time.
Liefie - glad you are enjoying this amazing weather - my lettuce, kale and arugula are all sprouting already and I only planted them 10 days ago - I just love this time of the year.
I am getting my chemo curls cut off tomorrow - it is time - my hair is one big afro and it is getting out of control. I want to get it cut now, so that by the time the weddings come along, it will look half decent.
Movie - the exhaustion of caring for your Mom must seem overwhelming at times - she is so fortunate to have you!!!! Try and rest when you can and remember to take some time for yourself - it is important!
Morwenna - how great that you have raised so much money already for the Run for the Cure. Are you going to do some training for the run? Is it 10K? I so wanted to do the Vancouver Sun Run this year, but alas, my arm/shoulder injury prevented me - perhaps next year! Are you back in Calgary now?
Nihahi - thanks for all your words of encouragement!!!
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I am taking a break from my under the covers pity party. Still "in shock" but not a thing I can do about it. If this does turn out to be "nothing" to worry about…EVERYONE is invited to the Oregon Coast. If it is something…".Oh I cannot think about that..I will go crazy..I will think about that tomorrow…Yes tomorrow…Is another day"…..signed, Scarlett
I finished all the drapes, bedspread, closet curtains, etc for Keiko Cottage…Yep, I did it….and the wedding stuff, too. Saturday, May 17, at 4:30pm DH will give his only daughter away. I always cry at weddings, even my own.
Liefie…little Emily is just so precious. I know it is so hard to leave her. You and DH looked fabulous! Thank you for your ((Hug))
Edi…I do hope you are feeling better…as they say in the South , you and I are like 2 peas in a pod. I hate exercise, but I will walk Oskar and Heidi when the weather is decent and I am not under the covers. Thanks for you thoughts and prayers.
Adagio…I also hope your arm is better, and also thank you for your kind words.
Nihahi… I am keeping you in my pocket , thank you for your encouragement.
To all, I am wishing you a weekend of comfort and pleasure.
Love,
Jenifer
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Wonderful to hear the "resilience" coming back in your "voice", momof2. One day at a time is a good tool sometimes, when farther down the road looks too challenging. You've done tons of work, now, try to set aside some me time for things you enjoy. It'll put a smile on your face for that special wedding coming up.
hugs....(X)
edi....should I dust off those pointy toed boots?
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momof2 - staying in your pockets, focus on May 17th and then Keiko Cottage - adding my hugs
Liefie - enjoying your photographs of little Emily, she is growing quickly; good to read of your activities - you sound well
Nihahi/Morwenna - ignoring the forecast for this weekend here - can you believe it?
Edi - sending hugs your way. Stretching is good. You may also want to get your hemoglobin/iron checked out - if either or both are low they can cause fatigue. You tend to be one busy lady
Adagio - so wonderful to read of your garden, we will continue to wait here before planting but it does bring hope
Alive - so good to hear from you again
Best get myself ready for bed, one more workday this week and then a weekend. Babysitting Paisley on Sunday

Take care everyone
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Hi Guys,
Thank you so much for the advice. I took it as well as some time to do more research, talk to more doctors and last week made up my mind to have the double mastectomy with the hormones for five years. Surgery date is May 13th at 6am !!! Not sure if I'm more scared or mad cause I have to get up so early !
I'm good with my decision although scared to death of the surgery and recovery, but am preparing as much as I can both practically and mentally and will get through it somehow.
I have been so worried about the pets even with wonderful offers of dog walking etc. so installed a dog door a few days ago (65lb Black Lab and heavy sliding door) and now the cat is jealous cause it's too heavy for him so will add a cat door this weekend. Nothing like using power tools and bashing things with a hammer to help vent.
I ordered a hands free leash belt today (http://squishyfacestudio.com/index.php/review/product/list/id/138/category/36/) as I walk twice a day and was wondering how I would manage the dog until my arms are back to full strength, so one more thing crossed off the "how am I going to cope" list.
I went therapy window shopping after one appointment a few days ago and realized I can do spaghetti straps this summer, haven't been able to do that in 40 years ! Anybody know if the dents in shoulders from years of heavy bra straps go away over time ?
Anyway today I'm doing a lot better although still burst into tears at the drop of a hat. I did manage to tell my hairdresser yesterday without crying ! I was so proud of myself, it was getting embarrassing lol.
I moved my calendar to May yesterday and realized all this has happened in under a month, most of it in under three weeks, wow, I have lost all concept of time.
Better go it's a gorgeous day and I have veggies to plant. They will be on their own for a time but may as well get them in and hope they make it!
Thanks again ladies !
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Websister, so good to hear from you - enjoy that baby on Sunday! I'm so jealous . . .
Jenifer, you sound way better. Wow, you are one diligent lady making all those furnishings for Keiki Cottage! I am in awe of you, and I'm with Adagio - no reason why you will not go to that cottage this summer. Wedding is approaching fast too. Yes, I also have only one DD, and I enjoyed her wedding tremendously despite the fact that I had zero hair, eyelashes or eyebrows, and was in the midst of radiation. Mind over matter, positive thoughts - thinking of you every day.
Adagio, enjoy your garden. All those healthy veggies sound delicious. How did the haircut go? Picture please!
sal57, you've taken your time, and you've made your decision. Now it's just marching forward. Surgery is always scary, but somehow we all get through it, strong warriors that we are! You will too. Are you having reconstruction also? Can't advise re: dents in shoulders - never had big breasts, but surely somebody else will weigh in. Good for you on planting those veggies. In a few weeks' time you will be so happy you did! All the best with your preparations. It will be over before you know it.
Nihahi, I'm going for a walk just now. Don't want a boot up my backside - lol.
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Hi Liefie,
I'm not having reconstruction, hoping to not have radiation or chemo either but that of course depends on the pathology report after surgery, and I am considering myself very lucky (on good days anyway) that I have some choices and options.
Wondering what it's going to be like going from huge to flat though, talk about one extreme to another, it's going to be a whole different point of view lol Need to flatten the stomach though to get it in proportion, so am practicing getting out of bed without using my arms, I heard it's a great ab work out !!.
I don't think it has sunk in though that this could be a very long term thing. I am not stupid but can't wrap my head around the possibility that after this surgery and recovery it may well not be over. I'm still having problems with doing all this based on a blip on a screen. I can't see it, feel it, or touch it so it's not quite real.
I'm making progress though and that's ok for now :-)
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