To All My Stage III Friends

Options
2

Comments

  • paige-allyson
    paige-allyson Member Posts: 781
    edited March 2014

    Linda Lou,

    I'm sorry to hear about the progression but I'm also very hopeful for you. You were a tremendous help to me early in my post diagnosis life and I think also when I began to have some problems with lymphedema. Love to you. Paige

  • babs6287
    babs6287 Member Posts: 2,021
    edited March 2014

    LL So sorry to hear what's going on.  I'm praying that it's something inflammatory!!!  Fingers and toes crossed!!

    Stay strong and let us know 

    Babs

  • RosesToeses
    RosesToeses Member Posts: 721
    edited March 2014

    Linda, sending you prayers and warm wishes for the biopsy.  

    You may want to make a quick call to your onc about the AI; mine had me stop the tamoxifen a few weeks ago and wants it to clear my system before starting what will probably be Faslodex (but may be anastrozole).  I have absolutely no idea if it would be the same for an AI instead of tamoxifen, or even if it's required or just a preference, but I'd hate to see something like that delay your next steps.

    Wishing you an easy biopsy and great response to treatment!

  • SpunkyGirl
    SpunkyGirl Member Posts: 1,568
    edited March 2014

    LindaLou,

    Ive been thinking about you a lot since I read these recent posts, and I just wanted to send big hugs and prayers your way.  It still feels like there is a possibility here that something else is going on.  I hope that ends up being the case, and if not, know that we all love you and are here for you.

    Hugs

    Bobbie

  • Pure
    Pure Member Posts: 1,796
    edited March 2014

    Love and prayers Linda:) I am so sorry you have to deal with this again. But if you do we are all here for you! Prayers and blessings!

  • LindaLou53
    LindaLou53 Member Posts: 929
    edited March 2014

    Thank you everyone for all the prayers and good thoughts!  I had the excisional biopsy of the neck node early this morning.  I have minimal discomfort at the surgical site, but have been experiencing unusual right flank pain, low back pain and cramping similar to a bad period.  I guess that may be related to the general anesthesia and possible positioning on the the table??  I should have pathology results by mid next week.  I followup with the surgeon next Thursday and my oncologist next Friday.  Going to bed early tonight and hope the acheyness is gone by tomorrow!

  • Elizabeth1959
    Elizabeth1959 Member Posts: 346
    edited March 2014

    thank you for the update.  I hope the biopsy is benign.  I hope you feel better in the morning.  

  • TectonicShift
    TectonicShift Member Posts: 752
    edited July 2020
  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2014

    Rest well tonight, Linda.  You'll be in my prayers.

  • babs6287
    babs6287 Member Posts: 2,021
    edited March 2014

    LL

    Prayers for you!!!

    Babs

  • hopefour
    hopefour Member Posts: 459
    edited March 2014

    Lindalou53...thank you for keeping us up-dated! Also hope last night was a restful sleep and today is sunny where you are and maybe some planting of spring flowers! I see we both have grade 1 cancers...cancer is cancer and does as it wills, but I have been repeatedly told grade 1 is slow and if I do have a  recurrence it would be treatable for years! So IF your biopsy shows cancer ...I would hope this is true and you have lots of years to sew and enjoy life!! Don't feel alone..we're all here wanting the best for you!!

  • SpunkyGirl
    SpunkyGirl Member Posts: 1,568
    edited March 2014

    Thinking of you and sending you big hugs, Linda.  I hope that you get some good news soon!

  • LindaLou53
    LindaLou53 Member Posts: 929
    edited March 2014

    My oncologist's office just called.  The neck node biopsy reveals metastatic breast cancer...ER+ / PR- ...same as my 2005 ILC Dx.  I don't have the formal report in my hands yet, should get that tomorrow when I see the neck surgeon.  I guess I am glad the Dx seems definitive and we can get started right away on treatment.  Will see my Onc on Friday for more in depth discussion and treatment plan.

    I was driving my husband to his own doctor's appointment when we got the call.  I think he is taking it harder than me right now.  We will both feel better when we get some questions answered and feel that we are doing all we can.  I feel a sense of urgency now for so many things that will need to be done, but am trying to resist that knee-jerk response.  Hoping my oncologist can alleviate some of my current concerns.

    I will keep you all updated.  Thanks for listening and supporting me.

  • babs6287
    babs6287 Member Posts: 2,021
    edited March 2014

    LL
    I wish the news had been different.  Keep us posted on what the oncologist says.

    Just remember we're all there with you!!!

    Babs

  • lkc
    lkc Member Posts: 1,203
    edited March 2014

    Damn***** I am so sorry Linda, I was so hoping this would not be the case.

    In any event, hold tight to the reality that when you have long periods of remission this is indicative of long periods of NED with tx.

  • Gitane
    Gitane Member Posts: 1,885
    edited March 2014

    Big hugs, LindaLou.   Sending you and your husband our support.

  • Elizabeth1959
    Elizabeth1959 Member Posts: 346
    edited March 2014

    Linda,

    I am so sorry.  That is not the news I was hoping for.  I am also wishing long periods of NED with a minimum of side effects

    Elizabeth

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2014

    Linda...praying for peace and direction.  We are all in your pocket.  

  • Momine
    Momine Member Posts: 7,859
    edited March 2014

    Linda, crap! I was really rooting for something benign. I know you can deal with this, I just wish you didn't have to.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    Oh S&iT Linda,  so sorry to hear this!!  Just want you to know you are in my heart today!:lve::lve::lve:

    Oceana

    marvelous-nicole-rodriguez.jpg (180×119)

  • hopefour
    hopefour Member Posts: 459
    edited March 2014

    LindaLou....this must be hard to adjust to, but it is not without hope! I truly believe you'll respond well to treatment and will maintain an active life. I grieve you have to deal with this, but trust you'll find your new treatment doable!! Please keep hanging out with us and up-date us as you get more info!! Hugs

  • gillyone
    gillyone Member Posts: 1,727
    edited March 2014

    Oh shoot, not we wanted. You will have a treatment plan in place soon, and we'll all be hoping NED comes to stay soon.

  • katyand4
    katyand4 Member Posts: 171
    edited March 2014

    LindaLou....thinking of you and sending positive thoughts your way.  

  • TectonicShift
    TectonicShift Member Posts: 752
    edited July 2020
  • Bugs
    Bugs Member Posts: 1,719
    edited March 2014

    Not the news we wanted to hear, that's for sure.  Keep us posted on the treatment plan.  Big hugs, honey.  

  • Holeinone
    Holeinone Member Posts: 2,478
    edited March 2014

    LindaLou, 

    The beast is relentless, hoping your MO has a plan quickly & you can get the treatment you need to dance with NED...so sorry...

  • LindaLou53
    LindaLou53 Member Posts: 929
    edited March 2014

    Thank you again ladies!  It has been a crazy few days since learning my biopsy results.  I got the formal bx path report on Thurs from my surgeon,  I spent the rest of Thurs evening and night holding and saying goodbye to my 21 year old kitty Socks.  She has been fragile for some time with kidney disease but had taken a dramatic turn for the worse this past week.  Friday morning I held her while she was put to sleep. Friday afternoon I met with my oncologist to determine my treatment plan.  You can read the treatment plan details if you choose at this link on the Just Diagnosed with a Recurrence or Metastasis forum:

    http://community.breastcancer.org/forum/106/topic/818888?page=2#post_3961682

    The bottom line is my onc is concerned my cancer has become more aggressive.  She wants to get me started on treatment asap, however, we also are trying to see if I am eligible for the Paloma-3 clinical trial which is available at my cancer center.  This week will be full of gathering medical records, signing consents, having a bone scan, echocardiogram and any other tests required by the study.  Hopefully, if I meet the eligibility criteria I can get started on their treatment protocol by the following week.  If it turns out I am not eligible, my onc will start me on Faslodex injections as soon as we know the study will not work out.

    I have also been in communication with my former oncologist who managed my cancer care from 2000 - 2011.  She encourages me that the trial would be a good opportunity if I am eligible.  SO...I will try my best to complete the application process and at that point I will accept whatever happens.  

    I mentioned on my post on the Just Diagnosed forum and I will also state here, that I am planning to formally introduce myself to the Stage IV forums probably today.  I certainly plan to continue to follow the Stage III forum and post here when I can, but I feel as my life gets more involved in these new treatment protocols it is best for me to move those discussions to the Stage IV group.  Anyone is welcome to read the Stage IV posts as they choose, and I will continue to answer questions or provide my input here on the Stage III forum as appropriate.  

    I truly hope everyone here can see the positive side of my 8 years NED after a very locally advanced dx.  I know there are many more women here with much longer periods of NED than me who are STILL NED!  There is ALWAYS reason to hold out hope for a long and quality filled life!  I had just turned 47 at my first BC dx in 2000.  I will turn 61 this year and these last 14 years have been full of a great and wonderful LIFE in spite of the periods of cancer treatment.  Don't forget to LIVE while you are fighting your cancer!  

    Linda

  • babs6287
    babs6287 Member Posts: 2,021
    edited March 2014

    Dear Linda,

    There are no words other than to say we're all praying and fighting for you and hoping you get into the trial ASAP.  Sorry about your kitty Socks, but maybe it happened now so you can concentrate on you.  Please stay the strong and amazing person that you are in the next part of your battle!!!!!

    Hugs

    Babs

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2014

    Linda, I am sending huge HUGGZZ  to you today and don't forget, you have so many friends on this forum!!  But we do understand that you will post things on the forum for stage IV, and I know you will find many there who continue NED for many years, if not decades.  Let's hope, if you decide, that you want to do it, that you can do the trial Paloma.  Luv & more 0000's  --Shelly

  • LindaLou53
    LindaLou53 Member Posts: 929
    edited April 2014

    UPDATE:  Just wanted to let you all know that I am now officially
    enrolled in the Paloma-3 trial! I received my first injections today of
    Faslodex and took my first oral study pill (either Palbociclib or
    Placebo). The shots were not bad at all, time will tell if SE's develop later. I am just glad a treatment plan is
    finally in place!

    So for now I am
    just happy the news is relatively good considering all the
    possibilities and am hopeful this new treatment will be effective. No
    matter the eventual outcome.....it is still just one day at a time as it has always been! I plan to keep counting my blessings every day!

Categories