October 2013 Chemotherapy

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Comments

  • Headeast
    Headeast Member Posts: 619
    edited March 2014

    Gram, congratulations! Almost there!

  • kcat2013
    kcat2013 Member Posts: 391
    edited March 2014

    Great news Gram, that's wonderful!

  • kcat2013
    kcat2013 Member Posts: 391
    edited March 2014

    How's everyone doing in the hair department?  I'm almost 4 weeks pfc and I noticed a couple of days ago some teeny tiny fluffy white hairs sprouting on my head.  You have to look very closely to see them, but I'm excited to have some kind of growth--gives me hope that someday I'll have hair again!

  • wrenn
    wrenn Member Posts: 2,707
    edited March 2014

    Congratulations Gram, great news. 

    I hope everyone is doing ok. I check in to see but didn't have much to ad since having my one and only chemo treatment last Nov.  I still have neuropathy, runny nose and eyes and my hair is not quite an inch long and is very sparse. Makes me a bit nervous that it may not come in very well at all. I can't imagine the side effects you women are dealing with if one can still be causing SE after this length of time. I am grateful to have got off easy in that department and really hoping everyone is doing as well as can be expected with rapid recoveries to come. xo

  • naiviv
    naiviv Member Posts: 535
    edited March 2014

    Wrenn .... Nice to hear from you, se's can take awhile to go away fully.

    Head east ... How are you doing? Feeling?

    Kat..... We started and finished at the same time. I have about 1/4 inch of hair  all over and 95% white. Just got ok from onc to take biotin for hair, b6 for neuropathy and vit e(need to find without soy bean oil ) let's see if biotin helps . My nails are also very dry and breaking easily, the got ridges and are splitting downward.

    Wishing you all the best 

    Vivian

  • Pam358
    Pam358 Member Posts: 294
    edited March 2014

    I'm just over 9 weeks PFC and I have about 1/4 inch of hair.  It's more gray than  it was when I began but  I'm hoping it will darken up a bit , if not I'll find some color after it grows some more.

  • Headeast
    Headeast Member Posts: 619
    edited March 2014

    hi Vivian! I am doing good. With Tamox since Dec 25, makes me feel fatigue and now trying Celexa, an anti depressant to fight hot flashes and fatigue. MO says it takes a month to feel the change, so I have to wait another three weeks.

    I also had my exchange done, love my new boobs and I can now sleep on my side.

    How about you? How many more months of Herceptin?

  • naiviv
    naiviv Member Posts: 535
    edited March 2014

    Headeast

    I have Herceptin thru the end of Oct 2014. Recon is in May. I am going to ask if ok to postpone Tamoxifen until after surgery.

    V

  • Headeast
    Headeast Member Posts: 619
    edited March 2014

    Vivian, I started taking tamox before the surgery. Not sure what your MO will say. I decided to stop Celex yesterday, it made me so sleepy that I could not function.

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited March 2014

    Jeez! I'm 5 weeks PFC and I just noticed I have no lower eyelashes! WTH! My hair is about an inch long but I recently lost my eyebrows and now my eyelashes! How long does it take for them to grow back? Why so long after chemo? I thought I was over all of this, nails still gross looking though! 

  • 70charger
    70charger Member Posts: 963
    edited March 2014

    Gram  I'm 4 1/2 MONTHS pfc & just lost 2 toenails last week. My hair , I swear has stopped growing, it is only an inch long.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2014

    Brows and lashes normally fall out one hair at a time.  Chemo causes them to fall out all at once, and sometimes they struggle to get back on the one hair at a time schedule, so they can "cycle" and fall out and grow back several times after chemo is completed.  This is normal, but frustrating.  They often grow back fairly quickly, and then fall out again, so don't be surprised.  It takes approximately six months for the complete nail to grow out, so you may see nail issues for up to a year.

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited March 2014

    glad to hear everyone is doing good.  I am 8 wks post final recon.  On my right side, lift side I have top layer of stitches in skin not hold so had open wound that is slowly healing. I have had cream and bandage on since jan so frustrating but could be worst.  It had almost healed.  Hair is growing.  I have been using nioxin shampoo and taking biotin.  Also hot flashes from tamoxifen finally went ago after month or so ago.  I have hard time remembering to take it!! Back to work and crazy as ever.  I do try and slow down and not stress like I used to! Doing race for the cure on Mothers Day and will be walking with all of you of in my thoughts too

  • Headeast
    Headeast Member Posts: 619
    edited March 2014

    lgk, I am glad you are doing fine with Tamox. Do you feel any fatigue? I do and I think it might be the chemo se still in my body rather than the tamox. How about weight gain? 

  • TeamKim
    TeamKim Member Posts: 568
    edited April 2014

    Hi all -- just checking in and reading to catch up with posts after a couple weeks of traveling.   70charger, I think my hair is stuck at 1 inch as well.  I am about 3.5 Pfc and thought I would have more hair by now.  I used Nioxin and took Biotin, don't know if it has helped, but figured it couldn't hurt.  Gram, I lost the lower lashes on one eye completely and lost about 60 percent of all of my other lashes as well.  They have come back, but are not yet to their normal length.  Eyeliner helps to make them look fuller.  Tamoxifen has gone well -- some slight warm flushes, and an occasional vertigo is all -- but SEs are decreasing as my body adjusts.  Hope you all have a nice weekend -- hugs!

  • wrenn
    wrenn Member Posts: 2,707
    edited April 2014

    hi everyone.  Hope you are all doing ok. I am coming up on 5 months post my one and only infusion and i don't have quite an inch of hair but it is starting to fill in a bit. I no longer look like Kojak but more like Rob Ford.  I didn't lose eye brows or lashes much.

    I also have horrendous neuropathy so i can't imagine what those of your who did a full treatment are going through. I didn't have any problems with nails or mouth sores so maybe taxotere treats everyone differently. I am still telling my sisters about you brave women when they offer me support.  It is nice to be one who didn't suffer much and i really commend youmsoldiers.  Take care of yourselves and heres to being done with it all....forever.  

  • Pam358
    Pam358 Member Posts: 294
    edited April 2014

    Hi Wrenn - good to hear from you! Other than the SEs you mentioned I hope you are doing well.

  • Headeast
    Headeast Member Posts: 619
    edited April 2014

    hello ladies! Almost four months PFC and half an inch hair at the front and a little longer than an inch in the back and curly! Got brave and stopped wearing my wig a couple of days ago. A small shock for people at first but by now I guess they are used to my new look. Wig was getting too hot. 85 degrees here!

  • lonnie713
    lonnie713 Member Posts: 236
    edited April 2014

    I got my port out yesterday.  I talked to the surgeon through the entire process.  Feeling a little sore, my port was in my arm. I'm so glad to have it out.  I did ask them why you had to be under general anesthesia for placement and not during removal. They explained that with the manipulation involved with placing it in, it would be extremely painful. I felt nothing during the removal, only the needle as they gave me the localized anesthesia. 28 RADS start on the 16th.  I'm getting closer to the end.

  • Headeast
    Headeast Member Posts: 619
    edited April 2014

    lonnie, almost there! Congratulations!

  • naiviv
    naiviv Member Posts: 535
    edited April 2014

    Headeast,

    How are you feeling? What area of town are you in? I am West Kendall and I work in downtown. Would love to meet sometime and any other Miami or close by ladies.

    I have 1/4 to 1/2 inch all over and 95% white. I got rid of wig and hats also...way to hot and if your head sweats and stays wet not good for hair growth. I wear a ribbon,bow,headbands etc ....sometimes. I borrow from my daughter. I still miss my long hair.

    I have  US tests coming up to see if tamoxifen it ordered for me. I already had blood work (10 tubes all kind of blood clotting tests).

    Best wishes to all....

    Vivian

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited April 2014

    Hi all, I have not checked in for awhile. I had my surgery (left MX and 13 lymph nodes) on March 14, path report PCR!!!! Yeah!!! Now rads appt on Monday, I think 5 weeks of radiation. I had a temporary implant put in until I finish rads then I am doing RMX and a GAP flap on both. I am not really looking forward to another surgery but I gotta do what I gotta do. My hair is about 1 inch long and was grey, my daughter used a root touch up kit and dyed in dark brown last night. I looks so much better, I will probably give up the wig! Hope everyone is doing well and that we all can put this behind us in a few months.

  • Pam358
    Pam358 Member Posts: 294
    edited April 2014

    Today was my debut with no head gear, seems many of us are reaching that milestone. I think it will take some time to get use to it. It's more gray than when I started so I think I may have to get it colored when it grows out a bit more - not ready to be this gray yet. 

  • TeamKim
    TeamKim Member Posts: 568
    edited April 2014

    Glad to hear from you ladies -- thanks for checking in!  Seems like most of us are ditching the wigs and hats.  Feels good to feel that Spring air on your head, doesn't it? -- Kim

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited April 2014

    I am 8 weeks post chemo & have started going hat/scarf less around the house. I just have a 5 o clock shadow at this point. I did wear a military green visor cap (with bling) a couple times. But it is still chilly here so I want to be covered.

    I am wondering what I will wear under my motorcycle helmet. And when I get somewhere & take the helmet off I am thinking the doo rag or bandana will come off too?!

  • kcat2013
    kcat2013 Member Posts: 391
    edited April 2014

    I'm jealous of those of you who are able to go "topless" on their heads :)  I'm still in the 5 o clock shadow stage like vintage.  Although my eyelashes are about half way in and that makes me happy!  

  • Headeast
    Headeast Member Posts: 619
    edited April 2014

    Vivian,

    I am in Fort Lauderdale but would live to meet you maybe half way?

    Is your hair different than before chemo? Mine is curly now!

  • naiviv
    naiviv Member Posts: 535
    edited April 2014

    Headeast,

    Im not long enough to curl yet about 1/4 to 1/2 inch all over, if it's going to curl right now  sticking straight up. I am 95 % white, I guess I lost almost all color.

    Yes, halfway is fine. I am not too familiar w/ northdade or south broward so please feel free to suggest a location.

    Vivian

  • 2timer
    2timer Member Posts: 590
    edited April 2014

    I am a bit over 2 months pfc and I just went "commando" for the first time yesterday (with a hat).  My head is covered with hair but it's only a half inch or so.  In a week or so I may just wear my hat when I'm not at work.  I have all of my eyebrows and my eyelashes (I think).  I'm starting to look like me again.  I do have some issues with other things though.

    I am having problems with diarrhea and loose stools.  I took generic Imodium and that helped a bit but it seems as if the chemo had a really profound effect on my digestive system throughout chemo -- especially with the DD taxol -- and things still haven't sorted themselves out yet.  I'm really hoping they do since I'm beginning to worry about colon cancer (lol, I *know*).  Also, with the taxol I developed some moderate neuropathy in my feet.  I manage ok, it's something that I am dealing with but I would really prefer I didn't have it.  Again, I'm really hoping that this goes away but unlike my hair and nails it isn't getting any better.  Does anyone have any experience with these issues?

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited April 2014

    Hi 2 timer

     try a probiotic, & also Activia yogurt see if that helps. I am 2 months post chemo, lashes & brows are doing ok. Hair on head is slow going.

    I had slight neuropathy near the end of my 12 Taxol. But it has got worse since. Actually when I came out of surgery for BMX 3/13 my thimb was totally numb & is just now gettng feeling & fingers & toes have been worse. Sure hope it is temporary!

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