DIEP 2014

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  • Teacher64
    Teacher64 Member Posts: 840
    edited March 2014

    Yesterday was a challenge. Today has been so much better because I am finally thinking clearly. A week ago, seems forever, I slept through the day while the surgical team did their work. Wow! A week!!

    Wynne, today and tomorrow will be a long days of anticipation, but go in Thursday knowing your are in good hands, getting a good rest, and will wake up a new you, just as those of us who have been through this the last week. The medical folk will help you immensely, allow them. I wondered how someone so young (because they all looked like babies!) could be so capable, but they were and will be for you, too. They kept the ice chips coming, put Chapstick on my lips, and made sure I was not in pain. They only thing better would have been chocolate ice cream.

    Comet, the sentinel node and node removal left me with a sore, numb, and divided pit that is still divided and numb but not sore. Get someone to stretch and work with when your dr approves.

    Dvygril and nihahi, I so identified with the caught drain, drop to the knees so my eyes were really in the back of my head! That happened once in all the weeks of drains. Dvygril, I LOVED drain "balls." I will post a picture of what I made for drains for bmx in December and DIEP last week. Because there was a drain leak, I had to use a lanyard this morning. When I pulled my lounge dress over my head (yep I did) and stood up as much as my bent-over-granny walk allows, I nearly lost it because the nether region drains gave me a certain look I'd never had in my life. I had to sit down and immediately bite the inside of my mouth to keep from laughing at the profile I'd presented. Commercial says if it lasts more than four hours to call a doctor so I must get the belt and pockets washed and dried ASAP.

    Stopped pain drug Sunday night because it and the anesthesia made dreams so bizarre. And the constipation has resolved, relief. 

    In a week, I know I've come a long way. Discomfort when I get too tired. Peroxide, antibiotic ointment and the tiniest bits of tape to hold bandages have solved issues.

    Forgot, when I called dr about drain question. One drain doesn't hold suction and is like one that came out the day I came home, the nurse asked if I'd put the drain back in!I told her it had come out of my body and was hanging down and I don't have MD behind my name! It leaked two days and stopped. 

    I will figure out how to post picture of my belt and pockets when the dog stops snoring while sleeping on my legs.

  • Teacher64
    Teacher64 Member Posts: 840
    edited March 2014

    I got on the scale this morning. Holy moly how can it be that moving fat from point A to B caused me to gain 3 pounds! Guess my pants won't be falling down any time soon!

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2014

    teacher....it's fluid.....fluid......fluid! Don't fret, it'll start to resolve the more mobile you get. Make sure that when you do eat, it's "good for you" stuff, in smaller portion sizes than you likely normally ate. Too much food at once, made me uncomfortable for quite awhile, cause of a tight tummy. It's a good "learning curve" for the future, too.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited March 2014

    annajo,

    I started out with implants.  My exchange was Dec 3 2013.  I had fat grafting, and my PS used fat from my flanks, and a little from my "inner thigh," not the back, or side of thigh, or my tummy.  I asked him why, and he said if my implants didn't work out, which they didn't he would like those areas untouched by lipo because he didn't want any vessels damaged.  It turns out I am grateful he did that because I am now having my DIEP in May, and I need my tummy, and will probably need the other areas for fat grating later.  There are pictures on line that demonstrate where they take the flaps from if, God forbid, you need the other side done.  Look up GAP and TUG flaps.  You should find some good diagrams and photos if you do that, and of course, talk to you surgeon, most importantly

  • Teacher64
    Teacher64 Member Posts: 840
    edited March 2014

    image

    These are the drain pouches I made. Top was for December surgery because I LOVE Christmas. There were four because the pouches were a bit smaller than the ones I made for last week's DIEP which had to be spring looking. They have served me well, except for the leakage issue last night but everything is. Ottos and washable. I used a strip of fabric about 9" by 20", folded it over and stitched on three sides with about 1/4 seam and pulled it through. Then i sewed wide seam tape that I had doubled on the back to hold the belt loop. Next I folded over the raw end and stitched up the sides leaving a flap to fold over. I stitched small pieces of Velcro on the flaps and threaded them through the belting I'd put d rings on. Something that held the drains out of sight and looked nice to me.

  • Wynne50
    Wynne50 Member Posts: 67
    edited March 2014

    teacher.  Genius on the drain pockets.  I wish I could sew.  My friend offered to make me something but I didn't know how to describe what I needed.  I ended up buying something online that I think will work.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited March 2014

    jmb5, do you want all those areas lipo'd? Remember that it is your decision on what to get done. I hate compression so I told my PS to just do my sides. Many ladies here wanted to do more. It's your choice.

  • Teacher64
    Teacher64 Member Posts: 840
    edited March 2014

    What is the purpose of lipo for stage 2? I have some areas of extra skin that I know he's going to remove and sponge bob sides that I know I don't want, but lipo?

  • maggie85
    maggie85 Member Posts: 53
    edited March 2014

    I'm having Stage II next week.  I'm curious to know how much compression is needed for liposuction ... that is, how firm it needs to be.  I am NOT a fan of the dominatrix outfit.  I think its called a Veronique?  They gave me one when I left NOLA after stage one, and I hated that thing.  Its too loose on the leg/thigh part, and I tried it on the other day, and its pretty loose all over.  I like the Spanx much better, and its more firm, in my opinion.  I feel much better in it.   I'm going to ask Dr Trahan if I can use it instead. 

    I think I'll need some fat grafting, as there are areas in both breasts that look funny ... I don't really know, but I think that must be where some fat died.  I am still very uncomfortable in my tummy area.  The area above my scar is puffed out, and it just looks unnatural.  The area below the scar is a bit, too ... I must have gained a few pounds.  I still swell by the end of the day, though, because in the morning, those areas are smaller.  

    I'll be so glad when stage II is over and I can move on :) 

  • jmb5
    jmb5 Member Posts: 532
    edited March 2014

    Jeannie, I'm wondering how much fat is needed. My left (radiated) breast went all wonky after surgery and is now a little smaller and flatter than the right breast. I think the right one looks perfect, so maybe no fat will need to be added there. My PS told me to try to gain some weight before May, so I'm assuming she thinks I don't have enough fat to do what she wants to do. I am not overweight, but I am not toned up either. I have to admit, I love the thought of having thinner thighs, but I am dreading the pain and then possible months of compression. Right now I wear Spanx for my tummy.

  • annajo
    annajo Member Posts: 84
    edited March 2014

    teacher, I have some "divots" that they will need to fill in with fat that they lipo from elsewhere.  The areas above and to the sides of my new breast are a little concave.  I think this is common.

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2014

    Lipo.....The reasons for and against, where to do and how much to do, are as varied as anything else on this topic of recon. Mine is to harvest some fat to do some fat grafting on the upper pole of the breast/chest area. I didn't have any flap/fat necrosis, that area is a bit concave...always was during all the implant years, and my PS is going to try to "blend" that area so it's not quite so indented. Not sure where he's going to harvest from...that's to be discussed, as is what he prefers in post lipo care as far as compression. I'm still not 100% convinced it'll make much difference, but I've decided to give it a try, as he hasn't steered me wrong yet. However, as the time gets closer, and my knowledge stays limited.....to all the lipo veterans out there....anyone know how big a risk there is to have "saggy skin" after the fat cells are removed??? I'm not sure that's a trade-off that would work for me.

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited March 2014

    Maggie85,

    I came out of stage 2 at NOLA in the Veronique.  

    This time is was even larger than the last one! (No weight gain by me, so I imagine it must have been because of swelling with the lipo?). I tell you this, if you speak with NOLA , and they approve Spanx, ask if you should go larger? 

    I was in the Veronique exactly 2 weeks, as told.  First days without I would  feel "different. In lipo areas when I walked, almost made me go back to compression.  I adjusted quickly. I did feel "different" when I did a light jog across the street , to avoid a car, and this was 3 1/2 weeks out of stage 2.    Bruising is almost non-existent (small area, one breast).  

    Still getting "swelly belly" but don't know if it is from stage 1 or stage 2.

    Areas below my scar line were addressed at stage 2, "lipo of pubic" and they addressed some necrosis that was below my scar (felt like little hard spots under the scar). Also addressed the dog ears.

    Told the doc to "go at it" for lipo and he took out that sharpie and went to town.  Glad I did.  He added more volume to my breats, though I do think one is a bit noticeably larger than the other.  Will figure that out at a later time.  My doc was Sullivan.

    Pat

  • annajo
    annajo Member Posts: 84
    edited March 2014

    Maggie, wow, that stage 2 came up fast!  You'll be ready for summer!  Tank tops, swim suits....

  • maggie85
    maggie85 Member Posts: 53
    edited March 2014

    Hey, thanks for replying, Patti ... do you have any areas of saggy skin, like Nihahi referenced?  I wouldn't mind having the lipo in the inner thighs .. but I'm afraid it will look wrinkly and yuk after lipo there.  

    My tummy scar is pretty hard ... and in a couple small areas below it.  Didn't realize it could be necrosis.  I hope after stage two it isn't so rigid there.  Still have numbness on the belly button.  I don't like that area, either - if I lean up against a counter or anything, it feels very sensitive and sore.  I hope Dr Trahan can do something about it, too

  • maggie85
    maggie85 Member Posts: 53
    edited March 2014

    Yes, Annajo ... I was surprised they wanted to schedule it so early.  I would be barely 12 weeks out from stage one when we do stage two.  But, hey ... I am all for it.  I want to get this behind me.  Maybe it's because mine was DCIS and I had nipple sparing and skin sparing, so it wasn't as involved as some others.  

  • melissa2013
    melissa2013 Member Posts: 24
    edited March 2014

    I had a follow-up with the doctor and it seems I have some fluid build up in my right breast. He drained some of it in the office (that was unpleasant!), but feels it is best to surgically drain and clean it out to avoid an infection. So I am going in for a short outpatient procedure Thursday morning to have that done. Not thrilled about the small set back, but happy we caught it before it got infected. I am the first person on his schedule that morning, so I should be done by mid-morning and home in the afternoon. 


    Everything else is healing well. I am up and moving around ok, and we have been eating great because our wonderful family and friends keep delivering delicious meals and treats! 


    Thought for the day

    “The way I see it, if you want the rainbow, you gotta put up with the rain.”

    ~Dolly Parton~

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited March 2014

    I emerged from Stage 2 in a Marena compression garment that zipped and had hooks and eyes.....wore that thing (I had 2) faithfully for 6 weeks.......then switched to spanx/flexees/whatever. 

    I had lipo of pubic, upper belly, flanks, butt, and lower back......I am going to be 60 this year, and when I asked my PS to lipo my thighs, he told me "No"....that I would not like the results........(He may have been right).  The fat was harvested and grafted to the upper poles of both breasts....which were tender for a few weeks, as I felt they had been over-inflated.....but usually about 50% (or more) eventually goes away,and I feel like they look pretty natural...... In my personal experience, the LIPO was the absolute worst......I was sore for WEEKS, and putting that darn compression/torture garment on did NOT help me .....but once it was on, I felt MUCH better.  My PS knows me pretty well.....If he had attempted LIPO before the last scheduled surgery...I would have quit.  The DIEP seemed less painful to me!

    My nipples are "Skate Flaps", and I have areolas made with skin transplanted from my dog-ear areas......Both nipples/areolas are still fairly pink.....but I will eventually have to get tatted.......

  • jmb5
    jmb5 Member Posts: 532
    edited March 2014

    Maggie, I specifically asked my PS about the inner thigh. Mine is a little saggy now and I asked her if the skin would come back. She said "not as well" as other areas. I plan to ask more questions about what she thinks it will look like afterwards. 

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited March 2014

    Movie, and I had our lipo in the same day, and we both whined for quite a while.  The first week I couldn't believe anything could hurt that much, but by week two it was very bearable, and soon after that I forgot about it. I wore compression for about 2 weeks. I had very superficial lipo done, as I think said before, my doc wanted to save it all for the diep he was sure I was going to have eventually.  And, he was right. 

  • lemon68
    lemon68 Member Posts: 684
    edited March 2014

    Wynne- All the best to you. Will be thinking of you. You will do great!

    JMB- so good to see you. What is a Q ball pain pump? I haven't heard of that. If you do Stage 2 in May at the main campus I will be there from the 5th until I don't know, they said 5-7 days. If your there the same time I would love for you to come see me!

    I did a search recently for lipo thighs before and after- lots of pics online. Some of them are beautiful, some not so much. As much as I would love to get mine done I am scared of that flabby skin look staying behind. Some of them look lumpy and wrinkly. The skin there seems  thin at least on my thighs. The fat under the bum cheeks  looks good and seems to bounce back nicer than the inner thigh.

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited March 2014

    maggie85,

    I had lipo of inner thighs, no issue with anything looking saggy, anywhere they did lipo....I had thighs, upper stomach, pubic, dog ears removed, I believe some lipo there? Butt area, though couldn't be specific, I know for sure the upper portion of buttocks.  I was sore, more sore than DIEP, in a different way, but I wasn't miserable.  I was walking to the French quarter from Homewood the day I got out of the hospital with a pain pill.  Didn't even take any pain meds when I went to the airport 3 days later.

    Now bruising?!  Lol. I sure looked like someone beat me!

    As for the 12 week wait....I did mine at 4 months, I felt much better at 4 months than 3 months.  The only reason I picked the 4 month mark was it was "Mardi Gras season" so I took friends and we saw the sights and parades.  Sat in the hallway window of the hospital and watched the floats to by on St, Charles Ave!  I made it work! Lol

    Pat

  • MartyJ
    MartyJ Member Posts: 1,859
    edited March 2014

    Maggie - Dr. M did the inner thighs last August and I wore the dom for 3+ months.  That is where I am noticing the saggy skin.  She only did the flanks the first time and they are great.  Some outer thigh the 3rd time and they are fine.  When I see her for nips in August, I am going to ask her to lipo anything that is lipo-able - upper abdomen, etc.  This is her last chance and I could use a bit more in my Bio boobs.

    I am sure you will awaken in a Dom.  They sure are a pain, but worth it.  The fit will change radically over the first few days after Stage 2 and you will need smaller - just ask the Center.  I also purchased a couple without zippers to wear after the first couple of weeks.  Although they are a challenge to get into, they sure do take you down a dress size or two.

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2014

    ok...time for a personal question, for those who want to answer. Of the ladies who have already had inner thigh lipo....did you have reasonable amounts of fat to donate there, aka...skin was pretty stretched already? I could be very wrong (we often have a "skewed perception" of our size/shape) but I'm thinking the only place he can reasonably harvest on me, is my thighs, inner and outer. Would it look weird just to have the outer done, if the inner skin is most prone to "sag and drag"???? I'm not getting "more confident" with this, I will admit. Shocked

    editted to add...I have read, (can't remember where) that inner thigh fat has the highest "take rate" when used for fat grafting......can NOTHING be simple!

  • Comet08
    Comet08 Member Posts: 13
    edited March 2014

    Thanks Ridley, Goldie, annajo, JMB, teacher and everyone else for the input regarding armpit pain after sentinel node biopsy. Glad to know I'm not the only one, my surgeon didn't have too much to say about it. I am surprised I've not gotten any recommendations for Physical therapy from the Dr. as it does feel like a divided armpit, as if my anatomy has changed. Trying to stretch as much as possible and using baby powder. The new left breast feels swollen and huge and about 2 feet higher on my chest than the right side. I'm hoping to be able to wear a bra soon to even things out. I feel very self conscious going out bra less and completely lopsided. It's two weeks out, I guess I need to be patient.

  • MartyJ
    MartyJ Member Posts: 1,859
    edited March 2014

    Nihahi, my doc says that inner is the best fat for grafting.  Of course it was after the inner thigh graft that I developed fatty necrosis lumps.  You really can't overthink this one.  Just roll with it.  What will be will be and you will be your amazing, beautiful self.

    Comet - patience.  You sound as if you may be pushing things a bit.  Back off on stretches.  You don't want to put undue pressure on those tiny stitches in the little bitty veins.  You can cause other problems you don't want to have.  Things will settle down, but your body has suffered invasive trauma and you really need to give it plenty of time to heal, both inside and outside.  Your doc probably won't let you near PT for another 10 weeks.  You will be swollen for a while.  You may not be even until Stage 2.  Just remember stage 1 is about getting the grafts to take.  Stage 2 is aesthetics.  This is your me time.  Heal slowly and gently. You will be better for it.

  • Teacher64
    Teacher64 Member Posts: 840
    edited March 2014

    Comet08, after getting fills in expanders, I told my ps that I could rest my head on them because they were so high and hard. With just a week of "me" boobs, I've noticed shape and softness is much more natural. 

    I've read all the info about lipo. Before this journey began I'd worked for a couple of years to lose a significant amount of weight and get in shape. When I saw my ps for the first time, I still had jiggle but was told not to lose any weight. I still have crepey skin on arms and inner thighs but had enough belly fat for DIEP. What donor sites can be used besides legs if I need lipo? It's not to early to start my stage 2 question list.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited March 2014

    This is just a rant about doctors, and totally off topic.  When I was in my twenties my mother was dying from stage 4 breast cancer, and I was sitting with her at the hospital as much as I could.  They wanted to put in a feeding tube, and she was refusing. She pulled me close, and told me to go out there and tell them she wanted to go now.  I was crying.  I was young.  I knew it was the right thing to do.  I go out on the floor at Memorial Sloan Kettering and I find the young resident assigned to her case when her regular doc wasn't around.  Mind you, I was crying.  I told him what she said, and he started to cry too.  A doctor moved to tears!!!!! What happens to doctors as they age and the years go by? Do their hearts become hard?  Is it self protection mode they go into?  All I know it that I met the most disconnected miserable doctor yesterday, and he has no business dealing with BC patients.  I left there feeling like I had some nerve even bothering him with my problems.  I even asked him if he was annoyed that I was in pain from my reconstruction, and he said, "yes." Why is he even in practice? I even had bad dreams last night because of my encounter with him.  Never, in all the time I have been sick have I come across such a horrible person.

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited March 2014

    Goldie-

    I'm so sorry for your encounter with that loser. Unfortunately there are a lot of callous and careless people in health care and have zero business working anywhere near patients of any kind. BC patients need extra care and consideration and should be reserved for those with big hearts. Don't let people like that take up any space in your brain, they aren't worth it and don't deserve ANY attention. Easier said than done, I know but your emotional energy is best spent elsewhere. Big hugs girl!!

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited March 2014

    Goldie, what Dyvgrl said! I'm sorry you had that experience. I'm surprised he has any patients. I had a great experience with a new doc last week. I have to have a colonoscopy in May (routine) and I have lots of concerns about IVs and BP monitoring. He listened patiently and included me in discussing the best approach. I still have concerns but feel much better knowing he understands and shares my concerns. I was surprised and relieved to find such a compassionate doctor. They are out there, too!

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