TRIPLE POSITIVE GROUP

gotcha,susanHG123! it's the only thing that helps me!!! although i have found this cream i swear by, called topricin, and you can buy it online cheaper. it does seem to help me. i put it on my feet, LE arm and whats left of ca boob. also general aches and pains. boyfriend thinks i am crazy and its worthless, but i have told other women about it, including my 80 year old arthritic mother, and they all love it too. give it a try, maybe.

cypher, i was/am having rib pain almost constantly since surgery. i did have a few lumps, there a couple months back, and they found enlarged lymph nodes "conchordant with the disease process"... apparently, the rest of the nodes are trying to do the work of the missing ones. but mine have hurt almost constantly, also exacerbated by the anti-hormonals, in my case i think. yes, i am so tired of it. the pain is really wearing me down. but for sure, tell your doc.

thanks, lago - wonder what "symptoms" they will wait for...originally i thought they said they would do another CT scan to check for any growths that weren't there originally...

talking about one year from diagnosis, my surgeon for the Mastectomy wants to see me

SusanHG123, I have found the Acetyl L-Carnitine/L-Glutamine combo really has helped the pain lessen. Some of the creams just seem to make it worse.

notbuyingit, my doctor did only a bone density scan and a Muga  scan. Then just regular blood work no tumor markers. And yes, a little soft squishie stuffed lamb was my neck pillow. It fits just beneath my neck in the infusion chair. I used it in chemo and at home in my recliner. It also was good for hugging! LOL

thanks for responses ladies! i know i have to take one step at a time....

as far as alcohol, Girlstrong, I have avoided it also - mostly because at my age it just makes me tired ha!! & more tired I don't need to be!! but i hardly think a glass of wine or beer would harm us at this point & the chance to relax a little could be very beneficial

girlstrong, alcohol isn't supposed to be good for you from a bc perspective.  That being said, I still drink, as in the occasional glass of wine when I am having dinner with friends or at a party.  I try not to have more than one, and I never have more than two, and I try not to have more than 3 per week.  That was the recommendation of an oncologist who specializes in nutrition and complementary medicine. 

Pbrain mine didn't resolve but so far not too bad. Just hope it doesn't get worse with age.

back to nueropathy...is there anything that isn't cured with healthy eating & exercise? good grief! can't i just get a pill? Ha! my memory is failing but my sarcasm seems to be intact )

so it sounds like i am taking the right things...do we know if being on your feet actually makes it worse? or just makes it FEEL worse?  I agree that my feet feel the best without shoes - I think they just warn you against that in case you get a cut or bruise & you don't feel it.

basically i think i could tolerate this whole thing better if I had a nightly head to toe massage (no strings attached) wouldn't that be lovely, ladies??

all my toes are numb feels like i'm wearing those socks with the toes - remember those? the tips of my fingers only bother me when i wash dishes in hot water. 

Mall of America!? you are brave! I've been tempted to use the scooter @ Walmart Ha!!

thank goodness for family, friends,& now you guys!! love it!

sounds like we all need a drink of some kind!! i prefer a couple of shots to get right to where i wanna be without all the pee-producing liquids Ha! it's been quite a while tho

my pic is pre-chemo >sigh< my daughter was in a band for 5 yrs so I had an excuse to get out & dance a couple of times a year... talk about exercise

nite, ladies!

yes that is the question that MUST be answered. Or not.

Well. As you may or may not remember my @#$#$ husband-now ex walked the day my port was placed July 2012. 

I always wanted a wife. As a young mom with little ones I wanted a wife. As they grew I wanted a wife. After @## was gone I really wanted a wife-to do the things that really needed doing while I was doing chemo. And vomiting. And more.

And. I wanted a gay best friend. I know. Not PC. But I had almost always had a gay best friend until I moved to NM. To watch movies with, to help me with the scarves, etc. I know. Not PC. Didn't care.

Then. Had some sad times. Great friends. Wonderful kids-who all lived away from me-nearest 3 hours-farthest 10 hours. And it came to me. I needed a pirate. Pirates are fun (not the mean ones who kidnap ships-but nice fun ones-think Johnny Depp). So I told my best friend-a male-who immediately started an online search for a pirate. Then he decided the paramedic crew in my building (these are the guys/ladies you want to find you on the side of the road-but when teaching or off duty-are lunatic crazy fun) would form a pirate clan. I am Emperess Susan of the Work Pirates. 

I think at my age and not a lot of hair and boobless that a pirate would be the perfect male companion. Could not have a hook due to my tissue paper skin-not that there would be any sex. Peg leg is fine. As is patch.

I'll second that. If I see any around here I'll send them too you. It used to be easy. We used to have Pirate Fest here until 2 years ago. Then they had insurance problems and they had to cut it. No handsome pirates around here anymore.....

here ya go Susan... It passed for this year, but should be back again. 

Tampa Pirate Fest 2014

Love your new picture Pbrain!

Thanks for the compliments!  I still have to flat iron this hair or I look like Bozo the Clown. 

So question for everyone.  I saw my MO last Monday for my 3 month follow-up and he said go ahead and get rid of the port.  The hospital has been calling me to set that up and I just called them back.  They told me I would need conscious sedation and a driver to take me home, no water/food after 12 a.m. ect.  I thought you just got a shot of lidocaine and they pulled it out.  Anybody go through all that just to get rid of a port?  My boss says she didn't.  Im so confused...  ;-)