Here's what cheezed me off today
Comments
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or start a story, and realize you do not know what the point of this, issss....embarrassing !
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Here's what got me today, went for massage, instead of leaving feeling better, I left exhausted and sore.
It's supposed to feel better in the long run, but dang.
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Only have had one massage and was disappointed. I'd always heard how relaxing they are, but I didn't feel any different. It was on a cruise so I probably was already relaxed. On the way out I heard my masseuse telling someone she had just had the weirdest client, the woman didn't have a tense muscle in her body.
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Off to sleep, oh fair ones, the wine is drunk, and so is the drinker. But were it not for the lack of drink, I would continue espousing. Espousing what I cannot say, but it may be something.
Ziggy, please, translate, dear friend, await your words.
sassy
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This may be petty of me, but what the hell. Yesterday a breaking news story said "Miracle Medical Breakthrough!" So I glued myself to the TV and prayed for a miracle breakthrough in cancer care. NO! It's an epipen to bring people who have overdosed on heroin back to life! REALLY! That's what you spent a gajillion dollars of research money on???????? REALLY???? Damn, I'm not just cheezed, I'm pissed!
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Yeah, I saw that too. The caregiver can keep it handy so they don't need a hospital run. Um, I guess the mods would kick me off if I said what I really think about that.
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Go for it, Spookie!
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Ok. Just let the addicts die. If they're dumb enough to do that stuff, they don't want to live. We want to live, but yet have poison dumped into us so we can. And we are more or less grateful for that. But they destroy not only themselves and those around them for a "high"? No. And spend precious research $$. Wrong again
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Spookiesmom,
I'm all for more research $$, but this research has already been done. The people that may be saved are often young kids who may have made a stupid choice but don't deserve to die for it. Who knows? maybe the shock of being treated for an overdose will lead them to reconsider their lifestyle and get into rehab. Dead people can't change their minds. I look at this as money spent on suicide prevention and hope that being given a new lease on life can produce an epiphany.
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Hi ladies- back from my travels to TX (it was fun!)
I come from a highly additive family. As a result of that, it made me not want to live around any of them, which I don't. When people have an addiction, whatever it is, that is the most important thing in life, everything becomes the means to feed that. Took me years to get that.
Addiction ruins a lot of families emotionally and financially. But there is a difference between what we go through and that because of the choice involved with taking drugs you know will hurt you vs. try to keep you alive. I do think addiction is a slow painful suicide.
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Spookie and Jazzy, I couldn't have said it better. I too am familiar with addiction in the family and it has ruined so many lives. If you choose addiction, choose the consequences. And don't say addiction isn't a choice, IT IS! This med just says, "It's ok to shoot up again, we'll save you." Where's the damn cancer epipen? Could we take the years the heroin addict is ready to throw away and transfer it to the people who so desperately want to live? I still say it's research money that should have gone to cancer research. Sympathy for heroin addicts? Ever visited St. Jude Hospital? That's where the money should have been spent.
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The International Agency for Research on Cancer estimates that 25% of breast cancer cases worldwide are due to overweight/obesity and a sedentary lifestyle. So since I was a chubby couch potato when I was diagnosed, my cancer shouldn't be treated? And how about all those smokers who end up with lung cancer? Obviously, we shouldn't be wasting money on lung cancer research; it's their own fault.
There's a line somewhere in the Bible about casting the first stone.
Actually, early treatment for overdoses probably saves money over the cost of ambulances and emergency room visits. But the important message is that we need to treat each other with kindness and concern and forgive others as we would be forgiven. I'm not a Christian but, hey, Jesus had some good ideas.
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It's a free board, all entitled to their own opinion. This could very easily turn nasty. I'm done with this topic.
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ok, Spookiesmom, I'm changing topics and not feeling badly about it.
Have lurked here because I didn't have much to contribute. Now I do.
Back when I dx'ed the 2nd time, back in Sept 2012, a lot of friends dropped out of my life. Didn't get it, it just happened. Just started reading How to be a Friend to a Friend Who's Sick by Letty Cottin Pogrebin. Great book, wish it would have been available back then. Over the process, people would ask me how I was doing, learned not to tell the truth, they didn't want to hear it. So tired when they would say stupid things like "aren't you better yet?".
One of my so called friends wanted to do a lot for me like make meals and help clean my house. While that was thoughtful, it wasn't what I needed. DH was unemployed at the time, couldn't stand "others" in the house, would totally blow if someone was helping me, and wasn't excited about the meals being brought in.
She seemed offended when I tried politely to say that it would be better to leave it open as I needed help. I did ask for help (like to take me to appts) but she wasn't available. Realized recently she didn't check in periodically to find out how I was doing, just off her radar.
I found this yesterday and posted to FB:
So, what was the acknowledgement: I should have asked for help! (Duh, I did ask for what I wanted, but you couldn't or didn't help me with what I needed! That cheezed me off today.
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I learned early on to lie when asked. I'm good, how about you? They just ask to be polite. Even if I felt like chit. I loved it when they'd say, well, you look good. Oh, I look like fried dog poo when I'm healthy?
There is an active thread about the dumbest thing said to you. I've started at the beginning. Check it out!
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2nd time- good to see you here! That book sounds really awesome. I grew up around a lot of sick people in my family so I guess I learned how to do that early in life and perhaps never realized until later that not everyone has those experiences. They teach us to listen, show empathy, and to offer help however we can. I am not always good at that, but have gotten better at it through time.
I also came to realize that most everyone is not in my head and understanding my feelings at needs when they offer help. And lets face it, sometimes it is just hard to ask for that help we know we need to ask for!
I love that posting, I have seen it before and know the feeling well.
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2nd time, love the lion and the sentiment behind it. I'm going to Barnes an Noble this weekend to see if I can get a copy of the book. If not, I'll check Amazon. Thanks for the info.
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Hi 2nd timeI see alot of familiar faces here!
I have a friend that has done something similar. It's a bit complicated, but long story short she wants to come help cook and clean and I can't deal with her hovering around my house. She has alot of drama and I believe she has a drinking problem...she's come to the house to "help" and has been drunk. I just don't want to deal with her like that and I don't have to.
Anyway, maybe it's not the same...but it reminded me of that when I read your post
Dh didn't like having someone here either all the time.
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I read somewhere recently (I think on these boards as my memory rides off into the sunset) to not take anything personal and to know that the other person's crap is all about them and not us. I kinda knew that before cancer, but it just makes life easier and of course some people easier to deal with.
Here's my cheeze for the day... I had a MRI scheduled to check out my foot and it was cancelled because the doctor didn't submit the right paperwork to my insurance company. Those of you who have followed my follies know that I fell off a wall into my neighbor's backyard... next I smashed my foot on the rung of a ladder. After being told it was a stress fracture and walking in a boot for 5 weeks things didn't get better. That all started back around September of 2013. Here we are in April and I finally got to another doctor, but no diagnosis so far. Need the MRI. To top that off, I have to go back for my annual boob check whereas 6 months ago they wanted to biopsy some micro-calcifications so here I am again dreading this check. Also scared. Here's to hoping there are no changes and NO decisions to make.
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Rockym- I hope you can get the foot issues figured out and hope the films are clear. In my last follow just last month, my mammo had some calcifications they thought were some oil cysts (fat necrosis) and the radiologist wanted an MRI. Further discussion between her and my breast surgeon of the films seem to confirm the calcifications did appear to be the oil cysts and they decided the MRI was not necessary. They are super careful with us after all we have gone through.
The follow ups are really stressful. I keep thinking they will easier with time but so far, not true. Fingers crossed for you!
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Rocky, I'm so sorry to hear that your foot is still giving you problems. Dang, I hope they get this figured out and you get some relief. Sending you prayers for good results on your boob check. You're going to get good results. You've had enough cheeze and it's time for good stuff for you. Love you much!
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Thanks for welcome, not sure how often I'll post but will be here reading
T&C, yup,very similar story.
Rocky, hope it all turns out just fine.
Rohanna,
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Thank you all for your help with my physical defect. I think I can face the dilberts now. Whew!
P
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Thanks rohanna and 2ndtime. More cheeze... Yesterday, my insurance company sent the approval for MRI. WTF??? Thought it was a no go and that I was going to have to wait. Maybe the doctor's office thought it was denied when it wasn't. So I figured what the hey, I'll just get it all cleared up on Monday and reschedule. So then what do you know... I get another letter of approval today for the MRI with another insurance code. Really??? First I'm told no approval and next I'm getting an over abundance of letters saying approved. Oh well, better than not approved.
In the mist of all this I was looking at paperwork and realized that MO appointment is Tuesday. I had to get to the blood work yesterday fast so he would have it. We don't have much to talk about since I am not taking anti-hormonals so at least he can say my blood looks good. The blood thing is always strange to me because I never did tumor markers or anything like that so I really don't know what he's looking for. Well, at least he cute :-).
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See, Rock, I told you good things were coming. You got approved twice! Keep that sage burning! I've always wondered what all the blood tests are for. About a year ago, when I had my second abdominal surgery, they collapsed the vein in my right arm. After that, I said no more blood tests and the onc. said ok. If they're that important, why did he let me refuse them?
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Rockym- I think the MO's look at your overall blood work to see if there is anything erroneous going on. My MO looks for elevated liver enzymes which can go with the AIs. He told me they don't do the tumor markers much anymore as they can indicate signs of inflammation in the body vs. any real problem. I went through a couple of those tests awhile back when a gyn thought I might have ovarian cancer (went through that scare twice) and even though it was slightly elevated, they said it may be related to other things I had going on (fibroids and endometriosis).
Funny, my MO is cute too. I saw him yesterday and always think the same thing. He is a really nice guy and think he is totally in the right profession. I find the oncology specialists have the best bed side manner of any docs I have ever dealt with. The surgeons are the worst!
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Are there Relay for Life events sponsored by the American Cancer Society in your area? I've been asked to walk the Survivor Lap and they are giving a dinner for Survivors. Has anyone participated in this? If so, what are your impressions?
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Rohanna- I have not heard of this, lots of breast cancer walks but not seen anything bigger with the ACS.
I went to see my MO on Monday and saw they were having a free weekend conference where I live on cancer for all cancer patients, survivors, and family members/care givers. It is a weekend I cannot go, but it looked interesting. Might think about it in the future.
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They have a Relay for Life here. I don't know anything about it, just have seen it in the paper.
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I participated when I lived in Fort Worth and it was a lot of fun. My cancer center sponsored a team and had some bake sales and lunches to raise money. The ACS has info and sample letters for having your own page on their website for fund raising from friends and family, but here wasn't a lot of pressure to contribute money and there was a lot of emphasis on supporting cancer survivors and caregivers. We had dinner with the mayor at a local stadium, special T-shirts for survivors and caregivers, booths from the teams selling snacks and offering brochures, and exercise warm-ups for all. Survivors and caregivers each walked a lap and then team members took over walking (and partying) late into the night.
Each event is probably a bit different, depending on who's running it, but it raises a bunch of money for a good cause. The local ACS branch provided a lot of support (not to speak of hats, wigs, etc.) for bc and other patients and some of it goes to the national office for education and research. And best of all, from my viewpoint, it's not all pink!
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