TRIPLE POSITIVE GROUP

o yea did anyone get scans after radiation on breast to make sure nothing was seen? My doctor didnt wanna give me a scan or Mri but radiation doctor said cat scan? just I wanna make sure radiation zapped it all? I did have clear margins? what do u think

I am counting remission from the day of my first surgery. My second surgery showed NED in remaining tissue. All these treatments are for any strays that may have been out there but were too small to be seen on my PETscan. The only areas with uptake were removed during first surgery. 

Happy your surgery went well! 

Karen, everything crossed here for you. 

Gigi, your optimal weight at 5'8" is mine at 5' 3.5"....that is not where I am at the moment, but hoping to see those numbers again someday. 

I'm always reading and catching up on everyone--goutlaw all sounds good.

Welcome newbies u r in a great place for info and TLC. drink lots of water--that's about all I know but I do hang around.

I had PET scans, Bone scans, Brain scans, MUGA scans, ECHOs, Chest CTs, ABD CTs, and probably more I cannot remember after my chemo, surgeries, and rads. I have told my MO, RO, and cardiologist no more. They were chasing ghost poop. 

I had a PET scan prior to treatment, but not post.  I don't want one.  I don't want the additional radiation.  I had to have a CAT of my lungs to rule out a possible PE after chemo, and also had to have a CAT of my upper and lower GI to rule out a lesion on my liver that was seen "incidentally" when they did my yearly breast MRI.  All benign.  That's more than enough radiation for me.  I don't want to cause any new cancers trying to find one that (hopefully) isn't there.  I figure if I get symptoms THEN I will request something.  Apparently finding it early doesn't make any difference in survival anyways, so I am not going to do the "ghost poop" chase either, lol!  

Ghost poop! HAHAHAHA!!!! I love that!

I GiGiF...I have put on a few pounds out of nowhere too. I am 47 (I had to actually just calculate that from my birth year) and 5'8 and am usually about 135. Post chemo I put on about 7-10 lbs, and nothing has changed about my diet or exercise. I did add tamoxifen into the mix and my onc was adamant that it was not the source of my weight gain. It however is the only wildcard in the mix besides just being in chemopause.I don't worry too much about the weight, but I know EXACTLY what you are saying...my body just doesn't feel right at above 140. I feel sluggish somehow too.

Geewhiz - do you mean the armpit incision for putting the implant in/out?  I never had an implant, so he didn't do that incision on me.  I had fat grafting immediately at the time of MX.  I have a small incision from the SNB, that is virtually invisible, and even my MX scar is starting to fade (although it will never look as good as the SNB scar).  My port scar, though - it is still just as red and thick as ever.  So weird how I scar differently depending on where the scar is on my body.  Fortunately most of my clothes cover my port scar and when they don't...I have a nice little booklet of awesome temporary tattoos I use to cover it.  Actually quite fun to put one of those tattoos on and go out! I look so baaad*ss.  Ha ha.  So not my personality, so it is fun. 

Yay Karenrm!!! Happy Dance

Yay Karen. 

Specualk, did your PS say anything?

moon - hate to say this - stitches are out, have a small area on one end that is not healing well.  He is giving it one week.  If it is not healed I lose the left side of recon for the summer.

Hi, y'all. Had the surgery this morning. All went well. Had polyp debris (left over from biopsy) cleared out and maxillary (cheek) sinus cleaned out. Turns out that was "concretions" (hardened debris) from frequent sinus infection and inflammation and not polyps. I'm not sure if it was sent for pathology, but seems to be good news pending possible pathology results. Maxillary sinus was accessed through an incision inside my upper lip, so that area is sore and swollen, and my nose bleeds occasionally, but otherwise I'm doing quite well. Much better news than the original diagnosis!

Thanks everyone for your prayers and good thoughts. I believe they did wonders for me...    karen 

karen, I'm so happy for you that it was way better than you thought. 

Linda just knowing the plan always helped me. Glad you got the tx you wanted. 

Specialk. Sh*t, f*ck, h*ll, d*mn. No. Just no.  I'll still keep my fingers crossed for you maybe it will heal. Just possibly maybe....

karen, glad you are home and resting and that the procedure got everything cleaned out.

Linda, glad you are comfortable with your decision for tx. I know once I knew what I was doing regarding tx, I felt at peace with it, even though I was not looking forward to it.

SpecialK, I am sorry you are having so many issues with healing! What a long road this has been. Praying that that spot will heal in the next week and give you no more problems!

Has anyone had allergic reaction occur after the 5th round of taxotere/carboplatin/herceptin 12 days after the last treatment? Brown spots on the bottom of my feet, horrible itching, red splotches all over body, and swollen! Called my MO and said I was having reaction to chemo-- put me on steroids and Benadryl  (like I need something else to put in my body)   Symptoms are much better today but is this normal. I have one more treatment to go and really worried that my body can't take much more of this. 

Special K, I read about the hand and foot side effect.  I though I had that yesterday. My hands are fine, my feet are fine now except they look like an old man's bald held with brown spots all over it. Hehehehe! The steroids really worked. So, did the reaction get worse or stay controlled with your next treatments?