Oopherectony or hysterectomy?

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Hils34
Hils34 Member Posts: 10
edited July 2014 in Genetic Testing

Hi. I'm 35 and BRCA1 positive which was discovered after breast cancer so I've had double mastectomy and would like to have oopherectomy or hysterectomy and would like to hear thoughts about which is best? Also ladies experiences of early menopause due to one if these procedures would be great please, I'm worried about early menopause. I know I can have HRT as I was hormone negative (just HER2 positive). Thanks ladies :-)

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  • Zeeba
    Zeeba Member Posts: 145
    edited April 2014

    It's a tough and personal choice--I opted for the BSO only as I've never had any gyn issues/problems, there isn't proven relationship between BRCA2 and uterine cancer, and I preferred an easier surgery. Took me a long time to decide. Good luck with what ever you choose.

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  • kebab
    kebab Member Posts: 873
    edited April 2014

    I'm BRCA2. I choose BSO. I have hormone+ bc, so the ovaries were the main target for me. But being young, I think keeping the uterus as long as possible is the better choice. Even if it isn't doing anything, it acts as a big placeholder in the abdomen. There are a multitude of other problems that can occur internally when things start to fall, over time, when the uterus is taken out at a young age. At least... that's how my surgeon explained it to me.

    I'm glad that you get this choice. I was 38 at diagnosis, hormone+, and 40 when I found out I was BRCA2 -- and I was told multiple times that I was too young to consider the surgery. It wasn't until I progressed to stage iv at age 42 that I was finally "allowed" to have the ovaries removed.

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  • Hils34
    Hils34 Member Posts: 10
    edited May 2014

    thanks guys that's helped a lot. I have decided the womb stays and to have the smaller op of oophetectomy. I wish you both lots of wellness!! X

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  • SoapMaker
    SoapMaker Member Posts: 157
    edited July 2014

    I'm BRACA1 and chose both. I knew that part of the fallopian tube is in the uterus and they are thinking that the cancer actually starts in the tubes and moves into the ovaries. I didn't want to have to worry about it. I had tubes, ovaries, uterus and cervix removed. There is some articles where some women have gone on to have aggressive uterine cancers after their sal-oophs. For me, it was "get rid of it all". It was the easiest surgery I have ever had. I didn't even feel like I had surgery. Just felt I had done some tummy crunches. No pain, at all, in the area where they removed everything. I didn't take pain meds.

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  • worryocd
    worryocd Member Posts: 41
    edited July 2014

    Hi!  I am braca1 and chose to have uterus, tubes, ovaries and cervix removed.  My mom died from ovarian cancer so I wanted it all taken out...that is what my gyne/oncologist suggested.  I am 38....was 37 at time of hysterectomy.  I didn't want to take an additional hormone.  Since all is gone I can take estrogen.  So far it has worked for me.  I did have a bleeding complication, which is rare 1%.  I did not have much pain and I think that was deceiving.  I have three young kids so I think I was moving around too much and doing too much too soon.  It's a six week recovery of taking-it-easy!  I am happy with my decision!  I think it's important for a gyne-oncologist to do the surgery...for they are specialists.

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